User-participatory development of assistive technology for people with dementia-from needs to functional requirements. First results of the COGKNOW project

Dementia: Non-Pharmacological Therapies

Volumn , Issue , 2012, Pages 71-91

  Meiland, Franka J M ^a   Reinersmann, Annika ^b   Sävenstedt, Stefan ^c   Bergvall Kåreborn, Birgitta ^c   Hettinga, Marike ^d   Craig, David ^e   Andersson, Anna Lena ^f   Dröes, Rose Marie ^a  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b HEIDELBERG ACADEMY OF SCIENCES AND HUMANITIES   (Germany)

^c LULEÅ UNIVERSITY OF TECHNOLOGY   (Sweden)

^d Novay   (Netherlands)

^e QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^f ÄldreCentrum ^*  (Sweden)

Author keywords

Assistive technology; Carers; Dementia; Needs; User participatory development

Indexed keywords

EID: 84892870375     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (51)

1. Ferri, C.P., Prince, M., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., et al. (2005). Global prevalence of dementia: a Delphi consensus study. Lancet, 366, 2112- 17.
2. Health Council Netherlands (2002). Dementia. The Hague: Health Council of the Netherlands.
3. ASTRID (2000). ASTRID: A guide to using technology within dementia care. London: Hawker publications.
4. Schuurman, J.G., Moelaert El-Hadidy, F., Krom, A., Walhout, B. (2007). Ambient Intelligence [in Dutch]. Den Haag: Rathenau Instituut.
5. Sixsmith, A.J., Gibson, G., Orpwood, R.D., Torrington, J.M. (2007). Developing a technology 'wish-list' to enhance the quality of life of people with dementia. Gerontechnology, 26, 2-19.
6. Lauriks, S., Reinersmann, A., Van der Roest, H.G., Meiland, F.J.M., Davies, R.J., Moelaert, F., et al. (2007). Review of ICT-based services for identified unmet needs in people with dementia. Ageing Research Reviews, 6, 223-246.
7. Gilliard, J., Hagen, I. (2004). Enabling technologies for people with dementia. Crossnational analysis report. D4.4.1. QLK-CT-2000-00653,1-69.
8. Ager, A., Aalykke, S., (2001). TASC: A microcomputer support system for persons with cognitive disabilities. British Journal of Education Technology,32, 373-377.
9. Wilson, B.A., Emslie, H.C., Quirk, K., Evans, J.J. (2001). Reducing everyday memory and planning problems by means of a paging system: a randomised control crossover study. Journal of Neurology, Neurosurgery and Psychiatry, 70(4), 477-82.
10. Woolham, J., 2005. Safe at Home. In: The effectiveness of assistive technology in supporting the independence of people with dementia: the Safe at Home project, Hawker Publications, London.
11. Orpwood, R., Gibbs, C., Adlam, T., Faulkner, R., Meegahawatte, D. (2005). The design of smart homes for people with dementia-user interface aspects. Universal Access in the Information Society, 4,156-64.
12. Hagen, I., Holthe, T., Duff, P., Cahill, S. Gilliard, J. Orpwood, R., et al. (2002). A systematic assessment of assistive technology. Journal of dementia care,10, 26-8.
13. Nygard, L., Starkhammar, S. (2007). The use of everyday technology by people with dementia living alone: Mapping out the difficulties. Aging and Mental Health, 11, 144- 55.
14. Nugent, C.D. (2007). ICT in the elderly and dementia. Editorial. Aging and Mental Health, 11 (5), 473-6.
15. Astell, A.J. (2006). Technology and personhood in dementia care. Quality in Ageing, 7, 15-25.
16. Cash, M. (2003). Assistive technology and people with dementia. Reviews in clinical gerontology, 13, 313-19.
17. Mountain, G. (2006). Self-management for people with early dementia: an exploration of concepts and supporting evidence. Dementia, 5, 429.
18. Nygård, L. (2008).The meaning of everyday technology as experienced by people with dementia who live alone. Dementia, 7, 481-502.
19. Sixsmith, A., Sixsmith, J. (2000). Smart technologies: meeting whose needs? Journal of Telemedicine and Telecare, 6 (Suppl. 1), 190-92.
20. Van der Roest, H.G., Meiland, F.J.M., Comijs, H., Derksen, E., Jansen, A.P.D., Van Hout, H.P.J., et al. (2009). What do community dwelling people with dementia need? A survey of those who are known to care and welfare services. International Psychogeriatrics, 21(5), 949-65.
21. Dröes, R.M., Meiland, F.J.M., Van der Roest, H.G., Maroccini, R., Slagter, R., Baida, Z., et al. (2005). Opportunities for we-centric service bundling in dementia care. Amsterdam: Freeband Frux Projectpartners.
22. Van der Roest, H.G., Meiland, F.J.M., Maroccini, R., Comijs, H.C., Jonker, C., Dröes, R.M. (2007). Subjective needs of people with dementia: a review of the literature. International Psychogeriatrics,19, 559-592.
23. Steen, M., Faber, E., Bouwman, H. (2008). Methods for human centered service design. In E. Faber, H. de Vos (Eds). Creating successful ICT services, practical guidelines based on the STOF method. Enschede: Telematica Instituut.
24. Hettinga, M., Andersson, A.L., Dröes, R.M., Meiland, F.J.M., Armstrong, E., Bergvall- Kåreborn, B., et al. (2007). COGKNOW Project, Deliverable 1.4.1. Functional Requirements Specification. COGKNOW consortium.
25. Reisberg, B., Ferris, S., De Leon, M.J., Crook, T. (1982). The Global Deterioration Scale for Assessment of Primary Degenerative Dementia. American Journal of Psychiatry, 139,1136-1139.
