Living and dying: Responsibility for end-of-life care in care homes without on-site nursing provision - a prospective study

Health and Social Care in the Community

Volumn 22, Issue 1, 2014, Pages 22-29

  Handley, Melanie ^a   Goodman, Claire ^a   Froggatt, Katherine ^b   Mathie, Elspeth ^a   Gage, Heather ^c   Manthorpe, Jill ^d   Barclay, Stephen ^e   Crang, Clare ^e   Iliffe, Steve ^f  

^a UNIVERSITY OF HERTFORDSHIRE   (United Kingdom)

^b LANCASTER UNIVERSITY   (United Kingdom)

^c UNIVERSITY OF SURREY   (United Kingdom)

^d KING'S COLLEGE LONDON   (United Kingdom)

^e UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^f UNIVERSITY COLLEGE LONDON   (United Kingdom)

Author keywords

Advance care planning; Care home staff; District nurses; Dying; End of life care; General Practitioners; Residential care homes

Indexed keywords

AGED; FEMALE; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; MALE; MEDICAL STAFF; MIDDLE AGED; NURSING HOME; PATIENT CARE; PROFESSIONAL STANDARD; PROSPECTIVE STUDY; PSYCHOLOGY; QUALITATIVE RESEARCH; TERMINAL CARE; UNITED KINGDOM; VERY ELDERLY;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; ATTITUDE OF HEALTH PERSONNEL; ENGLAND; FEMALE; HUMANS; MALE; MEDICAL STAFF; MIDDLE AGED; NURSING HOMES; PROFESSIONAL ROLE; PROFESSIONAL-PATIENT RELATIONS; PROSPECTIVE STUDIES; QUALITATIVE RESEARCH; TERMINAL CARE;

EID: 84889674041     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/hsc.12055     Document Type: Article

References (21)

1. Badger F., Plumridge G., Hewison A., Shaw K., Thomas K. & Clifford C. (2011) An evaluation of the impact of the Gold Standards Framework on collaboration in end-of-life care in nursing homes. A qualitative and quantitative evaluation. International Journal of Nursing Studies 23, 502-511.
2. Boockvar K., Brodie H.D. & Lachs M. (2000) Nursing assistants detect behavior changes in nursing home residents that precede acute illness: development and validation of an illness warning instrument. Journal of the American Geriatrics Society 48, 1086-1091.
3. British Geriatrics Society (2011) Quest for Quality: An Inquiry into the Quality of Healthcare Support for Older People in Care Homes: A Call for Leadership, Partnership and Improvement. British Geriatrics Society, London.
4. Care Quality Commission (2012) Health Care in Care Homes: A Special Review of the Provision of Health Care to those in Care Homes. Care Quality Commission, London.
5. Davies S.L., Goodman C., Bunn F. et al. (2011) A systematic review of integrated working between care homes and health care services. BMC Health Services Research 11, 320.
6. Dy S. & Lynn J. (2007) Getting services right for those sick enough to die. BMJ 334, 511.
7. Froggatt K. (2001) Life and death in English nursing homes: sequestriation or transition? Ageing and Society 21, 319-332.
8. Gage H., Dickinson A., Victor C. et al. (2012) Integrated working between residential care homes and primary care: a survey of care homes in England. BMC Geriatrics 12, 71.
9. Gandy R., Roe B., McClelland B. & Ashton S. (2011) The cost-benefits of end-of-life training in care homes with dementia patients. BMJ Support Palliative Care 1, 83.
10. Goddard C., Stewart F., Thompson G. & Hall S. (2011) Providing end-of-life care in care homes for older people: a qualitative study of the views of care home staff and community nurses. Journal of Applied Gerontology 32, 76-95.
11. Goodman C., Woolley R. & Knight D. (2003) District nurses' experiences of providing care in residential care home settings. Journal of Clinical Nursing 12, 67-76.
12. Goodman C., Evans C., Wilcock J. et al. (2010) End of life care for community dwelling older people with dementia: an integrated review. International Journal of Geriatric Psychiatry 25, 329-337.
13. Goodman C., Davies S., Dickinson A. et al. (2012) A study to develop integrated working between primary health care services and care homes. NIHR Service Delivery and Organisation programme, Southampton.
14. Hall S., Kolliakou A., Petkova H., Froggatt K. & Higginson I.J. (2011) Interventions for Improving Palliative Care for Older People Living in Nursing Care Homes (Review). The Cochrane Collaboration, John Wiley & Sons, Ltd.
15. Jacobs S., Alborz A., Hann M. & Glendinning C. (2001) A National Survey of Access to NHS Services of Older People in Residential and Nursing Care Homes. National Centre for Primary Care and Research Development Manchester, Manchester.
16. Mathie E., Goodman C., Crang C., Froggatt K., Iliffe S., Manthorpe J. & Barclay S. (2012) An uncertain future: the unchanging views of care home residents about living and dying. Palliative Medicine 26, 734-743.
17. National End of Life Care Programme (NEoLCP) (2010). Supporting people to live and die well: a framework for social care at the end of life. Report of the Social Care Advisory Group of the National End of Life Care Programme. National Health Service.
18. Netten A., Bebbington A., Darton R. & Forder J. (2001) Care Homes for Older People: Volume 1. Facilities, Residents and Costs. Personal Social Services Research Unit, University of Kent, Canterbury.
19. Prince M., Bryce R. & Ferri C. (2011) Alzheimer's Disease International World Alzheimer Report 2011: The Benefits of Early Diagnosis and Intervention. Alzheimer's Disease International (ADI), London.
20. Shaw K.L., Clifford C., Thomas C. & Meehan H. (2010) Improving end-of-life care: a critical review of the Gold Standards Framework in primary care. Palliative Medicine 24, 317-329.
21. Van Der Steen J.T. & Volicer L. (2011) Decision-making in patients with severe dementia and pneumonia cross-national perspectives. International Journal of Geriatric Psychiatry 26 (2), 216-217.