Genetic Testing of Children: The Need for a Family Perspective

American Journal of Bioethics

Volumn 14, Issue 3, 2014, Pages 26-28

  Lucassen, Anneke ^a   Widdershoven, Guy ^b   Metselaar, Suzanne ^b   Fenwick, Angela ^a   Parker, Michael ^c  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^b VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^c UNIVERSITY OF OXFORD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DECISION MAKING; ETHICS; GENETIC SCREENING; HUMAN; PARENT; PRACTICE GUIDELINE; STANDARD;

DECISION MAKING; GENETIC TESTING; HUMANS; PARENTS; PRACTICE GUIDELINES AS TOPIC;

EID: 84897680557     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265161.2013.879950     Document Type: Article

References (11)

1. Ashcroft, R. E., Lucassen, A. M., Parker, M., Verkerk, M. and Widdershoven, G. 2005. Case analysis in clinical ethics, Cambridge, UK: Cambridge University Press.
2. British Society of Genetic Medicine. 2010. Guidelines on the genetic testing of children. Available at: http://www.bsgm.org.uk/media/678741/gtoc_booklet_final_new.pdf (accessed December 19, 2013)
3. Burton, H. Z. and Zimmern, R. 2013. ACMG recommendations on incidental findings: A commentary. Available at: http://www.phgfoundation.org/news/13713 (accessed December 18, 2013)
4. Clayton, E. W., McCullough, L. B., Biessecker, L. G., Joffe, S., Ross, L. F. and Wolf, S. M. 2014. Addressing the ethical challenges in genetic testing and sequencing of children. American Journal of Bioethics, 14 (3): 3 - 9.
5. Crawford, G., Foulds, N., Fenwick, A., Hallowell, N. and Lucassen, G. 2013. Genetic medicine and incidental findings: it is more complicated than deciding whether to disclose or not. Genetics in Medicine, 15 (11): 896 - 869. doi: 10.1038/gim.2013.165
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7. Human Genetics Commission. 2006. Making babies: Reproductive decisions and genetic technologies. 3 48-3.50, Available at: www.newbornbloodspot.screening.nhs.uk/getdata.php?id=11404
8. Lucassen, A. and Fenwick, A. 2012. Testing children for adult onset conditions: The importance of contextual clinical judgement. Medical Ethics, 38 (9): 531 - 532.
9. Lucassen, A. and Parker, M. 2010. Confidentiality and sharing genetic information with relatives. Lancet, 375: 1507 - 1509.
10. Parker, M. and Lucassen, A. 2004. Genetic information: A joint account?. British Medical Journal, 329: 165 - 167.
11. Presidential Commission for the Study of Bioethical Issues. 2013. Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts. Available at: http://bioethics.gov/node/3183 (accessed December 18, 2013)