Hope and Burden among Latino Families of Adults with Schizophrenia

Family Process

Volumn 52, Issue 4, 2013, Pages 697-708

  Hernandez, Mercedes ^a   Barrio, Concepción ^a   Yamada, Ann Marie ^a  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

Caregivers; Community Mental Health; Family Burden; Hispanic; Resilience; Severe Mental Illness

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; COMMUNITY MENTAL HEALTH; COST OF ILLNESS; CULTURAL FACTOR; ECONOMICS; ETHNOLOGY; FAMILY BURDEN; FAMILY RELATION; FEMALE; HISPANIC; HOPE; HUMAN; LEISURE; MALE; MIDDLE AGED; NUCLEAR FAMILY; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGY; REGRESSION ANALYSIS; RESILIENCE; SCHIZOPHRENIA; SEVERE MENTAL ILLNESS; TIME; YOUNG ADULT;

CAREGIVERS; COMMUNITY MENTAL HEALTH; FAMILY BURDEN; HISPANIC; RESILIENCE; SEVERE MENTAL ILLNESS;

ACCULTURATION; ADULT; AGED; CAREGIVERS; COST OF ILLNESS; FAMILY RELATIONS; FEMALE; HISPANIC AMERICANS; HOPE; HUMANS; LEISURE ACTIVITIES; MALE; MIDDLE AGED; NUCLEAR FAMILY; PSYCHIATRIC STATUS RATING SCALES; REGRESSION ANALYSIS; SCHIZOPHRENIA; SCHIZOPHRENIC PSYCHOLOGY; TIME FACTORS; YOUNG ADULT;

EID: 84890131512     PISSN: 00147370     EISSN: 15455300     Source Type: Journal    
DOI: 10.1111/famp.12042     Document Type: Article

References (66)

