Seeing Is Believing? A Mixed-Methods Study Exploring the Quality and Perceived Trustworthiness of Online Information About Chronic Conditions Aimed at Children and Young People

Health Communication

Volumn 29, Issue 5, 2014, Pages 473-482

  McPherson, Amy C ^a   Gofine, Miriam L ^b   Stinson, Jennifer ^c  

^a UNIVERSITY OF TORONTO   (Canada)

^b University of Toronto   (Canada)

^c HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; CHILD; CHRONIC DISEASE; FEMALE; HUMAN; INFORMATION SEEKING; INTERNET; MALE; PATIENT EDUCATION; PSYCHOLOGY; STANDARDS; TRUST; YOUNG ADULT;

ADOLESCENT; CHILD; CHRONIC DISEASE; FEMALE; HUMANS; INFORMATION SEEKING BEHAVIOR; INTERNET; MALE; PATIENT EDUCATION AS TOPIC; TRUST; YOUNG ADULT;

EID: 84897612080     PISSN: 10410236     EISSN: 15327027     Source Type: Journal    
DOI: 10.1080/10410236.2013.768325     Document Type: Article

References (60)

1. Ademiluyi, G., Rees, C., & Sheard, C. (2003). Evaluating the reliability and validity of three tools to assess the quality of health information on the Internet. Patient Education and Counseling, 50, 151-155.
2. Agency for Health Care Policy and Research. 2009. Criteria for assessing the quality of health information on the Internet. Retrieved from http://www.ahrq.gov/qual/hiirpt.htm
3. Al-Bahrani, P., & Plusa, S. (2004). The quality of patient-oriented Internet information on colorectal cancer. Colorectal Disease, 6, 323-326.
4. Anselmo, M., Lash, K., Stieb, E., & Haver, K. (2004). Cystic fibrosis on the Internet: A survey of site adherence to AMA guidelines. Pediatrics, 114, 100-103.
5. Barlow, J., & Ellard, D. (2004). Psycho-educational interventions for children with chronic disease, parents, and siblings: An overview of the research evidence base. Child: Care, Health and Development, 30, 637-645.
6. Barnes, M., Penrod, C., Neiger, B., Merrill, R., Thackeray, R., Eggett, D., Thomas, N. (2003). Measuring the relevance of evaluation criteria among health information seekers on the Internet. Journal of Health Psychology, 8, 71-82.
7. Bee, H., & Boyd, D. (2003). The developing child (10th ed.). Boston, MA: Allyn & Bacon.
8. Bergman, J., Konijeti, R., & Lerman, S. (2007). Myelomeningocele information on the Internet is accessible and of variable quality, and requires a high reading level. Journal of Urology, 177, 1138-1142.
9. Bernstam, E., Walji, M., Sagaram, S., Sagaram, D., Johnson, C., & Meric-Berstam, F. (2008). Commonly cited website quality criteria are not effective at identifying inaccurate online information about breast cancer. Cancer, 112, 1206-1213.
10. Blair, J. (2006). A computer and Internet future: Enabling inclusion? Learning Disability Practice, 9, 32-37.
11. Bland, J., & Altman, D. (1997). Cronbach's alpha. British Medical Journal, 314, 572.
12. Blowers, H., & Bryan, R. (2004). Weaving a library web: A guide to developing children's websites. Chicago, IL: ALA.
13. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101.
14. Buhi, E., Daley, E., Obserne, A., Smith, S., Schneider, T., & Fuhrmann, H. (2010). Quality and accuracy of sexual health information web sites visited by young people. Journal of Adolescent Health, 47, 206-208.
15. Charnock, D., & Shepperd, S. (2004). Learning to DISCERN online: Applying an appraisal tool to health websites in a workshop setting. Health Education Research, 19, 440-446.
16. Charnock, D., & Shepperd, S. (2010). DISCERN online. Radcliffe online. Retrieved from http://www.discern.org.uk/index.php
17. Charnock, D., Shepperd, S., Needham, G., & Gann, R. (1999). DISCERN: An instrument for judging the quality of written consumer health information on treatment choices. Journal of Epidemiology and Community Health, 53, 105-111.
18. Dunn, D.,& Austin, J. (2004). Differential diagnosis and treatment of psychiatric disorders in children and adolescents with epilepsy. Epilepsy and Behavior, 5, S10-S17.
