Early-onset dementia: The impact on family care-givers

British Journal of Community Nursing

Volumn 18, Issue 12, 2013, Pages 598-606

  Flynn, Rachel ^a   Mulcahy, Helen ^b  

^a UNIVERSITY OF ALBERTA   (Canada)

^b UNIVERSITY COLLEGE CORK   (Ireland)

Author keywords

Care giver's burden; Early onset dementia; Family carer; Qualitative research

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CAREGIVER; COST OF ILLNESS; DEMENTIA; ECONOMICS; FEMALE; HEALTH SERVICE; HUMAN; IRELAND; MALE; MIDDLE AGED; ONSET AGE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; VERBAL COMMUNICATION;

ADOLESCENT; ADULT; AGE OF ONSET; AGED; CAREGIVERS; COST OF ILLNESS; DEMENTIA; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; IRELAND; MALE; MIDDLE AGED; NARRATION; QUALITATIVE RESEARCH;

EID: 84891448988     PISSN: 14624753     EISSN: None     Source Type: Journal    
DOI: 10.12968/bjcn.2013.18.12.598     Document Type: Article

References (29)

1. Alzheimer's Society (2008) Younger People with Dementia. http://tinyurl.com/amoltpg (accessed 5 November 2013)
2. Arai A, Matsumoto T, Ikeda, Arai Y (2007) Do family carers perceive more difficulty when they look after patients with early-onset dementia compared to those with late onset dementia? Int J Geriatr Psychiatry 22(12): 1255-61
3. Armstrong M (2003) The needs of people with young-onset dementia and their carers. J Prof Nurs 18(12): 681-4
4. Chou KR (2000) Caregiver burden: a concept analysis. J Paediatr Nurs 15(6): 398-407
5. Condon D (2010) Early onset dementia. Irish Health. http://tinyurl.com/ pr6mg6u (accessed 5 November 2013)
6. Department of Health (2005) Supporting People with Long Term Conditions: An NHS and Social Care Model to Support Local Innovation and Integration. http://tinyurl.com/pue7f72 (accessed 5 November 2013)
7. Etters L, Goodall D, Harrison EB (2008) Caregiver burden among dementia patient carers: a review of the literature. J Am Acad Nurs Pract 20(8): 423-8. doi: 10.1111/j.1745-7599.2008.00342.x
8. Freyne A, Kidd N, Coen R, Lawlor AB (1999) Burden in carers of dementia patients: higher levels in carers of young sufferers. Int J Geriatr Psychiatry 14(9): 784-8
9. Haase T (2005) Early-onset Dementia: The Needs of Younger People with Dementia in Ireland. http://tinyurl.com/phguurj (accessed 5 November 2013)
10. Harris PB, Keady J (2009) Selfhood in younger onset dementia: transitions and testimonies. Aging Ment Health 13(3): 437-44
11. Harvey RJ, Rossor MN, Skelton-Robinson M, Garralda E (1998) Young Onset Dementia: Epidemiology, Clinical Symptoms, Family Burden, Support and Outcome. Dementia Research Group
12. Hawkins, SA (2012) The social experiences of spouses of persons with youngonset dementia. Open Access Dissertations and Theses. Paper 7390. http://works.bepress.com/stacey-a-hawkins/1 (accessed 5 November 2013)
13. Holloway I, Wheeler S (2010) Qualitative Research in Nursing and Healthcare, 3rd edn. Wiley-Blackwell, Oxford
14. Kaiser S, Panegyres PK (2007) The psychosocial impact of young onset dementia on spouses. Am J Alzheimers Dis Other Demen 21(6): 398-402
15. Keady J, Nolan M (1994) Younger-onset dementia: developing a longitudinal model as the basis for a research agenda and as a guide to interventions with sufferers and carers. J Adv Nurs 19(4): 659-69
16. Liebson E, Rauch P, Graff S, Folstein M (2005) Early-onset dementia: diagnostic considerations and implications for families. Harv Rev Psychiatry 13(2): 102-11
17. Luscombe G, Brodaty H, Freeth S (1998) Younger people with dementia: diagnosis issues, effects on carers and use of services. Int J Geriatr Psychiatry 13(5): 323-30
18. O'Callaghan S (2008) Facts about dementia. http://www.alzheimer.ie/ factsaboutdementia.html (accessed 5 November 2013)
19. O'Shea E (2007) Implementing Policy for Dementia Care in Ireland: The Time for Action is Now. http://tinyurl.com/phguurj (accessed 5 November 2013)
20. Parahoo K (2006) Nursing Research, Principles, Process and Issues, 2nd edn. Palgrave Macmillan, London
21. Patton MQ (2001). Qualitative Research and Evaluation Methods, 2nd edn. Sage Publications, Thousand Oaks, CA
22. Pollen A (2004) Dates never to be forgotten as early Alzheimer's developed. J Demen Care 12(6): 22-4
23. Roach P, Keady J, Bee P, Hope K (2008) Subjective experiences of younger people with dementia and their families: implications for UK research, policy and practice. Rev Clin Geront 18(2): 165-74
24. Social Care Institute for Excellence (SCIE) and National Institute for Health and Care Excellence (NICE) (2007) A NICE-SCIE Guideline on Supporting People with Dementia and their Carers in Health and Social Care. http://tinyurl.com/qfz63n9 (accessed 5 November 2013)
25. Svanberg E, Stott J, Spector A (2010) 'Just helping': children living with a parent with young onset dementia. Ageing Ment Health 14(6): 741-50. doi: 10.1080/13607861003713174
26. Svanberg E, Spector A, Stott J (2011) The impact of young onset dementia on the family: a literature review. Int Psychogeriatr 23(3): 356-71. doi: 10.1017/S1041610210001353
27. Van Vliet D, De Vugt ME, Bakker C, Koopmans RTCM,Verhey FRJ (2010) Impact of early onset dementia on carers: a review. Int J Geriatr Psychiatry 25(11): 1091-100
28. Williams T, Dearden AM, Cameron IH (2001) From pillar to post: a study of younger people with dementia. Psychiatrist 25: 384-387
29. World Health Organization (WHO) (2012) Dementia cases set to triple by 2050 but still largely ignored. News release. http://tinyurl.com/d6pom2d (accessed 5 November 2013)