Comparing the hub-and-spoke model practices of the lifelines study in the Netherlands and the H3Africa initiative

Biopreservation and Biobanking

Volumn 12, Issue 1, 2014, Pages 13-16

  Bruinenberg, Marcel ^a   Frey, Martin ^b   Napier, Mary ^c   Summers, Annette ^d  

^a UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^b Hamilton Company   (Switzerland)

^c GeneCom Group   (United States)

^d NONE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AFRICA; BIOLOGICAL SPECIMEN BANKS; HUMANS; INFORMATION DISSEMINATION; MODELS, THEORETICAL; NETHERLANDS; SPECIMEN HANDLING;

EID: 84894476647     PISSN: 19475535     EISSN: 19475543     Source Type: Journal    
DOI: 10.1089/bio.2013.0057     Document Type: Article

References (19)

1. Harris J, Burton P, Knoppers BM, et al. Toward a roadmap in global biobanking for health. Eur J Human Genet 2012;20: 1105-1111.
2. Gwinn M, Khoury MJ. Genomics and public health in the United States: Signposts on the translation highway. Comm Genet 2006;9:21-26.
3. Brandsma M, et al. How to kickstart a national biobanking infrastructure - Experiences and prospects of BBMRI-NL. Norsk Epidemiol 2012;21:143-148.
4. Fore I. Use of a global specimen identifier to enable integration of data from multiple sources. Abstract presented at ISBER Annual Meeting May 2013.
5. Rubinstein YR, Groft SC. Biobanks as key players in proteome biomarker discovery in CNS disorders. Abstract presented at ISBER Annual Meeting May 2013.
6. Lifelines study website/study design. Accessed online June 2013. https://www.lifelines.nl/lifelines-research/study-designand- organisation
7. Stolk RP, Rosmalen JG, Postma DS, et al. Universal risk factors for multifactorial diseases: LifeLines: A threegeneration population-based study. Eur J Epidemiol 2008; 23:67-74.
8. Trial Coordination Center at Universitair Medisch Centrum Groningen Website.Projects/UCMG/LifeLines. Accessed online June 2013. http://www.tcc.umcg. nl/en/60/Lifelines.html
9. Hamilton Press Release. ''LifeLines Biobank Buys New BiOS System from Hamilton Storage Technologies'' Feb 6, 2012.
10. Nature Biotechnology blog. Pan African Genomics published online Jan 9, 2013. Doi: 10.1038/nbt0113-10b. Accessed online June 2013.
11. Abayomi A. H3Africa development of H3 Africa biorepositories to facilitate studies on biodiversity, disease and pharmacogenomics of African populations. H3Africa website. Accessed online September 5, 2013. http://www .h3africa.org/research
12. Wellcome Trust, Harnessing Genomic Technologies toward Improving Health in Africa: Opportunities and challenges. 2011. Accessed online May 2013. http://h3africa.org/h3africa- whitepaper.pdf
13. Masimirembwa C, Hasler JA. Pharmacogenetics in Africa, an opportunity for appropriate drug dosage regimens: On the road to personalized healthcare. CPT Pharmacometrics Syst Pharmacol 2013;2:e45.
14. H3Africa website; Research abstracts. Accessed online June 2013. http://www.h3africa.org/research
15. Mulder N. H3AbioNet Project Overview. (Lecture, Inaugural meeting H3Africa. Ababa, Ethiopia October 8-10, 2012).
16. Wellcome Trust Website. First Recipients of research grants to support genomic studies in Africa announced. Published online October 8, 2012. Accessed online June 2013.
17. Institute of Human Virology, Nigeria website. Accessed online June 2013. http://ihvnigeria.org/ihvnweb/webnew/ index.php/about-ihvn/introduction.html.
18. Abimiku, Alash'le G. IHVN H3 African Biorespository (I-HAB) Initiative. Accessed online September 8, 2013. http://www.h3africa.org/research
19. Personal communication between the authors and Pasquale DeBlasio