The Context and Principles of Palliative Care

Handbook of Palliative Care: Second Edition

Volumn , Issue , 2008, Pages 1-21

  Faull, Christina ^a  

^a UNIVERSITY HOSPITALS OF LEICESTER NHS TRUST   (United Kingdom)

Author keywords

Developing world; Ethnic diversity; Hospice philosophy; Opioids; Palliative care

Indexed keywords

EID: 84891006141     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9780470755877.ch1     Document Type: Chapter

References (63)

1. Redinbaugh EM, Sullivan AM, Block SD et al. Doctors' emotional reactions to recent death of a patient: cross sectional study of hospital doctors. BMJ 2003; 327: 185.
2. Kfir N, Slevin M. Challenging Cancer: From Chaos to Control. London: Tavistock/Routledge, 1991.
3. Mitchell GK. How well do general practitioners deliver palliative care? A systematic review. Palliat Med 2002; 16: 457-464.
4. Singer PA, Wolfson M. The best places to die. BMJ 2003; 327: 173-174.
5. Saunders C. Foreword. In: Doyle D, Hanks GWC, Macdonald N, eds. Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1993: v-viii.
6. Cancer Pain Relief and Palliative Care. Technical Report Series: 804. Geneva: World Health Organization, 1990.
7. Tebbit P. Definitions of Supportive and Palliative Care: A Consultation Paper London: National Council for Hospice and Specialist Palliative Care Services, 2002.
8. Saunders C. Care of the dying-the problem of euthanasia. Nursing Times 1976; 72: 1049-1052.
9. The Barcelona Declaration on Palliative Care. Prog Palliat Care 1996; 4: 113.
10. Sternsward J, Clark D. Palliative medicine-a global perspective. In: Doyle D, Hanks G, Cherny N, Calman K, eds. Oxford Textbook of Palliative Medicine. 3rd edition. Oxford: Oxford University Press, 2003.
11. Lopez AD. Causes of death: an assessment of global patterns of mortality around 1985. World Health Stat Quart 1990; 43: 91-104.
12. Bulato RA, Stephens PW. Estimates and projections of mortality by cause: a global overview 1970-2015. In: Jamison DT, Mosley HW, eds. The World Bank Health Sector Priorities Review. Washington DC: World Bank, 1991.
13. World Health Organization. Tobacco-attributable mortality: global estimates and projections. In: Tobacco Alert. Geneva: World health Organisation, 1991.
14. United Nations. Single Convention on Narcotic Drugs, 1961. United Nations sales No. E62.XI.1, New York: UN 1962.
15. International Narcotics Control Board. Availability of Opiates for Medical Needs. New York: United Nations, 1996.
16. Kutner JS, Kassner CT, Nowels DE. Symptom burden at the end of life: hospice providers' perceptions. J Pain Symptom Manage 2001; 21: 473-480.
17. Rogers MS, Todd CJ. The 'right kind' of pain: talking about symptoms in outpatient oncology consultations. Palliat Med. 2000; 14: 299-307.
18. Larue F, Collequ SM, Brasser L, Cleeland CS. Multicentre study of cancer pain and its treatment in France. BMJ 1995; 310: 1034-1037.
19. Cleeland CS, Gonin R, Hatfield AK et al. Pain and its treatment in outpatients with metastatic cancer. N Engl J Med 1994; 330: 592-596.
20. Addington-Hall J, McCarthy M. Dying from cancer: results of a national population-based investigation. Palliat Med 1995; 9: 295-305.
21. Valdimarsdottir U, Helgason AR, Furst CJ, Adolfsson J, Steineck G. The unrecognised cost of cancer patients' unrelieved symptoms: a nationwide follow-up of their surviving partners. Br J Cancer. 2002; 86: 1540-1545.
22. Mills M, Davies HTO, Macrae WA. Care of dying patients in hospital. BMJ 1994; 309: 583-586.
23. Jones RVH. A Parkinson's Disease Study in Devon and Cornwall. London: Parkinson's Disease Society, 1993.
24. Addington-Hall JM, Lay M, Altmann D, McCarthy M. Symptom control, communication with health professionals and hospital care of stroke patients in the last year of life, as reported by surviving family, friends and carers. Stroke 1995; 26: 2242-2248.
25. Department of Health. National Service Framework for Coronary Heart Disease. London: Department of Health, 2000. www.doh.gov.uk/pdfs/chdnsf.pdf
26. Department of Health. National Service Framework for Older People. London: Department of Health, 2001. www.doh.gov.uk/nsf/olderpeople/pdfs/nsfolderpeople.pdf
27. Tebbit P. Palliative Care for Adults with Non-malignant Diseases: Developing a National Policy. London: National Council for Hospices and Specialist Palliative Care Services, 2003.
28. Addington-Hall J. Reaching Out: Specialist Palliative Care for Adults with Non-Malignant Diseases Occasional, Paper 14. London: National Council for Hospices and Specialist Palliative Care Services, 1998.
29. Munday D, Dale J, Barnett M. Out-of-hours palliative care in the UK: perspectives from general practice and specialist services. J R Soc Med. 2002; 95: 28-30.
