Development and evaluation of the REACH (Recognise End of life And Care Holistically) out in Dementia toolkit

Australasian Journal on Ageing

Volumn 32, Issue 4, 2013, Pages 241-246

  Potter, Jan M ^a   Fernando, Ramesh ^a   Humpel, Nancy ^b  

^a WOLLONGONG HOSPITAL   (Australia)

^b UNIVERSITY OF WOLLONGONG   (Australia)

Author keywords

ACFs; End stage dementia; Palliative care; Review

Indexed keywords

ACFS; AGED; ARTICLE; DEMENTIA; END STAGE DEMENTIA; HUMAN; METHODOLOGY; PALLIATIVE THERAPY; PSYCHOLOGICAL ASPECT; RECOGNITION; REVIEW; SEVERITY OF ILLNESS INDEX;

ACFS; END STAGE DEMENTIA; PALLIATIVE CARE; REVIEW;

AGED; DEMENTIA; HUMANS; PALLIATIVE CARE; RECOGNITION (PSYCHOLOGY); SEVERITY OF ILLNESS INDEX;

EID: 84891116317     PISSN: 14406381     EISSN: 17416612     Source Type: Journal    
DOI: 10.1111/ajag.12062     Document Type: Article

References (45)

1. Caplan GA, Williams AJ, Daly B, Abraham KA. Randomized controlled trial of comprehensive geriatric assessment and multidisciplinary intervention after discharge of elderly from the emergency department - The DEED II Study. Journal of the American Geriatrics Society 2004; 52: 1417-1423.
2. Department of Health and Ageing. Guidelines for a Palliative Approach in residential aged care. May 2006. Canberra.
3. Chang E, Daly J, Harrison K, Easterbrook S, Noel M, Hancock K. Challenges for professional care of advanced dementia. International Journal of Nursing Practice 2009; 15: 41-47.
4. Sachs GA, Shega JW, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. Journal of Gerontological Internal Medicine 2004; 19: 1057-1063.
5. Mitchell SL, Kiely DK, Hamel MB, Mitchell SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home. Archives of Internal Medicine 2004; 164: 321-326.
6. Chang E, Daly J, Johnson A, Harrison K, Easterbrook S, Bidewell J etal. Challenges for professional care of advanced dementia. International Journal of Nursing Practice 2009; 15: 41-47.
7. Di Giulio P, Toscani F, Villani D, Brunelli C, Gentile S, Spadin P. Dying with advanced dementia in long-term care geriatric institutions: A retrospective study. Journal of Palliative Medicine 2008; 11: 1023-1028.
8. Mitchell SL, Teno JM, Kiely DK, Shaffer ML, Jones RN, Prigerson HG etal. The clinical course of advanced dementia. The New England Journal of Medicine 2009; 361: 1529-1538.
9. Volicer L. End of life care for people with dementia in long-term care settings. Alzheimers Care Today 2008; 9: 84-102.
10. Ahronheim J, Morrison S, Baskin S, Morris J, Meier DE. Treatment of the dying in the acute care hospital. Archives of Internal Medicine 1996; 156: 2094-2100.
11. Aminoff BZ, Adunsky A. Their last 6 months: Suffering and survival of end-stage dementia patients. Age and Ageing 2006; 35: 597-601.
12. Alzheimer's Disease International. World Alzheimer Report 2010: The Global Economic Impact of Dementia. 2010.
13. Australian Bureau of Statistics. Australian Social Trends December 2012. People Identified As Having Dementia Or Alzheimer's Disease. Sydney: Australian Bureau of Statistics, 2012: Catalogue No. 4102.0.
14. Bezzina A. Prevalence of advanced care directives in aged care facilities of the Northern Illawarra. Emergency Medicine Australia 2009; 21: 379-385.
15. Caplan GA, Meller AE, Squires B, Chan S, Willett W. Advance care planning and hospital in the nursing home. Age and Ageing 2006; 35: 581-585.
16. Birch D, Draper J. A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia. Journal of Clinical Nursing 2008; 17: 1144-1163.
17. Hertogh CMPM. Advance care planning and the relevance of a palliative care approach in dementia. Age and Ageing 2006; 35: 553-555.
18. Ouldred E, Bryant C. Dementia care. Part 3: End-of-life care for people with advanced dementia. British Journal of Nursing 2008; 17: 308-314.
