The impact of stroke aphasia on health and well-being and appropriate nursing interventions: An exploration using the theory of human scale development

Journal of Clinical Nursing

Volumn 23, Issue 3-4, 2014, Pages 410-420

  Thompson, Juliana ^a   Mckeever, Margo ^a  

^a NORTHUMBRIA UNIVERSITY   (United Kingdom)

Author keywords

Aphasia; Care; Communication; Holism; Identity; Stroke; The role of nurses; Theory of human scale development

Indexed keywords

APHASIA; CEREBROVASCULAR ACCIDENT; HUMAN; NURSING; PATHOPHYSIOLOGY; THEORETICAL MODEL;

APHASIA; HUMANS; MODELS, THEORETICAL; STROKE;

EID: 84893648175     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2012.04237.x     Document Type: Article

References (89)

1. Abberley P (1987) The concept of oppression and a development of a social theory of disability. Disability, Handicap & Society2, 5-19.
2. Archbishop of Westminster (2010) Fear cannot be our guide. Mass in Honour of Our Lady of Lourdes. Westminster Cathedral Address. 13 February.
3. Aronson JK (2000) Autopathography: the patient's tale. British Medical Journal 321, 1599-1602.
4. Badoux-Levy A, Robin M & Lavarde AM (2004) Psychological and social factors predictive of loneliness: a cognitive and behavioural approach. Encephale-Revue de Psychiatrie Clinique Biologique et Therapeutique 30, 16-23.
5. Balandin S, Hemsley B, Sigafoos J & Green V (2007) Communicating with nurses: the experiences of 10 adults with cerebral palsy and complex communication needs. Applied Nursing Research 20, 56-62.
6. Bauby JD (2008) The Diving-Bell and the Butterfly, Trans. 4 edn. (Leggatt J ed.). Harper Perennial, London.
7. Berkman LF (1988) The changing and heterogeneous nature of aging and longevity: a social and biomedical perspective. Annual Review of Gerontology and Geriatrics8, 37-68.
8. Berkman LF, Glass T, Brissette I & Seeman TE (2000) From social integration to health: Durkheim in the new millennium. Social Sciences and Medicine51, 843-857.
9. Bowlby J (1991) Loss, Sadness and Depression, 2 edn. Vol. 3. Penguin, London.
10. Bradby H (2001) Communication, interpretation and translation. In Ethnicity and Nursing Practice (Culley L & Dyson S eds). Palgrave, Hampshire, pp. 129-148.
11. Bradshaw A (2009) Measuring nursing care and compassion: the McDonaldised nurse?Journal of Medical Ethics35, 465-468.
12. Brilowski GA & Wendler MC (2005) An evolutionary concept analysis of caring. Journal of Advanced Nursing50, 641-650.
13. Buber M (1958) I and Thou, Trans. 2 edn. (Smith RG ed.). Charles Scribner, New York, NY.
14. Buunk BP, Gibbons FX & Visser A (2002) The relevance of social comparison processes for prevention and health care. Patient Education and Counselling47, 1-3.
15. Chafey K, Rhea M, Shannon A & Spencer S (1998) Characterizations of advocacy by practising nurses. Journal of Professional Nursing14, 43-52.
16. Chang Y, Lin Y, Chang H & Lin C (2005) Cancer patient and staff ratings of caring behaviours. Cancer Nursing28, 331-339.
17. Charlton CR, Dearing KS, Berry JA & Johnson MJ (2008) Nurse practitioners' communication styles and their impact on patient outcomes: an integrated literature review. American Academy of Nurse Practitioners20, 382-388.
18. Charmaz K (1983) Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health and Illness5, 168-195.
19. Charmaz K (1995) The body, identity and self. The Sociological Quarter36, 657-680.
20. Charmaz K (1999) Stories of suffering: subjective tales and research narratives. Qualitative Health Research9, 362-382.
21. Cohen S & Wills TA (1985) Stress, social support, and the buffering hypothesis. Psychological Bulletin98, 310-357.
22. DasGupta S & Charon R (2004) Personal illness narratives: using reflective writing to teach empathy. Academic Medicine79, 351-356.
23. Davidson B, Howe T, Worrall L, Hickson L & Togher L (2008) Social participation for older people with aphasia: the impact of communication disability on friendships. Topics in Stroke Rehabilitation15, 325-340.
24. Durkheim E (1952) Suicide: A Study in Sociology (Spaulding JA & Simpson G eds Trans.). Routledge, London.
25. Department of Health (2008) Nursing Quality to be Measured for Compassion of Care. Available at: http://www.nds.coi.gov.uk/ (accessed 20 November 2011).
26. Department of Health (2009) NHS Chairs Conference: Care and Compassion in the 21st Century. Available at: http://www.dh.gov.uk/ (accessed 20 November 2011).
27. Disability Discrimination Act (1995) HMSO, London. Available at: http://www.opsi.gov.uk/ (accessed 20 November 2011).
28. Disability Discrimination Act (2005) HMSO, London. Available at: http://www.opsi.gov.uk/ (accessed 20 November 2011).
29. Englund-Dimitrova B (1997) Degree of interpreter responsibility in the interaction process in community interpreting. In The Critical Link: Interpreters in the Community (Carr SE, Roberts R, Dufour A & Steyn D eds). Benjamins, Amsterdam, pp. 147-164.
