메뉴 건너뛰기




Volumn 31, Issue 1, 2014, Pages 45-56

The Experiences of Suffering of Palliative Care Patients in Malaysia: A Thematic Analysis

Author keywords

distress; Malaysia; palliative care; psychosocial issues; suffering; thematic analysis

Indexed keywords

AGED; ATTITUDE TO DEATH; COGNITION; EMOTION; EMPATHY; ENVIRONMENT; FEMALE; HEALTH STATUS; HUMAN; MALAYSIA; MALE; MENTAL STRESS; MIDDLE AGED; PALLIATIVE THERAPY; PSYCHOLOGY; QUALITATIVE RESEARCH; RELIGION; UNIVERSITY HOSPITAL;

EID: 84893190480     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909112458721     Document Type: Article
Times cited : (22)

References (52)
  • 2
    • 0020485304 scopus 로고
    • The nature of suffering and the goals of medicine
    • Cassell EJ.The nature of suffering and the goals of medicine.N Engl J Med. 1982;307 (12): 758-760.
    • (1982) N Engl J Med , vol.307 , Issue.12 , pp. 758-760
    • Cassell, E.J.1
  • 3
    • 0027616929 scopus 로고
    • Suffering and its relationship to pain
    • Chapman CR,Gavrin J.Suffering and its relationship to pain.J Palliat Care. 1993;9 (2): 5-13.
    • (1993) J Palliat Care , vol.9 , Issue.2 , pp. 5-13
    • Chapman, C.R.1    Gavrin, J.2
  • 4
    • 0033606449 scopus 로고    scopus 로고
    • Suffering: the contributions of persistent pain
    • Chapman CR,Gavrin J.Suffering: the contributions of persistent pain.Lancet. 1999;353 (9171): 2233-2237.
    • (1999) Lancet , vol.353 , Issue.9171 , pp. 2233-2237
    • Chapman, C.R.1    Gavrin, J.2
  • 5
    • 0028454538 scopus 로고
    • Suffering in the advanced cancer patient: a definition and taxonomy
    • Cherny NI,Coyle N,Foley KM.Suffering in the advanced cancer patient: a definition and taxonomy.J Palliat Care. 1994;10 (2): 57-70.
    • (1994) J Palliat Care , vol.10 , Issue.2 , pp. 57-70
    • Cherny, N.I.1    Coyle, N.2    Foley, K.M.3
  • 8
    • 79952817107 scopus 로고    scopus 로고
    • Existential suffering in the palliative care setting: an integrated literature review
    • Boston P,Bruce A,Schreiber R.Existential suffering in the palliative care setting: an integrated literature review.J Pain Symptom Manage. 2011;41 (3): 604-618.
    • (2011) J Pain Symptom Manage , vol.41 , Issue.3 , pp. 604-618
    • Boston, P.1    Bruce, A.2    Schreiber, R.3
  • 9
    • 81955168089 scopus 로고    scopus 로고
    • Relieving existential suffering through palliative sedation: discussion of an uneasy practice
    • Bruce A,Boston P.Relieving existential suffering through palliative sedation: discussion of an uneasy practice.J Adv Nurs. 2011;67 (12): 2732-2740.
    • (2011) J Adv Nurs , vol.67 , Issue.12 , pp. 2732-2740
    • Bruce, A.1    Boston, P.2
  • 10
    • 1542268925 scopus 로고    scopus 로고
    • Existential pain - an entity, a provocation, or a challenge?
    • Strang P,Strang S,Hultborn R,Arner S.Existential pain - an entity, a provocation, or a challenge?.J Pain Symptom Manage. 2004;27 (3): 241-250.
