메뉴 건너뛰기




Volumn 58, Issue 4, 2014, Pages 368-380

Respecting autonomy in the end-of-life care of people with intellectual disabilities: A qualitative multiple-case study

Author keywords

Autonomy; Decision making; End of life care; Ethics; Intellectual disabilities; Truth telling

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CAREGIVER SUPPORT; CLINICAL ARTICLE; FEMALE; GENERAL PRACTITIONER; HEALTH PERSONNEL ATTITUDE; HELP SEEKING BEHAVIOR; HUMAN; INTELLECTUAL IMPAIRMENT; INTERPERSONAL COMMUNICATION; MALE; MEDICAL ETHICS; MIDDLE AGED; NURSE; PATIENT AUTONOMY; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SOCIAL WORKER; TERMINAL CARE;

EID: 84893787248     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/jir.12023     Document Type: Article
Times cited : (37)

References (34)
  • 3
    • 0030230337 scopus 로고    scopus 로고
    • Shared decision making: the ethics of caring and best respect
    • Beltran J. E. (1996) Shared decision making: the ethics of caring and best respect. Bioethics Forum 12, 17-25.
    • (1996) Bioethics Forum , vol.12 , pp. 17-25
    • Beltran, J.E.1
  • 5
    • 56749163799 scopus 로고    scopus 로고
    • Palliative care for adults with developmental disabilities
    • Ellison N. M. & Rosielle D. (2008) Palliative care for adults with developmental disabilities. Journal of Palliative Medicine 11, 1262-1263.
    • (2008) Journal of Palliative Medicine , vol.11 , pp. 1262-1263
    • Ellison, N.M.1    Rosielle, D.2
  • 7
    • 0032244781 scopus 로고    scopus 로고
    • Use of advance directives: facilitating health care decisions by adults with mental retardation and their families
    • Friedman R. I. (1998) Use of advance directives: facilitating health care decisions by adults with mental retardation and their families. Mental Retardation 36, 444-456.
    • (1998) Mental Retardation , vol.36 , pp. 444-456
    • Friedman, R.I.1
  • 9
    • 0032996510 scopus 로고    scopus 로고
    • Mortality and morbidity among older adults with intellectual disability: health services considerations
    • Janicki M. P., Dalton A. J., Henderson C. M. & Davidson P. W. (1999) Mortality and morbidity among older adults with intellectual disability: health services considerations. Disability Rehabilitation 21, 284-294.
    • (1999) Disability Rehabilitation , vol.21 , pp. 284-294
    • Janicki, M.P.1    Dalton, A.J.2    Henderson, C.M.3    Davidson, P.W.4
  • 11
    • 84876337002 scopus 로고    scopus 로고
    • Meeting the end of life needs of older adults with intellectual disabilities
    • In: (eds E. Chang & A. Johnson ) - Intech, Rijeka, Croatia.
    • McCallion P., McCarron M., Fahey-McCarthy E. & Connaire K. (2012) Meeting the end of life needs of older adults with intellectual disabilities. In: Contemporary and Innovative Practice in Palliative Care (eds E. Chang & A. Johnson ), pp. 255-270. Intech, Rijeka, Croatia.
    • (2012) Contemporary and Innovative Practice in Palliative Care , pp. 255-270
    • McCallion, P.1    McCarron, M.2    Fahey-McCarthy, E.3    Connaire, K.4
  • 12
    • 84893755980 scopus 로고    scopus 로고
    • Tegenstrijdige belangen in de zorg: een zorgethische benadering. Lezing in het kader van de Studiedag te Nieuw Wehl 'Tegenstrijdige belangen in de zorg' (Conflicting interests in health care: a care-ethics approach), commissie ethiek van de Passerel, Zozijn en Fatima (verstandelijk gehandicaptenzorg).
    • Maeckelberghe E. L. M. (2003) Tegenstrijdige belangen in de zorg: een zorgethische benadering. Lezing in het kader van de Studiedag te Nieuw Wehl 'Tegenstrijdige belangen in de zorg' (Conflicting interests in health care: a care-ethics approach), commissie ethiek van de Passerel, Zozijn en Fatima (verstandelijk gehandicaptenzorg).
    • (2003)
    • Maeckelberghe, E.L.M.1
  • 15
    • 56749185983 scopus 로고    scopus 로고
    • Providing palliative care to people with intellectual disabilities: services, staff knowledge, and challenges
    • Stein G. L. (2008) Providing palliative care to people with intellectual disabilities: services, staff knowledge, and challenges. Journal of Palliative Medicine 11, 1241-1248.
    • (2008) Journal of Palliative Medicine , vol.11 , pp. 1241-1248
    • Stein, G.L.1
  • 16
    • 77956605473 scopus 로고    scopus 로고
    • Disability perspectives on health care planning and decision-making
