Parents' Decision Making and Their Information Needs Concerning Treatments for Child Anxiety: Implications for Family-Centered Practice

Journal of Family Social Work

Volumn 17, Issue 1, 2014, Pages 51-67

  Mak, Leanne ^a   Hiebert Murphy, Diane ^a   Walker, John R ^a   Altman, Gary ^a  

^a UNIVERSITY OF MANITOBA   (Canada)

Author keywords

child anxiety; family centered practice; parental decision making

Indexed keywords

EID: 84893981696     PISSN: 10522158     EISSN: 15404072     Source Type: Journal    
DOI: 10.1080/10522158.2013.809671     Document Type: Article

References (40)

1. Adams, J. R., Drake, R. E., & Wolford, G. L. (2007). Shared decision-making preferences of people with severe mental illness. Psychiatric Services, 58, 1219 - 1221.
2. American Academy of Pediatrics Committee on Hospital Care. (2003). Family-centred care and the pediatrician's role. Pediatrics, 112, 691 - 696.
3. Angst, D. B., & Deatrick, J. A. (1996). Involvement in health care decisions: Parents and children with chronic illness. Journal of Family Nursing, 2, 174 - 194.
4. Benin, A. L., Wisler-Scher, D. J., Colson, E., Shapiro, E. D., & Holmboe, E. S. (2006). Qualitative analysis of mothers' decision-making about vaccines for infants: The importance of trust. Pediatrics, 117, 1532 - 1541.
5. Brinkman, W. B., Sherman, S. N., Zmitrovich, A. R., Visscher, M. O., Crosby, L. E., Phelan, K. J., Donovan, E. F. (2009). Parental angst making and revisiting decisions about treatment of attention-deficit/hyperactivity disorder. Pediatrics, 124, 580-589.
6. Bylund, C. L., Brown, R., Gueguen, J. A., Diamond, C., Bianculli, J., & Kissane, D. W. (2010). The implementation and assessment of a comprehensive communication skills training curriculum for oncologists. Psycho-Oncology, 19, 583 - 593.
7. Caiata-Zufferey, M., Abraham, A., Sommerhalder, K., & Schulz, P. J. (2010). Online health information seeking in the context of the medical consultation in Switzerland. Qualitative Health Research, 20, 1050 - 1061.
8. dosReis, S., Zito, J. M., Safer, D. J., Soeken, K. L., Mitchell, J. W., & Ellwood, L. C. (2003). Parental perceptions and satisfaction with stimulant medication for attention-deficit/hyperactivity disorder. Journal of Developmental and Behavioural Pediatrics, 24, 155 - 162.
9. Dunst, C. J., & Trivette, C. M. (1996). Empowerment, effective helpgiving practices and family-centered care. Pediatric Nursing, 22, 334 - 343.
10. Dunst, C. J., & Trivette, C. M. (2009). Capacity-building family-systems intervention practices. Journal of Family Social Work, 12, 119 - 143.
11. Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007). Meta-analysis of family-centred helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews, 13, 370 - 378.
12. Franck, L. S., & Callery, P. (2004). Re-thinking family-centred care across the continuum of children's health care. Child: Care, Health & Development, 30, 265 - 277.
13. Frantsve, L. M. E., & Kerns, R. D. (2007). Patient-provider interactions in the management of chronic pain: Current findings within the context of shared medical decision making. Pain Medicine, 8, 25 - 35.
14. Gagnon, E. M., & Recklitis, C. J. (2003). Parents' decision-making preferences in pediatric oncology: The relationship to health care involvement and complementary therapy use. Psycho-Oncology, 12, 442 - 452.
15. Garfield, S., Francis, S. A., & Smith, F. J. (2004). Building concordant relationships with patients starting antidepressant medication. Patient Education and Counselling, 55, 241 - 246.
16. Goldfarb, F. D., Devine, K., Yingling, J. T., Hill, A., Moss, J., & Ogburn, E. S. (2010). Partnering with professionals: Family-centered care from the parent perspective. Journal of Family Social Work, 13, 91 - 99.
17. Gore, G., Johnson, R. J., Caress, A. L., Woodcock, A., & Custovic, A. (2005). The information needs and preferred roles in treatment decision-making of parents caring for infants with atopic dermatitis: A qualitative study. Allergy, 60, 938 - 943.
18. Hallstrom, I., & Elander, G. (2004). Decision-making during hospitalization: Parents' and children's involvement. Journal of Clinical Nursing, 13, 367 - 375.
