Life transitions and online health communities: Reflecting on adoption, use, and disengagement

Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW

Volumn , Issue , 2014, Pages 1491-1501

  Massimi, Michael ^a   Bender, Jackie ^b   Witteman, Holly O ^c   Ahmed, Osman Hassan ^d  

^a MICROSOFT RESEARCH   (United Kingdom)

^b UNIVERSITY HEALTH NETWORK   (Canada)

^c UNIVERSITÉ LAVAL   (Canada)

^d UNIVERSITY OF OTAGO   (New Zealand)

Author keywords

Health; Lifespan; Online communities; Social support; Transitions

Indexed keywords

COMPUTER SUPPORTED COOPERATIVE WORK; DESIGN; ELECTRON TRANSITIONS; INTERACTIVE COMPUTER SYSTEMS; ONLINE SYSTEMS; WEBSITES;

END USERS; LIFE SPAN; ON-LINE COMMUNITIES; ONLINE HEALTH COMMUNITIES; SOCIAL SUPPORT;

HEALTH;

EID: 84898975451     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/2531602.2531622     Document Type: Conference Paper

References (43)

1. Ahmed, O. H., Sullivan, S. J., Schneiders, A. G., &Mccrory, P. (2010). iSupport: do social networking sites have a role to play in concussion awareness? Disability &Rehabilitation, 32(22), 1877-1883.
2. Ancker, J.S. et al., Peer-to-peer communication, cancer prevention, and the internet. J. Health Comm., vol. 14, suppl 1, 2009, 38-46.
3. Berkman, L., Glass, T., Brissette, I. &Seeman, T. From social integration to health: Durkheim in the new millennium. Soc. Sci. &Med., 51, 6, 2000, 843-857.
4. Bender, J. L., Hohenadel, J., Wong, J., Katz, J., Ferris, L. E., Shobbrook, C. et al. (2008). What patients with cancer want to know about pain: a qualitative study. Journal of Pain and Symptom Management, 35(2), 177-187.
5. Brandtzæg, P. &Heim, J. User loyalty and online communities: why members of online communities are not faithful. Proc. ITETAIN, 11, 2008.
6. Broom, A. Virtually he@lthy: The impact of internet use on disease experience and the doctor-patient relationship. Qualitative Health Research, 15, 3, 2005, 325-345.
7. Cohen, S., Underwood, L. &Gottlieb, B. Social support measurement and intervention: A guide for health and social scientists. Oxford University Press (2000).
8. Drentea, P. &Moren-Cross, J. Social capital and social support on the web: The case of an internet mother site. Soc. Health &Ill, 27, 7, 2005, 920-943.
9. Eysenbach, G., et al. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. Brit Med J, 328, 2004, 1166.
10. Gladwell, M. How different are dogfighting and football? The New Yorker, http: /www.newyorker.com/reporting/2009/10/19/091019fa-fact-gladwell, 2009.
11. Hartzler, A &Pratt, W. Managing the personal side of health: How patient expertise differs from the expertise of clinicians. J. Med. Internet Research, 13, 3, 2011, 1-18.
12. Hong, Y., Peña-Purcell, N. &Ory, M. Outcomes of online support and resources for cancer survivors: A systematic literature review. Pat. Ed. And Couns, 2011, 1-9.
13. Hoybye, M., Johansen, C., &Tjornhoj-Thomsen, T. Online interaction: Effects of storytelling in an internet breast cancer support group. Psycho-Oncol, 14, 2005, 211-220.
14. Huh, J. &Ackerman, M. Collaborative help in chronic disease management: supporting individualized problems. Proc CSCW 2012, 853-862.
15. Jinguji et al., T. Sport concussion assessment tool-2: Baseline values for high school athletes. Brit. J. Sports Med, 26, 2012, 365-370.
16. Kim, H. and Sundar, S.S. Using interface cues in online health community boards to change impressions and encourage user contribution. Proc. CHI 2011, 599-608.
17. Lagan, M., Sinclair, M., &Kernohan, W.G. Internet use in pregnancy informs women's decision making: A web-based survey. Birth, 37, 2, 2010, 106-115.
18. Lampe, C., Walsh, R. Velasquez, A., &Ozkaya, E. Motivations to participate in online communities. Proc. CHI 2010, 1927-1936.
