Invisible Hands: The Role of Highly Involved Families in Long-Term Residential Care

Journal of Family Nursing

Volumn 20, Issue 1, 2014, Pages 73-97

  Baumbusch, Jennifer ^a   Phinney, Alison ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

care work; critical ethnography; family; long term residential care

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CANADA; CARE WORK; CONSUMER; CRITICAL ETHNOGRAPHY; FAMILY; FEMALE; HEALTH PERSONNEL ATTITUDE; HOME FOR THE AGED; HUMAN; LONG TERM CARE; LONG-TERM RESIDENTIAL CARE; MALE; METHODOLOGY; MIDDLE AGED; NURSE PATIENT RELATIONSHIP; NURSING HOME; NURSING STAFF; ORGANIZATION AND MANAGEMENT; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT; VERY ELDERLY;

CARE WORK; CRITICAL ETHNOGRAPHY; FAMILY; LONG-TERM RESIDENTIAL CARE;

ADULT; AGED; AGED, 80 AND OVER; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; BRITISH COLUMBIA; CONSUMER PARTICIPATION; FAMILY; FEMALE; HOMES FOR THE AGED; HUMANS; LONG-TERM CARE; MALE; MIDDLE AGED; NURSE-PATIENT RELATIONS; NURSING HOMES; NURSING STAFF; SOCIAL SUPPORT;

EID: 84893644916     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840713507777     Document Type: Article

References (46)

