Challenges and future directions of the T1D exchange clinic network and registry

Journal of Diabetes Science and Technology

Volumn 7, Issue 4, 2013, Pages 963-969

  Miller, Kellee M ^a   Xing, Dongyuan ^a   Tamborlane, William V ^b   Bergenstal, Richard M ^c   Beck, Roy W ^a  

^a JAEB CENTER FOR HEALTH RESEARCH   (United States)

^b YALE UNIVERSITY   (United States)

^c INTERNATIONAL DIABETES CENTER   (United States)

Author keywords

Clinic registry; Database; Diabetic ketoacidosis; Electronic health record; Severe hypoglycemia; Type 1 diabetes mellitus

Indexed keywords

INSULIN;

ARTICLE; DATA EXTRACTION; ELECTRONIC MEDICAL RECORD; HOSPITAL; HUMAN; INFORMATION PROCESSING; INSULIN DEPENDENT DIABETES MELLITUS; MEDICAL RECORD; PUBLIC HEALTH; QUESTIONNAIRE; REGISTER; STANDARDIZATION; UNITED STATES; ADOLESCENT; ADULT; AGED; CHILD; COMMUNITY CARE; INFANT; MIDDLE AGED; NEWBORN; PRESCHOOL CHILD; STANDARD; STATISTICS; VERY ELDERLY; YOUNG ADULT; DIABETES MELLITUS, TYPE 1; STANDARDS; STATISTICS AND NUMERICAL DATA; TRENDS;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; CHILD, PRESCHOOL; COMMUNITY NETWORKS; DATA COLLECTION; DIABETES MELLITUS, TYPE 1; HUMANS; INFANT; INFANT, NEWBORN; MIDDLE AGED; REGISTRIES; UNITED STATES; YOUNG ADULT;

EID: 84897119635     PISSN: None     EISSN: 19322968     Source Type: Journal    
DOI: 10.1177/193229681300700418     Document Type: Article

References (10)

1. Beck RW, Tamborlane WV, Bergenstal RM, Miller KM, Dubose SN, Hall CA; T1D Exchange Clinic Network. The T1D Exchange clinic registry. J Clin Endocrinol Metab. 2012;97(12):4383-9.
2. Wood JR, Miller KM, Maahs DM, Beck RW, Dimeglio LA, Libman IM, Quinn M, Tamborlane WV, Woerner SE; for the T1D Exchange Clinic Network. Most youth with type 1 diabetes in the T1D Exchange clinic registry do not meet American Diabetes Association or International Society for Pediatric and Adolescent Diabetes clinical guidelines. Diabetes Care. 2013. Epub ahead of print.
3. DiMeglio LA, Miller KM, Beck RW, Buckingham BA, Haller MJ, Mehta SN, Nadeau KJ, Ratliff C, Tamborlane WV; T1D Exchange Clinic Network. Most persons with type 1 diabetes (T1D) do not meet clinical recommendations: an analysis from the T1D Exchange clinic registry. Diabetes. 2012;61 Suppl 1:A357-8.
4. Cengiz E, Xing D, Wong JC, Wolfsdorf JI, Haymond MW, Rewers A, Shanmugham S, Tamborlane WV, Willi SM, Seiple DL, Miller KM, Dubose SN, Beck RW; T1D Exchange Clinic Network. Severe hypoglycemia and diabetic ketoacidosis among youth with type 1 diabetes in the T1D Exchange clinic registry. Pediatr Diabetes. 2013. Epub ahead of print.
5. Klingensmith GJ, Miller KM, Beck RW, Cruz E, Laffel LM, Lipman TH, Schatz DA, Tamborlane WV, Willi SM. Racial disparities in insulin pump therapy and hemoglobin A1c (HbA1c) among children with type 1 diabetes (T1D) enrolled in the T1D Exchange clinic registry. Diabetes. 2012;61 Suppl 1:A358.
6. Miller KM, Beck RW, Bergenstal RM, Goland RS, Haller MJ, McGill JB, Rodriguez H, Simmons JH, Hirsch IB; for the T1D Exchange Clinic Network. Evidence of a strong association between frequency of self-monitoring of blood glucose and hemoglobin A1C levels in T1D Exchange clinic registry participants. Diabetes Care. 2013. Epub ahead of print.
7. Bode BW, Beck RW, DuBose SN, Peters AL, Hirsch IB, Miller KM; T1D Exchange Clinic Network. A comparison of users and nonusers of real-time continuous glucose monitoring with type 1 diabetes in the type 1 diabetes exchange. J Diabetes Sci Technol. 2012;6(2):A18.
8. Weinstock RS, DuBose SN, Aleppo GM, Beck RW, Bergenstal RM, Goland RS, Hirsch IB, Liljenquist DR, Odegard PS, Peters AL. Characteristics of older adults with type 1 diabetes: data from the T1D Exchange. Diabetes. 2012;61 Suppl 1:A357.
9. Daniels M, Tamborlane WV, Miller KM. Frequency of microalbuminuria (MA) among children participating in the T1D Exchange clinic registry. Pediatr Diabetes. 2011;12 Suppl 15:51.
10. SEARCH for Diabetes in Youth Study Group, Liese AD, D'Agostino RB Jr, Hamman RF, Kilgo PD, Lawrence JM, Liu LL, Loots B, Linder B, Marcovina S, Rodriguez B, Standiford D, Williams DE. The burden of diabetes mellitus among US youth: prevalence estimates from the SEARCH for Diabetes in Youth Study. Pediatrics. 2006;118(4):1510-8.