Linking HIV-positive adolescents to care in 15 different clinics across the United States: Creating solutions to address structural barriers for linkage to care

AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV

Volumn 26, Issue 1, 2014, Pages 12-19

  Philbin, Morgan M ^a   Tanner, Amanda E ^b   Duval, Anna ^c   Ellen, Jonathan ^c   Kapogiannis, Bill ^d   Fortenberry, J Dennis ^e  

^a JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^b UNIVERSITY OF NORTH CAROLINA AT GREENSBORO   (United States)

^c JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d NATIONAL INSTITUTES OF HEALTH   (United States)

^e INDIANA UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

adolescents; HIV AIDS; linkage to care; qualitative methods; structural barriers

Indexed keywords

ADOLESCENT BEHAVIOR; ADOLESCENT HEALTH; ARTICLE; CONTENT ANALYSIS; HEALTH CARE DELIVERY; HEALTH CARE FACILITY; HEALTH CARE NEED; HEALTH CARE POLICY; HEALTH INSURANCE; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MAJOR CLINICAL STUDY; PATIENT CARE; PATIENT TRANSPORT; PRIORITY JOURNAL; PUBLIC HEALTH SERVICE; SEMI STRUCTURED INTERVIEW; UNITED STATES;

ADOLESCENT; ADOLESCENT HEALTH SERVICES; AMBULATORY CARE FACILITIES; APPOINTMENTS AND SCHEDULES; ATTITUDE OF HEALTH PERSONNEL; CONTINUITY OF PATIENT CARE; DELIVERY OF HEALTH CARE; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HIV INFECTIONS; HUMANS; INTERVIEWS AS TOPIC; MALE; PATIENT ACCEPTANCE OF HEALTH CARE; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; QUESTIONNAIRES; UNITED STATES;

EID: 84891372459     PISSN: 09540121     EISSN: 13600451     Source Type: Journal    
DOI: 10.1080/09540121.2013.808730     Document Type: Article

References (42)

