Differential impacts of care-giving across three caregiver groups in Canada: End-of-life care, long-term care and short-term care

Health and Social Care in the Community

Volumn 22, Issue 2, 2014, Pages 187-196

  Williams, Allison M ^a   Wang, Li ^a   Kitchen, Peter ^b  

^a MCMASTER UNIVERSITY   (Canada)

^b MCMASTER UNIVERSITY   (Canada)

Author keywords

Care giving; Carers' needs; End of life care; Health; Informal care; Palliative care

Indexed keywords

AGED; CANADA; CAREGIVER; COMPARATIVE STUDY; DEMOGRAPHY; FEMALE; HUMAN; LONG TERM CARE; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PALLIATIVE THERAPY; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; STATISTICS AND NUMERICAL DATA; TERMINAL CARE; VERY ELDERLY;

AGED; AGED, 80 AND OVER; CANADA; CAREGIVERS; DEMOGRAPHY; FEMALE; HUMANS; LONG-TERM CARE; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PALLIATIVE CARE; QUALITY OF LIFE; SURVEYS AND QUESTIONNAIRES; TERMINAL CARE;

EID: 84895024299     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/hsc.12075     Document Type: Article

References (41)

1. Beeson R.A. (2003) Loneliness and depression in spousal caregivers of those with Alzheimer's disease versus non-caregiving spouses. Archives of Psychiatric Nursing 17 (3), 135-143.
2. British Columbia Ministry of Health (2006) A provincial framework for end-of-life care. Available at: http://www.health.gov.bc.ca/library/publications/year/2006/framework.pdf (accessed on 22/6/2013).
3. Health Canada (2002) National Profile of Family Caregivers in Canada - 2002: Final Report. Health Canada, Ottawa.
4. Cannuscio C.C., Colditz G.A., Rimm E.B., Berkman L.F., Jones C.P. & Kawachi I. (2004) Employment status, social ties and caregivers' mental health. Social Science and Medicine 58, 1247-1256.
5. Carretero S., Garcés J., Ródenas F. & Sanjose V. (2009) The informal caregiver's burden of dependent people: theory and empirical review. Archives of Gerontology and Geriatrics 49 (1), 74-79.
6. Carstairs S. (2010) Raising the Bar: A Roadmap of Future Palliative Care in Canada. Senate of Canada, Ottawa.
7. Chappell N. (2011) Population aging and the evolving care needs of older Canadians: an overview of the policy challenges. Available at: http://www.irpp.org/pubs/irppstudy/irpp_study_no21.pdf (accessed on 28/5/2010).
8. Chappell N.L. & Funk L.M. (2011) Social support, caregiving, and aging. Canadian Journal on Aging 30 (3), 355-370.
9. Clemmer S.J., Ward-Griffin C. & Forbes D. (2008) Family members providing home-based palliative care to older adults: the enactment of multiple roles. Canadian Journal on Aging 27 (3), 267-283.
10. Donelan K., Falik M. & DesRoches C.M. (2001) Caregiving: challenges and implications for women's health. Women's Health Issues 11 (3), 185-200.
11. Donelan K., Hill C.A., Hoffman C., Scoles K., Feldman P.H., Levine C. & Gould D. (2002) Challenged to care: informal caregivers in a changing health system. Health Affairs 21 (4), 222-231.
12. Dumont S., Jacobs P., Fassbender K., Anderson D., Turcotte V. & Harel F. (2009) Costs associated with resource utilization during the palliative phase of care: a Canadian perspective. Palliative Medicine 23 (8), 708-717.
13. Funk L., Stajduhar K.I., Toy C., Aoun S., Grande G. & Todd C. (2010) Part 2: home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008). Palliative Medicine 24 (6), 594-607.
14. Gonzalez E.W., Polansky M., Lippa C.F., Walker D. & Feng D. (2011) Family caregivers at risk: who are they? Issues in Mental Health Nursing 32 (8), 528-536.
15. Grunfeld E., Coyle D., Whelan T. et al. (2004) Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. Canadian Medical Association Journal 170 (12), 1795-1801.
16. Hankivsky O., Reid C., Cormier R., Varcoe C., Clark N., Benoit C. & Brotman S. (2010) Exploring the promises of intersectionality for advancing women's health research. International Journal for Equity in Health 9, 5.
17. Koerin B.B., Harrigan M.P. & Secret M. (2008) Eldercare and employed caregivers: a public/private responsibility? Journal of Gerontological Social Work 51 (1-2), 143-161.
