Challenging research: Completing participatory social research with children and adolescents in a hospital setting

Health Environments Research and Design Journal

Volumn 7, Issue 2, 2014, Pages 76-91

  Bishop, Katherine ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Evidence based design; Hospital; Methodology; Patients; Pediatric

Indexed keywords

ADOLESCENT; AUSTRALIA; CHILD; EVIDENCE BASED PRACTICE; HEALTH CARE FACILITY; HOSPITAL DESIGN; HUMAN; MEDICAL SOCIOLOGY; PARTICIPATORY RESEARCH; PEDIATRICS; PROCEDURES; QUALITATIVE RESEARCH;

ADOLESCENT; AUSTRALIA; CHILD; COMMUNITY-BASED PARTICIPATORY RESEARCH; EVIDENCE-BASED PRACTICE; HEALTH FACILITY ENVIRONMENT; HOSPITAL DESIGN AND CONSTRUCTION; HUMANS; PEDIATRICS; QUALITATIVE RESEARCH; SOCIOLOGY, MEDICAL;

EID: 84897696794     PISSN: 19375867     EISSN: None     Source Type: Journal    
DOI: 10.1177/193758671400700205     Document Type: Article

References (59)

1. Abma, T. (2006). Patients as partners in a health research agenda setting: The feasibility of a participatory methodology. Evaluation & the Health Professions, 29(4), 424-439.
2. Alderson, P. (1993). Children's consent to surgery. Buckingham, England: Open University Press.
3. Alderson, P. (1994). Researching children's rights to integrity. In B. Mayall (Ed.), Children's childhoods observed and experienced (pp. 45-62). London, England: Falmer Press.
4. Alderson, P. (1995). Listen to children: Children, ethics, and social research. London, England: Barnardo's.
5. Alderson, P. (2000). Young children's rights: Exploring beliefs, principles and practice. London, England: Jessica Kingsley Publishers.
6. Alderson, P. (2005). Designing ethical research with children. In A. Farrell (Ed.), Ethical research with children (pp. 27-36). Buckingham, England: Open University Press.
7. Barker, J., & Weller, S. (2003). "Is it fun?" Developing children centred research methods. International Journal of Sociology and Social Policy, 23(1/2), 33-58.
8. Beatrice, D. F., Thomas, C. P., & Biles, B. (1998). Grant making with impact: The picker/commonwealth patient-centered care program. Health Affairs, 17, 236-244.
9. Birch, J., Curtis, P., & James, A. (2007). Sense and sensibilities: In search of the childfriendly hospital. Built Environment, 33(4) 405-416.
10. Bishop, K. (2009a). Through children's eyes: Understanding how to create supportive health care environments for children and adolescents. World Health Design, April issue, 61-67.
11. Bishop, K. (2009b). Through children's eyes: Experience of a hospital environment. Saarbrucken, Germany: VDM Verlag Dr. Muller.
12. Bishop, K. (2009c). Participating in research: What's it really like for kids?. In K. Bishop & S. Dockett (Eds.), Involving children and adolescents in research: A compendium of papers and reflections from a Think Tank co-hosted by the Australian Research Alliance for Children and Youth and the New South Wales Commission for Children and Young People on 11 November 2008 (pp. 28-37). Woden, ACT, Australia: Australian Research Alliance for Children and Youth.
13. Bishop, K. (2010). Through the eyes of children and adolescents: The components of a supportive hospital environment. Neonatal, Paediatric and Child Health Nursing, 13(2) 17-25.
14. Bishop, K., & Said, I. (2011). Reflections on the challenges of completing participatory qualitative research in a hospital setting in Malaysia and Australia. Asian Journal of Environment-Behaviour Studies, 2(6), 1-11.
15. Bricher, G. (1999). Paediatric nurses, children and the development of trust. Journal of Clinical Nursing, 8, 451-458.
16. Bricher, G. (2000). Children in hospital: Issues of power and vulnerability. Paediatric Nursing, 26(3), 277-282.
17. Carter, B. (2009). Tick box for child? The ethical positioning of children as vulnerable, researchers as barbarians and reviewers as overly cautious. International Journal of Nursing Studies 46, 858-864.
18. Christensen, P., & James, A. (2000). Researching children and childhood: Cultures of communication. In P. Christensen & A. James (Eds.), Research with children: Perspectives and practices (pp. 1-8). London, England: Falmer Press.
19. Corbin, J., & Strauss, A. (2008). Basics of qualitative research. Thousand Oaks, CA: Sage.
20. Darbyshire, P., Schiller, W., & MacDougall, C. (2005). Extending new paradigm childhood research: Meeting the challenges of including younger children. Early Childhood Development and Care, 175(6), 467-472.
21. Farrell, A. (2005). Ethical research with children. Buckingham, England: Open University Press.
22. Fitzgerald, R., & Graham, A. (2009). 'Young people big voice': Reflections on the participation of children & adolescents in a university setting. In K. Bishop & S. Dockett (Eds.), Involving children and adolescents in research. A compendium of papers and reflections from a Think Tank co-hosted by the Australian Research Alliance for Children and Youth and the New South Wales Commission for Children and Adolescents on 11 November 200, (pp. 64-75). Woden, ACT, Australia: Australian Research Alliance for Children and Youth.
23. Fraser, S., Lewis, V., Ding, S., Kellett, M., & Robinson, C. (2004). Doing research with children and young people. London, England: Sage.
24. Graue, M. E., & Walsh, D. J. (1995). Children in context: Interpreting the here and now of children's lives. In J. A. Hatch (Ed.), Qualitative research in early childhood settings (pp. 135-154). Westport, CT: Praeger Publishers.
25. Greig, A., & Taylor, J. (1999). Doing research with children. London: Sage.
