Patterns and predictors of paternal involvement in early adolescents' type 1 diabetes management over 3 years

Journal of Pediatric Psychology

Volumn 39, Issue 1, 2014, Pages 74-83

  Hilliard, Marisa E ^a   Rohan, Jennifer M ^b   Rausch, Joseph R ^b   Delamater, Alan ^c   Pendley, Jennifer Shroff ^d   Drotar, Dennis ^b  

^a TEXAS CHILDREN S HOSPITAL   (United States)

^b CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^c UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE   (United States)

^d NEMOURS ALFRED I DUPONT HOSPITAL FOR CHILDREN   (United States)

Author keywords

adherence; children and adolescents; fatherhood; type 1 diabetes

Indexed keywords

ADOLESCENT; CHILD; CHILD PARENT RELATION; DIABETES MELLITUS, TYPE 1; DISEASE MANAGEMENT; FATHER; FATHER CHILD RELATION; FEMALE; HUMAN; LONGITUDINAL STUDY; MALE; PROSPECTIVE STUDY; PSYCHOLOGY; SELF CARE;

ADOLESCENT; CHILD; DIABETES MELLITUS, TYPE 1; DISEASE MANAGEMENT; FATHER-CHILD RELATIONS; FATHERS; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; PARENTING; PROSPECTIVE STUDIES; SELF CARE;

EID: 84892742463     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jst067     Document Type: Article

References (36)