18. Levine C. (1999) The loneliness of the long-term caregiver. The New England Journal of Medicine 340, 20.
19. Mangan P.A., Taylor K.L., Yabroff R., Fleming D.A. & Ingham J.M. (2003) Caregiving near the end of life: unmet needs and potential solutions. Palliative and Supportive Care 1 (3), 247-259.
20. Mikkonen J. & Raphael D. (2010) Social determinants of health: the Canadian facts. Available at: http://www.thecanadianfacts.org (accessed on 12/5/2010).
21. Milligan C., Atkinson S., Skinner M. & Wiles J. (2007) Geographies of care: a commentary. New Zealand Geographer 63, 135-140.
22. Navaie-Waliser M., Spriggs A. & Feldman P.H. (2002a) Informal caregiving - differential experiences by gender. Medical Care 40 (12), 1249-1259.
23. Navaie-Waliser M., Feldman P.H., Gould D.A., Levine C., Kuerbis A.N. & Donelan K. (2002b) When the caregiver needs care: the plight of vulnerable caregivers. American Journal of Public Health 92 (3), 409-413.
24. Ostwald S.K. (2009) Who is caring for the caregiver? Promoting spousal caregiver's health. Family and Community Health 32 (S1), S5-S14.
25. Plackett R.L. (1983) Karl Pearson and the chi-squared test. International Statistical Review 51 (1), 59-72.
26. Proot I.M., Abu-Saad H.H., Crebolder H.F.J.M., Goldsteen M., Luker K.A. & Widdershoven G.A. (2003) Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity. Scandinavian Journal of Caring Sciences 17, 113-121.
27. Purkis M.E., Ceci C. & Bironsdottir K. (2008) Patching up the holes: analyzing the work of home care. Canadian Journal of Public Health 99 (S2), S27-S32.
28. Rabow M., Hauser J.M. & Adams J. (2004) Supporting family caregivers at the end of life: "they don't know what they don't know". Journal of the American Medical Association 291 (4), 483-491.
29. Reid R.C., Stajduhar K.I. & Chappell N.L. (2010) The impact of work interferences of family caregiver outcomes. Journal of Applied Gerontology 29 (3), 267-289.
30. Robison J., Fortinsky R., Kleppinger A., Shugrue N. & Porter M. (2009) A broader view of family caregiving: effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. Journal of Gerontology: Social Sciences 64B (6), 788-798.
31. Sawatzky J.E. & Folwer-Kerry S. (2003) Impact of caregiving: listening to the voice of informal caregivers. Journal of Psychiatric and Mental Health Nursing 10 (3), 277-286.
32. Schulz R., Mendelsohn A.B., Haley W.E. et al. (2003) End-of-life care and the effects of bereavement on family caregivers of persons with dementia. New England Journal of Medicine 349 (20), 1936-1942.
33. Schulz R. & Beach S. (1999) Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. Journal of the American Medical Association 282 (23), 2215-2219.
34. Sisk R.J. (2000) Caregiver burden and health promotion. International Journal of Nursing Studies 37, 37-43.
35. Stajduhar K., Martin W.L., Barwich D. & Fyles G. (2008) Factors influencing family caregivers' ability to cope providing end-of-life cancer care at home. Cancer Nursing 31 (1), 77-85.
36. Statistics Canada (2007) General Social Survey Cycle 21: Family., Social Support and Retirement. Ottawa, Ontario.
37. The Canadian Hospice Palliative Care Association (2013) FAQ: what is palliative care? Available at: http://www.chpca.net/family-caregivers/faqs.aspx (accessed on 22/6/2013).
38. Williams A. & Crooks V.A. (2008) Introduction: space, place, and the geographies of women's caregiving work. Gender, Place and Culture 15 (3), 243-247.
39. Williams A., Forbes D.A., Mitchell J., Essar M. & Corbett B. (2003) The influence of income on the experience of informal caregiving: policy implications. Health Care for Women International 24, 280-291.
40. Williams A.M., Eby J., Crooks V.A. et al. (2011) Canada's Compassionate Care Benefit: is it an adequate public health response to addressing the issue of caregiver burden in end-of-life care? BMC Public Health 11 (1), 335.
41. Zarit S.H. (2004) Family care and burden at the end of life. Canadian Medical Association Journal 170 (12), 1811-1812.