    • (2004) J Pain Symptom Manage , vol.27 , Issue.3 , pp. 241-250
    • Strang, P.1    Strang, S.2    Hultborn, R.3    Arner, S.4
  • 12
    • 34547128560 scopus 로고    scopus 로고
    • Conceptualization of psycho-existential suffering by the Japanese Task Force: the first step of a nationwide project
    • Murata H,Morita T.Conceptualization of psycho-existential suffering by the Japanese Task Force: the first step of a nationwide project.Palliat Support Care. 2006;4 (3): 279-285.
    • (2006) Palliat Support Care , vol.4 , Issue.3 , pp. 279-285
    • Murata, H.1    Morita, T.2
  • 13
    • 1242336897 scopus 로고    scopus 로고
    • Existential concerns of terminally ill cancer patients receiving specialized palliative care in Japan
    • Morita T.Existential concerns of terminally ill cancer patients receiving specialized palliative care in Japan.Support Care Cancer. 2004;12 (2): 137-140.
    • (2004) Support Care Cancer , vol.12 , Issue.2 , pp. 137-140
    • Morita, T.1
  • 14
    • 23844448119 scopus 로고    scopus 로고
    • Existential issues do not necessarily result in existential suffering: lesson from cancer patients in Israel
    • Blinderman CD,Cherny NI.Existential issues do not necessarily result in existential suffering: lesson from cancer patients in Israel.Palliat Med. 2005;19 (5): 371-380.
    • (2005) Palliat Med , vol.19 , Issue.5 , pp. 371-380
    • Blinderman, C.D.1    Cherny, N.I.2
  • 15
    • 77953421580 scopus 로고    scopus 로고
    • NCCN. Distress Management Guidelines, Accessed May 2010
    • NCCN. The National Comprehensive Cancer Network. Distress Management Guidelines. http://www.nccn.org. Accessed May 2010.
    • The National Comprehensive Cancer Network
  • 16
    • 7044251842 scopus 로고    scopus 로고
    • Palliative sedation to relieve psycho-existential suffering of terminally ill cancer patients
    • Morita T.Palliative sedation to relieve psycho-existential suffering of terminally ill cancer patients.J Pain Symptom Manage. 2004;28 (5): 445-450.
    • (2004) J Pain Symptom Manage , vol.28 , Issue.5 , pp. 445-450
    • Morita, T.1
  • 17
    • 82255192570 scopus 로고    scopus 로고
    • 'Unbearable suffering': a qualitative study on the perspectives of patients who request assistance in dying
    • Dees MK,Vernooij-Dassen MJ,Dekkers WJ.Vissers KC, van Weel C. 'Unbearable suffering': a qualitative study on the perspectives of patients who request assistance in dying.J Med Ethics. 2001;37 (12): 727-734.
    • (2001) J Med Ethics , vol.37 , Issue.12 , pp. 727-734
    • Dees, M.K.1    Vernooij-Dassen, M.J.2    Dekkers, W.J.3    Vissers, K.C.4    van Weel, C.5
  • 18
    • 0035292711 scopus 로고    scopus 로고
    • Demoralization syndrome - a relevant psychiatric diagnosis for palliative care
    • Kissane DW,Clarke DM,Street AF.Demoralization syndrome - a relevant psychiatric diagnosis for palliative care.J Palliat Care. 2001;17 (1): 12-21.
    • (2001) J Palliat Care , vol.17 , Issue.1 , pp. 12-21
    • Kissane, D.W.1    Clarke, D.M.2    Street, A.F.3
  • 19
    • 0036904112 scopus 로고    scopus 로고
    • Demoralization: its phenomenology and importance
    • Clarke DM,Kissane DW.Demoralization: its phenomenology and importance.Aust N Z J Psychiatry. 2002;36 (6): 733-742.
    • (2002) Aust N Z J Psychiatry , vol.36 , Issue.6 , pp. 733-742
    • Clarke, D.M.1    Kissane, D.W.2
  • 20
    • 80155191584 scopus 로고    scopus 로고
    • Is advanced cancer associated with demoralization and lower global meaning? The role of tumor stage and physical problems in explaining existential distress in cancer patients
    • Vehling S,Lehmann C,Oechsle K, et al.Is advanced cancer associated with demoralization and lower global meaning? The role of tumor stage and physical problems in explaining existential distress in cancer patients.Psychooncology. 2010;:.