26. Reynolds, T., Thornicroft, G., Abas, M., Woods, B., Hoe, J., Leese, M., et al. (2000). Camberwell Assessment of Need for the Elderly (CANE): Development, validity and reliability. British Journal of Psychiatry, 176, 444-452.
27. Dröes, R. M., Van Hout, H. P.J., Van der Ploeg, E.S. (2004). Camberwell Assessment of Need for the Elderly (CANE). Revised Version (IV). Amsterdam: VU University medical center, Department of Psychiatry, EMGO institute.
28. Lindeboom, J., Ter Horst, R., Hooyer, C., Dinkgreve, M., Jonker, C. (1993). Some psychometric properties of the CAMCOG. Psychological Medicine, 23, 213-9.
29. Meiland, F.J.M., Dröes, R.M. (2006). Experienced Autonomy. VU University medical center, Department of Psychiatry, EMGO institute, Amsterdam.
30. Pearlin, L.I., Schooler, C. (1978). The structure of coping. Journal of Health and Social Behavior, 19, 2-21.
31. WHO SRPB Quality of Life group (2002). WHOQOL-SRPB Field test instrument. Department of Mental Health and Substance dependence, WHO, Geneva, Switzerland.
32. Thorgrimsen, L., Selwood, A., Spector, A., Royan, L., De Madariaga Lopez, M., Woods, R.T., et al. (2003). Who's Quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Disease and Associated Disorders, 17, 201-8.
33. Hersh, N.A., Treadgold, L.G., (1994). NeuroPage: the rehabilitation of memory dysfunction by prosthetic memory and cueing. Neurorehabilitation 4, 187-197.
34. Adlam, T., Faulkner, R., Orpwood, R., Jones, K., Macijauskiene, J., Budraitiene, A., et al. (2004). The installation and support of internationally distributed equipment for people with dementia. IEEE Transactions on Information Technology in Biomedicine, 8, 253-57.
35. Nugent, C., Finlay, D., Davies, R., Pagetti, C., Tamburini, E., Black, N. (2005). Can technology improve compliance to medication? In S. Giroux, H. Pigot (Eds). From Smart homes to smart Care, IOS press, pp 65-72.
36. Kort, S. (2005). Mobile Coaching. A pilot study into the user-friendliness and effects of Mobile Coaching on the wellbeing of people with dementia and their informal caregivers. MSc thesis, Amsterdam: Faculty of Psychology, Vrije Universiteit.
37. Inglis, E.A., Szymkowiak, A., Gregor, P., Newell, A.F., Hine, N., Shah, P., Wilson, B.A., Evans, J., (2003). Issues surrounding the user-centred development of a new interactive memory aid. Universal Access Information Society 2, 226-234.
38. Zanetti, O., Zanieri, G., Vreese, L.P.d., Frisoni, G.B., Binetti, G., Trabucchi, M., (2000). Utilizing an electronic memory aid with Alzheimer's disease patients. A study of feasibility. In: Paper presented at the Sixth International Stockholm/Springfield Symposium on Advances in Alzheimer Therapy.
39. Holte, T., Hagen, I., Björneby, S., (1998). Evaluation of an electronic calendar as helping aid for persons suffering from memory problems or cognitive impairment. Report of the TED-group.
40. Sixsmith, A., Orpwood, R., Torrington, J. (2007). Quality of life technologies for people with dementia. Topics in geriatric rehabilitation. Smart technology, 23, 85-93.
41. Sävenstedt, S., Brulin, C., Sandman, P.O., 2003. Family members' narrated experiences of communicating via video-phone with patients with dementia staying at a nursing home. Journal of Telemedicine and Telecare 9, 216-220.
42. Wherton, J.P., Monk, A.F. (2008). Technological opportunities for supporting people with dementia who are living at home. International Journal of Human-Computer studies, 571-86.
43. Yasuda, K., Beckman, B., Yoneda, M., Yoneda, H., Iwamoto, A., Nakamura, T., (2006). Successful guidance by automatic output of music and verbal messages for daily behavioural disturbances of three individuals with dementia. Neuropsychological Rehabilitation, 16, 66-82.
44. http://en.eu.medicalmobile.com/iiix/home/
45. http://www.keruve.com/
46. Masuda, Y., Yoshimura, T., Nakajima, K., Nambu, M., Hayakawa, T., Tamura, T., (2002). Unconstrained monitoring of prevention of wandering the elderly. In: Engineering in Medicine and Biology, 24th Annual Conference and the Annual Fall Meeting of the Biomedical Engineering Society (EMBS/BMES Conference). Proceedings of the Second Joint 2. pp. 1906-1907.
47. Lin, C.C., Chiu, M.J., Hsiao, C.C., Lee, R.G., Tsai, Y.S., (2006). Wireless health care service system for elderly with dementia. IEEE Transactions on Information Technology in Biomedicine, 10, 696-704.
48. Dröes, R.M., Boelens-van der Knoop, E.C.C., Bos, J., Meihuizen, L., Ettema, T.P., Gerritsen, D.L., et al. (2006). Quality of life in dementia in perspective. An explorative study of variations in opinions among people with dementia and their professional caregivers and in literature. Dementia, The International Journal of Social Research and Practice, 5, 533-58.
49. ROSETTA. (2008). ROSETTA (Guidance and Awareness Services for Independent Living). Research proposal Ambient Assisted Living (AAL) Joint Programme.
50. Helander, M. (2006). A guide to human factors and ergnomics. (2nd ed.) UK: Taylor and Francis group.
51. Faber, E., de Vos, H. (Eds). (2008). Creating successful ICT services, practical guidelines based on the STOF method. Enschede: Telematica Instituut.