메뉴 건너뛰기




Volumn 22, Issue 2, 2014, Pages 295-305

Child and parent perspectives of the chronic graft-versus-host disease (cGVHD) symptom experience: A concept elicitation study

Author keywords

Chronic graft versus host disease; Patient reported outcomes (PROs); Pediatric; Qualitative; Stem cell transplant; Symptom scale

Indexed keywords

AZATHIOPRINE; CALCINEURIN INHIBITOR; CORTICOSTEROID; ETANERCEPT; INFLIXIMAB; MYCOPHENOLIC ACID 2 MORPHOLINOETHYL ESTER; PENTOSTATIN;

EID: 84896042580     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-013-1957-6     Document Type: Article
Times cited : (16)

References (30)
  • 1
    • 80054832128 scopus 로고    scopus 로고
    • Risk factors associated with increased nonrelapse mortality and with poor overall survival in children with chronic graft-versus-host disease
    • Jacobsohn DA, Arora M, Klein JP et al (2011) Risk factors associated with increased nonrelapse mortality and with poor overall survival in children with chronic graft-versus-host disease. Blood 118(16): 4472-4479
    • (2011) Blood , vol.118 , Issue.16 , pp. 4472-4479
    • Jacobsohn, D.A.1    Arora, M.2    Klein, J.P.3
  • 3
    • 0025963233 scopus 로고
    • Graft-versus-host disease
    • Ferrara JL, Deeg HJ (1991) Graft-versus-host disease. N Engl J Med 324:667-674
    • (1991) N Engl J Med , vol.324 , pp. 667-674
    • Ferrara, J.L.1    Deeg, H.J.2
  • 5
    • 0018973048 scopus 로고
    • Chronic Graft-Versus-Host syndrome in man. A long-term clinicopathologic study of 20 Seattle patients
    • DOI 10.1016/0002-9343(80)90380-0
    • Shulman HM, Sullivan KM, Weiden PL et al (1980) Chronic graft-versus-host syndrome inman.A long-termclinicopathologic study of 20 Seattle patients. Am J Med 69:204-217 (Pubitemid 10036817)
    • (1980) American Journal of Medicine , vol.69 , Issue.2 , pp. 204-217
    • Shulman, H.M.1    Sullivan, K.M.2    Weiden, P.L.3
  • 6
    • 0019351639 scopus 로고
    • Chronic graft-versus-host disease in 52 patients: Adverse natural course and successful treatment with combination immunosuppression
    • Sullivan KM, Shulman HM, Storb R et al (1981) Chronic graft-versus-host disease in 52 patients: adverse natural course and successful treatment with combination immunosuppression. Blood 57: 267-276 (Pubitemid 11174888)
    • (1981) Blood , vol.57 , Issue.2 , pp. 267-276
    • Sullivan, K.M.1    Shulman, H.M.2    Storb, R.3
  • 9
    • 84866177173 scopus 로고    scopus 로고
    • Correlation between NIH composite skin score, patient reported skin score and outcome: Results from the chronic GVHD consortium
    • Jacobsohn DA,Kurland BF, Pidala J et al (2012) Correlation between NIH composite skin score, patient reported skin score and outcome: results from the chronic GVHD consortium. Blood 120(13):2545-2552
    • (2012) Blood , vol.120 , Issue.13 , pp. 2545-2552
    • Jacobsohn, D.A.1    Kurland, B.F.2    Pidala, J.3
  • 10
    • 80054090049 scopus 로고    scopus 로고
    • Global and organ-specific chronic graft-versus-host disease severity according to the 2005 NIH Consensus Criteria
    • Arai S, Jagasia M, Storer B et al (2011) Global and organ-specific chronic graft-versus-host disease severity according to the 2005 NIH Consensus Criteria. Blood 118:4242-4249
    • (2011) Blood , vol.118 , pp. 4242-4249
    • Arai, S.1    Jagasia, M.2    Storer, B.3
  • 15
    • 20544478425 scopus 로고    scopus 로고
    • Preliminary psychometric evaluation of the Child Health Ratings Inventory (CHRIs) and Disease-Specific Impairment Inventory-Hematopoietic Stem Cell Transplantation (DSII-HSCT) in parents and children
    • DOI 10.1007/s11136-005-1004-2
    • Parsons SK, Shih MC, Mayer DK et al (2005) Preliminary psychometric evaluation of the child health ratings inventory (CHRIs) and disease-specific impairment inventory-hematopoietic stem cell transplantation (DSII-HSCT) in parents and children. Qual Life Res 14: 1613-1625 (Pubitemid 40848241)
    • (2005) Quality of Life Research , vol.14 , Issue.6 , pp. 1613-1625
    • Parsons, S.K.1    Shih, M.C.2    Mayer, D.K.3    Barlow, S.E.4    Supran, S.E.5    Levy, S.L.6    Greenfield, S.7    Kaplan, S.H.8
  • 17
    • 0036374452 scopus 로고    scopus 로고
    • Development and validation of a scale to measure symptoms of chronic graft-versus-host disease
    • Lee S, Cook EF, Soiffer R, Antin JH (2002) Development and validation of a scale to measure symptoms of chronic graft-versus-host disease. Biol Blood Marrow Transpl 8:444-452
    • (2002) Biol Blood Marrow Transpl , vol.8 , pp. 444-452
    • Lee, S.1    Cook, E.F.2    Soiffer, R.3    Antin, J.H.4
  • 18
    • 84866166246 scopus 로고    scopus 로고
    • Clinical benefit of response in chronic graft-versus-host disease