19. Larsson, M. A descriptive study of the use of the Internet by women seeking pregnancy-related information. Midwifery, 25, 1, 2009, 14-20.
20. Ley, B. Vive les roses!: The architecture of commitment in an online pregnancy and mothering group. J. Computer-Mediated Communication, 12, 4, 2007, 1388-1408.
21. Malik, S. &Coulson, N. Coping with infertility online: An examination of self-help mechanisms in an online infertility support group. Pat. Ed. and Couns., 2010, 1-4
22. Maloney-Krichmar, D. &Preece, J. A multilevel analysis of sociability, usability, and community dynamics in an online health community. TOCHI, 12, 2, ACM Press (2005), 1-32.
23. Massimi, M. (2013, February). Exploring remembrance and social support behavior in an online bereavement support group. In Proc. CSCW 2013 (pp. 1169-1180). ACM.
24. Newman, M., Lauterbach, D., Munson, S.A., Resnick, P., and Morris, M. E. "It's not that I don't have problems, I'm just not putting them on Facebook": Challenges and opportunities in using online social networks for health. Proc. CSCW 2011, 341-350.
25. Owen, J., Bantum, E. &Golant, M. Benefits and challenges experienced by professional facilitators of online support groups for cancer survivors. Psycho-Oncol, 18, 2, 2009, 144-55.
26. Picton, B., et al. Bereavement support groups: Timing of participation and reasons for joining. Omega, 43, 3, 2001, 247-258.
27. Preece, J. Online communities: Designing usability and supporting socialbility. John Wiley &Sons, Inc. (2000).
28. Provvidenza, C., et al. From consensus to action: knowledge transfer, education and influencing policy on sports concussion. Brit. J. Sports Med., 2013.
29. Rogers, S. &Chen, Q. Internet community group participation: Psychosocial benefits for women with breast cancer. J Comput-Mediat Comm, 10, 1, 2005.
30. Sandaunet, A. A space for suffering? Communicating breast cancer in an online self-help context. Qual Health Res., 18, 12, 2008, 1631-1641.
31. Sharf, B. Communicating breast cancer on-line: support and empowerment on the Internet. Women Health, 26, 1997, 65-84.
32. Shaw, B., et al., Experiences of women with breast cancer: exchanging support over the CHESS network. J Health Comm, 5, 2000, 135-59.
33. Swan, M. Emerging patient-driven health care models: An examination of health social networks, consumer personalized medicine and quantified self-tracking. Int. J. Env. Res and Public Health, 6, 2, 2009, 492-52.
34. Tator, C. Sport concussion education and prevention. J. Clinical Sport Psychology, 6, 2012, 293-301.
35. Turner, J.W., Grube, J. A., &Meyers, J. Developing an optimal match within online communities: An exploration of CMC support communities and traditional support. J. Communication 51, 2 (2001), 231-251.
36. van Uden-Kraan, C. et al. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. Qual Health Res, 18, 3, 2008, 405-17, 2008.
37. Vilhauer, R. A qualitative study of the experiences of women with metastatic breast cancer. Pall. Support Care, 6, 2008, 249-58.
38. Weber, M. &Edwards, M. Sport concussion knowledge in the UK general public. Arch. Clin. Neuropsych., 27, 3, 2012, 355-61.
39. Wiebe, D., Comstock, R. &Nance, M. Concussion research: A public health priority. Injury Prevention, 17, 1, 2011, 69-70.
40. Winefield, H. Support provision and emotional work in an Internet support group for cancer patients. Pat Ed &Couns, 62, 2006, 193-7.
41. Witteman et al. Apomediation and women's choices of birth place and attendants.Proc. Medicine 2.0, (2009).
42. Wright, K. Social support within an on-line cancer community. J. App. Comm., 30, 3, 2002, 195-209.
43. Yin, R. K. Case study research. Sage (2009).