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Volumn 5, Issue 2, 2014, Pages 109-117

'No thanks' - Reasons why pregnant women declined an offer of cystic fibrosis carrier screening

Author keywords

Attitudes; Carrier screening; Cystic fibrosis; Population screening

Indexed keywords

ADULT; AGE DISTRIBUTION; ARTICLE; ATTITUDE TO HEALTH; ATTITUDE TO ILLNESS; ATTITUDE TO PREGNANCY; AUSTRALIA; COMPARATIVE STUDY; CONTROLLED STUDY; CYSTIC FIBROSIS; DECISION MAKING; EDUCATIONAL STATUS; FAMILY HISTORY; FEMALE; GENETIC SCREENING; HEALTH CARE ACCESS; HEALTH CARE COST; HETEROZYGOTE; HUMAN; INCOME; MIDDLE AGED; PATIENT SATISFACTION; PREGNANT WOMAN; PRIORITY JOURNAL; QUESTIONNAIRE;

EID: 84899044838     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-013-0151-3     Document Type: Article
Times cited : (15)

References (29)
  • 1
    • 84899106977 scopus 로고    scopus 로고
    • AusStats2011, 6523.0. Accessed 2 Jul 2012
    • Australian Bureau of Statistics. (2012) Household income and income distribution Australia 2009-2010. AusStats2011, 6523.0. http://www.ausstats.abs. gov.au/ausstats/subscriber.nsf/0/DBE855896D8CA36DCA2578FB0018533C/$File/ 65230-2009-10.pdf. Accessed 2 Jul 2012
    • (2012) Household Income and Income Distribution Australia 2009-2010
  • 2
    • 0037387870 scopus 로고    scopus 로고
    • A genetic screening programme for Tay-Sachs disease and cystic fibrosis for Australian Jewish high school students
    • Barlow-Stewart K, Burnett L, Proos A et al (2003) A genetic screening programme for Tay-Sachs disease and cystic fibrosis for Australian Jewish high school students. J Med Genet 40:e45
    • (2003) J Med Genet , vol.40
    • Barlow-Stewart, K.1    Burnett, L.2    Proos, A.3
  • 3
    • 0029882396 scopus 로고    scopus 로고
    • The views of general practitioners on community carrier screening for cystic fibrosis
    • Boulton M, Cummings C, Williamson R (1996) The views of general practitioners on community carrier screening for cystic fibrosis. Br J Gen Pract 46:299-301 (Pubitemid 26154833)
    • (1996) British Journal of General Practice , vol.46 , Issue.406 , pp. 299-301
    • Boulton, M.1    Cummings, C.2    Williamson, R.3
  • 5
    • 84899059258 scopus 로고    scopus 로고
    • Accessed 16 Oct 2008
    • CFTR Mutation Database (2008) www.genet.sickkids.on.ca/cftr/ StatisticsPage.html. Accessed 16 Oct 2008
    • (2008) CFTR Mutation Database
  • 7
    • 0029767849 scopus 로고    scopus 로고
    • Antenatal screening for cystic fibrosis
    • Cuckle H, Quirke P, Sehmi I et al (1996) Antenatal screening for cystic fibrosis. Br J Obstet Gynaecol 103:795 -799
    • (1996) Br J Obstet Gynaecol , vol.103 , pp. 795-799
    • Cuckle, H.1    Quirke, P.2    Sehmi, I.3
  • 8
    • 0026593955 scopus 로고
    • Cystic fibrosis: Community knowledge and attitudes towards carrier screening and prenatal diagnosis
    • Decruyenaere M, Evers-Kiebooms G, Denayer L, Van den Berghe H (1992) Cystic fibrosis: community knowledge and attitudes towards carrier screening and prenatal diagnosis. Clin Genet 41:189-196
    • (1992) Clin Genet , vol.41 , pp. 189-196
    • Decruyenaere, M.1    Evers-Kiebooms, G.2    Denayer, L.3    Van Den Berghe, H.4
  • 9
    • 0028457233 scopus 로고
    • Attitudes of high school students toward carrier screening and prenatal diagnosis of cystic fibrosis
    • Durfy SJ, Page A, Eng B, Chang PL, Waye JS (1994) Attitudes of high school students toward carrier screening and prenatal diagnosis of cystic fibrosis. J Genet Couns 3:141-155
    • (1994) J Genet Couns , vol.3 , pp. 141-155
    • Durfy, S.J.1    Page, A.2    Eng, B.3    Chang, P.L.4    Waye, J.S.5
  • 10
    • 13444291641 scopus 로고    scopus 로고
    • Implementing prenatal screening for cystic fibrosis in routine obstetric practice
    • DOI 10.1016/j.ajog.2004.07.028
    • Fries MH, Bashford M, Nunes M (2005) Implementing prenatal screening for cystic fibrosis in routine obstetric practice. Am J Obstet Gynecol 192:527-534 (Pubitemid 40214991)
    • (2005) American Journal of Obstetrics and Gynecology , vol.192 , Issue.2 , pp. 527-534
    • Fries, M.H.1    Bashford, M.2    Nunes, M.3
  • 13
    • 0028825529 scopus 로고
    • Public lacks knowledge about genetic testing and gene therapy
