Newborn screening controversy past, present, and future

JAMA Pediatrics

Volumn 168, Issue 3, 2014, Pages 199-200

  Lewis, Michelle Huckaby ^a  

^a JOHNS HOPKINS UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

PHENYLALANINE;

GENOMICS; HUMAN; NEWBORN; NEWBORN SCREENING; NOTE; PARENTAL CONSENT; PEDIATRICIAN; PHENYLKETONURIA; PRIORITY JOURNAL; TANDEM MASS SPECTROMETRY;

GENOMICS; HUMANS; INFANT, NEWBORN; INFANT, NEWBORN, DISEASES; NEONATAL SCREENING; UNITED STATES;

EID: 84896771742     PISSN: 21686203     EISSN: None     Source Type: Journal    
DOI: 10.1001/jamapediatrics.2013.4980     Document Type: Note

References (7)

1. Centers for Disease Control and Prevention (CDC). Ten great public health achievements - United States, 2001-2010. MMWR Morb MortalWkly Rep. 2011;60(19):619-623
2. Centers for Disease Control and Prevention (CDC). CDC grand rounds: newborn screening and improved outcomes. MMWR Morb Mortal Wkly Rep.2012;61(21):390-393
3. Paul DB. Appendix 5. The history of newborn phenylketonuria screening in the US: final report of the Task Force on Genetic Screening. NationalHuman Genome Research Institute; September1997. http://biotech.law.lsu.edu/research/ fed/tfgt/appendix5.htm. Accessed November 25, 2013
4. Holtzman NA. Expanding newborn screening: how good is the evidence? JAMA. 2003;290(19):2606-2608
5. Kemper AR, Knapp AA, Green NS, Comeau AM, Metterville DR, Perrin JM.Weighing the evidence for newborn screening for early-infantile Krabbedisease. Genet Med. 2010;12(9):539-543
6. Lewis MH. Laboratory specimens and genetic privacy: evolution of legal theory. J Law Med Ethics. 2013;41(Suppl 1):65-68
7. Ross LF. Mandatory versus voluntary consent for newborn screening? Kennedy Inst Ethics J. 2010;20(4):299-328