Mapping the patterns of care, the receipt of palliative care and the site of death for patients with malignant glioma

Journal of Neuro-Oncology

Volumn 116, Issue 1, 2014, Pages 119-126

  Sundararajan, Vijaya ^a,b   Bohensky, Megan A ^a   Moore, Gaye ^c   Brand, Caroline A ^a,b   Lethborg, Carrie ^c   Gold, Michelle ^d   Murphy, Michael A ^c   Collins, Anna ^c   Philip, Jennifer ^c  

^a MONASH UNIVERSITY   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

^c ST VINCENT S HOSPITAL   (Australia)

^d Palliative Care Service   (Australia)

Author keywords

Adjusted odds ratio; Coded hospital data; Malignant glioma; Palliative care; Population cohort study; Symptom burden

Indexed keywords

ADULT; AGED; ARTICLE; CANCER GRADING; CANCER PALLIATIVE THERAPY; CANCER SURVIVAL; CONTROLLED STUDY; DEATH; DISEASE ASSOCIATION; EMERGENCY WARD; FEMALE; GLIOBLASTOMA; HOSPICE; HOSPITAL BED; HUMAN; MAJOR CLINICAL STUDY; MALE; RETROSPECTIVE STUDY; SURVIVAL TIME; SYMPTOM; TERMINAL CARE;

AGE FACTORS; AGED; BRAIN NEOPLASMS; COHORT STUDIES; DEATH; FEMALE; GLIOMA; HOSPICE CARE; HUMANS; LOGISTIC MODELS; MALE; MIDDLE AGED; PALLIATIVE CARE; SEX FACTORS; TERMINAL CARE; TIME FACTORS;

EID: 84891799657     PISSN: 0167594X     EISSN: 15737373     Source Type: Journal    
DOI: 10.1007/s11060-013-1263-7     Document Type: Article

References (28)

1. Schwartzbaum JA, Fisher JL, Aldape KD et al (2006) Epidemiology and molecular pathology of glioma. Nat Clin Pract Neurol 2:494-503
2. Tran B, Rosenthal M (2010) Survival comparison between glioblastoma multiforme and other incurable cancers. J Clin Neurosci 17:417-421
3. Faithfull S, Cook K, Lucas C (2005) Palliative care of patients with a primary malignant brain tumour: case review of service use and support provided. Palliat Med 19:545-550
4. Catt S, Chalmers A, Fallowfield L (2008) Psychosocial and supportive-care needs in high-grade glioma. Lancet Oncol 9:884-891
5. Pace A, Di Lorenzo C, Guariglia L et al (2009) End of life issues in brain tumor patients. J Neurooncol 91:39-43
6. Oberndorfer S, Lindeck-Pozza E, Lahrmann H et al (2008) The end-of-life hospital setting in patients with glioblastoma. J Palliat Med 11:26-30
7. Sizoo EM, Braam L, Postma TJ et al (2010) Symptoms and problems in the end-of-life phase of high-grade glioma patients. Neuro Oncol 12:1162-1166
8. Australian Bureau of Statistics (2012) Australian Demographic Statistics. http://www.abs.gov.au/ausstats/abs@nsf/mf/3101.0. Accessed 15 Aug 2012
9. Australian Bureau of Statistics (2004-2006) Private Health Insurance: a snapshot. http://www.abs.gov.au/ausstats/abs@nsf/mf/4815.0.55.001. Accessed 15 Aug 2012
10. State Government of Victoria Australia, Department of Health (2012) Victorian Emergency Minimum Dataset (VEMD). http://www.health.vic.gov.au/hdss/ vemd/index.htm. Accessed 15 Aug 2012
11. State Government of Victoria Australia, Department of Health (2012) Victorian Admitted Episodes Data Set (VAED). http://www.health.vic.gov.au/hdss/ vaed/index.htm. Accessed 15 June 2012
12. State Government of Victoria Australia, Department of Justice (2012) Victorian Registry of Births, Deaths and Marriages www.bdm.vic.gov.au. Accessed 24 April 2012
13. Henderson T, Shepheard J, Sundararajan V (2006) Quality of diagnosis and procedure coding in ICD-10 administrative data. Med Care 44:1011-1019
14. State Government of Victoria Australia, Department of Health (2012) Victorian Data Linkages. http://www.health.vic.gov.au/vdl/
15. Organisation of World Health (2012) International Classification of Diseases for Oncology, 3rd edn (ICD-O-3). http://www.who.int/classifications/ icd/adaptations/oncology/en/index.html. Accessed 24 April 2012
16. Chang SM, Parney IF, Huang W et al (2005) Patterns of care for adults with newly diagnosed malignant glioma. JAMA 293:557-564
17. University of Wollongong (2012) International Statistical Classification of Diseases and Related Health Problems, Tenth Revision, Australian Modification (ICD-10-AM). http://nccc.uow.edu.au/icd10am/icd10am/index.html. Accessed 24 April 2012
18. Gomes B, Higginson IJ, Calanzani N, et al. (2012) Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Annals of Oncology
19. Walker S, Read S, Priest H (2011) Identifying, documenting, and reviewing preferred place of death: an audit of one UK hospice. Int J Palliat Nurs 17:546-551
20. McNamara B, Rosenwax L (2007) Factors affecting place of death in Western Australia. Health Place 13:356-367
21. Hong CY, Chow KY, Poulose J et al (2011) Place of death and its determinants for patients with cancer in Singapore: an analysis of data from the Singapore Cancer Registry, 2000-2009. J Palliat Med 14:1128-1134
22. Burge F, Lawson B, Johnston G (2003) Trends in the place of death of cancer patients, 1992-1997. CMAJ 168:265-270
23. Cohen J, Houttekier D, Onwuteaka-Philipsen B et al (2010) Which patients with cancer die at home? a study of six European countries using death certificate data. J Clin Oncol 28:2267-2273
24. Hudson P (2003) Home-based support for palliative care families: challenges and recommendations. Med J Aust 179:S35-S37
25. Monroe B, Olivere D (2009) Communicating with family carers. In: Hudson P, Payne S (eds) Family carers in palliative care: a guide for health and social care professionals. Oxford University Press, New York, pp 1-20
26. Harding R, Epiphaniou E, Hamilton D et al (2011) What are the perceived needs and challenges of informal caregivers in home cancer palliative care? qualitative data to construct a feasible psycho-educational intervention. Support Care Cancer 20:1975-1982
27. Pace A, Di Lorenzo C, Capon A et al (2012) Quality of care and rehospitalization rate in the last stage of disease in brain tumor patients assisted at home: a cost effectiveness study. J Palliat Med 15:225-227
28. Davies E, Clarke C (2004) Early symptoms of brain tumours. J Neurol Neurosurg Psychiatry 75:1205-1206