1. Awad, A. G., & Voruganti, L. N. P. (2008). The burden of schizophrenia on caregivers: A review. PharmacoEconomics, 26, 149-162. doi:10.2165/00019053-200826020-00005.
2. Barrio, C., & Dixon, L. B. (2012). Clinician interactions with patients and families. In J. A. Lieberman & R. M. Murray (Eds.), Comprehensive care of schizophrenia: A textbook of clinical management, 2nd ed. (pp. 342-356). New York, NY: Oxford University Press.
3. Barrio, C., Hernández, M., & Barragán, A. (2011). Serving Latino families caring for a person with serious mental illness. In L. P. Buki & L. M. Piedra (Eds.), Creating infrastructures for Latino mental health (pp. 159-175). New York, NY: Springer.
4. Barrio, C., & Yamada, A.-M. (2005). Serious mental illness among Mexican immigrant families: Implications for culturally relevant practice. Journal of Immigrant & Refugee Services, 3(1-2), 87-106. doi:10.1300/J191v03n01_05.
5. Barrio, C., & Yamada, A.-M. (2010). Culturally based intervention development: The case of Latino families dealing with schizophrenia. Research on Social Work Practice, 20, 483-492. doi:10.1177/1049731510361613.
6. Barrio, C., Yamada, A.-M., Atuel, H., Hough, R. L., Yee, S., Berthot, B. et al. (2003). A tri-ethnic examination of symptom expression on the Positive and Negative Syndrome Scale in schizophrenia spectrum disorders. Schizophrenia Research, 60, 259-269. doi:10.1016/s0920-9964(02)00223-2.
7. Barrio, C., Yamada, A.- M., Hough, R. L., Hawthorne, W., Garcia, P., & Jeste, D. V. (2003). Ethnic disparities in use of public mental health case management services among patients with schizophrenia. Psychiatric Services, 54, 1264-1270. doi:10.1176/appi.ps.54.9.1264.
8. Bauer, R., Koepke, F., Sterzinger, L., & Spiessl, H. (2012). Burden, rewards, and coping - The ups and downs of caregivers of people with mental illness. Journal of Nervous and Mental Disease, 200, 928-934. doi:10.1097/NMD.0b013e31827189b1.
9. Bell, M. D., Lysaker, P. H., Beam-Goulet, J. L., Milstein, R. M., & Lindenmayer, J.-P. (1994). Five-component model of schizophrenia: Assessing the factorial invariance of the Positive and Negative Syndrome Scale. Psychiatry Research, 59, 295-303. doi:10.1016/0165-1781(94)90075-2.
10. Bland, R., & Darlington, Y. (2002). The nature and sources of hope: Perspectives of family caregivers of people with serious mental illness. Perspectives in Psychiatric Care, 38, 61-68. doi:10.1111/j.1744-6163.2002.tb00658.x.
11. Breitborde, N. J. K., López, S. R., Chang, C., Kopelowicz, A., & Zarate, R. (2009). Emotional over-involvement can be deleterious for caregivers' health. Social Psychiatry and Psychiatric Epidemiology, 44, 716-723. doi:10.1007/s00127-008-0492-0.
12. Breitborde, N. J. K., López, S. R., & Kopelowicz, A. (2010). Expressed emotion and health outcomes among Mexican-Americans with schizophrenia and their caregiving relatives. Journal of Nervous and Mental Disease, 198, 105-109. doi:10.1097/NMD.0b013e3181cc532d.
13. Chavez, L. M., Matías-Carrelo, L., Barrio, C., & Canino, G. (2007). The cultural adaptation of the Youth Quality of Life Instrument-Research Version for Latino children and adolescents. Journal of Child and Family Studies, 16, 72-86. doi:10.1007/s10826-006-9069-2.
14. Cuellar, I., Harris, L. C., & Jasso, R. (1980). An acculturation scale for Mexican American normal and clinical populations. Hispanic Journal of Behavioral Sciences, 2, 199-217.
15. Eggerman, M., & Panter-Brick, C. (2010). Suffering, hope, and entrapment: Resilience and cultural values in Afghanistan. Social Science & Medicine, 71, 71-83. doi:10.1016/j.socscimed.2010.03.023.
16. Friedman-Yakoobian, M. S., Weisman de Mamani, A., & Mueser, K. T. (2009). Predictors of distress and hope in relatives of individuals with schizophrenia. Israel Journal of Psychiatry and Related Sciences, 46, 130-140.
17. Glanville, D. N., & Dixon, L. (2005). Caregiver burden, family treatment approaches and service use in families of patients with schizophrenia. Israel Journal of Psychiatry and Related Sciences, 42, 15-22.
18. Grandón, P., Jenaro, C., & Lemos, S. (2008). Primary caregivers of schizophrenia outpatients: Burden and predictor variables. Psychiatry Research, 158, 335-343. doi:10.1016/j.psychres.2006.12.013.
19. Guada, J., Brekke, J. S., Floyd, R., & Barbour, J. (2009). The relationships among perceived criticism, family contact, and consumer clinical and psychosocial functioning for African-American consumers with schizophrenia. Community Mental Health Journal, 45, 106-116. doi:10.1007/s10597-008-9165-4.
20. Guarnaccia, P. J. (1998). Multicultural experiences of family caregiving: A study of African American, European American, and Hispanic American families. New Directions for Mental Health Services, 1998(77), 45-61. doi:10.1002/yd.23319987706.
21. Guarnaccia, P. J., Parra, P., Deschamps, A., Milstein, G., & Argiles, N. (1992). Si Dios quiere: Hispanic families' experiences of caring for a seriously mentally ill family member. Culture, Medicine and Psychiatry, 16, 187-215. doi:10.1007/bf00117018.