1. Anderson, B. J. , Ho, J. , Brackett, J. , Finkelstein, D. , & Laffel, L. (1997). Parental involvement in diabetes management tasks: Relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus. The Journal of Pediatrics, 130, 257-265.
2. Anderson, B. J. , Holmbeck, G. , Iannotti, R. J. , McKay, S. V. , Lochrie, A. , Volkening, L. K. , & Laffel, L. (2009). Dyadic measures of the parentchild relationship during the transition to adolescence and glycemic control in children with type 1 diabetes. Families, Systems, & Health, 27, 141-152.
3. Berg, C. A. , Butler, J. M. , Osborn, P. , King, G. , Palmer, D. L. , Butner, J. , . . . Wiebe, D. J. (2008). Role of parental monitoring in understanding the benefits of parental acceptance on adolescent adherence and metabolic control of type 1 diabetes. Diabetes Care, 31, 678-683.
4. Berg, C. A. , King, P. S. , Butler, J. M. , Pham, P. , Palmer, D. , & Wiebe, D. J. (2011). Parental involvement and adolescents' diabetes management: The mediating role of self-efficacy and externalizing and internalizing behaviors. Journal of Pediatric Psychology, 36, 329-339.
5. Dashiff, C. , Morrison, S. , & Rowe, J. (2008). Fathers of children and adolescents with diabetes: What do we know? Journal of Pediatric Nursing, 23, 101-119.
6. Dashiff, C. J. (2003). Self-and dependent-care responsibility of adolescents with IDDM and their parents. Journal of Family Nursing, 9, 166-183.
7. Drotar, D. , Ittenbach, R. , Rohan, J. M. , Gupta, R. , Pendley, J. S. , & Delamater, A. (2013). Diabetes management and glycemic control in youth with type 1 diabetes: Test of a predictive model. Journal of Behavioral Medicine, 36, 234-245. doi:10. 1007/ s10865-012-9426-0
8. Gavin, L. , & Wysocki, T. (2006). Associations of paternal involvement in disease management with maternal and family outcomes in families of children with chronic illness. Journal of Pediatric Psychology, 31, 481-489.
9. Hansen, J. A. , Weissbrod, C. , Schwartz, D. D. , & Taylor, W. P. (2012). Paternal involvement in pediatric type 1 diabetes: Fathers' and mothers' psychological functioning and disease management. Families, Systems, & Health, 30, 47-59.
10. Harris, M. A. , Antal, H. , Oelbaum, R. , Buckloh, L. M. , White, N. H. , & Wysocki, T. (2008). Good intentions gone awry: Assessing parental ''miscarried helping'' in diabetes. Families, Systems, & Health, 26, 393-403.
11. Harris, M. A. , Wysocki, T. , Sadler, M. , Wilkinson, K. , Harvey, L. M. , Buckloh, L. M. , . . . White, N. H. (2000). Validation of a structured interview for the assessment of diabetes self-management. Diabetes Care, 23, 1301-1304.
12. Helgeson, V. S. , Snyder, P. R. , Seltman, H. , Escobar, O. , Becker, D. , & Siminerio, L. (2010). Trajectories of glycemic control over early to middle adolescence. Journal of Pediatric Psychology, 35, 1161-1167.
13. Hilliard, M. E. , Rohan, J. M. , Carle, A. C. , Pendley, J. S. , Delamater, A. , & Drotar, D. (2011). Fathers' involvement in preadolescents' diabetes adherence and glycemic control. Journal of Pediatric Psychology, 36, 911-922.
14. Jaser, S. (2011). Family interaction in pediatric diabetes. Current Diabetes Reports, 11, 480-485.
15. King, P. S. , Berg, C. A. , Butner, J. , Drew, L. M. , Foster, C. , Donaldson, D. , . . . Wiebe, D. J. (2012). Longitudinal trajectories of metabolic control across adolescence: Associations with parental involvement, adolescents' psychosocial maturity, and health care utilization. Journal of Adolescent Health, 50, 491-6.
16. Kovacs, M. , Goldston, D. , Obrosky, D. S. , & Iyengar, S. (1992). Prevalence and predictors of pervasive noncompliance with medical treatment among youths with insulin-dependent diabetes mellitus. Journal of the American Academy of Child and Adolescent Psychiatry, 31, 1112-1119.
17. McNally, K. , Rohan, J. , Pendley, J. S. , Delamater, A. , & Drotar, D. (2010). Executive functioning, treatment adherence, and glycemic control in children with type 1 diabetes. Diabetes Care, 33, 1159-1162.
18. Leonard, B. J. , Garwick, A. , & Adwan, J. Z. (2005). Adolescents' perceptions of parental roles and involvement in diabetes management. Journal of Pediatric Nursing, 20, 405-414.
19. Palmer, D. L. , Berg, C. A. , Butler, J. , Fortenberry, K. , Murray, M. , Lindsay, R. , . . . Wiebe, D. J. (2009). Mothers', fathers', and children's perceptions of parental diabetes responsibility in adolescence: Examining the roles of age, pubertal status, and efficacy. Journal of Pediatric Psychology, 34, 195-204.
20. Palmer, D. L. , Berg, C. A. , Wiebe, D. J. , Beveridge, R. M. , Korbel, C. D. , Upchurch, R. , . . . Donaldson, D. L. (2004). The role of autonomy and pubertal status in understanding age differences in maternalinvolvement in diabetes responsibility across adolescence. Journal of Pediatric Psychology, 29, 35-46.
21. Palmer, D. L. , Osborn, P. , King, P. S. , Berg, C. A. , Butler, J. , Butner, J. , . . . Wiebe, D. J. (2011). The structure of parental involvement and relations to disease management for youth with type 1 diabetes. Journal of Pediatric Psychology, 36, 596-605.
22. Phares, V. , Lopez, E. , Fields, S. , Kamboukos, D. , & Duhig, A. M. (2005). Are fathers involved in pediatric psychology research and treatment? Journal of Pediatric Psychology, 30, 631-643.
23. Rausch, J. R. , Hood, K. K. , Delamater, A. , Shroff Pendley, J. , Rohan, J. M. , Reeves, G. , . . . Drotar, D. (2012). Changes in treatment adherence and glycemic control during the transition to adolescence in type 1 diabetes. Diabetes Care, 35, 1219-1224.
24. Schilling, L. S. , Knafl, K. A. , & Grey, M. (2006). Changing patterns of self-management in youth with type 1 diabetes. Journal of Pediatric Nursing, 21, 412-424.
25. Singer, J. D. , & Willett, J. B. (2003). Applied longitudinal data analysis: Modeling change and event occurrence. New York: Oxford Press.
26. Sullivan-Bolyai, S. , Bova, C. , Lee, M. , & Gruppuso, P. A. (2011). Mentoring fathers of children newly diagnosed with T1DM. The American Journal of Maternal/ Child Nursing, 36, 224-231.
27. Sullivan-Bolyai, S. , Knafl, K. A. , Tamborlane, W. , & Grey, M. (2004). Parents' reflections on managing their children's diabetes with insulin pumps. Journal of Nursing Scholarship, 36, 316-323.
28. Sullivan-Bolyai, S. , Rosenberg, R. , & Bayard, M. (2006). Fathers' reflections on parenting young children with type 1 diabetes. The American Journal of Maternal/ Child Nursing, 31, 24-31.
29. Swift, E. E. , Chen, R. , Hershberger, A. , & Holmes, C. S. (2006). Demographic risk factors, mediators, and moderators in youths' diabetes metabolic control. Annals of Behavioral Medicine, 32, 355-365.
30. Weinger, K. , O'Donnell, K. A. , & Ritholz, M. D. (2001). Adolescent views of diabetes-related parent conflict and support: A focus group analysis. Journal of Adolescent Health, 29, 330-336.
31. Wiebe, D. J. , Berg, C. A. , Fortenberry, K. T. , Sirstins, J. , Lindsay, R. , Donaldson, D. , & Murray, M. (2008). Physician recommendations about maternal involvement in adolescent diabetes management. Diabetes Care, 31, 690-692.
32. Wiebe, D. J. , Berg, C. A. , Korbel, C. , Palmer, D. L. , Beveridge, R. M. , Upchurch, R. , . . . Donaldson, D. L. (2005). Children's appraisals of maternal involvement in coping with diabetes: Enhancing our understanding of adherence, metabolic control, and quality of life across adolescence. Journal of Pediatric Psychology, 30, 167-178.
33. Wysocki, T. , & Gavin, L. (2004). Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases. Journal of Pediatric Psychology, 29, 231-240.
34. Wysocki, T. , & Gavin, L. (2006). Paternal involvement in the management of pediatric chronic diseases: Associations with adherence, quality of life, and health status. Journal of Pediatric Psychology, 31, 501-511.
35. Wysocki, T. , Harris, M. A. , Buckloh, L. M. , Mertlich, D. , Lochrie, A. S. , Taylor, A. , . . . White, N. H. (2008). Randomized, controlled trial of behavioral family systems therapy for diabetes: Maintenance and generalization of effects on parent-adolescent communication. Behavior Therapy, 39, 33-46.
36. Wysocki, T. , Nansel, T. R. , Holmbeck, G. N. , Chen, R. , Laffel, L. , Anderson, B. J. , & Weissberg-Benchell, J. ; Steering Committee of the Family Management of Childhood Diabetes Study. (2009). Collaborative involvement of primary and secondary caregivers: Associations with youths' diabetes outcomes. Journal of Pediatric Psychology, 34 and Kidney Diseases