What should men living with haemophilia need to know? The perspectives of Canadian men with haemophilia

Haemophilia

Volumn 20, Issue 2, 2014, Pages 219-225

  Arnold, E ^a   Lane, S ^a   Webert, K E ^a,b   Chan, A ^a   Walker, I ^a   Tufts, J ^a   Rubin, S ^c   Poon, M C ^d   Heddle, N M ^a,b  

^a MCMASTER UNIVERSITY   (Canada)

^b CANADIAN BLOOD SERVICES   (Canada)

^c HORIZON HEALTH NETWORK   (Canada)

^d UNIVERSITY OF CALGARY   (Canada)

Author keywords

Haemophilia A and B; Knowledge; Males; Survey

Indexed keywords

HAEMOPHILIA A AND B; KNOWLEDGE; MALES; SURVEY;

ADULT; AGED; AGED, 80 AND OVER; CANADA; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SURVEYS; HEMOPHILIA A; HEMOPHILIA B; HUMANS; MALE; MIDDLE AGED; QUESTIONNAIRES; SELF REPORT;

EID: 84894278948     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/hae.12297     Document Type: Article

References (7)

1. Walker I. Canadian Hemophilia Registry 2012: Association of Hemophilia Clinic Directors of Canada (AHCDC). Available at http://www.fhs.mcmaster.ca/chr/data.html. Accessed October 3, 2012.
2. Lindvall K, Colstrup L, Wollter IM et al. Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia. Haemophilia 2006; 12: 47-51.
3. Nazzaro AM, Owens S, Hoots WK, Larson KL. Knowledge, attitudes, and behaviors of youths in the US hemophilia population: results of a national survey. Am J Public Health 2006; 96: 1618-22.
4. Miller KL, Guelcher C, Taylor A. Haemophilia A: patients' knowledge level of treatment and sources of treatment-related information. Haemophilia 2009; 15: 73-7.
5. Lindvall K, Colstrup L, Loogna K, Wollter I, Gronhaug S. Knowledge of disease and adherence in adult patients with haemophilia. Haemophilia 2010; 16: 592-6.
6. Lane S, Arnold E, Webert KE, Chan A, Walker I, Heddle NM. What should Canadian men living with severe hemophilia need to know? The perspectives of Canadian hemophilia healthcare providers. Haemophilia 2013; 19: 503-10.
7. Nilson J, Schachter C, Mulder K et al. A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia. Haemophilia 2012; 18: e120-5.