30. Faust H (2009) Kindness, not compassion, in healthcare. Cambridge Quarterly of Healthcare Ethics18, 287-299.
31. Ferguson H (2007). Kindness amid the chaos. The Guardian. 24 October.
32. Finke EH, Light J & Kitko L (2008) A systematic review of the effectiveness of nurse communication with patients with complex communication needs with a focus on the use of augmentative and alternative communication. Journal of Clinical Nursing17, 2102-2115.
33. Flegel A (2008) Talking over patients: stop. Canadian Medical Association Journal178, 1388.
34. Fosbinder D (1994) Patient perceptions of nursing care: an emerging theory of interpersonal competence. Journal of Advanced Nursing20, 1085-1093.
35. Goodwin C (1995) Co-constructing meaning in conversations with an aphasic man. Research on Language and Social Interaction28, 233-260.
36. Gordon C, Ellis-Hill C & Ashburn A (2008) The use of conversational analysis: nurse-patient interaction in communication disability after stroke. Journal of Advanced Nursing65, 544-553.
37. Halldorsdottir S & Hamrin E (1997) Caring and uncaring encounters within nursing and healthcare from the cancer patient's perspective. Cancer Nursing20, 120-128.
38. Hedberg B, Johanson M & Cederborg AC (2008) Communicating stroke survivors' health and further needs for support in care-planning meetings. Journal of Clinical Nursing17, 1481-1491.
39. Hemsley B, Sigafoos J, Forbes R, Taylor C, Green VA & Parmenter T (2001) Nursing the patient with severe communication impairment. Journal of Advanced Nursing35, 827-835.
40. Hindle SA (2003) Psychological factors affecting communication. In Interpersonal Communication in Nursing Theory and Practice (Ellis RB, Gates B & Kenworthy N eds). Churchill Livingstone, London, pp. 46-48.
41. Horton T (2005) Care of residents with post-stroke communication problems. In Stroke: Therapy and Rehabilitation (White R ed.). Quay Books, London, pp. 145-150.
42. Intercollegiate Stroke Working Party (2009) National Sentinel Stroke Audit: Phase II (Clinical Audit) 2008: Report for England, Wales and Northern Ireland. Available at: http://www.rcplondon.ac.uk/ (accessed 20 November 2011).
43. Johnstone MJ (2010) On the matter of human kindness. Australian Nursing Journal17, 32.
44. Kagan A (1995) Revealing the competence of aphasic adults through conversation: a challenge to health professionals. Topics in Stroke Rehabilitation2, 15-28.
45. Kagan A (2003) Aphasia centres and community: more than just the sum of parts. In Aphasia Inside Out: Reflections on Communication Disability (Parr S, Duchan J & Pound C eds). Open University Press, Berkshire, pp. 41-50.
46. Kemper S, Finter-Urczyk A, Ferrell P, Harden T & Billington C (1998) Using elderspeak with older adults. Discourse Processes25, 55-73.
47. Khosa J (2003) Still life of a chameleon: aphasia and its impact on identity. In Aphasia Inside Out: Reflections on Communication Disability (Parr S, Duchan J & Pound C eds). Open University Press, Berkshire, pp. 10-20.
48. Laver J (1975) Communicative functions of phatic communion. In The Organisation of Behaviour in Face-to-Face Interaction (Kendon A, Harris R & Key M eds). Mouton, The Hague, pp. 215-238.
49. Legg L & Stott D (2007) Volunteer stroke service (VSS) groups for patients with communication difficulties after stroke: a qualitative analysis of the value of groups to their users. Clinical Rehabilitation21, 794-804.
50. Leininger MM & McFarland MR (2002) Transcultural Nursing: Concepts, Theories, Research and Practices. McGraw Hill, New York, NY.
51. Liaschenko J & Fisher A (1999) Theorising the knowledge that nurses use in the conduct of their work. Scholarly Inquiry for Nursing Practice13, 29-41.
52. Liechty JA & Heinzekehr JB (2007) Caring for those without words: perspectives on aphasia. Journal of Neuroscience Nursing39, 316-318.
53. Lyon JG (1998) Coping with Aphasia. Singular Publishing, San Diego, CA.
54. Max-Neef M, Elizalde A & Hopenhayn M (1991) Human Scale Development: Conceptions, Applications and Further Reflections. Apex Press, New York, NY.
55. McInnis GJ & White JH (2001) A phenomenological exploration of loneliness in the older adult. Archives of Psychiatric Nursing15, 128-139.
56. Melton AK & Shadden BB (2005) Linguistic accommodations to older adults in the community: the role of communication disorders and partner motivation. Advances in Speech Language Pathology7, 233-244.
57. Mooney H (2009) Can You Measure Compassion? Available at: http://www.nursingtimes.net/whats-new-in-nursing/management/can-you-measure-compassion/5000543.article (accessed 20 November 2011).
