Data sharing in research: Benefits and risks for clinicians

BMJ (Online)

Volumn 348, Issue , 2014, Pages

  Antman Prof , Elliott ^a  

^a BRIGHAM AND WOMEN S HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; CLINICAL DATA REPOSITORY; CLINICAL TRIAL (TOPIC); FACTUAL DATABASE; HUMAN; INFORMATION PROCESSING; INTERNET; MEDICAL RESEARCH; PATIENT INFORMATION; PRIORITY JOURNAL; PUBLICATION; RISK BENEFIT ANALYSIS; STUDY DESIGN;

BIOMEDICAL RESEARCH; CONFIDENTIALITY; HUMANS; INFORMATION DISSEMINATION; PERIODICALS AS TOPIC; RISK ASSESSMENT;

EID: 84893150555     PISSN: None     EISSN: 17561833     Source Type: Journal    
DOI: 10.1136/bmj.g237     Document Type: Article

References (6)

1. Institute of Medicine. Sharing clinical research data: workshop summary. Washington, DC: The National Academies Press; 2013.
2. National Research Council, Committee on a Framework for Development of a New Taxonomy of Disease. Toward precision medicine; building a knowledge network for biomedical research and a new taxonomy of disease. Washington, DC: National Academies Press; 2011.
3. Spertus JA. The double-edged sword of open access to research data. Circ Cardiovasc Qual Outcomes 2012;5:143-4.
4. Mello MM, Francer JK, Wilenzick M, Teden P, Bierer BE, Barnes M. Preparing for responsible sharing of clinical trial data. N Engl J Med 2013;369:1651-8.
5. Bobrow M. Balancing privacy with public benefit. Nature 2013;500:123.
6. Institute of Medicine. Discussion framework for clinical trial data sharing: guiding principles, elements, and activities. 22 January 2014. www.iom.edu/Reports/2014/Discussion-Framework-for-Clinical-Trial-Data-Sharing. aspx.