Disclosure 'downunder': Misadventures in Australian genetic privacy law

Journal of Medical Ethics

Volumn 40, Issue 3, 2014, Pages 168-172

  Bonython, Wendy ^a   Arnold, Bruce ^a  

^a UNIVERSITY OF CANBERRA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; AUTONOMY; CONFIDENTIALITY; CONFIDENTIALITY/PRIVACY; ETHICS; GENETIC INFORMATION; GENETIC PRIVACY; HUMAN; INFORMED CONSENT; LEGAL ASPECT; MEDICAL ETHICS; MEDICOLEGAL ASPECT; PATIENT REFERRAL; PREDICTIVE GENETIC TESTING; STANDARD;

AUTONOMY; CONFIDENTIALITY/PRIVACY; GENETIC INFORMATION; INFORMED CONSENT; PREDICTIVE GENETIC TESTING;

AUSTRALIA; CONFIDENTIALITY; ETHICS, MEDICAL; GENETIC PRIVACY; HUMANS; LEGISLATION, MEDICAL; REFERRAL AND CONSULTATION;

EID: 84894236201     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/medethics-2012-101067     Document Type: Article

References (6)

1. Beauchamp T, Childress J. Principles of biomedical ethics. New York, NY: Oxford University Press, 2009:99.
2. Rehmann-Sutter C, Müller H. Disclosure dilemmas: ethics of genetic prognosis after the 'right to know/not to know' debate. Farnham, UK: Ashgate Publishing Limited, 2009.
3. Andorno R. The right not to know: an autonomy based approach. J Med Ethics 2004;30:435-40.
4. Laurie G. Genetic privacy: a challenge to medico-legal norms. Cambridge, UK: Cambridge University Press, 2002.
5. Taylor M. Genetic data and the law: a critical perspective on privacy protection. Cambridge, UK: Cambridge University Press, 2012.
6. File document: Executive Brief re PIDs 11 and 11A FINAL- dated 15.11.10, para 2, pg 15 (accessed under FOI).