19. Abbey J. Palliative Care and Dementia. Alzheimers Australia 2006; 1-24.
20. Shuster J. Palliative care for advanced dementia. Clinics in Geriatric Medicine 2000; 16: 373-386.
21. Volicer L. Goals of care in advance dementia:quality of life, dignity and comfort. Journal of Nutrition, Health & Aging 2007; 11: 481.
22. Voisin T. Diagnosis and treatment of patients with severe Alzheimer's disease [Review]. Drugs & Ageing 2009; 26: 135-144.
23. ACH Group. Planning for palliative dementia care resource guide. 2009.
24. Tariot P. Medical management of advance dementia. Journal of the American Geriatrics Society [Review]. 2003; 51: 305-315.
25. Luchins D, Hanrahan P, Murphy K. Criteria for enrolling dementia patients in hospice. Journal of the American Geriatrics Society 1997; 45: 1054-1059.
26. Robinson L, Hughes J, Daley S, Keady J, Ballard C, Volicer L. End-of-life care and dementia. Reviews in Clinical Gerontology 2005; 15: 135-148.
27. Volicer L. Management of severe Alzheimer's disease and end-of-life issues. Clinics in Geriatric Medicine 2001; 17: 377-391.
28. Kim KY, Yeaman PA, Keene RL. Practical geriatrics: End-of-Life care for persons with Alzheimer's Disease. Psychiatric Services 2005; 56: 139-141.
29. Reisberg B. Functional Assessment Staging (FAST). Psychopharmacology Bulletin 1988; 24: 653-659.
30. Chatterjee J. End-of-life care for patients with dementia. Nursing Older People 2008; 20: 29-34.
31. Abbey J, Palk E, Carlson L, Parker D. Clinical Practice Guidelines and Care Pathways for People with Dementia Living in the Community. Brisbane: Queensland University of Technology, 2008.
32. Aminoff BZ, Adunsky A. Dying dementia patients: Too much suffering, too little palliation. American Journal of Alzheimer's Disease and Other Dementias 2004; 19: 243-247.
33. Wolf-Klein G, Pekmezaris R, Chin L, Weiner J. Conceptualizing Alzheimer's disease as a terminal illness. American Journal of Hospice and Palliative Medicine 2007; 24: 77-82.
34. McCarthy M, Addington-Hall J, Altmann DAN. The experience of dying with dementia: A retrospective study. International Journal of Geriatric Psychiatry 1997; 12: 404-409.
35. Sampson EL. Palliative care for people with dementia. British Medical Bulletin 2010; 96: 159-174.
36. Kam D. Dysphagia and aspiration in older people. Revision 2010. Position Statement 12. [Cited 1 December 2010.] Available from URL: http://www.anzsgm.org/posstate.asp
37. Birch D, Stokoe D. Caring for people with end-stage dementia. Nursing Older People 2010; 22: 31-36.
38. Coventry PA, Grande GE, Richards DA, Todd CJ. Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: A systematic review. Age and Ageing 2005; 34: 218-227.
39. Kverno KS, Rabins PV, Blass DM, Hicks KL, Black BS. Prevalence and treatment of neuropsychiatric symptoms in advanced dementia. Journal of Gerontological Nursing 2008; 34: 8-15.
40. Wetzels R. Course of neuropsychiatric symptoms in residents with dememtia in nursing homes over 2 year period. American Journal of Geriatric Psychiatry 2010; 18: 1054-1065.
41. Morrison RS, Siu AL. Survival in end-stage dementia following acute illness. JAMA: the Journal of the American Medical Association 2000; 284: 47-52.
42. Volicer L. Medical issues in late stage dementia. Alzheimer's Care Quarterly 2005; 6: 29-34.
43. Keene J. Death and dementia. International Journal of Geriatric Psychiatry 2001; 16: 969-974.
44. Moss MS, Braunschweig H, Rubinstein RL. Terminal care for nursing home residents with dementia. Alzheimer's Care Quarterly 2002; 3: 233-246.
45. Mitchell SL, Kiely DK, Hamel MB, Park PS, Morris JN, Fries BE. Estimating prognosis for nursing home residents with advanced dementia. JAMA: the Journal of the American Medical Association 2004; 291: 2734-2740.