    • Inamoto Y, Martin PJ, Chai X et al (2012) Clinical benefit of response in chronic graft-versus-host disease. Biol Blood Marrow Transpl 18(10):1517-1524
    • (2012) Biol Blood Marrow Transpl , vol.18 , Issue.10 , pp. 1517-1524
    • Inamoto, Y.1    Martin, P.J.2    Chai, X.3
  • 19
    • 80055007179 scopus 로고    scopus 로고
    • Content validity-establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: Part 1-eliciting concepts for a New PRO instrument
    • Patrick DL, Burke LB, Gwaltney CJ et al (2011) Content validity-establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: part 1-eliciting concepts for a New PRO instrument. Value in Health 14(8): 967-977
    • (2011) Value in Health , vol.14 , Issue.8 , pp. 967-977
    • Patrick, D.L.1    Burke, L.B.2    Gwaltney, C.J.3
  • 20
    • 84879406265 scopus 로고    scopus 로고
    • Pediatric patient-reported outcome instruments for research to support medical product labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force
    • Matza LS, Patrick D, Riley AW, Alexander JJ, Rajmil L, Pleil AM, Bullinger M (2013) Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force. Value Health 16:461-479
    • (2013) Value Health , vol.16 , pp. 461-479
    • Matza, L.S.1    Patrick, D.2    Riley, A.W.3    Alexander, J.J.4    Rajmil, L.5    Pleil, A.M.6    Bullinger, M.7
  • 22
    • 70349959880 scopus 로고    scopus 로고
    • Qualitative research and content validity: Developing best practices based on science and experience
    • Brod M, Tesler LE, Christensen TL (2009) Qualitative research and content validity: developing best practices based on science and experience. Qual Life Res 18:1263-1278
    • (2009) Qual Life Res , vol.18 , pp. 1263-1278
    • Brod, M.1    Tesler, L.E.2    Christensen, T.L.3
  • 23
    • 0034097460 scopus 로고    scopus 로고
    • Qualitative research in health care: Assessing quality in qualitative research
    • Mays N, Pope C (2000) Qualitative research in health care: assessing quality in qualitative research. Br Med J 320(7226):50
    • (2000) Br Med J , vol.320 , Issue.7226 , pp. 50
    • Mays, N.1    Pope, C.2
  • 24
    • 33646698557 scopus 로고    scopus 로고
    • How many interviews are enough? An experiment with data saturation and variability
    • Guest G, Bunce A, Johnson L (2006) How many interviews are enough? An experiment with data saturation and variability. Field Method 18(1):59-82
    • (2006) Field Method , vol.18 , Issue.1 , pp. 59-82
    • Guest, G.1    Bunce, A.2    Johnson, L.3
  • 25
    • 84896033050 scopus 로고    scopus 로고
    • Comparison between patient-reported and clinician-observed symptoms in oncology
    • PMID: 23047799
    • Xiao C, Polomano R, Bruner DW (2012) Comparison between patient-reported and clinician-observed symptoms in oncology. Cancer Nurs. PMID: 23047799
    • (2012) Cancer Nurs
    • Xiao, C.1    Polomano, R.2    Bruner, D.W.3
  • 26
    • 77950627877 scopus 로고    scopus 로고
    • Determinants of functional performance in long-term survivors of allogeneic hematopoietic stem cell transplantation with chronic graft-versus-host disease (cGVHD)
    • Mitchell SA, Leidy NK, Mooney KH et al (2010) Determinants of functional performance in long-term survivors of allogeneic hematopoietic stem cell transplantation with chronic graft-versus-host disease (cGVHD). Bone Marrow Transpl 45(4):762-769
    • (2010) Bone Marrow Transpl , vol.45 , Issue.4 , pp. 762-769
    • Mitchell, S.A.1    Leidy, N.K.2    Mooney, K.H.3
  • 27
  • 28
    • 33744902589 scopus 로고    scopus 로고
    • Characteristics of health-related self-report measures for children aged three to eight years: A review of the literature
    • DOI 10.1007/s11136-005-4184-x
    • Cremeens J, Eiser C, Blades M (2006) Characteristics of health-related self-report measures for children aged three to eight years: a review of the literature. Qual Life Res 15:739-754 (Pubitemid 43843981)
    • (2006) Quality of Life Research , vol.15 , Issue.4 , pp. 739-754
    • Cremeens, J.1    Eiser, C.2    Blades, M.3
  • 29
    • 33646362296 scopus 로고    scopus 로고
    • Assessment of health-related quality of life in children with cancer: Consistency and agreement between parent and child reports
    • DOI 10.1002/cncr.21871
    • Russell KMW, Hudson M, Long A, Phipps S (2006) Assessment of health-related quality of life in children with cancer: consistency and agreement between parent and child reports. Cancer 106:2267-2274 (Pubitemid 43673250)
    • (2006) Cancer , vol.106 , Issue.10 , pp. 2267-2274
    • Russell, K.M.W.1    Hudson, M.2    Long, A.3    Phipps, S.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.