    • Hill R, Stanisstreet M, Boyes E, O'Sullivan H (1995) Public lacks knowledge about genetic testing and gene therapy. BMJ 311:1370
    • (1995) BMJ , vol.311 , pp. 1370
    • Hill, R.1    Stanisstreet, M.2    Boyes, E.3    O'Sullivan, H.4
  • 14
    • 0034640666 scopus 로고    scopus 로고
    • Population screening for cystic fibrosis in Western Australia: Community response
    • Honnor M, Zubrick SR, Walpole I, Bower C, Goldblatt J (2000) Population screening for cystic fibrosis in Western Australia: community response. Am J Med Genet 93:198-204
    • (2000) Am J Med Genet , vol.93 , pp. 198-204
    • Honnor, M.1    Zubrick, S.R.2    Walpole, I.3    Bower, C.4    Goldblatt, J.5
  • 15
    • 84899101083 scopus 로고    scopus 로고
    • Position Paper 2010, PS02. Accessed 1 Sept 2011
    • Human Genetics Society of Australasia (2011) Cystic fibrosis population screening position paper. Position Paper 2010, PS02. https://www.hgsa.org.au/ website/wpcontent/uploads/2010/06/2010PS02-CYSTIC-FIBROSIS-POPULATION- SCREENING1.pdf. Accessed 1 Sept 2011
    • (2011) Cystic Fibrosis Population Screening Position Paper
  • 17
    • 0030781298 scopus 로고    scopus 로고
    • Carrier screening for cystic fibrosis: Test acceptance and one year follow-up
    • DOI 10.1002/(SICI)1096-8628(19971231)73:4<378::AID
    • Levenkron JC, Loader S, Rowley PT (1997) Carrier screening for cystic fibrosis: test acceptance and one year follow-up. Am J Med Genet 73:378-386 (Pubitemid 27514778)
    • (1997) American Journal of Medical Genetics , vol.73 , Issue.4 , pp. 378-386
    • Levenkron, J.C.1    Loader, S.2    Rowley, P.T.3
  • 18
    • 0027532425 scopus 로고
    • A preliminary trial of couple screening for cystic fibrosis: Designing an appropriate information leaflet
    • Livingstone J, Axton RA, Mennie M, Gilfillan A, Brock DJ (1993) A preliminary trial of couple screening for cystic fibrosis: designing an appropriate information leaflet. Clin Genet 43:57-62 (Pubitemid 23098438)
    • (1993) Clinical Genetics , vol.43 , Issue.2 , pp. 57-62
    • Livingston, J.1    Axton, R.A.2    Mennie, M.3    Gilfillan, A.4    Brock, D.J.H.5
  • 20
    • 0026438093 scopus 로고
    • Carrier testing for cystic fibrosis: Knowledge and attitudes within a local community
    • Magnay D, Wilson O, el Hait S, Balhamar M, Burn J (1992) Carrier testing for cystic fibrosis: knowledge and attitudes within a local community. J R Coll Physicians Lond 26:69-70
    • (1992) J R Coll Physicians Lond , vol.26 , pp. 69-70
    • Magnay, D.1    Wilson, O.2    El Hait, S.3    Balhamar, M.4    Burn, J.5
  • 21
    • 70349556567 scopus 로고    scopus 로고
    • Population-based carrier screening for cystic fibrosis in Victoria: The first three years experience
    • Massie J, Petrou V, Forbes R et al (2009) Population-based carrier screening for cystic fibrosis in Victoria: the first three years experience. Aust N Z J Obstet Gynaecol 49:484-489
    • (2009) Aust N Z J Obstet Gynaecol , vol.49 , pp. 484-489
    • Massie, J.1    Petrou, V.2    Forbes, R.3
  • 22
    • 0026689076 scopus 로고
    • Prenatal screening for cystic fibrosis
    • Mennie ME, Gilfillan A, Compton M et al (1992) Prenatal screening for cystic fibrosis. Lancet 340:214-216
    • (1992) Lancet , vol.340 , pp. 214-216
    • Mennie, M.E.1    Gilfillan, A.2    Compton, M.3
  • 23
    • 0032914547 scopus 로고    scopus 로고
    • Health beliefs and the intent to use predictive genetic testing for cystic fibrosis carrier status
    • O'Connor BV, Cappelli M (1999) Health beliefs and the intent to use predictive genetic testing for cystic fibrosis carrier status. Psychol Health Med 4:157-169
    • (1999) Psychol Health Med , vol.4 , pp. 157-169
    • O'Connor, B.V.1    Cappelli, M.2
  • 28
    • 84875999464 scopus 로고    scopus 로고
    • Current practice and attitudes of Australian obstetricians toward population-based carrier screening for inherited conditions
    • Stark Z, Massie J, McClaren BJ et al. (2013) Current practice and attitudes of Australian obstetricians toward population-based carrier screening for inherited conditions. Twin Res Hum Genet 16(2):601-607
    • (2013) Twin Res Hum Genet , vol.16 , Issue.2 , pp. 601-607
    • Stark, Z.1    Massie, J.2    McClaren, B.J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.