19. Hamann, J., Mendel, R. T., Fink, B., Pfeiffer, H., Cohen, R., & Kissling, W. (2008). Patients' and psychiatrists' perceptions of clinical decisions during schizophrenia treatment. Journal of Nervous and Mental Disease, 196, 329 - 332.
20. Hill, S. A., & Laugharne, R. (2006). Decision making and information seeking preferences among psychiatric patients. Journal of Mental Health, 15, 75 - 84.
21. Hutchfield, K. (1999). Family-centred care: A concept analysis. Journal of Advanced Nursing, 29, 1178 - 1187.
22. Institute for Patient-, & Family-Centered Care. (2012). Frequently asked questions. Retrieved from http://www.ipfcc.org/faq.html
23. Jackson, C., Cheater, F. M., & Reid, I. (2008). A systematic review of decision support needs of parents making child health decisions. Health Expectations, 11, 232 - 251.
24. Mistler, L. A., & Drake, R. E. (2008). Shared decision making in antipsychotic management. Journal of Psychiatric Practice, 14, 333 - 344.
25. Patton, M. Q. (2002). Qualitative research and evaluation methods (), 3rd ed Thousand Oaks, CA: Sage.
26. Pollock, K., Grime, J., Baker, E., & Mantala, K. (2004). Meeting the information needs of psychiatric inpatients: Staff and patient perspectives. Journal of Mental Health, 13, 389 - 401.
27. Pope, C., Ziebland, S., & Mays, N. (2000). Qualitative research in health care: Analysing qualitative data. British Medical Journal, 320, 114 - 116.
28. Pyke-Grimm, K. A., Degner, L., Small, A., & Mueller, B. (1999). Preferences for participation in treatment decision making and information needs of parents of children with cancer: A pilot study. Journal of Pediatric Oncology Nursing, 16, 13 - 24.
29. Pyke-Grimm, K. A., Stewart, J. L., Kelly, K. P., & Degner, L. F. (2006). Parents of children with cancer: Factors influencing their treatment decision making roles. Journal of Pediatric Nursing, 21, 350 - 361.
30. Ritchie, J., & Spencer, L. (1994). Qualitative data analysis for applied policy research. In A. Bryman & R. Burgess (Eds.), Analyzing qualitative data (pp. 173 - 194). New York, NY: Routledge.
31. Ruccione, K., Kramer, R. F., Moore, I. K., & Perin, G. (1991). Informed consent for treatment of childhood cancer: Factors affecting parents' decision making. Journal of Pediatric Oncology Nursing, 8, 112 - 121.
32. Schauer, C., Everett, A., & del Vecchio, P. (2007). Promoting the value and practice of shared decision-making in mental health care. Psychiatric Rehabilitation Journal, 31, 54 - 61.
33. Seidel, J. V. (1998). Qualitative data analysis. Retrieved from www.qualisresearch.com (originally published as Qualitative Data Analysis, in The Ethnograph v5.0: A Users Guide, Appendix E, 1998, Colorado Springs, CO: Qualis Research.)
34. Sharman, M., Meert, K. L., & Sarnaik, A. P. (2005). What influences parents' decisions to limit or withdraw life support? Pediatric Critical Care Medicine, 6, 513 - 518.
35. Shelton, T. L., Jeppson, E. S., & Johnson, B. H. (1987). Family-centered care for children with special health care needs (), 2nd ed. Bethesda, MD: Association for the Care of Children's Health.
36. Simon, D., Loh, A., Wills, C. E., & Hárter, M. (2006). Depressed patients' perceptions of depression treatment decision-making. Health Expectations, 10, 62 - 74.
37. Substance Abuse, & Mental Health Services Administration. (2010). Shared decision-making in mental health care: Practice, research, and future directions (HHS Publication No. SMA-09-4371). Rockville, MD: Center for Mental Health Services.
38. Swerissen, H. (1999). A qualitative analysis of parental decision making for childhood immunisation. Australian and New Zealand Journal of Public Health, 23, 543 - 545.
39. Taylor, M., Donoghue, T., & Houghton, S. (2006). To medicate or not to medicate? The decision-making process of western Australian parents following their child's diagnosis with an attention deficit hyperactivity disorder. International Journal of Disability, Development and Education, 53, 111 - 128.
40. Thon, A., & Ullrich, G. (2009). Information needs in parents of children with a rheumatic disease. Child: Care, Health, and Development, 35, 41 - 49.