메뉴 건너뛰기




Volumn 29, Issue 4, 2013, Pages 225-231

Healthcare professionals' views on the provision of gastrostomy and noninvasive ventilation to amyotrophic lateral sclerosis patients in England, Wales, and Northern Ireland

Author keywords

Amyotrophic lateral sclerosis; Gastrostomy; Healthcare professionals; Noninvasive ventilation; Palliative care

Indexed keywords

ADULT; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; CLINICAL PRACTICE; FEMALE; GASTROSTOMY; HEALTH PERSONNEL ATTITUDE; HUMAN; MALE; NONINVASIVE VENTILATION; PALLIATIVE THERAPY; PARAMEDICAL PERSONNEL; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; STATISTICS; UNITED KINGDOM; UTILIZATION REVIEW;

EID: 84893900532     PISSN: 08258597     EISSN: None     Source Type: Journal    
DOI: 10.1177/082585971302900404     Document Type: Article
Times cited : (11)

References (25)
  • 1
    • 84857537860 scopus 로고    scopus 로고
    • A proposed staging system for amyotrophic lateral sclerosis
    • Roche JC, Rojas-Garcia R, Scott K.M., et al A proposed staging system for amyotrophic lateral sclerosis. Brain 2012; 135(3 Pt): 847-852.
    • (2012) Brain , vol.135 , Issue.3 PART , pp. 847-852
    • Roche, J.C.1    Rojas-Garcia, R.2    Scott, K.M.3
  • 2
    • 0021809173 scopus 로고
    • Amyotrophic lateral sclerosis: Part 1. Clinical features, pathology, and ethical issues in management
    • Tanden R, Bradley WG Amyotrophic lateral sclerosis: part 1. Clinical features, pathology, and ethical issues in management. Ann Neurol 1985; 18(3): 271-280.
    • (1985) Ann Neurol , vol.18 , Issue.3 , pp. 271-280
    • Tanden, R.1    Bradley, W.G.2
  • 3
    • 84857044928 scopus 로고    scopus 로고
    • EFNS guidelines on the clinical management of amyotrophic later sclerosis (MALS) - Revised report of an EFNS task force
    • Andersen PM, Abrahams S, Borasio G.D., et al EFNS guidelines on the clinical management of amyotrophic later sclerosis (MALS) - revised report of an EFNS task force. Eur J Neurol 2012; 19(3): 360-375.
    • (2012) Eur J Neurol , vol.19 , Issue.3 , pp. 360-375
    • Andersen, P.M.1    Abrahams, S.2    Borasio, G.D.3
  • 4
    • 33646671515 scopus 로고    scopus 로고
    • The effect of noninvasive ventilation on ALS patients and their caregivers
    • Mustfa N, Walsh E, Bryant V., et al The effect of noninvasive ventilation on ALS patients and their caregivers. Neurology 2006; 66(8): 1212-1217.
    • (2006) Neurology , vol.66 , Issue.8 , pp. 1212-1217
    • Mustfa, N.1    Walsh, E.2    Bryant, V.3
  • 5
    • 84893941908 scopus 로고    scopus 로고
    • Motor neurone disease: The use of non-invasive ventilation in the management of motor neurone disease
    • National Institute for Health and Clinical Excellence London: Centre for Clinical Practice at NICE July
    • National Institute for Health and Clinical Excellence. Motor neurone disease: the use of non-invasive ventilation in the management of motor neurone disease. NICE clinical guidelines no. 105. London: Centre for Clinical Practice at NICE; 2010 July.
    • (2010) Nice Clinical Guidelines No. 105
  • 7
    • 84893974755 scopus 로고    scopus 로고
    • Nutrition support for adults: Oral nutrition support, enteral tube feeding and parenteral nutrition
    • National Institute for Health and Clinical Excellence London: National Collaborating Center for Acute Care Feb.