1. Abrahamson K.,Suitor J. J.,Pillemer K.Conflict between nursing-home staff and residents' families: Does it increase burnout?.Journal of Aging and Health. 2009;21:895-912.
2. Alzheimer Society of Canada. (2010). Rising tide: The impact of dementia on Canadian society. Toronto, Ontario, Canada: Author. Retrieved from http://www.alzheimer.ca/~/media/Files/national/Advocacy/ASC_Rising%20Tide_Full%20Report_Eng.ashx.
3. Alzheimer Society of Canada. (2011). Guidelines for care: Person-centred care for people with dementia living in care homes. Toronto, Ontario, Canada: Author. Retrieved from http://www.alzheimer.ca/~/media/Files/national/Culture-change/culture_exec_summary_e.ashx.
4. Anderson J.Toward a postcolonial feminist methodology in nursing research: Exploring the convergence of postcolonial and Black Feminist scholarship.Nurse Researcher. 2002;9 (3): 7-27.
5. Austin W.,Goble E.,Strang V.,Mitchell A.,Thompson E.,Lantz H., Vass K.Supporting relationships between family and staff in continuing care settings.Journal of Family Nursing. 2009;15:360-383.
6. Bauer M.Staff-family relationships in nursing-home care: A typology of challenging behaviors.International Journal of Older People Nursing. 2007;2:213-218.
7. Baumbusch J. K.Decommissioning citizenship: The organization of long-term residential care. Vancouver, British Columbia, Canada: University of British Columbia; 2008:.
8. BC Ministry of Health. (2009). Community care and assisted living act: Residential care regulation. Retrieved from http://www.bclaws.ca/EPLibraries/bclaws_new/document/ID/freeside/96_2009.
9. BC Ministry of Health. (2012). Home and community care policy manual: Chapter 6 residential care services (6.H). Retrieved from http://www2.gov.bc.ca/assets/gov/topic/D3E0B9FAB55484D135A5C5201D799D96/hcc_policy_manual/6_hcc_policy_manual_chapter_6.pdf.
10. Home and community care policy manual. Victoria, British Columbia, Canada: Government of British Columbia; 2002:6.B.1.
11. Boeije H.Analysis in qualitative research. Thousand Oaks, CA: SAGE; 2010:.
12. Bramble M.,Moyle W.,McAllister M.Seeking connection: Family-care experiences following long-term dementia-care placement.Journal of Clinical Nursing. 2009;18:3118-3125.
13. Caron C. D.,Griffith J.,Arcand M.Decision making at the end of life in dementia: How family caregivers perceive their interactions with health care providers in long-term care settings.Journal of Applied Gerontology. 2005;24:231-247.
14. Carspecken P.Critical ethnography in educational research: A theoretical and practical guide. New York, NY: Routledge; 1996:.
15. Cheek J.,Gibson T.Issues impacting on registered nurses providing care to older people in an acute care setting.Nursing Times Research. 2003;8:134-149.
16. Chen C. K.,Sabir M.,Zimmerman S.,Suitor J.,Pillemer K.The importance of family relationships with nursing facility staff for family caregiver burden and depression.Journal of Gerontology Series B: Psychological Research. 2007;62:P253-P260.
17. Cohen M.,Tate J.,Baumbusch J.An uncertain future for seniors: BC's restructuring of home and community care, 2001-2008. Vancouver, British Columbia, Canada: Canadian Centre for Policy Alternatives; 2009:.
18. Davies M. J.Into the house of the old: A history of residential care in British Columbia. Montreal, Quebec, Canada: McGill-Queen's University Press; 2003:.
19. Etherington K.Ethical research in reflexive relationships.Qualitative Inquiry. 2007;13:599-616.
20. Gaugler J. E.,Anderson K. A.,Zarit S. H.,Pearlin L. I.Family involvement in nursing homes: Effects on stress and wellbeing.Aging & Mental Health. 2004;8:65-75.
21. GladstoneJ. W.DupuisS. L.WexlerE. (2006). Changes in family involvement following a relative's move to a long-term care facility. Canadian Journal on Aging, 25, 93-106. doi:http://dx.doi.org/10.1353/cja.2006.0022.
22. Gladstone J. W.,Dupuis S. L.,Wexler E.Ways that families engage with staff in long-term care facilities.Canadian Journal on Aging. 2007;26:391-402.
23. Power/knowledge: Selected interviews and other writings 1972-1977. Gordon C., ed. Hertfordshire, UK: Harvester Press; 1980:.
24. Holmgren J.,Emami A.,Eriksson L. E.,Eriksson H.Being perceived as a "visitor" in the nursing staff's working arena-the involvement of relatives in daily caring activities in nursing homes in an urban community in Sweden.Scandinavian Journal of Caring Sciences. 2013;27:677-685.
25. Kincheloe J.,McLaren P.Handbook of qualitative research. 2005). Rethinking critical theory and qualitative research. In LincolnY. (Ed.), Handbook of qualitative research (3rd ed., pp. 303-342). Thousand Oaks, CA: SAGE.Lincoln Y., ed. Thousand Oaks, CA: SAGE; 2005:303-342.
26. Levine C.,Halper D.,Peist A.,Gould D. A.Bridging troubled waters: Family caregivers, transitions, and long-term care.Health Affairs. 2010;29:116-124.
27. Madison D. S.Critical ethnography: Method, ethics, and performance. 2012). Critical ethnography: Method, ethics, and performance (2nd ed.). Thousand Oaks, CA: SAGE.Thousand Oaks, CA: SAGE; 2012:.
28. McCormack B.,McCance T. V.Development of a framework for person-centered nursing.Journal of Advanced Nursing. 2006;56:472-479.
29. McCormick J.,Roussy J.Nursing praxis: Knowledge and action. Thorne S.Hayes V., ed. Thousand Oaks, CA: SAGE; 1997:267-284.
30. McGilton K. S.,Guruge S.,Librado R.,Bloch L.,Boscart V.Health care aides' struggle to build and maintain relationships with families in complex continuing care settings.Canadian Journal on Aging. 2008;27:135-143.
31. McGregor M.,Cohen M.,McGrail K.,Broemeling A.,Adler R.,Schulzer M, Beck M.Staffing levels in not-for-profit and for-profit long-term care facilities: Does type of ownership matter?.Canadian Medical Association Journal. 2005;172:645-649.
32. Miller F. A.,Alvarado K.Incorporating documents into qualitative nursing research.Journal of Nursing Scholarship. 2005;37:348-353.
33. Natan M. B.Coordinating the roles of nursing home staff and families of elderly nursing home residents.Journal of Nursing Care Quality. 2009;24:332-339.
34. Nolan M. R.,Davies S.,Brown J.,Keady J.,Nolan J.Beyond "person-centred" care: A new vision for gerontological nursing.Journal of Clinical Nursing. 2004;13:45-53.
35. Onwuegbuzie A. J.,Leech N. L.Validity and qualitative research: An oxymoron?.Quality & Quantity. 2007;41:233-249.
36. Peter, E. (2013). Home health care: Ethics, politics, and policy. In J. L. Storch, P. Rodney, & R. Starzomski (Eds.), Toward a moral horizon: Nursing ethics for leadership and practice (2nd ed., pp. 384-397). Toronto, Ontario, Canada: Pearson.
37. Polit D. F.,Hungler B. P.Nursing research: Principles and methods. 1999). Nursing research: Principles and methods (6th ed). New York, NY: J.B. Lippincott Company.New York, NY: J.B. Lippincott Company; 1999:.
38. Port C. L.,Zimmerman S.,Williams C. S.,Dobbs D.,Preisser J. S.,Williams S. W.Families filling the gap: Comparing family involvement for assisted living and nursing-home residents with dementia.The Gerontologist. 2005;45 (SI1): 87-95.
39. Robinson C. A.,Reid R. C.,Cooke H. A.A home away from home: The meaning of home according to families of residents with dementia.Dementia. 2010;9:490-508.
40. Sandelowski M.Rigor or rigor mortis: The problem of rigor in qualitative research revisited.Advances in Nursing Science. 1993;16 (2): 1-8.
41. Thomas J.Doing critical ethnography. Newbury Park, CA: SAGE; 1993:.
42. Turner A.,Findlay L.Informal caregiving for seniors. Ottawa, Ontario: Statistics Canada; 2012:.
43. Ward-Griffin C.,Bol N.,Hay K.,Dashnay I.Relationships between families and registered nurses in long-term-care facilities: A critical analysis.Canadian Journal of Nursing Research. 2003;35 (4): 150-174.
44. Westin L.,Ohrn I.,Danielson E.Visiting a nursing home: Relatives' experiences of encounters with nurses.Nursing Inquiry. 2009;16:318-325.
45. Wright F.The role of family caregivers for an older person resident in a care home.British Journal of Social Work. 2000;30:649-661.
46. Zimmerman S.,Cohen L. W.,Reed D.,Gwyther L. P.,Washington T.,Cagle J. G., P. D.Comparing families and staff in nursing homes and assisted living: Implications for social-work practice.Journal of Gerontological Social Work. 2013;56:535-553.