Psychometric evaluation of the Sibling Cancer Needs Instrument (SCNI): An instrument to assess the psychosocial unmet needs of young people who are siblings of cancer patients

Supportive Care in Cancer

Volumn 22, Issue 3, 2014, Pages 653-665

  Patterson, P ^a   McDonald, F E J ^a   Butow, P ^b   White, K J ^b   Costa, D S J ^b   Millar, B ^a   Bell, M L ^b   Wakefield, C E ^c,d   Cohn, R J ^c,d  

^a CanTeen Australia   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

^c SYDNEY CHILDREN'S HOSPITAL   (Australia)

^d UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Adolescent and young adult; Cancer; Needs; Oncology; Psychosocial; Sibling

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; AUSTRALIA; CANCER PATIENT; CANCER STAGING; CAUCASIAN; CONSTRUCT VALIDITY; DISTRESS SYNDROME; EMOTIONAL STABILITY; FEMALE; HEALTH CARE NEED; HUMAN; LANGUAGE; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; NEW ZEALAND; PRIORITY JOURNAL; PSYCHOMETRY; PSYCHOSOCIAL CARE; RECREATION; SIBLING CANCER NEEDS INSTRUMENT; SIBLING RELATION; SOCIAL SUPPORT; TEST RETEST RELIABILITY; UNITED KINGDOM; UNITED STATES; YOUNG ADULT;

ADOLESCENT; ADOLESCENT PSYCHOLOGY; CHILD; CHILD PSYCHOLOGY; COHORT STUDIES; EMOTIONS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; NEOPLASMS; PSYCHOMETRICS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SIBLINGS; YOUNG ADULT;

EID: 84895866398     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-013-2020-3     Document Type: Article

References (30)