    • National Institute for Health and Clinical Excellence. Nutrition support for adults: oral nutrition support, enteral tube feeding and parenteral nutrition. NICE clinical guidelines no. 32. London: National Collaborating Center for Acute Care; 2006 Feb.
    • (2006) Nice Clinical Guidelines No. 32
  • 9
    • 84857986553 scopus 로고    scopus 로고
    • Non-invasive ventilation in motor neuron disease, an update of current UK practice
    • O'Neill C.L., Williams TL, Peel E.T., et al Non-invasive ventilation in motor neuron disease, an update of current UK practice. J Neurol Neurosurg Psychiatry 2011; 83(4): 371-376.
    • (2011) J Neurol Neurosurg Psychiatry , vol.83 , Issue.4 , pp. 371-376
    • O'Neill, C.L.1    Williams, T.L.2    Peel, E.T.3
  • 10
    • 80054003655 scopus 로고    scopus 로고
    • Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: Variations across UK hospices
    • Oliver D, Campbell C, Sykes N., et al Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: variations across UK hospices. J Palliat Care 2011; 27(3): 198-201.
    • (2011) J Palliat Care , vol.27 , Issue.3 , pp. 198-201
    • Oliver, D.1    Campbell, C.2    Sykes, N.3
  • 11
    • 18844474412 scopus 로고    scopus 로고
    • Respiratory support in spinal muscular atrophy type I: A survey of physician practices and attitudes
    • Hardart MK, Burns JP, Truog RD Respiratory support in spinal muscular atrophy type I: a survey of physician practices and attitudes. Pediatrics 2002; 110(2 Pt 1): e24.
    • (2002) Pediatrics , vol.110 , Issue.2 PART 1
    • Hardart, M.K.1    Burns, J.P.2    Truog, R.D.3
  • 12
    • 84861101667 scopus 로고    scopus 로고
    • International survey of physician recommendation for tracheostomy for spinal muscular atrophy type I
    • Benson RC, Hardy KA, Gildengorin G, et al International survey of physician recommendation for tracheostomy for spinal muscular atrophy type I. Pediatr Pulmonol 2012; 47(6): 606-611.
    • (2012) Pediatr Pulmonol , vol.47 , Issue.6 , pp. 606-611
    • Benson, R.C.1    Hardy, K.A.2    Gildengorin, G.3
  • 13
    • 47249090910 scopus 로고    scopus 로고
    • The importance of a respiratory therapist in the ALS clinic
    • Kareus SA, Kagebein S, Rudnicki SA The importance of a respiratory therapist in the ALS clinic. Amyotroph Lateral Scler 2008; 9(3): 173-176.
    • (2008) Amyotroph Lateral Scler , vol.9 , Issue.3 , pp. 173-176
    • Kareus, S.A.1    Kagebein, S.2    Rudnicki, S.A.3
  • 16
    • 0017360990 scopus 로고
    • The measurement of observer agreement for categorical data
    • Landis JR, Koch GG The measurement of observer agreement for categorical data. Biometrics 1977; 33(1): 159-174.
    • (1977) Biometrics , vol.33 , Issue.1 , pp. 159-174
    • Landis, J.R.1    Koch, G.G.2
  • 17
    • 0036266068 scopus 로고    scopus 로고
    • Outcome of ventilatory support for acute respiratory failure in motor neurone disease
    • Bradley MD, Orrell RW, Clarke J, et al Outcome of ventilatory support for acute respiratory failure in motor neurone disease. J Neurol Neurosurg Psychiatry 2002; 72(6): 752-756.
    • (2002) J Neurol Neurosurg Psychiatry , vol.72 , Issue.6 , pp. 752-756
    • Bradley, M.D.1    Orrell, R.W.2    Clarke, J.3
  • 18
    • 79956370310 scopus 로고    scopus 로고
    • Survival and quality of life after tracheostomy for acute respiratory failure in patients with amyotrophic lateral sclerosis
