News and views: Finland on a road towards a modern legal biobanking infrastructure

European Journal of Health Law

Volumn 20, Issue 3, 2013, Pages 289-294

  Soini, Sirpa ^a  

^a NATIONAL PUBLIC HEALTH INSTITUTE   (Finland)

Author keywords

biobanks; Finland's Biobank Act; informed consent; legislation; medical research

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; FINLAND; HEALTH CARE FACILITY; HUMAN; INFORMED CONSENT; LEGAL ASPECT; MEDICAL RESEARCH; LEGISLATION AND JURISPRUDENCE;

ACCESS TO INFORMATION; BIOLOGICAL SPECIMEN BANKS; BIOMEDICAL RESEARCH; FINLAND; HUMANS; INFORMED CONSENT;

EID: 84890564607     PISSN: 09290273     EISSN: 15718093     Source Type: Journal    
DOI: 10.1163/15718093-12341278     Document Type: Review

References (9)

1. www.finlex.fi Finnish official page for government acts, bills, case-law etc.
2. Some acts have been translated into other languages, but the Biobank Act is not one of them yet.
3. See L. Peltonen, A. Jalanko and T. Varilo, "Molecular genetics of the Finnish disease heritage", Human Molecular Genetics 8(10) (1999)1913-1923. (Pubitemid 29458670)
4. See M. Gissler and J. Haukka, "Finnish health and social welfare registers in epidemiological research", Norsk Epidemiologi 14(1) (2004) 113-120.
5. G. Gaskell et al., "Europeans and biotechnology in 2010. Winds of change? ", European Commission, 2010 (EUR 24537).
6. See www.nationalbiobanks.fi
7. These pages contain information on Finnish epidemiological and clinical study collections and their availability for research.
8. European Commission, "Biobanks for Europe. A challenge for governance", Report of the Expert group on Dealing with Ethical and Regulatory Challenges of International Biobank Research. European Commission, 2012 (EUR 25302).
9. See www.bbmri.eu.