Trends in specialized palliative care for non-cancer patients in Germany - Data from the National Hospice and Palliative Care Evaluation (HOPE)

European Journal of Internal Medicine

Volumn 25, Issue 2, 2014, Pages 187-192

  Hess, Stephanie ^a   Stiel, Stephanie ^a   Hofmann, Sonja ^a   Klein, Carsten ^a   Lindena, Gabriele ^b   Ostgathe, Christoph ^a  

^a UNIVERSITY HOSPITAL ERLANGEN   (Germany)

^b Clinical Analysis   (Germany)

Author keywords

Documentation; End of life; Non cancer; Palliative care

Indexed keywords

AGED; ARTICLE; CEREBROVASCULAR ACCIDENT; CHRONIC OBSTRUCTIVE LUNG DISEASE; FEMALE; FUNCTIONAL STATUS; GENERAL CONDITION; GERMANY; HEALTH CARE ACCESS; HEART FAILURE; HOSPITALIZATION; HUMAN; LOSS OF APPETITE; MAJOR CLINICAL STUDY; MALE; NON CANCER PATIENT; NURSING; PALLIATIVE THERAPY; PATIENT; QUALITY CONTROL; QUALITY OF LIFE; SPINAL MUSCULAR ATROPHY; TERMINAL CARE; VOMITING;

DOCUMENTATION; END-OF-LIFE; NON-CANCER; PALLIATIVE CARE;

AGE DISTRIBUTION; AGED; AGED, 80 AND OVER; CARDIOVASCULAR DISEASES; FEMALE; GASTROINTESTINAL DISEASES; GERMANY; HEALTH SERVICES NEEDS AND DEMAND; HOSPICE CARE; HUMANS; LUNG DISEASES; MALE; MIDDLE AGED; PALLIATIVE CARE; QUALITY ASSURANCE, HEALTH CARE; REFERRAL AND CONSULTATION;

EID: 84894074447     PISSN: 09536205     EISSN: 18790828     Source Type: Journal    
DOI: 10.1016/j.ejim.2013.11.012     Document Type: Article

References (42)