    • (2010) Psychooncology
    • Vehling, S.1    Lehmann, C.2    Oechsle, K.3
  • 21
    • 79251585251 scopus 로고    scopus 로고
    • Longing for ground in a ground(less) world: a qualitative inquiry of existential suffering
    • Bruce A,Schreiber R,Petrovskaya O,Boston P.Longing for ground in a ground(less) world: a qualitative inquiry of existential suffering.BMC Nurs. 2011;:.
    • (2011) BMC Nurs
    • Bruce, A.1    Schreiber, R.2    Petrovskaya, O.3    Boston, P.4
  • 22
    • 0028454538 scopus 로고
    • Suffering in the advanced cancer patient: a definition and taxonomy
    • Cherny NI,Coyle N,Foley KM.Suffering in the advanced cancer patient: a definition and taxonomy.J Palliat Care. 1994;10 (2): 57-70.
    • (1994) J Palliat Care , vol.10 , Issue.2 , pp. 57-70
    • Cherny, N.I.1    Coyle, N.2    Foley, K.M.3
  • 23
    • 0038300939 scopus 로고    scopus 로고
    • Spirituality, religion and health: the need for qualitative research
    • Boston P,Mount BM,Orenstein S,Freedman O.Spirituality, religion and health: the need for qualitative research.Annales CRMCC. 2001;34 (6): 368-374.
    • (2001) Annales CRMCC , vol.34 , Issue.6 , pp. 368-374
    • Boston, P.1    Mount, B.M.2    Orenstein, S.3    Freedman, O.4
  • 24
    • 33750505977 scopus 로고    scopus 로고
    • Using thematic analysis in psychology
    • Braun V,Clarke V.Using thematic analysis in psychology.Qual Res Psychol. 2006;3 (2): 77-101.
    • (2006) Qual Res Psychol , vol.3 , Issue.2 , pp. 77-101
    • Braun, V.1    Clarke, V.2
  • 25
    • 84993783337 scopus 로고    scopus 로고
    • Thematic networks: an analytic tool for qualitative research
    • Attride-Stirling J.Thematic networks: an analytic tool for qualitative research.Qual Res. 2001;1 (3): 385-405.
    • (2001) Qual Res , vol.1 , Issue.3 , pp. 385-405
    • Attride-Stirling, J.1
  • 27
    • 36048985620 scopus 로고    scopus 로고
    • Suffering, loss and grief in palliative care
    • Lobb EA,Clayton JM,Price MA.Suffering, loss and grief in palliative care.Aust Fam Physician. 2006;35 (10): 772-775.
    • (2006) Aust Fam Physician , vol.35 , Issue.10 , pp. 772-775
    • Lobb, E.A.1    Clayton, J.M.2    Price, M.A.3
  • 28
    • 33947398499 scopus 로고    scopus 로고
    • Feeling like a burden to others: a systematic review focusing on the end of life
    • McPherson CJ,Wilson KG,Murray MA.Feeling like a burden to others: a systematic review focusing on the end of life.Palliat Med. 2007;21 (2): 115-128.
    • (2007) Palliat Med , vol.21 , Issue.2 , pp. 115-128
    • McPherson, C.J.1    Wilson, K.G.2    Murray, M.A.3
  • 29
    • 33845383436 scopus 로고    scopus 로고
    • Feeling like a burden to others: exploring the perspectives of patients at the end of life
    • McPherson CJ,Wilson KG,Murray MA.Feeling like a burden to others: exploring the perspectives of patients at the end of life.Soc Sci Med. 2007;64 (2): 417-427.
