Autonomy and the patient's right 'not to know' in clinical whole-genomic sequencing

European Journal of Human Genetics

Volumn 22, Issue 1, 2014, Pages 6-

  Townsend, Anne ^a   Rousseau, Francois ^b   Friedman, Jan ^a   Adam, Shelin ^a   Lohn, Zoe ^a   Birch, Patricia ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b UNIVERSITÉ LAVAL   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

COUNSELING; DECISION MAKING; EMPOWERMENT; GENE SEQUENCE; HUMAN; INFORMATION; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; LETTER; PATIENT ATTITUDE; PATIENT AUTONOMY; PATIENT SELF-DETERMINATION ACT; PRIORITY JOURNAL; DNA SEQUENCE; ETHICS; GENETIC SCREENING; HUMAN GENOME; MENTAL CAPACITY;

GENETIC TESTING; GENOME, HUMAN; HUMANS; INFORMED CONSENT; MENTAL COMPETENCY; SEQUENCE ANALYSIS, DNA;

EID: 84890805575     PISSN: 10184813     EISSN: 14765438     Source Type: Journal    
DOI: 10.1038/ejhg.2013.94     Document Type: Letter

References (6)

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2. Berg JS, Khoury MJ, Evans JP: Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time. Genet Med 2011; 13: 499-504.
3. Andorno R: The right not to know: an autonomy based approach. J Med Ethics 2004; 30: 435-440.
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5. Townsend A, Adam S, Birch P, Friedman J, Lohn Z, Rousseau F: I want to know what's in Pandora's box: comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing. Am J Med Genet Part A 2012; 158A: 2519-2525.
6. Hildt E: Predictive Genetic Testing, Autonomy and Responsibility for Future Health. Med Studies 2009; 1: 143-153.