22. Hatfield, A. B. (1994). The family's role in caregiving and service delivery. In H. P. Lefley & M. Wasow (Eds.), Helping families cope with mental illness (pp. 65-77). Chur, Switzerland: Harwood Academic Publishers.
23. Heru, A. M. (2000). Family functioning, burden, and reward in the caregiving for chronic mental illness. Families, Systems, & Health, 18, 91-103. doi:10.1037/h0091855.
24. Horton, T. V., & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46, 382-399. doi:10.1037/0090-5550.46.4.382.
25. Jenkins, J. H. (1988). Ethnopsychiatric interpretations of schizophrenic illness: The problem of nervios within Mexican-American families. Culture, Medicine and Psychiatry, 12, 301-329. doi:10.1007/bf00051972.
26. Jenkins, J. H., & Karno, M. (1992). The meaning of expressed emotion: Theoretical issues raised by cross-cultural research. American Journal of Psychiatry, 149, 9-21.
27. Jenkins, J. H., & Schumacher, J. G. (1999). Family burden of schizophrenia and depressive illness: Specifying the effects of ethnicity, gender and social ecology. British Journal of Psychiatry, 174, 31-38. doi:10.1192/bjp.174.1.31.
28. Karanci, A. N. (1995). Caregivers of Turkish schizophrenic patients: Causal attributions, burdens and attitudes to help from the health professionals. Social Psychiatry and Psychiatric Epidemiology, 30, 261-268. doi:10.1007/bf00805792.
29. Kay, S. R., Fiszbein, A., & Opler, L. A. (1987). The Positive and Negative Syndrome Scale (PANSS) for schizophrenia. Schizophrenia Bulletin, 13, 261-276. doi:10.1093/schbul/13.2.261.
30. Kopelowicz, A., Zarate, R., Gonzalez Smith, V., Mintz, J., & Liberman, R. P. (2003). Disease management in Latinos with schizophrenia: A family-assisted, skills training approach. Schizophrenia Bulletin, 29, 211-227. doi:10.1093/oxfordjournals.schbul.a006999.
31. Kylmä, J., Juvakka, T., Nikkonen, M., Korhonen, T., & Isohanni, M. (2006). Hope and schizophrenia: An integrative review. Journal of Psychiatric and Mental Health Nursing, 13, 651-664. doi:10.1111/j.1365-2850.2006.01012.x.
32. López, S. R. (2002). Mental health care for Latinos: A research agenda to improve the accessibility and quality of mental health care for Latinos. Psychiatric Services, 53, 1569-1573. doi:10.1176/appi.ps.53.12.1569.
33. López, S. R., Nelson Hipke, K., Polo, A. J., Jenkins, J. H., Karno, M., Vaughn, C. et al. (2004). Ethnicity, expressed emotion, attributions, and course of schizophrenia: Family warmth matters. Journal of Abnormal Psychology, 113, 428-439. doi:10.1037/0021-843X.113.3.428.
34. Lucksted, A., McFarlane, W., Downing, D., & Dixon, L. (2012). Recent developments in family psychoeducation as an evidence-based practice. Journal of Marital and Family Therapy, 38, 101-121. doi:10.1111/j.1752-0606.2011.00256.x.
35. Magaña, S. M., Ramírez García, J. I., Hernández, M. G., & Cortez, R. (2007). Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma. Psychiatric Services, 58, 378-384. doi:10.1176/appi.ps.58.3.378.
36. Magliano, L., Fiorillo, A., De Rosa, C., Malangone, C., & Maj, M., & the National Mental Health Project Working Group. (2005). Family burden in long-term diseases: A comparative study in schizophrenia vs. physical disorders. Social Science & Medicine, 61, 313-322. doi:10.1016/j.socscimed.2004.11.064.
37. Matías-Carrelo, L. E., Chávez, L. G., Negrón, G., Canino, G., Aguilar-Gaxiola, S., & Hoppe, S. (2003). The Spanish translation and cultural adaptation of five mental health outcome measures. Culture, Medicine and Psychiatry, 27, 291-313. doi:10.1023/a:1025399115023.
38. Maurin, J. T., & Boyd, C. B. (1990). Burden of mental illness on the family: A critical review. Archives of Psychiatric Nursing, 4, 99-107. doi:10.1016/0883-9417(90)90016-E.
39. Miller, J. F., & Powers, M. J. (1988). Development of an instrument to measure hope. Nursing Research, 37, 6-10. doi:10.1097/00006199-198801000-00002.
40. Murray-Swank, A., Dixon, L. B., & Stewart, B. (2007). Practical interview strategies for building an alliance with the families of patients who have severe mental illness. Psychiatric Clinics of North America, 30, 167-180. doi:10.1016/j.psc.2007.01.004.
41. Ong, A. D., Edwards, L. M., & Bergeman, C. S. (2006). Hope as a source of resilience in later adulthood. Personality and Individual Differences, 41, 1263-1273. doi:10.1016/j.paid.2006.03.028.
42. Pai, S., & Kapur, R. L. (1981). The burden on the family of a psychiatric patient: Development of an interview schedule. British Journal of Psychiatry, 138, 332-335. doi:10.1192/bjp.138.4.332.
43. Parra Cardona, J. R., Domenech-Rodriguez, M., Forgatch, M., Sullivan, C., Bybee, D., Holtrop, K. et al. (2012). Culturally adapting an evidence-based parenting intervention for Latino immigrants: The need to integrate fidelity and cultural relevance. Family Process, 51, 56-72. doi:10.1111/j.1545-5300.2012.01386.x.
44. Parra, P. A., & Guarnaccia, P. (1998). Ethnicity, culture, and resiliency in caregivers of a seriously mentally ill family member. In H. I. McCubbin, E. A. Thompson, A. I. Thompson, & J. E. Fromer (Eds.), Resiliency in Native American and immigrant families (pp. 431-450). Thousand Oaks, CA: Sage.