30. Shipman C, Addington-Hall J, Barclay S et al. Providing palliative care in primary care: how satisfied are GPs and district nurses with current out-of-hours arrangements? Br J Gen Pract. 2000; 50: 477-478.
31. Thomas K. Out of Hours Palliative Care in the Community London: Macmillan Cancer Relief, 2000.
32. Chattoo S, Ahmad W, Haworth M, Lennard R. South Asian and White Patients with Advanced Cancer: Patients' and Families' Experiences of the Illness and Perceived Needs for Care. Final Report to Cancer Research UK. Centre for Research in Primary Care, University of Leeds, January 2002.
33. Hill D, Penso D. Opening Doors: Improving Access to Hospice and Specialist Palliative Care Services by Members of Black and Ethnic Minority Communities. London: National Council for Hospices and Specialist Palliative Care Services, 1995.
34. Firth S. Wider Horizons: Care of the Dying in a Multicultural Society. London: The National Council for Hospice and Specialist Palliative Care Services, 2001.
35. Karim K, Bailey M, Tunna KH. Non-white ethnicity and the provision of specialist palliative care services: factors affecting doctors' referral patterns. Palliat Med 2000; 14: 471-478.
36. Gunarantum Y. Ethnicity and palliative care. In: Culley L and Dyson S, eds. Ethnicity and Nursing Practice. Basingstoke: Palgrave, 2001.
37. Faull C. Cancer and palliative care In: Kai J, ed. Ethnicity, Health and Primary Care. Oxford: Oxford University Press, 2003.
38. Selby P. Cancer clinical outcomes for minority ethnic groups. Br J Cancer 1996; 74: S54-S60.
39. Johnson MRD, Bains J, Chauan J, et al. Improving Palliative Care for Minority Ethnic Communities in Birmingham. A report for the Birmingham Specialist and Community NHS Trust and Macmillan Trust, 2001.
40. Gatrad AR, Brown E, Notta H, Sheikh A. Palliative care needs of minorities. BMJ 2003; 327: 176-177.
41. Department of Health. The NHS Cancer Plan: A Plan for Iinvestment, a Plan for Reform. London: Department of Health, 2000.
42. National Institute for Clinical Excellence. Guidance on Cancer Services: Improving Supportive and Palliative Care for Adults with Cancer. London: National Institute for Clinical Excellence, 2004.
43. Thomas K. Caring for the Dying at Home: Companions on a Journey. Oxford: Radcliffe Medical Press, 2003.
44. Thomas, K. The Gold Standards Framework in community palliative care. Eur J Palliat Care 2003; 10(3): 113-115.
45. Grande GE, Todd CJ, Barclay SIG, Farquhar MC. Does hospital at home for palliative care facilitate death at home? Randomised controlled trial. BMJ 1999; 319: 1472-1475.
46. Grady A, Travers E. Hospice at Home 2: evaluating a crisis intervention service. Int J Palliat Nurs 2003; 9: 326-335.
47. Buckman R. Communication in palliative care: a practical guide. In: Doyle D, Hanks GWC, Macdonald N, eds. Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1993: 47-61.
48. Twycross R, Wilcock A. Symptom Management in Advanced Cancer, 3rd edition. Oxford: Radcliffe Medical Press, 2001.
49. Blyth A. An audit of terminal care in general practice. BMJ 1987; 294: 871-874.
50. Twycross RG, Fairfield S. Pain in far advanced cancer. Pain 1982; 14: 303-310.
51. King N, Thomas K, Bell D. An out-of-hours protocol for community palliative care: practitioners' perspectives. Int J Palliat Nurs. 2003; 9: 277-282.
52. Cassidy S. Sharing the Darkness; the Spirituality of Caring. London: Darton, Longman and Todd, 1988.
53. What is a Good Death? BMJ 2003; 327: 173-237.
54. Department of Health. Building on the Best: Choice, Responsiveness and Equity in the NHS London: Department of Health, 2003.
55. Department of Health. National Surveys of NHS Patients: Cancer National Overview 1999-2000. London: Department of Health, 2002.
56. Commission for Health Improvement. National Service Framework Assessment 1: NHS Cancer Care in England and Wales. London: Commission for Health Improvement, 2001.
57. National Council for Hospice and Specialist Palliative Care Services. The Palliative Care Survey 1999. London: National Council for Hospice and Specialist Palliative Care Services, 2000.
58. Ellershaw J, Ward C. Care of the dying patients; the last hours or days of life. BMJ 2003; 326: 30-34.
59. Fowell A, Finlay I, Johnstone R, Minto L. An integrated care pathway for the last two days of life: Wales-wide benchmarking in palliative care. Palliat Nurs 2002; 8: 566-573.
60. Hearn J, Higginson IJ. Outcome measures in palliative care for advanced cancer patients. J Pub Health Med 1997; 19: 193-199.
61. Clinical effectiveness working group. The Which Tool Guide? Southampton: Association for Palliative Medicine, 2002.
62. Hearn J, Higginson IJ. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. Qual Health Care. 1999; 8: 219-227.
63. Ewing G, Todd C, Rogers M, Barclay S, McCabe J, Martin A. Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R. J Pain Symptom Manage. 2004; 27: 287-299.