26. Grodin, M., & Glantz, L. (1994). Children as research subjects: Science, ethics and law. New York, NY: Oxford University Press.
27. Hill, M., Laybourn, A., & Borlan, M. (1996). Engaging with primary aged children about their emotions and well-being: Methodological considerations. Children & Society, 10(2), 129-144.
28. Hart, R. A. (1997). Children's participation. London, England: Earthscan.
29. James, A., & Christensen, P. M. (2000). Research with children: Perspectives and practices. London, England: Falmer Press.
30. Kellett, M. (2004). Just teach us the skills please, we'll do the rest: Empowering ten year olds as active researchers. Children & Society, 18, 329-343.
31. Kellett, M. (2005). Children as active researchers: A new research paradigm for the 21st century? London, England: ESRC National Centre for Research Methods.
32. Lewis, A., & Lindsay, G. (2000). Researching children's perspectives. Buckingham, England: Open University Press.
33. Lewis, V., Kellett, M., Robinson, C., Fraser, S., & Ding, S. (2004). The reality of research with children and young people. London, England: Sage.
34. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic enquiry. Thousand Oaks, CA: Sage.
35. Lindheim, R., Glaser, H., & Coffin, C. (1972). Changing hospital environments for children. Cambridge, MA: Harvard University Press.
36. Martin, D. P., Diehr, P., Conrad, D. A., Davis, J. H., Leickly, R., & Perrin, E. B. (1998). Randomized control trial of a patient-centered hospital unit. Patient Education and Counseling, 34, 125-133.
37. Martin, D. P., Hunt, J. R., & Conrad, D. A. (1990). The Planetree model hospital project: An example of the patient as partner. Hospital and Health Services Administration, 35, 591-601.
38. Mayall, B. (2000). Conversations with children: Working with generational issues. In P. Christensen & A. James (Eds.), Research with children: Perspectives and practices (pp. 120-135). London, England: Falmer Press.
39. Mayall, B. (2002). Towards a sociology of childhood: Thinking from children's lives. Buckingham, England: Open University Press.
40. Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: A source book of new methods. (2nd ed). Beverley Hills, CA: Sage.
41. Morison, M., Moir, J., & Kwansa, T. (2000). Interviewing children for the purposes of research in primary care. Primary Health Care Research and Development, 1, 113-130.
42. Morrow, E., Boaz, A., Brearley, S., & Ross, F. M. (2011). Handbook of service user involvement in nursing and healthcare research. Chichester, England: Wiley- Blackwell.
43. National Health and Medical Research Council. (2007). National statement on ethical conduct in human research. Canberra, ACT: Author.
44. Oeye, C., Bjelland, A. K., & Skorpen, A. (2007). Doing participant observation in a psychiatric hospital-Research ethics resumed. Social Science & Medicine, 65, 2296-2306.
45. Pole, C., Mizen, P., & Bolton, A. (1999). Realizing children's agency in research: Partners and participants?. International Journal of Social Research Methodology, 2(1), 39-54.
46. Prout, A., & James, A. (1997). A new paradigm for the sociology of childhood? Provenance, promise and problems. In A. James & A. Prout (Eds.), Constructing and reconstructing childhood (pp. 7-32). London, England: Falmer Press.
47. Punch, M. (1994). Politics and ethics in qualitative research. In K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 83-99). Thousand Oaks, CA: Sage.
48. Qvortrup, J. (1997). A voice for children in statistical and social accounting: A plea for children's rights to be heard. In A. James & A. Prout (Eds.), Constructing and reconstructing childhood (pp. 83-104). London, England: Falmer Press.
49. Read, S., & Maslin-Prothero, S. (2010). The involvement of users and careers in health and social research: The realities of inclusion and engagement. Quality Health Research, 21 (5), 704-713.
50. Ryan, G. W., & Bernard, H.R. (2003). Techniques to identify themes. Field methods, 15(1), 85-109.
51. Smith, L., Coleman, V., & Bradshaw, M. (2002). Family-centered care: A practice continuum. In L. Smith, V. Coleman, & M. Bradshaw (Eds.), Family-centered care: Concept, theory and practice. Basingstoke, England: Palgrave.
52. Stalker, K., Carpenter, J., Connors, C., & Phillips, R. (2004). Ethical issues in social research: Difficulties encountered gaining access to children in hospital for research. Child: Care, Health and Development, 30(4), 377-383.
53. Stokols, D. (1992). Establishing and maintaining health environments: Toward a social ecology of healthy promotion. American Psychologist, 47(10), 6-22.
54. Stokols, D. (1996). Translating social ecological theory into guidelines for community health promotion. American Journal of Health Promotion, 10(4), 282-298.
55. Stokols, D. (2000). The social ecological paradigm of wellness promotion. In M. S. Jamner & D. Stokols (Eds.), Promoting human wellness: New frontiers for research, practice and policy (pp. 21-37). Berkeley, CA: University of California Press.
56. Strauss, A. L., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
57. Ulrich, R. S. (1991). Pre-symposium workshop: A theory of supportive design for healthcare facilities. Journal of Health care Interior Design, 9, 3-7.
58. Verderber, S., & Fine, D. J. (2000). Healthcare architecture in an era of radical transformation. New Haven, CT: Yale University Press.
59. Yin, R. K. (1994). Case study research: Design and methods (2nd ed). Thousand Oaks, CA.: Sage.