1. CanTeen (2012) Youth Cancer Services. http://www.youthcancer.com.au/ youth-cancer-services.aspx. Accessed 4 Mar 2013
2. Alderfer MA, Long KA, Lown EA, Marsland AL, Ostrowski NL, Hock JM, Ewing LJ (2010) Psychosocial adjustment of siblings of children with cancer: a systematic review. Psycho-Oncology 19(8):789-805
3. Clinical Oncological Society of Australia (2011) Psychosocial management of AYAs diagnosed with cancer: guidance for health professionals. Clinical Oncological Society of Australia, Sydney
4. Long KA, Marsland AL (2011) Family adjustment to childhood cancer: a systematic review. Clin Child Fam Psychol Rev 14:57-88
5. Patterson P, Millar B, Visser A (2008) The needs of young people who have a sibling with cancer: report on the CanTeen National Member Survey for Sibling Members. CanTeen Australia, Sydney
6. Ballard KL (2004) Meeting the needs of siblings of children with cancer. Pediatr Nurs 30(5):394-401
7. Franklin M, Patterson P, Ross-Buckton A (2012) Adolescent and young adult siblings of cancer patients in the Australian health context: an exploration of health providers' perceptions. Symposium title: What can we learn from Australian and United Kingdom (UK) adolescent and young adult (AYA) cancer psychological research and practice: a CanTeen and Teenage Cancer Trust Symposium. In: International Psycho-Oncology Society 14th World Congress, Brisbane, Australia
8. Spinetta JJ, Jankovic M, Eden T, Green D, Martins AG, Wandzura C, Wilbur J, Masera G (1999) Guidelines for assistance to siblings of children with cancer: report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology. Med Pediatr Oncol 33:395-398 (Pubitemid 29449351)
9. Patterson P, Millar B, Visser A (2011) The development of an instrument to assess the unmet needs of young people who have a sibling with cancer: piloting the Sibling Cancer Needs Instrument (SCNI). J Pediatr Oncol Nurs 28(1):16-26
10. Kazak AE, Alderfer MA, Barakat LP, Streisand R, Simms S, Rourke MT, Gallagher P, Cnaan A (2004) Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: a randomized clinical trial. J Fam Psychol 18(3):493-504 (Pubitemid 39288853)
11. Houtzager BA, Grootenhuis MA, Caron HN, Last BF (2005) Sibling self-report, parental proxies, and quality of life: the importance of multiple informants for siblings of a critically ill child. Pediat Hematol Oncol 22(1):25-40 (Pubitemid 40054019)
12. Wang R-H, Martinson IM (1996) Behavioral responses of healthy Chinese siblings to the stress of childhood cancer in the family: a longitudinal study. J Pediatr Nurs 11(6):383-391
13. Kessler RC, Barker PR, Colpe LJ, Epstein JF, Gfroerer JC, Hiripi E, Howes MJ, Normand SLT, Manderscheid RW, Walters EE, Zaslavsky AM (2003) Screening for serious mental illness in the general population. Arch Gen Psychiatry 60(2):184-189. doi:10.1001/archpsyc.60.2.184 (Pubitemid 36173125)
14. Australian Institute of Health and Welfare (2011) Young Australians: their health and wellbeing 2011. AIHW, Canberra
15. Tabachnick BG, Fidell LS (2001) Using multivariate statistics, 4th edn. Pearson, Boston
16. Horn J (1965) A rationale and test for the number of factors in factor analysis. Psychometrika 30(2):179-185
17. Rasch G (1960) Probabilistic models for some intelligence and attainment tests. University of Chicago Press, Chicago
18. Andrich D, Lyne A, Sheridan B, Luo G (2003) RUMM 2020. RUMM Laboratory, Perth
19. Pallant JF, Tennant A (2007) An introduction to the Rasch measurement model: an example using the Hospital Anxiety and Depression Scale (HADS). Br J Clin Psychol 46:1-18. doi:10.1348/014466506x96931 (Pubitemid 46332274)
20. George D, Mallery P (2003) SPSS for Windows step by step: a simple guide and reference. 11.0 update, 4th edn. Alllyn & Bacon, Boston
21. Neal AJ, Hoskin PJ (2009) Clinical oncology: basic principles and practice, 4th edn. Hodder Arnold, London
22. Nunnally J, Bernstein I (1994) Psychometric theory, 3rd edn. McGraw-Hill, New York
23. Hodgkinson K, Butow P, Hobbs KM, Hunt GE, Lo SK, Wain G (2007) Assessing unmet supportive needs in partners of cancer survivors: the development and evaluation of the Cancer Survivors' Partners Unmet Needs measure (CaSPUN). Psychooncology 16:805-813. doi:10.1002/pon.1138 (Pubitemid 47456239)
24. Cohen J (1988) Statistical power analysis for the behavioral sciences, 2nd edn. Lawrence Erlbaum, New Jersey
25. McDonald FEJ, Patterson P, White KJ, Butow P, Bell ML (2013) Predictors of unmet needs and psychological distress in adolescent and young adult siblings of people diagnosed with cancer. (in preparation)
26. Clinton-McHarg T, Carey M, Sanson-Fisher R, D'este C, Shakeshaft A (2012) Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire-Young People (CNQ-YP). Health Qual Life Outcome 10:13. doi:10.1186/1477-7525-10-13
27. Hodgkinson K, Butow P, Hunt GE, Pendlebury S, Hobbs KM, Lo SKain G (2007) The development and evaluation of a measure to assess cancer survivors' unmet supportive care needs: the CaSUN (Cancer Survivors' Unmet Needs measure). Psychooncology 16:796-804 (Pubitemid 47456238)
28. Patterson P, Pearce A, Slawitschka E (2011) The initial development of an instrument to assess the psychosocial needs and unmet needs of young people who have a parent with cancer: piloting the Offspring Cancer Needs Instrument (OCNI). Support Care Cancer 19(8):1165-1174. doi:10.1007/s00520-010-0933-7
29. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P (2000) The unmet supportive care needs of patients with cancer. Cancer 88(1):226-237
30. Australian Institute of Health and Welfare (2011) Cancer in adolescents and young adults in Australia 2011. AIHW, Canberra