1. World Health Organization Definition of palliative care http://who.int/cancer/palliative/definition/en/ 2002 [accessed 03 January 2013]
2. J. Addington-Hall, W. Fakhoury, and M. McCarthy Specialist palliative care in nonmalignant disease Palliat Med 12 1998 417 427
3. C. Ostgathe, B. Alt-Epping, H. Golla, J. Gaertner, G. Lindena, and L. Radbruch et al. Non-cancer patients in specialized palliative care in Germany: what are the problems? Palliat Med 25 2011 148 152
4. National Hospice and Palliative Care Organization HHPCO facts and figures: hospice care in America 2012
5. X. Gomez-Batiste, C. Caja, J. Espinosa, I. Bullich, M. Martinez-Munoz, and J. Porta-Sales et al. The Catalonia World Health Organization demonstration project for palliative care implementation: quantitative and qualitative results at 20 years J Pain Symptom Manage 43 2012 783 794
6. National Council for Palliative Care National Survey of patient activity data for specialist palliative care services. MDS full report for the year 2010-2011 2012
7. EAPC Task force and the development of palliative care in Europe http://www.eapc-taskforce-development.eu/ 2013 [accessed 12 March 2013]
8. S. Kaasa, K. Torvik, N. Cherny, G. Hanks, and F. DeConno Patient demographics and centre description in European palliative care units Palliat Med 21 2007 15 22
9. J. Boland, and M. Johnson End-of-life care for non-cancer patients BMJ Support Palliat Care 3 2013 2 3
10. R. Piers, S. Pautex, V. Curale, M. Pfisterer, M.C. Van Nes, and L. Rexach et al. Palliative care for the geriatric patient in Europe Z Gerontol Geriatr 43 2010 381 385
11. The National Counsil for Palliative Care and National Care Forum A 2030 vision http://www.ncpc.org.uk/sites/default/files/2030Vision.pdf 2012 [accessed 02 July 2013]
12. S. Murray, M. Kendall, K. Boyd, and A. Sheikh Illness trajectories and palliative care BMJ 330 2005 1007 1011
13. T.H. To, A.G. Greene, M.R. Agar, and D.C. Currow A point prevalence survey of hospital inpatients to define the proportion with palliation as the primary goal of care and the need for specialist palliative care Intern Med J 41 2011 430 433
14. J.M. Gore, C.J. Brophy, and M.A. Greenstone How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer Thorax 55 2000 1000 1006
15. N. O'Leary, and E. Tiernan Survey of specialist palliative care services for noncancer patients in Ireland and perceived barriers Palliat Med 22 2008 77 83
16. HOPE Clara Exposé http://www.hope-clara.de/download/ HOPE2012Expose.pdf 2012 [accessed 03 January 2013]
17. HOPE Clara https://www.hope-clara.de/download/HOPE2009Basisbogen.pdf 2009 [accessed 03 January 2013]
18. S. Stiel, A. Pollok, F. Elsner, G. Lindena, C. Ostgathe, and F. Nauck et al. Validation of the symptom and problem checklist of the German Hospice and Palliative Care Evaluation (HOPE) J Pain Symptom Manage 43 2012 593 605
19. M. Jansky, G. Lindena, and F. Nauck Well-being of patients receiving specialized palliative care at home or in hospital Schmerz 26 2012 46 53
20. L. Radbruch, F. Nauck, M. Fuchs, K. Neuwohner, D. Schulenberg, and G. Lindena What is palliative care in Germany? Results from a representative survey J Pain Symptom Manage 23 2002 471 483
21. L. Radbruch, F. Nauck, C. Ostgathe, F. Elsner, C. Bausewein, and M. Fuchs et al. What are the problems in palliative care? Results from a representative survey Support Care Cancer 11 2003 442 451
22. L. Radbruch, C. Ostgathe, F. Elsner, F. Nauck, C. Bausewein, and M. Fuchs et al. What is the profile of palliative care in Germany. Results of a representative survey Schmerz 18 2004 179 188
23. Deutsche Gesellschaft für Palliativmedizin Entwicklung der stationären Hospize und Palliativstationen einschl. der Einrichtungen für Kinder http://www.dgpalliativmedizin.de/images/stories/Entwicklung- stat-Hospize-und-Palliativstationen-1996-2011.JPG 2011 [accessed 22 November 2013]
24. HOPE Clara Overwiev http://www.hope-clara.de/ 2012 [accessed 03 January 2013]
25. J.P. Solano, B. Gomes, and I.J. Higginson A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease J Pain Symptom Manage 31 2006 58 69
26. J. Gaertner, S. Simon, and R. Voltz Palliative medicine and advanced incurable illness Internist (Berl) 52 2011 20 [22-7]
27. M. Juliao, and A. Barbosa Depression in palliative care: prevalence and assessment Acta Med Port 24 2011 807 818
28. A. Olden, R. Holloway, S. Ladwig, T. Quill, and E. Van Wijngaarden Palliative care needs and symptom patterns of hospitalized elders referred for consultation J Pain Symptom Manage 42 2011 410 418
29. T. Ryan, C. Ingleton, C. Gardiner, C. Parker, M. Gott, and B. Noble Symptom burden, palliative care need and predictors of physical and psychological discomfort in two UK hospitals BMC Palliat Care 12 2013
30. M.P. McCabe, D. Mellor, T.E. Davison, D.J. Hallford, and D.L. Goldhammer Detecting and managing depressed patients: palliative care nurses' self-efficacy and perceived barriers to care J Palliat Med 15 2012 463 467
31. M. Signer Depression in palliative care Ther Umsch 69 2012 99 106
32. J.M. Lazenby, and M.W. Saif Palliative care from the beginning of treatment for advanced pancreatic cancer Highlights from the "2010 ASCO Gastrointestinal Cancers Symposium". Orlando, FL, USA. January 22-24, 2010 JOP 11(2) 2010 154 157
33. J.S. Temel, J.A. Greer, A. Muzikansky, E.R. Gallagher, S. Admane, and V.A. Jackson et al. Early palliative care for patients with metastatic non-small-cell lung cancer N Engl J Med 363 2010 733 742
34. S. Payne, C. Kerr, S. Hawker, D. Seamark, C. Davis, and H. Roberts et al. Community hospitals: an under-recognized resource for palliative care J R Soc Med 97 2004 428 431
35. P.A. Coventry, G.E. Grande, D.A. Richards, and C.J. Todd Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review Age Ageing 34 2005 218 227
36. A. Effiong, and A.I. Effiong Palliative care for the management of chronic illness: a systematic review study protocol BMJ Open 2 2012
37. M. Fallon, and P. Foley Rising to the challenge of palliative care for non-malignant disease Palliat Med 26 2012 99 100
38. C. Gardiner, S. Barnes, N. Small, M. Gott, S. Payne, and D. Seamark et al. Reconciling informed consent and 'do no harm': ethical challenges in palliative-care research and practice in chronic obstructive pulmonary disease Palliat Med 24 2010 469 472
39. C. Farnon, and M. Hofman Factors contributing to late hospice admission and proposals for change Am J Hosp Palliat Care Med 14 1997 212 218
40. J. Harrold, B.A. Rickerson, J.T. Carrol, J. McGrath, K. Morales, and J. Kapo et al. Is the palliative performance scale a useful predictor of mortality in a heterogeneous hospice population? Palliat Med 8 2005 503 509
41. S. Stiel, C. Hollberg, M. Pestinger, C. Ostgathe, F. Nauck, and G. Lindena et al. Subjective definitions of problems and symptoms in palliative care Palliat Care Res Treat 5 2011 1 7
42. M. Hodgkins, D. Albert, and L. Daltroy Comparing patients' and their physicians' assessments of pain Pain 23 1985 273 277