Lessons learned from a health record bank start-up

Methods of Information in Medicine

Volumn 53, Issue 2, 2014, Pages 66-72

  Yasnoff, William A ^a,b,c   Shortliffe, E H ^a,d,e,f,g  

^a Health Record Banking Alliance   (United States)

^b National Health Information Infra structure   (United States)

^c JOHNS HOPKINS UNIVERSITY   (United States)

^d ARIZONA STATE UNIVERSITY   (United States)

^e Och Spine at New York Presbyterian Hospitals   (United States)

^f WEILL CORNELL MEDICAL COLLEGE   (United States)

^g NEW YORK ACADEMY OF MEDICINE   (United States)

Author keywords

Business model; Clinical system implementation; Electronic health records; Health information exchange; Health information infrastructure; Health record bank; Personal health records

Indexed keywords

COMPUTER PROGRAM; DATA BASE; ELECTRONIC MEDICAL RECORD; FINANCIAL MANAGEMENT; HEALTH CARE PLANNING; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICES RESEARCH; HUMAN; MEDICAL INFORMATION SYSTEM; MEDICAL RECORD; NONBIOLOGICAL MODEL; ORGANIZATION AND MANAGEMENT; UNITED STATES;

ARIZONA; ATTITUDE OF HEALTH PERSONNEL; DATABASES AS TOPIC; ELECTRONIC HEALTH RECORDS; HEALTH INFORMATION EXCHANGE; HEALTH PLAN IMPLEMENTATION; HUMANS; MARKETING OF HEALTH SERVICES; MEDICAL RECORD LINKAGE; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; MODELS, ORGANIZATIONAL; ORGANIZATIONAL CASE STUDIES; SOFTWARE DESIGN;

EID: 84897935995     PISSN: 00261270     EISSN: None     Source Type: Journal    
DOI: 10.3414/ME13-02-0030     Document Type: Article

References (26)

1. Yasnoff WA. Health Information Infrastructure. In: Shortliffe EH, Cimino JJ, editors. Biomedical Informatics: Computer Applications in Healthcare and Medicine. 4th ed. New York: Springer; 2014. pp 423-441.
2. Adler-Milstein J, Bates DW, Jha AK. Operational Health Information Exchanges Show Substantial Growth, but Long-Term Funding Remains a Concern. Health Aff (Millwood) 2013; 32 (8): 1486-1492.
3. Health Record Banking Alliance (Internet). Principles and Fact Sheet (cited 2013 August 12). Available from http://www.healthbanking.org/docs/ HRBA Principles &Fact Sheet 2008 FINAL.pdf
4. Szolovits P, Doyle J, Long WJ, Kohane I, Pauker SG. Guardian Angel: Patient-Centered Health Information Systems. Technical Report MIT/LCS/ TR-604, Boston: Massachusetts Institute of Technology Laboratory for Computer Science; 1994.
5. Dodd B. An independent "health information bank" could solve health data security issues. British J of Healthcare Computing and Info Management 1997; 14 (8): 2.
6. Ramsaroop P, Ball M. The "bank of health": A model for more useful patient health records. MD Comput 2000; 17: 45-48.
7. Saccavini C, Greco F. Health Current Account Project. Presented at 2004 EuroPAC MIR (Session 7.19).
8. Ball M, Gold J. Banking on health: Personal records and information exchange. Journal of Healthcare Information Management 2006; 20 (2): 71-83.
9. Shabo A. A global socio-economic-medico-legal model for the sustainability of longitudinal health records. Methods Inf Med 2006; 45: 240-245 (Part 1), 498-505 (Part 2).
10. Steinbrook R. Personally controlled online health data - The next big thing in medical care? New Engl J Med 2008; 358: 1653-1656.
11. Mandl KD, Kohane IS. Tectonic shifts in the health information economy. New Engl J Med 2008; 358: 1732-1737.
12. Kidd MR. Personal electronic health records: MySpace or HealthSpace? Brit Med J 2008; 336: 1029-1030.
13. Krist AH and Woolf SH. A vision for patientcentered health information systems. J Amer Med Assoc 2011; 305: 300-301.
14. Yasnoff WA, Sweeney L, Shortliffe EH. Putting health IT on the path to success. J Amer Med Assoc 2013; 309 (10): 989-990.
15. Lapsia V, Lamb K, Yasnoff WA. Where should electronic records for patients be stored? Int J Med Inform 2012; 81 (12): 821-827.
16. U.S. Department of Health and Human Services (Internet). The Privacy Rule (cited 2013 August 12). Available from: http://www.hhs.gov/ocr/ privacy/hipaa/administrative/privacyrule/index. html
17. Health Record Banking Alliance (Internet). Health Record Banking: A Foundation for Myriad Health Information Sharing Models (cited 2013 August 12). Available from: http://www.healthbanking. org/docs/HRBA Business Model White Paper Dec 2012.pdf
18. Turn R, Shapiro NZ, Juncosa ML. Privacy and Security in Centralized vs. Decentralized Database Systems. Policy Sciences 1976; 7: 17-29.
19. Evaristo JR, Desouza KC, Hollister K. Centralization Momentum: The Pendulum Swings Back Again. Comm ACM 2005; 48 (2): 66-71.
20. U.S. Preventive Services Task Force (Internet). Re - commendations (cited 2013 August 12). Available from: http://www.uspreventiveservicestaskforce. org/recommendations.htm
21. Sullivan J. Subject recruitment and retention: Barriers to success. Appl Clin Trials (Internet) April 1, 2004 (cited 2013 August 29). Available from: http://www.appliedclinicaltrialsonline.com/ appliedclinicaltrials/article/articleDetail.jsp?id= 89608
22. Westin AF. How the Public Views Privacy and Health Research: Results of a National Survey Commissioned by the Institute of Medicine Committee on "Health Research and the Privacy of Health Information: The HIPAA Privacy Rule." (Internet) November, 2007 (revised and expanded March, 2008) (cited 2013 August 12). Available from: http://ftc.gov/os/comments/ healthcarewrkshp/534908-00001.pdf
23. Tolven Health (Internet) (cited 2013 October 24). Available from: http://home.tolvenhealth.com/
24. PostgreSQL (Internet) (cited 2013 October 24). Available from: http://www.postgresql.org/
25. U.S. Code of Federal Regulations CFR §170.314(e) (Internet) (cited 2013 October 24). Available from: http://www.ecfr.gov/cgi-bin/text-idx?SID= 3bdb0b9aad3d71b99a6ec3573a21d7c4&node=45: 1.0.1.4.80.3.27.5
26. Blue Button Plus Initiative (Internet) (cited 2013 August 12). http://wiki.siframework.org/ BlueButton+Plus+Initiative