1. American Academy of Pediatrics (AAP). (1997). Disclosure of illness status to children and adolescents with HIV infection. Pediatrics, 103(1), 164-166. Retrieved from http://pediatrics.aappublications.org/content/103/1/164. full.html
2. Bethell, C. D., Kogan, M. D., Strickland, B. B., Schor, E. L., Robertson, J., & Newacheck, P. W. (2011). A national and state profile of leading health problems and health care quality for US children: Key insurance disparities and across-state variations. Academic Pediatrics, 11(3), S22-S33. doi:10.1016/j.acap.2010.08.011
3. Blankenship, K. M., Bray, S. J., & Merson, M. H. (2000). Structural interventions in public health. Aids, 14, S11. doi:10.1097/00002030-200006001- 00003
4. Blum, R. W. M. (1992). Chronic illness and disability in adolescence. Journal of Adolescent Health, 13(5), 364-368. doi:10.1016/1054-139X(92)90029-B
5. Centers for Disease Control and Prevention (CDC). (2013). Surveillance overview: HIV incidence. Atlanta, GA: Author.
6. Chutuape, K. S., Willard, N., Sanchez, K., Straub, D. M., Ochoa, T. N., Howell, K., Ellen, J. M. (2010). Mobilizing communities around HIV prevention for youth: How three coalitions applied key strategies to bring about structural changes. AIDS Education and Prevention: Official Publication of the International Society for AIDS Education, 22(1), 15. doi:10.1521/aeap.2010.22.1. 15
7. Cook, J. A., Cohen, M. H., Grey, D., Kirstein, L., Burke, J., Anastos, K., Young, M. (2002). Use of highly active antiretroviral therapy in a cohort of HIV-seropositive women.American Journal of PublicHealth, 92(1), 82-87. doi:10.2105/AJPH.92.1.82
8. Craw, J., Gardner, L., Rossman, A., Gruber, D. A., Noreen, O. D., Jordan, D., Phillips, K. (2010). Structural factors and best practices in implementing a linkage to HIV care program using the ARTAS model. BMC Health Services Research, 10(1), 246. doi:10. 1186/1472-6963-10-246
9. Craw, J. A., Gardner, L. I., Marks, G., Rapp, R. C., Bosshart, J., Duffus, W. A., Schmitt, K. (2008). Brief strengths-based case management promotes entry into HIV medical care: Results of the antiretroviral treatment access study-II. Journal of Acquired Immune Deficiency Syndromes, 47(5), 597-606. doi:10.1097/QA I.0b013e3181684c51
10. Cunningham, W. E., Andersen, R. M., Katz, M. H., Stein, M. D., Turner, B. J., Crystal, S., Shapiro, M. F. (1999). The impact of competing subsistence needs and barriers on access to medical care for persons with human immunodeficiency virus receiving care in the United States. Medical Care, 37(12), 1270-1281. doi:10. 1097/00005650-199912000-00010
11. Fortenberry, J. D., Martinez, J., Rudy, B. J., & Monte, D. (2012). Linkage to care for HIV-Positive adolescents: A multisite study of the adolescent medicine trials units of the adolescent trials network. Journal of Adolescent Health, 51(6), 551-556. Retrieved from http://www.sciencedirect.com/ science/article/pii/S1054139X1200 1334
12. Futterman, D., Chabon, B., & Hoffman, N. D. (2000). HIV and AIDS in adolescents. Pediatric Clinics of North America, 47(1), 171-188. doi:10.1016/S0031-3955(05)7 0200-5
13. Gardner, L. I., Marks, G., Craw, J., Metsch, L., Strathdee, S., Anderson-Mahoney, P., & del Rio, C. (2009). Demographic, psychological, and behavioral modifiers of the antiretroviral treatment access study (ARTAS) intervention. AIDS Patient Care and STDs, 23(9), 735-742. doi:10.1089/apc.2008. 0262
14. Giordano, T. P., Gifford, A. L., White, A. C., Almazor, M. E. S., Rabeneck, L., Hartman, C., Morgan, R. O. (2007). Retention in care: A challenge to survival with HIV infection. Clinical Infectious Diseases, 44(11), 1493-1499. doi:10.1086/516778
15. Giordano, T. P., Visnegarwala, F., White, A. C., Troisi, C. L., Frankowski, R. F., Hartman, C. M., & Grimes, R. M. (2005). Patients referred to an urban HIV clinic frequently fail to establish care: Factors predicting failure. AIDS Care, 17, 773-783. doi:10.1080/0954012 0412331336652
16. Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. London: Aldine de Gruyter.
17. Hutton, A. E. (2003). Adolescents discuss sharing space in an adolescent ward. Neonatal, Paediatric and Child Health Nursing, 2(2), 24-29.
18. Kempf, M. C., McLeod, J., Boehme, A. K., Walcott,MW., Wright, L., Seal, P., Moneyham, L. (2010). A qualitative study of the barriers and facilitators to retention-in-care among HIV-positive women in the rural southeastern United States: Implications for targeted interventions. AIDS Patient Care and STDs, 24(8), 515-520. Retrieved from http://online.liebertpub.com/doi/abs/10.1089/apc. 2010.0065
19. Kissinger, P., Clark, R., Rice, J., Kutzen, H., Morse, A., & Brandon, W. (1995). Evaluation of a program to remove barriers to public health care for women with HIV infection. Southern Medical Journal, 88(11), 1121. doi:10.1097/00007611-199511000-00007
20. Latkin, C., Weeks, M. R., Glasman, L., Galletly, C., & Albarracin, D. (2010). A dynamic social systems modelfor considering structural factors in HIV prevention and detection. AIDS and Behavior, 14(S2), 222-238. doi:10.1007/s10461-010-9804-y
21. Lichtenstein, B. (2003). Stigma as a barrier to treatment of sexually transmitted infection in the American deep south: Issues of race, gender and poverty. Social Science & Medicine, 57(12), 2435-2445. doi:10.1016/j. socscimed.2003.08.002
22. Lillie-Blanton, M., Stone, V. E., Snow Jones, A., Levi, J., Golub, E. T., Cohen, M. H., Wilson, T. E. (2010). Association of race, substance abuse, and health insurance coverage with use of highly active antiretroviral therapy among HIV-infected women, 2005. American Journal of Public Health, 100(8), 1493-1499. doi:10.2105/AJPH.2008.158949
