Approaches and costs for sharing clinical research data

JAMA

Volumn 311, Issue 12, 2014, Pages 1201-1202

  Wilhelm, Erin E ^a   Oster, Emily ^b   Shoulson, Ira ^a  

^a GEORGETOWN UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF CHICAGO   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; CLINICAL RESEARCH; CONFIDENTIALITY; COST; COST EFFECTIVENESS ANALYSIS; DATA ANALYSIS; DATA SHARING; DATA SYNTHESIS; FUNDING; HUMAN; INFORMATION DISSEMINATION; INFORMATION PROCESSING; INFORMATION SEEKING; PRIORITY JOURNAL; PUBLISHING; QUALITY CONTROL; SHORT SURVEY; STANDARDIZATION;

ACCESS TO INFORMATION; ALZHEIMER DISEASE; BIOMEDICAL RESEARCH; COSTS AND COST ANALYSIS; DATABASES, FACTUAL; HUMANS; INFORMATION DISSEMINATION; OWNERSHIP;

EID: 84896601029     PISSN: 00987484     EISSN: 15383598     Source Type: Journal    
DOI: 10.1001/jama.2014.850     Document Type: Short Survey

References (6)

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3. Parkinson's Progression Markers Initiative (PPMI) website. http://www.ppmi-info.org. Accessed January 28, 2014.
4. Alzheimer's Disease Neuroimaging Initiative (ADNI) website. http://www.adni-info.org. Accessed January 28, 2014.
5. Spertus JA. The double-edged sword of open access to research data. Circ Cardiovasc Qual Outcomes. 2012;5(2):143-144.
6. Berman F, Cerf V. Science priorities: who will pay for public access to research data? Science. 2013;341(6146):616-617.