The validity of self-reported cancer in an Australian population study

Australian and New Zealand Journal of Public Health

Volumn 38, Issue 1, 2014, Pages 35-38

  Loh, Venurs ^a   Harding, Jessica ^a,b   Koshkina, Vira ^a   Barr, Elizabeth ^a,c   Shaw, Jonathan ^a   Magliano, Dianna ^a,b  

^a BAKER IDI HEART AND DIABETES INSTITUTE   (Australia)

^b MONASH UNIVERSITY   (Australia)

^c MENZIES SCHOOL OF HEALTH RESEARCH   (Australia)

Author keywords

cancer; self report; sensitivity; specificity

Indexed keywords

ADULT; AGED; AUSTRALIA; BREAST NEOPLASMS; FACTUAL DATABASE; FEMALE; HEALTH SURVEY; HUMAN; MALE; MIDDLE AGED; NEOPLASMS; PREDICTIVE VALUE; PROSTATIC NEOPLASMS; REGISTER; REPRODUCIBILITY; SELF REPORT; SENSITIVITY AND SPECIFICITY; SKIN NEOPLASMS; STANDARDS; STATISTICS AND NUMERICAL DATA;

ADULT; AGED; AUSTRALIA; BREAST NEOPLASMS; DATABASES, FACTUAL; FEMALE; HEALTH SURVEYS; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PREDICTIVE VALUE OF TESTS; PROSTATIC NEOPLASMS; REGISTRIES; REPRODUCIBILITY OF RESULTS; SELF REPORT; SENSITIVITY AND SPECIFICITY; SKIN NEOPLASMS;

EID: 84893564612     PISSN: 13260200     EISSN: 17536405     Source Type: Journal    
DOI: 10.1111/1753-6405.12164     Document Type: Article

References (23)

1. Klein BE, Lee KE, Moss SE, Trentham-Dietz A, Klein R,. Self- and registry-reported cancer in a population-based longitudinal study. WMJ. 2010; 109 (5): 261-6.
2. Australian Institute of Health and Welfare. Cancer in Australia: An Overview [Internet]. Canberra (AUST): AIHW; 2008 [cited 2013 Mar 15]. Available from: http://www.aihw.gov.au/publication-detail/?id=6442468196
3. Bergmann MM, Calle EE, Mervis CA, Miracle-McMahill HL, Thun MJ, Heath CW,. Validity of self-reported cancers in a prospective cohort study in comparison with data from state cancer registries. Am J Epidemiol. 1998; 147 (6): 556-62.
4. Phillips KA, Milne RL, Buys S, et al. Agreement between self-reported breast cancer treatment and medical records in a population-based Breast Cancer Family Registry. J Clin Oncol. 2005; 23 (21): 4679-86.
5. Michaud DS, Midthune D, Hermansen S, et al. Comparison of cancer registry case ascertainment with SEER estimates and self-reporting in a subset of the NIH-AARP Diet and Health study. J Registry Manag. 2005; 32 (2): 70-5.
6. Webster AC, Supramaniam R, O'Connell DL, Chapman JR, Craig JC,. Validity of registry data: agreement between cancer records in an end-stage kidney disease registry (voluntary reporting) and a cancer register (statutory reporting). Nephrology. 2010; 15 (4): 491-501.
7. Stavrou E, Vajdic CM, Loxton D, Pearson SA,. The validity of self-reported cancer diagnoses and factors associated with accurate reporting in a cohort of older Australian women. Cancer Epidemiol. 2011; 35 (6): e75-80.
8. Dunstan DW, Zimmet PZ, Welborn TA, et al. The Australian Diabetes, Obesity and Lifestyle Study (AusDiab)-methods and response rates. Diabetes Res Clin Pract. 2002; 57 (2): 119-29.
9. Australian Institute of Health and Welfare. Cancer in Australia 1999 [Internet]. Canberra (AUST): AIHW; 2002 [cited 2013 May 11]. Available from: http://www.aihw.gov.au/publication-detail/?id=6442467396
10. Zhu VJ, Overhage MJ, Egg J, Downs SM, Grannis SJ,. An empiric modification to the probabilistic record linkage algorithm using frequency-based weight scaling. J AMIA. 2009; 16 (5): 738-45.
11. Fellegi IP, Sunter AB,. A theory of record linkage. J Am Stat Assoc. 1969; 64 (328): 1183-210.
12. Blakely T, Salmond C,. Probabilistic record linkage and a method to calculate the positive predictive value. Int J Epidemiol. 2002; 31 (6): 1246-52.
13. Australian Institute of Health and Welfare. Cancer [Internet]. Canberra (AUST): AIHW, 2013 [cited 2013 Aug 30]. Available from: http://www.aihw.gov.au/ cancer/
14. Berthier F, Grosclaude P, Bocquet H, Faliu B, Cayla F, Machelard-Roumagnac M,. Prevalence of cancer in the elderly: discrepancies between self-reported and registry data. Br J Cancer. 1997; 75 (3): 445-7.
15. Parikh-Patel A, Allen M, Wright WE, California Teachers Study Steering C. Validation of self-reported cancers in the California Teachers Study. Am J Epidemiol. 2003; 157 (6): 539-45.
16. Elwyn TS, Fetters MD, Gorenflo W, Tsuda T,. Cancer disclosure in Japan: Historical comparisons, current practices. Soc Sci Med. 1998; 46 (9): 1151-63.
17. Estape J, Palombo H, Hernandez E, et al. Cancer diagnosis disclosure in a Spanish hospital. Ann Oncol. 1992; 3 (6): 451-4.
18. Clarke JN,. Prostate cancer's hegemonic masculinity in select print mass media depictions (1974-1995). Health Commun. 1999; 11 (1): 59-74.
19. Navarro C, Chirlaque MD, Tormo MJ, et al. Validity of self reported diagnoses of cancer in a major Spanish prospective cohort study. J Epidemiol Community Health. 2006; 60 (7): 593-9.
20. Yoshinaga A, Sasaki S, Tsugane S, Group JS,. Sensitivity of self-reports of cancer in a population-based prospective study: JPHC Study Cohort I. J Clin Epidemiol. 2001; 54 (7): 741-6.
21. Aitken JF, Youl P, Green A, MacLennan R, Martin NG,. Accuracy of case-reported family history of melanoma in Queensland, Australia. Melanoma Res. 1996; 6 (4): 313-7.
22. Desai MM, Bruce ML, Desai RA, Druss BG,. Validity of self-reported cancer history: a comparison of health interview data and cancer registry records. Am J Epidemiol. 2001; 153 (3): 299-306.
23. Nussbaum JF,. Physician-older patient communication during the transition from independence to dependence. J Okla State Med Assoc. 1998; 91 (9): 504-8.