China launched a pilot project to improve its rare disease healthcare levels

Orphanet Journal of Rare Diseases

Volumn 9, Issue 1, 2014, Pages

  Cui, Yazhou ^a   Zhou, Xiaoyan ^a   Han, Jinxiang ^a  

^a BEIJING HOSPITAL   (China)

Author keywords

[No Author keywords available]

Indexed keywords

AORTA ANEURYSM; AORTA DISSECTION; ARTICLE; BECKER MUSCULAR DYSTROPHY; CHINA; CLINICAL DATA REPOSITORY; CLINICAL PATHWAY; DUCHENNE MUSCULAR DYSTROPHY; EPIDERMOLYSIS BULLOSA; FAHR DISEASE; GENETIC DISORDER; GENETIC SCREENING; HEALTH CARE POLICY; HEALTH CARE QUALITY; HEART RIGHT VENTRICLE DYSPLASIA; HEART SARCOMA; HEREDITARY MOTOR SENSORY NEUROPATHY; HUMAN; MARFAN SYNDROME; MEDICAL SERVICE; MYOTONIC DYSTROPHY; NEUROFIBROMATOSIS; OSTEOGENESIS IMPERFECTA; PILOT STUDY; PRACTICE GUIDELINE; PREVENTIVE HEALTH SERVICE; PSEUDOXANTHOMA ELASTICUM; RARE DISEASE; REGISTER; RURAL POPULATION; SECONDARY CARE CENTER; STURGE WEBER SYNDROME; TETHERED CORD SYNDROME; THOMSEN DISEASE; THORACIC AORTA ANEURYSM; TOTAL QUALITY MANAGEMENT; VENTRICULAR NONCOMPACTION;

CHINA; COOPERATIVE BEHAVIOR; HUMANS; PILOT PROJECTS; PRACTICE GUIDELINES AS TOPIC; QUALITY OF HEALTH CARE; RARE DISEASES;

EID: 84896840364     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/1750-1172-9-14     Document Type: Article

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