    • (2007) Soc Sci Med , vol.64 , Issue.2 , pp. 417-427
    • McPherson, C.J.1    Wilson, K.G.2    Murray, M.A.3
  • 31
    • 84893191969 scopus 로고    scopus 로고
    • The salience of existential concerns across the cancer control continuum
    • Lee V,Loiselle CG.The salience of existential concerns across the cancer control continuum.Palliat Support Care. 2012;30:1-11.
    • (2012) Palliat Support Care , vol.30 , pp. 1-11
    • Lee, V.1    Loiselle, C.G.2
  • 32
    • 0026055334 scopus 로고
    • Contracting cancer and coping with it. Patients' experiences
    • Krause K.Contracting cancer and coping with it. Patients' experiences.Cancer Nurs. 1991;14 (5): 240-245.
    • (1991) Cancer Nurs , vol.14 , Issue.5 , pp. 240-245
    • Krause, K.1
  • 33
    • 45849126192 scopus 로고    scopus 로고
    • Receiving a diagnosis of inoperable lung cancer: patients' perspectives of how it affects their life situation and quality of life
    • Bertero C,Vanhanen M,Appelin G.Receiving a diagnosis of inoperable lung cancer: patients' perspectives of how it affects their life situation and quality of life.Acta Oncol. 2008;47 (5): 862-869.
    • (2008) Acta Oncol , vol.47 , Issue.5 , pp. 862-869
    • Bertero, C.1    Vanhanen, M.2    Appelin, G.3
  • 34
    • 84865555213 scopus 로고    scopus 로고
    • Marking time: the temporal experience of gastrointestinal cancer
    • Khatri S,Whiteley I,Gullick J,Wildbore C.Marking time: the temporal experience of gastrointestinal cancer.Comtemp Nurse. 2012;41 (2): 146-159.
    • (2012) Comtemp Nurse , vol.41 , Issue.2 , pp. 146-159
    • Khatri, S.1    Whiteley, I.2    Gullick, J.3    Wildbore, C.4
  • 35
    • 67650504382 scopus 로고    scopus 로고
    • Death anxiety: an analysis of an evolving concept
    • Lehto RH,Stein KF.Death anxiety: an analysis of an evolving concept.Res Theory Nurs Pract. 2009;23 (1): 23-41.
    • (2009) Res Theory Nurs Pract , vol.23 , Issue.1 , pp. 23-41
    • Lehto, R.H.1    Stein, K.F.2
  • 36
    • 0029836878 scopus 로고    scopus 로고
    • Toward a comprehensive model of death anxiety
    • Tomer A,Eliason G.Toward a comprehensive model of death anxiety.Death Stud. 1996;20 (4): 343-365.
    • (1996) Death Stud , vol.20 , Issue.4 , pp. 343-365
    • Tomer, A.1    Eliason, G.2
  • 37
    • 76749169720 scopus 로고    scopus 로고
    • A comparison of death anxiety and quality of life of patients with advanced cancer or AIDS and their family caregivers
    • Sherman DW,Norman R,McSherry CB.A comparison of death anxiety and quality of life of patients with advanced cancer or AIDS and their family caregivers.J Assoc Nurses AIDS Care. 2010;21 (2): 99-112.
    • (2010) J Assoc Nurses AIDS Care , vol.21 , Issue.2 , pp. 99-112
    • Sherman, D.W.1    Norman, R.2    McSherry, C.B.3
  • 38
    • 33845874900 scopus 로고    scopus 로고
    • Primum non nocere: could the healthcare system contribute to suffering? In-depth study from the perspective of terminally ill cancer patients
    • Daneault S,Lussier V,Mongeau S, et al.Primum non nocere: could the healthcare system contribute to suffering? In-depth study from the perspective of terminally ill cancer patients.Can Fam Physician. 2006;52 (12): 1574-1575.