19. Erin Research, Inc. (2005). Young Canadians in a wired world. Media Awareness Network. Retrieved from http://mediasmarts.ca/research-policy
20. Franck, L., Noble, G., & McEvoy, M. (2008). Enquiring minds want to know: Topics requested by users of a children's health information website. Patient Education and Counseling, 72, 168-171.
21. Gray, N., Klein, J., Noyce, P., Sesselberg, T., & Cantrill, J. (2005a). Health information-seeking behavior in adolescence: The place of the Internet. Social Science and Medicine, 60, 1467-1478.
22. Gray, N., Klein, J., Noyce, P., Sesselberg, T., & Cantrill J. (2005b). The Internet: A window on adolescent health literacy. Journal of Adolescent Health, 37, 243.e1-243.e7.
23. Gross Portnoy, L., & Watkins, M. P. (2007). Foundations of clinical research: Applications to practice. Englewood Cliffs, NJ: Prentice Hall.
24. Hanif, F., Read, J. C., Goodacre, J. A., Chaudhry, A., & Gibbs, P. (2009). The role of quality tools in assessing reliability of the Internet for health information. Informatics for Health and Social Care, 34, 231-243.
25. Hansen, D., Derry, H., Resnick, P., & Richardson, C. (2003). Adolescents searching for health information on the Internet: An observational study. Journal of Medical Internet Research, 5, e25.
26. Hargrave, D., Hargrave, U., & Bouffet, E. (2010). Quality of health information on the Internet in pediatric neuro-oncology. Neuro-oncology, 8, 175-182.
27. Ilic, D., Risbridger, G., & Green, S. (2004). Searching the Internet for information on prostate cancer screening: An assessment of quality. Urology, 64, 112-116.
28. Kaicker, J., Borg Debono, V., Dang, W., Buckley, N., & Thabane, L. (2010). Assessment of the quality and variability of health information on chronic pain websites using the DISCERN instrument. BMC Medicine, 8, 59. doi:10.1186/1741-7015-8-59.
29. Kim, P., Eng, T. R., Deering, M. J., & Maxfield, A. (1999). Published criteria for evaluating health related websites: Review. British Medical Journal, 318, 647-649.
30. Kortum, P., Edwards, C., & Richards-Kortum, R. (2008). The impact of inaccurate Internet health information in a secondary school learning environment. Journal of Medical Internet Research, 10, e17.
31. Kunst, H. (2002). Accuracy of information of apparently credible websites: Survey of five common health topics. British Medical Journal, 324, 581-582.
32. Lathouwers, K., de Moor, J., & Didden, R. (2009). Access to and use of Internet by adolescents who have a physical disability: A comparative study. Research in Developmental Disabilities, 30, 702-711.
33. Lau, L., Hargrave, D. R., Bartels, U., Esquembre, C., and Boufett, E. (2006). Childhood brain tumor information on the Internet in the Chinese language. Child's Nervous System, 22, 346-351.
34. Leung, L. (2007). Stressful life events, motives for Internet use, and social support among digital kids. Cyberpsychology, Behavior, and Social Networking, 10, 204-210.
35. Livingstone, S., & Bober, M. (2005). UK children go online: Final report of key project findings. London, UK: London School of Economics and Political Science.
36. McPherson, A., Glazebrook, C., & Smyth, A. (2005). Educational interventions-Computers for delivering education to children with respiratory illness and to their parents. Pediatric Respiratory Review, 6, 215-226.
37. McPherson, A. C., Glazebrook, C., Forster, D., James, C., & Smyth, A. (2006). A randomized, controlled trial of an interactive educational computer package for children with asthma. Pediatrics, 117, 1046-1054.
38. Montgomery, K,. & Chester, J. (2009). Interactive food and beverage marketing: Targeting adolescents in the digital age. Journal of Adolescent Health, 45, S18-S29.