45. Pickett, S. A., Cook, J. A., & Heller, T. (1998). Support group satisfaction: A comparison of minority and White families. New Directions for Mental Health Services, 1998(77), 63-73. doi:10.1002/yd.23319987707.
46. Ramírez García, J. I., Hernández, B., & Dorian, M. (2009). Mexican American caregivers' coping efficacy. Social Psychiatry and Psychiatric Epidemiology, 44, 162-170. doi:10.1007/s00127-008-0420-3.
47. Rutter, M. (1987). Psychosocial resilience and protective mechanisms. American Journal of Orthopsychiatry, 57, 316-331. doi:10.1111/j.1939-0025.1987.tb03541.x.
48. Santisteban, D. A., Coatsworth, J. D., Briones, E., Kurtines, W., & Szapocznik, J. (2012). Beyond acculturation: An investigation of the relationship of familism and parenting to behavior problems in Hispanic youth. Family Process, 51, 470-482. doi:10.1111/j.1545-5300.2012.01414.x.
49. Schrank, B., Bird, V., Rudnick, A., & Slade, M. (2012). Determinants, self-management strategies and interventions for hope in people with mental disorders: Systematic search and narrative review. Social Science & Medicine, 74, 554-564. doi:10.1016/j.socscimed.2011.11.008.
50. Schwartz, C., & Hadar, L. (2007). Parents caring for adult children with physical disabilities: The impact of hope and closeness on caregiving benefits. Families in Society, 88, 273-282. doi:10.1606/1044-3894.3625.
51. Suro, G., & Weisman de Mamani, A. G. (2012). Burden, interdependence, ethnicity, and mental health in caregivers of patients with schizophrenia. Family Process. Advance online publication. doi:10.1111/famp.12002.
52. Tabachnick, B. G., & Fidell, L. S. (2007). Using multivariate statistics, 5th ed.. Boston, MA: Allyn & Bacon.
53. Truitt, M., Biesecker, B., Capone, G., Bailey, T., & Erby, L. (2012). The role of hope in adaptation to uncertainty: The experience of caregivers of children with Down syndrome. Patient Education and Counseling, 87, 233-238. doi:10.1016/j.pec.2011.08.015.
54. Tuck, I., du Mont, P., Evans, G., & Shupe, J. (1997). The experience of caring for an adult child with schizophrenia. Archives of Psychiatric Nursing, 11, 118-125. doi:10.1016/s0883-9417(97)80034-9.
55. U.S. Census Bureau. (2012). Hispanic Heritage Month 2012: Sept. 15-Oct. 15 [Press release]. Retrieved from http://www.census.gov/newsroom/releases/archives/facts_for_features_special_editions/cb12-ff19.html (accessed October 11, 2012).
56. U.S. Department of Health and Human Services. (2009). Schizophrenia (NIH Publication No. 09-3517). Washington, DC: National Institute of Mental Health. Retrieved from http://www.nimh.nih.gov/health/publications/schizophrenia/complete-index.shtml (accessed August 25, 2012).
57. Valdez, C. R., Abegglen, J., & Hauser, C. T. (2012). Fortalezas Familiares program: Building sociocultural and family strengths in Latina women with depression and their families. Family Process. Advance online publication. doi:10.1111/famp.12008.
58. Valle, R., Yamada, A.-M., & Barrio, C. (2004). Ethnic differences in social network help-seeking strategies among Latino and Euro-American dementia caregivers. Aging & Mental Health, 8, 535-543. doi:10.1080/13607860410001725045.
59. Vega, W. A., Karno, M., Alegria, M., Alvidrez, J., Bernal, G., Escamilla, M. et al. (2007). Research issues for improving treatment of U.S. Hispanics with persistent mental disorders. Psychiatric Services, 58, 385-394. doi:10.1176/appi.ps.58.3.385.
60. Vega, W. A., Kolody, B., Aguilar-Gaxiola, S., & Catalano, R. (1999). Gaps in service utilization by Mexican Americans with mental health problems. American Journal of Psychiatry, 156, 928-934.
61. Veltman, A., Cameron, J. I., & Stewart, D. E. (2002). The experience of providing care to relatives with chronic mental illness. Journal of Nervous and Mental Disease, 190, 108-114. doi:10.1097/00005053-200202000-00008.
62. Weisman, A., Gomes, L. G., & López, S. R. (2003). Shifting blame away from ill relatives: Latino families' reactions to schizophrenia. Journal of Nervous and Mental Disease, 191, 574-581. doi:10.1097/01.nmd.0000087183.90174.a8.
63. Weisman, A. G., & López, S. R. (1997). An attributional analysis of emotional reactions to schizophrenia in Mexican and Anglo American cultures. Journal of Applied Social Psychology, 27, 223-244. doi:10.1111/j.1559-1816.1997.tb00630.x.
64. Weisman, A., Rosales, G., Kymalainen, J., & Armesto, J. (2005). Ethnicity, family cohesion, religiosity and general emotional distress in patients with schizophrenia and their relatives. Journal of Nervous and Mental Disease, 193, 359-368. doi:10.1097/01.nmd.0000165087.20440.d1.
65. Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., Verjee-Lorenz, A. et al. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation. Value in Health, 8, 94-104. doi:10.1111/j.1524-4733.2005.04054.x.
66. Zauszniewski, J. A., Bekhet, A. K., & Suresky, M. J. (2008). Factors associated with perceived burden, resourcefulness, and quality of life in female family members of adults with serious mental illness. Journal of the American Psychiatric Nurses Association, 14, 125-135. doi:10.1177/1078390308315612.