    • (2006) Can Fam Physician , vol.52 , Issue.12 , pp. 1574-1575
    • Daneault, S.1    Lussier, V.2    Mongeau, S.3
  • 39
    • 16644383611 scopus 로고    scopus 로고
    • Suffering related to healthcare: a study of breast cancer patients' experiences
    • Arman M,Rehnsfeldt A,Lindholm L,Hamrin E,Eriksson K.Suffering related to healthcare: a study of breast cancer patients' experiences.Int J Nurs Pract. 2004;10 (6): 248-256.
    • (2004) Int J Nurs Pract , vol.10 , Issue.6 , pp. 248-256
    • Arman, M.1    Rehnsfeldt, A.2    Lindholm, L.3    Hamrin, E.4    Eriksson, K.5
  • 40
    • 0002463319 scopus 로고
    • Part III: pain terms, a current list with definitions and notes on usage
    • Merskey H,Bogduk N.Part III: pain terms, a current list with definitions and notes on usage.Classification of Chronic Pain. 1994;:209-214.
    • (1994) Classification of Chronic Pain , pp. 209-214
    • Merskey, H.1    Bogduk, N.2
  • 41
    • 79955481154 scopus 로고    scopus 로고
    • Distress during end-of-life: ethical questions about sedation
    • Zittoun R.Distress during end-of-life: ethical questions about sedation.Presse Med. 2011;40 (5): 486-492.
    • (2011) Presse Med , vol.40 , Issue.5 , pp. 486-492
    • Zittoun, R.1
  • 42
    • 77950979704 scopus 로고    scopus 로고
    • Intractable end-of-life suffering and the ethics of palliative sedation
    • Cassell EJ,Rich BA.Intractable end-of-life suffering and the ethics of palliative sedation.Pain Med. 2010;11 (3): 435-438.
    • (2010) Pain Med , vol.11 , Issue.3 , pp. 435-438
    • Cassell, E.J.1    Rich, B.A.2
  • 43
    • 77951080527 scopus 로고    scopus 로고
    • Intractable end-of-life suffering and the ethics of palliative sedation: a commentary on Cassell and Rich
    • Jansen LA.Intractable end-of-life suffering and the ethics of palliative sedation: a commentary on Cassell and Rich.Pain Med. 2010;11 (3): 440-441.
    • (2010) Pain Med , vol.11 , Issue.3 , pp. 440-441
    • Jansen, L.A.1
  • 46
    • 0031721711 scopus 로고    scopus 로고
    • Cancer patients' reported experiences of suffering
    • Kuuppelomaki M,Lauri S.Cancer patients' reported experiences of suffering.Cancer Nurs. 1998;21 (5): 364-369.
    • (1998) Cancer Nurs , vol.21 , Issue.5 , pp. 364-369
    • Kuuppelomaki, M.1    Lauri, S.2
  • 47
    • 77952423505 scopus 로고    scopus 로고
    • Reducing the potential for suffering in older adults with advanced cancer
    • Thompson GN,Chochinov HM.Reducing the potential for suffering in older adults with advanced cancer.Palliat Support Care. 2010;8 (1): 83-93.
    • (2010) Palliat Support Care , vol.8 , Issue.1 , pp. 83-93
    • Thompson, G.N.1    Chochinov, H.M.2
  • 48
    • 0036772697 scopus 로고    scopus 로고
    • A biopsychosocial-spiritual model for the care of patients at the end of life
    • Sulmasy DP.A biopsychosocial-spiritual model for the care of patients at the end of life.Gerontologist. 2002;42 (3): 24-33.
    • (2002) Gerontologist , vol.42 , Issue.3 , pp. 24-33
    • Sulmasy, D.P.1
  • 51
    • 0019618936 scopus 로고
    • Disease versus illness in general practice
    • Helman CG.Disease versus illness in general practice.J R Coll Gen Pract. 1981;31 (230): 548-552.
    • (1981) J R Coll Gen Pract , vol.31 , Issue.230 , pp. 548-552
    • Helman, C.G.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.