Dying at 23 with 1p36 deletion syndrome: Laura’s family story

Internal Medicine Journal

Volumn 42, Issue 9, 2012, Pages 1037-1039

  Tandy, Patricia A ^a  

^a Emmanuel College   (Australia)

Author keywords

1p36 deletion syndrome; Family care; ICU

Indexed keywords

INFUSION FLUID; OXYGEN;

1P36 DELETION SYNDROME; ADULT; ARTICLE; CARDIOMYOPATHY; CASE REPORT; CENTRAL NERVOUS SYSTEM; CHROMOSOME 1; CHROMOSOME ANALYSIS; CLINICAL FEATURE; COMMUNICATION DISORDER; DEVELOPMENTAL DELAY; DISEASE SEVERITY; DYING; FACIES; FEMALE; GENETIC DISORDER; HEART ARREST; HEART FUNCTION; HOLISTIC CARE; HOSPITAL ADMISSION; HOSPITAL PLANNING; HUMAN; INCIDENCE; INTELLECTUAL IMPAIRMENT; INTENSIVE CARE UNIT; MEDICAL ERROR; MEDICAL STAFF; MENTAL DETERIORATION; NOSE FEEDING; NURSE CONSULTANT; PALLIATIVE THERAPY; POSTTRAUMATIC STRESS DISORDER; PRIORITY JOURNAL; SHORT STATURE; VENTILATOR; WAITING ROOM; WRITTEN COMMUNICATION; YOUNG ADULT; ATTITUDE TO DEATH; CHROMOSOME DELETION; CHROMOSOME DISORDER; CONFLICT; EMOTION; GENETICS; HOSPITAL SUBDIVISIONS AND COMPONENTS; HOSPITALIZATION; HUMAN RELATION; INTERPERSONAL COMMUNICATION; NURSING; PRIVACY; PSYCHOLOGY; SYNDROME; TERMINAL CARE; ULTRASTRUCTURE; FAMILY COUNSELING; ICU; NOTE; PSYCHOLOGICAL ASPECT;

ATTITUDE TO DEATH; CHROMOSOME DELETION; CHROMOSOME DISORDERS; CHROMOSOMES, HUMAN, PAIR 1; DISSENT AND DISPUTES; EMOTIONS; FEMALE; HEART ARREST; HOSPITAL UNITS; HOSPITALIZATION; HUMANS; INTENSIVE CARE UNITS; PALLIATIVE CARE; PRIVACY; PROFESSIONAL-FAMILY RELATIONS; SYNDROME; TERMINAL CARE; TRUTH DISCLOSURE; YOUNG ADULT;

1P36 DELETION SYNDROME; FAMILY CARE; ICU;

EID: 84897928875     PISSN: 14440903     EISSN: 14455994     Source Type: Journal    
DOI: 10.1111/j.1445-5994.2012.02878.x     Document Type: Article

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