39. Moreno, M., Ralston, J., & Grossman, D. (2009). Adolescent access to online health services: Perils and promise. Journal of Adolescent Health, 44, 244-251.
40. Noriaki, A., Sachiko, O., Taisuke, O., Oishi, M., & Tsuguya, F. (2005). INSULOT: A cellular phone-based edutainment learning tool for children with type 1 diabetes. Diabetes Care, 28, 760.
41. O'Connor, S. (2009). Coping with cancer: A Web-based educational program for early and middle adolescents. Journal of Pediatric Oncology Nursing, 26, 230-241.
42. Pantell, R., & Lewis, C. (1993). Talking with children: How to improve the process and outcomes of medical care. Medical Encounter, 10, 3-7.
43. Rushforth, H. (1999). Practitioner review: Communicating with hospitalised children: Review and application of research pertaining to children's understanding of illness. Journal of Child Psychology and Psychiatry, 40, 683-691.
44. Sawyer, S., Drew, S., Yeo, M., & Britto, M. (2007). Adolescents with a chronic condition: Challenges living, challenges treating. Lancet, 369, 1481-1489.
45. Silberg, W., Lundberg, G., & Musacchio, R. A. (1997). Assessing, controlling, and assuring the quality of medical information on the Internet. Journal of the American Medical Association, 277, 1244-1245.
46. Standen, P. (1998). Playing for real. Mental Health Care, 1, 412-415.
47. StatCounter GlobalStats. (2010). Top 5 search engines from Jul 09 to Aug 10. StatCounter GlobalStats. Retrieved from http://gs.statcounter.com/#search_engine-ww-monthly-200907-201008
48. Stewart, M., Barnfather, A., Magill-Evans, J., Ray, L., & Letourneau, N. (2011). Brief report: An online support intervention: Perceptions of adolescents with physical disabilities. Journal of Adolescence, 34, 795-800.
49. Stieb, E., Wang, J., & Haver, K. (2002). Do food allergy websites satisfy AMA guidelines for health information on the Internet? Journal of Allergy and Clinical Immunology, 109, S309.
50. Stinson, J., Tucker, L., Huber, A., Harris, H., Lin, C., Cohen, L., Prowten, D. (2009). Surfing for Juvenile Idiopathic Arthritis: Perspectives on quality and content of information on the Internet. British Journal of Rheumatology, 36, 1755-1762.
51. Stinson, J. N., White, M., Breakey, V., Chong, A. L., Mak, I., Low, K. K., Low, A. K. (2011). Perspectives on quality and content of information on the Internet for adolescents with cancer. Pediatric Blood & Cancer, 57, 97104.
52. Suris, J.-C., Akre, C., Berchtold, A., Belanger, R., & Michaud, P.-A. (2010). Chronically connected? Internet use among adolescents with chronic conditions. Journal of Adolescent Health, 46, 200-202.
53. Swift, J., & Tischler, V. (2010). Qualitative research in nutrition and dietetics: Getting started. Journal of Human Nutrition and Dietetics, 23, 559-566.
54. The Pew Foundation. (2010). Change in Internet access by age group, 2000-2010. Retrieved from http://www.pewinternet.org/Infographics/2010/Internet-acess-by-age-group-over-time-Update.aspx
55. Tieffenberg, J., Wood, E., Alonso, A., Tossutti, M., & Vicente, M. (2000). A randomised field trial of ACINDES: A child-centred training model for children with chronic illness (asthma and epilepsy). Journal of Urban Health, 77, 280-297.
56. Torpy, J., Lynm, C., & Glass, R. (2007). Chronic disease of children. Journal of the American Medical Association, 207, 2836.
57. Veldtman, G., Matley, S., Kendall, L., Quirk, J., Gibbs, J. L., Parsons, J., Hewison, J. (2000). Illness understanding in children and adolescents with heart disease. Heart, 84, 395-397.
58. Wong, S., & Tam, S.-F. (2010). Effectiveness of a multimedia programme and therapist-instructed training for children with autism. International Journal of Rehabilitation Research, 24, 269-278.
59. Wood, D. (1998). How children think and learn. Oxford, UK: Blackwell.
60. Yeo, M., & Sawyer, S. (2005). Chronic illness and disability. British Medical Journal, 330, 721-723.