    • e7-e14
    • Vianello A, Arcaro G, Palmieri A., et al Survival and quality of life after tracheostomy for acute respiratory failure in patients with amyotrophic lateral sclerosis. J Crit Care 2011; 26(3): 329 e7-e14.
    • (2011) J Crit Care , vol.26 , Issue.3 , pp. 329
    • Vianello, A.1    Arcaro, G.2    Palmieri, A.3
  • 19
    • 0028541388 scopus 로고
    • Amyotrophic lateral sclerosis patients' perspectives on use of mechanical ventilation
    • Young JM, Marshall CL, Anderson EJ Amyotrophic lateral sclerosis patients' perspectives on use of mechanical ventilation. Health Soc Work 1994; 19(4): 253-260.
    • (1994) Health Soc Work , vol.19 , Issue.4 , pp. 253-260
    • Young, J.M.1    Marshall, C.L.2    Anderson, E.J.3
  • 20
    • 33645117356 scopus 로고    scopus 로고
    • Management of respiration in MND/ALS patients: An evidence based review
    • Heffernan C, Jenkinson C, Holmes T., et al Management of respiration in MND/ALS patients: an evidence based review. Amyotroph Lateral Scler 2006; 7(1): 5-15.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.1 , pp. 5-15
    • Heffernan, C.1    Jenkinson, C.2    Holmes, T.3
  • 21
    • 84893982886 scopus 로고    scopus 로고
    • Exploring issues for doctors surrounding the withdrawal of NIV at the request of patients with MND
    • Rowe-Haynes C., Faull C, Oliver D. Exploring issues for doctors surrounding the withdrawal of NIV at the request of patients with MND. BMJ Support Palliat Care 2012; 2: A34.
    • (2012) Bmj Support Palliat Care , vol.2
    • Rowe-Haynes, C.1    Faull, C.2    Oliver, D.3
  • 22
    • 33846220577 scopus 로고    scopus 로고
    • Nutritional advice and treatment by dieticians to patients with amyotrophic lateral sclerosis/motor neurone disease: A survey of current practice in England, Wales, Northern Ireland and Canada
    • Rio A, Cawadias E. Nutritional advice and treatment by dieticians to patients with amyotrophic lateral sclerosis/motor neurone disease: a survey of current practice in England, Wales, Northern Ireland and Canada. J Hum Nutr Diet 2007; 20(1): 3-13.
    • (2007) J Hum Nutr Diet , vol.20 , Issue.1 , pp. 3-13
    • Rio, A.1    Cawadias, E.2
  • 23
    • 84866175141 scopus 로고    scopus 로고
    • ALS and frontotemporal dysfunction: A review
    • Epub 2012 Aug 7
    • Achi EY, Rudnicki SA ALS and frontotemporal dysfunction: a review. Neurol Res Int 2012: 806-306. Epub 2012 Aug 7.
    • (2012) Neurol Res Int , pp. 806-306
    • Achi, E.Y.1    Rudnicki, S.A.2
  • 24
    • 84860729454 scopus 로고    scopus 로고
    • Neurobehavioral dysfunction in ALS has a negative effect on outcome and use of PEG and NIV
    • Chio A, Hardi A, Cammarosano S., et al Neurobehavioral dysfunction in ALS has a negative effect on outcome and use of PEG and NIV. Neurology 2012; 78(14): 1085-1089.
    • (2012) Neurology , vol.78 , Issue.14 , pp. 1085-1089
    • Chio, A.1    Hardi, A.2    Cammarosano, S.3
  • 25
    • 33645065912 scopus 로고    scopus 로고
    • The effects of behavioural and executive dysfunction on the course of ALS
    • Olney RK, Murphy J, Forshew D., et al The effects of behavioural and executive dysfunction on the course of ALS. Neurology 2005; 65(11): 1774-1777.
    • (2005) Neurology , vol.65 , Issue.11 , pp. 1774-1777
    • Olney, R.K.1    Murphy, J.2    Forshew, D.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.