23. Macfarlane, A., & Blum, R. W. (2001). Do we need specialist adolescent units in hospitals? British Medical Journal, 322(7292), 941-942. doi:10.1136/bmj.322.7292.941
24. Magnus, M., Schmidt, N., Kirkhart, K., Schieffelin, C., Fuchs, N., Brown, B., & Kissinger, P. J. (2001). Association between ancillary services and clinical and behavioral outcomes among HIV-infected women. AIDS Patient Care and STDs, 15(3), 137-145. doi:10. 1089/108729101750123607
25. McCoy, S. I. (2002). HIV testing and linkage to care in North Carolina: Early diagnosis, late diagnosis and delayed presentation to care. (Doctoral dissertation, HIV ATN LTC dissertation database, Chapel Hill
26. Metsch, L. R., Pereyra, M., Messinger, S., del Rio, C., Strathdee, S. A., Anderson-Mahoney, P., Gardner, L. (2008). HIV transmission risk behaviors among HIVinfected persons who are successfully linked to care. Clinical Infectious Diseases, 47(4), 577-584. doi:10. 1086/590153
27. Moore, R. D. (2011). Epidemiology of HIV infection in the United States: Implications for linkage to care. Clinical Infectious Diseases, 52(Suppl. 2), S208. Retrieved from http://cid.oxfordjournals.org/content/52/suppl-2/S208. short
28. Mugavero, M. J., Norton, W. E., & Saag, M. S. (2011). Health care system and policy factors influencing engagement in HIV medical care: Piecing together the fragments of a fractured health care delivery system. Clinical Infectious Diseases, 52(Suppl. 2), S238. Retrieved from http://cid. oxfordjournals.org/content/52/suppl-2/S238.short
29. Muhr, T. (2004). ATLAS/ti (Version 4.2.) [Computer software]. Berlin: Scientific Software Development.
30. Office of National AIDS Policy (ONAP). (2012). National HIV/AIDS strategy: Update of the 2011-2012 federal efforts to implement the National HIV/AIDS strategy. Retrieved from http://www.aids.gov/federal-resources/ national-hiv-aids-strategy/documents/index.html
31. Orr, D. P., Weller, S. C., Satterwhite, B., & Pless, I. B. (1984). Psychosocial implications of chronic illness in adolescence. The Journal of Pediatrics, 104(1), 152-157. doi:10.1016/S0022-3476(84)80616-2
32. Pao, M., Lyon, M.,D'Angelo, L., Schuman,W., Tipnis, T.,& Mrazek, D. (2000). Psychiatric diagnoses in adolescents seropositive for the human immunodeficiency virus. Archives of Pediatrics and Adolescent Medicine, 154(3), 240. Retrieved from http://www.ncbi.nlm.nih.gov/pub med/10710020
33. Safren, S.A.,Hendriksen,E. S., Mayer,K. H.,Mimiaga, M. J., Pickard, R., & Otto, M. W. (2004). Cognitive-behavioral therapy for HIV medication adherence and depression. Cognitive and Behavioral Practice, 11(4), 415-424. doi:10. 1016/S1077-7229(04)80058-0
34. Sherer, R., Stieglitz, K., Narra, J., Jasek, J., Green, L., Moore, B., Cohen, M. (2002). HIV multidisciplinary teams work: Support services improve access to and retention in HIV primary care. AIDS Care, 14(S1), 31-44. doi:10.1080/09540120220149975
35. Stein, M., Crystal, S., Cunningham, W., Ananthanarayanan, A., Andersen, R., Turner, B., Bozzette, S. (2000). Delays in seeking HIV care due to competing caregiver responsibilities. American Journal of Public Health, 90(7), 1138-1140. doi:10.2105/AJPH.90.7.1138
36. Straub, D. M., Deeds, B. G., Willard, N., Castor, J., Peralta, L., Francisco, V. T., Adolescent Trials Network for, H. I. V. A. I. (2007). Partnership selection and formation: A case study of developing adolescent health community-researcher partnerships in fifteen US communities. Journal of Adolescent Health, 40(6), 489-498. doi:10.1016/j.jadohealth.2006.11.136
37. Tanner, A., Philbin, M. M., Duval, A., Ellen, J., Kapogiannis, B., & Fortenberry, J. D. (2012). Linking HIV postiive adolescents to care: The role and process of 'youth friendly' clinical environments. Paper presented at the American Public Health Association Conference, San Francisco, CA.
38. Tanner, A., Philbin, M. M., Duval, A., Ellen, J., Kapogiannis, B., & Fortenberry, J. D. (in press). Linking HIVpositive adolescents into care: The effects of relationships between local health departments and adolescent medicine clinics. Journal of HIV and Social Services.
39. Tripathi, A., Youmans, E., Gibson, J. J., & Duffus, W. A. (2011). The impact of retention in early HIVmedical care on viro-immunological parameters and survival: A statewide study. AIDS Research and Human Retroviruses, 27(7), 751-758. Retrieved from http://online.liebertpub.com/doi/abs/10.1089/aid.2010. 0268
40. Ulett, K. B., Willig, J. H., Lin, H.-Y., Routman, J. S., Abroms, S., Allison, J., Mugavero, M. (2009). The therapeutic implications of timely linkage and early retention in HIV care. AIDS Patient Care and STDs, 23(1), 41-49. doi:10.1089/apc.2008.0132
41. Zaller, N. D., Holmes, L., Dyl, A. C., Mitty, J. A., Beckwith, C. G., Flanigan, T. P., & Rich, J. D. (2008). Linkage to treatment and supportive services among HIV-positive ex-offenders in Project Bridge. Journal of Health Care for the Poor and Underserved, 19(2), 522-531. doi:10.1353/hpu.0.0030
42. Ziff, M. A., Harper, G. W., Chutuape, K. S., Deeds, B. G., Futterman, D., Francisco, V. T., Ellen, J. M. (2006). Laying the foundation for connect to protect†: A multi-site community mobilization intervention to reduce HIV/AIDS incidence and prevalence among urban youth. Journal of Urban Health, 83(3), 506-522. doi:10.1007/s11524-006-9036-7