58. Moss P, Parr S, Byng S & Petheram B (2004) Pick me up and not a down down, up up: how are the identities of people with aphasia represented in aphasia, stroke and disability websites?Disability and Society19, 753-768.
59. Neal P (1988) As I Am: An Autobiography. Century, London.
60. Nystrom M (2009) Professional aphasia care trusting the patient's competence while facing existential issues. Journal of Clinical Nursing18, 2503-2510.
61. O' Halloran R, Hickson L & Worrall L (2008) Environmental factors that influence communication between people with communication disability and their healthcare providers in hospital: a review of the literature within the international classification of functioning, disability and health (ICF) framework. International Journal of Language & Communication Disorders43, 601-632.
62. Oliver M (1996) Understanding Disability: From Theory to Practice. Palgrave Macmillan, Basingstoke.
63. Parr S, Paterson K & Pound C (2003) Time Please! Temporal barriers in aphasia. In Aphasia Inside Out: Reflections on Communication Disability (Parr S, Duchan J & Pound C eds). Open University Press, Berkshire, pp. 127-144.
64. Paterson K & Hughes B (1999) Disability studies and phenomenology: the carnal politics of everyday life. Disability and Society14, 597-610.
65. Peplau HE (1952) Interpersonal Relations in Nursing: A Conceptual Frame of Reference for Psychodynamic Nursing. Putman, New York, NY.
66. Pound C, Parr S, Lindsay J & Woolf C (2006) Beyond Aphasia: Therapies for Living with Communication Disability. Speechmark Publishing, Oxon.
67. Ramos MC (1992) The nurse-patient relationship: theme and variations. Journal of Advanced Nursing17, 496-506.
68. Riley JB (2008) Communication in Nursing, 6th edn. Mosby Elsevier, St Louis, MO.
69. Rogers CR (1967) On Becoming a Person: A Therapist's View of Psychotherapy. Constable, London.
70. Ross S, Barton J & Read J (2009) Staff in-service training on post-stroke psychological and communication issues. International Journal of Therapy and Rehabilitation16, 342-349.
71. Ryan EB, Giles H, Bartolucci G & Henwood K (1986) Psycholinguistic and social psychological components of communication by and with the elderly. Language and Communication6, 1-24.
72. Sermat V (1978) Sources of loneliness. Essence2, 271-276.
73. Shadden B (2005) Aphasia as identity theft: theory and practice. Aphasiology19, 211-223.
74. Shadden B, Hagstrom F & Koski PR (2008) Neurogenic Communication Disorders: Life Stories and the Narrative Self. Plural Publishing, San Diego, CA.
75. Shaver P & Buhrmester D (1983) Loneliness, sex-role orientation, and group life: a social needs perspective. In Basic Group Processes (Paulus PB ed.). Springer-Verlag, New York, NY, pp. 259-288.
76. Simmons-Mackie N & Damico JS (2008) Exposed and embedded corrections in aphasia therapy: issues of voice and identity. International Journal of Language & Communication Disorders43(S1), 5-17.
77. Stein-Parbury J (2009) Patient and Person: Interpersonal Skills in Nursing, 4 edn. Churchill Livingstone, Sydney.
78. Stockwell F (1972) The Unpopular Patient. Croom Helm, London.
79. Sundin K & Jansson L (2003) Understanding and being understood as a creative caring phenomenon - in care of patients with stroke and aphasia. Journal of Clinical Nursing12, 107-116.
80. Sundin K, Jansson L & Norberg A (2000) Communicating with people with stroke and aphasia: understanding through sensation without words. Journal of Clinical Nursing9, 481-488.
81. Sundin K, Jansson L & Norberg A (2001) The meaning of skilled care providers' relationships with stroke and aphasia patients. Qualitative Health Research11, 308-320.
82. Sundin K, Jansson L & Norberg A (2002) Understanding between care providers and patients with stroke and aphasia: a phenomenological hermeneutic inquiry. Nursing Inquiry9, 93-103.
83. Tajfel H (1982) Social Identity and Intergroup Relations. Cambridge University Press, Cambridge.
84. Vaartio H, Leino-Kilpi H, Suominen T & Puukka P (2008) The content of advocacy in procedural pain care: patients' and nurses' perspectives. Journal of Advanced Nursing64, 504-513.
85. Vickery CD, Evans CC, Lee JE, Sepehri A & Jabeen LN (2009) Multilevel modelling of self-esteem change during acute inpatient stroke patient rehabilitation. Rehabilitation Psychology54, 372-380.
86. Wertheimer A (2008) A Dented Image: Journeys of Recovery from Subarachnoid Haemorrhage. Routledge, London.
87. Williams CL & Davis CM (2004) Therapeutic Interaction in Nursing. Slack, Thorofare.
88. Williams K, Kemper S & Hummert L (2004) Enhancing communication with older adults: overcoming elderspeak. Journal of Gerontological Nursing30, 17-25.
89. World Health Organisation (2001) International Classification of Functioning, Disability and Health. Available at: http://www.who.int/classification/icf/ (accessed 20 November 2011).