    • Stein G. L. & Kerwin J. (2010) Disability perspectives on health care planning and decision-making. Journal of Palliative Medicine 13, 1059-1064.
    • (2010) Journal of Palliative Medicine , vol.13 , pp. 1059-1064
    • Stein, G.L.1    Kerwin, J.2
  • 18
    • 84861430844 scopus 로고    scopus 로고
    • A new model for breaking bad news to people with intellectual disabilities
    • Tuffrey-Wijne I. (2012) A new model for breaking bad news to people with intellectual disabilities. Palliative Medicine 27, 5-12.
    • (2012) Palliative Medicine , vol.27 , pp. 5-12
    • Tuffrey-Wijne, I.1
  • 19
  • 20
    • 20444484142 scopus 로고    scopus 로고
    • Supporting patients who have intellectual disabilities: a survey investigating staff training needs
    • Tuffrey-Wijne I., Hollins S. & Curfs L. (2005) Supporting patients who have intellectual disabilities: a survey investigating staff training needs. International Journal of Palliative Nursing 11, 182-188.
    • (2005) International Journal of Palliative Nursing , vol.11 , pp. 182-188
    • Tuffrey-Wijne, I.1    Hollins, S.2    Curfs, L.3
  • 23
    • 77953539406 scopus 로고    scopus 로고
    • Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study
    • Tuffrey-Wijne I., Bernal J. & Hollins S. (2010) Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study. European Journal of Oncology Nursing 14, 224-230.
    • (2010) European Journal of Oncology Nursing , vol.14 , pp. 224-230
    • Tuffrey-Wijne, I.1    Bernal, J.2    Hollins, S.3
  • 25
    • 0032839120 scopus 로고    scopus 로고
    • A care perspective on coercion and autonomy
    • Verkerk M. A. (1999) A care perspective on coercion and autonomy. Bioethics 13, 358-368.
    • (1999) Bioethics , vol.13 , pp. 358-368
    • Verkerk, M.A.1
  • 27
    • 84893746288 scopus 로고    scopus 로고
    • Zelf vragen? het concept van autonomie vanuit het perspectief van een relationele ethiek (Ask yourself? The concept of autonomy from the perspective of relational ethics)
    • Verkerk M. A. & Maeckelberghe E. L. M. (2003) Zelf vragen? het concept van autonomie vanuit het perspectief van een relationele ethiek (Ask yourself? The concept of autonomy from the perspective of relational ethics). Pedagogisch Tijdschrift 28, 141-158.
    • (2003) Pedagogisch Tijdschrift , vol.28 , pp. 141-158
    • Verkerk, M.A.1    Maeckelberghe, E.L.M.2
  • 28
    • 25144502601 scopus 로고    scopus 로고
    • Patient autonomy problems in palliative care: systematic development and evaluation of a questionnaire
    • Vernooij-Dassen M. J., Osse B. H., Schadé E. & Grol R. P. (2005) Patient autonomy problems in palliative care: systematic development and evaluation of a questionnaire. Journal of Pain and Symptom Management 30, 264-270.
    • (2005) Journal of Pain and Symptom Management , vol.30 , pp. 264-270
    • Vernooij-Dassen, M.J.1    Osse, B.H.2    Schadé, E.3    Grol, R.P.4
  • 31
    • 34447291022 scopus 로고    scopus 로고
    • Practitioner-raised issues and end-of-life care for adults with Down syndrome and dementia
    • Watchman K. (2005) Practitioner-raised issues and end-of-life care for adults with Down syndrome and dementia. Journal of Policy and Practice in Intellectual Disabilities 2, 156-162.
    • (2005) Journal of Policy and Practice in Intellectual Disabilities , vol.2 , pp. 156-162
    • Watchman, K.1
  • 32
    • 19444366763 scopus 로고    scopus 로고
    • Patient incompetence and substitute decision-making: an analysis of the role of the health care professional in Dutch law
    • Welie S. P., Dute J., Nys H. & Van Wijmen F. C. (2005) Patient incompetence and substitute decision-making: an analysis of the role of the health care professional in Dutch law. Journal of Public Health Policy 73, 21-40.
    • (2005) Journal of Public Health Policy , vol.73 , pp. 21-40
    • Welie, S.P.1    Dute, J.2    Nys, H.3    Van Wijmen, F.C.4
  • 33
    • 23444446928 scopus 로고    scopus 로고
    • Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families
    • Winzelberg G. S., Hanson L. C. & Tulsky J. A. (2005) Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families. Journal of the American Geriatrics Society 53, 1046-1050.
    • (2005) Journal of the American Geriatrics Society , vol.53 , pp. 1046-1050
    • Winzelberg, G.S.1    Hanson, L.C.2    Tulsky, J.A.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.