Patient reported barriers and facilitators to using a self-management booklet for hip and knee osteoarthritis in primary care: Results of a qualitative interview study

BMC Family Practice

Volumn 14, Issue , 2013, Pages

  Cuperus, Nienke ^a   Smink, Agnes J ^a   Bierma Zeinstra, Sita Ma ^b   Dekker, Joost ^c   Schers, Henk J ^d   De Boer, Fijgje ^c   Van Den Ende, Cornelia H ^a   Vliet Vlieland, Thea Pm ^e  

^a Sint Maartenskliniek ^*  (Netherlands)

^b ERASMUS MEDICAL CENTER   (Netherlands)

^c VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^d RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^e LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; ATTITUDE TO HEALTH; DISEASE MANAGEMENT; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE PERSONNEL; HIP OSTEOARTHRITIS; HUMAN; INTERPERSONAL COMMUNICATION; KNEE OSTEOARTHRITIS; MALE; METHODOLOGY; MIDDLE AGED; NETHERLANDS; PRIMARY HEALTH CARE; PSYCHOLOGICAL ASPECT; PUBLICATION; QUALITATIVE RESEARCH; SELF CARE; VERY ELDERLY;

AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; COMMUNICATION; DISEASE MANAGEMENT; FEMALE; HEALTH PERSONNEL; HUMANS; MALE; MIDDLE AGED; NETHERLANDS; OSTEOARTHRITIS, HIP; OSTEOARTHRITIS, KNEE; PAMPHLETS; PHYSICIAN-PATIENT RELATIONS; PRIMARY HEALTH CARE; QUALITATIVE RESEARCH; SELF CARE;

EID: 84888383724     PISSN: None     EISSN: 14712296     Source Type: Journal    
DOI: 10.1186/1471-2296-14-181     Document Type: Review

References (48)

1. Osteoarthritis: epidemiology. Arden N, Nevitt MC, Best Pract Res Clin Rheumatol 2006 20 3 25 10.1016/j.berh.2005.09.007 16483904 (Pubitemid 43230460)
2. World Health Organization, The global burden of disease: 2004 update Geneva: World Health Organization 2004
3. EULAR recommendations for the non-pharmacological core management of hip and knee osteoarthritis. Fernandes L, Hagen KB, Bijlsma JW, Andreassen O, Christensen P, Conaghan PG, Doherty M, Geenen R, Hammond A, Kjeken I, Lohmander LS, Lund H, Mallen CD, Nava T, Oliver S, Pavelka K, Pitsillidou I, da Silva JA, de la Torre J, Zanoli G, Vliet Vlieland TP, Ann Rheum Dis 2013 72 1125 1135 10.1136/annrheumdis-2012-202745 23595142
4. OARSI recommendations for the management of hip and knee osteoarthritis, Part II: OARSI evidence-based, expert consensus guidelines. Zhang W, Moskowitz RW, Nuki G, Abramson S, Altman RD, Arden N, Bierma-Zeinstra S, Brandt KD, Croft P, Doherty M, Dougados M, Hochberg M, Hunter DJ, Kwoh K, Lohmander LS, Tugwell P, Osteoarthritis Cartilage 2008 16 137 162 10.1016/j.joca.2007.12.013 18279766 (Pubitemid 351222155)
5. American College of Rheumatology 2012 recommendations for the use of nonpharmacologic and pharmacologic therapies in osteoarthritis of the hand, hip, and knee. Hochberg MC, Altman RD, April KT, Benkhalti M, Guyatt G, McGowan J, Towheed T, Welch V, Wells G, Tugwell P, Arthritis Care Res (Hoboken) 2012 64 465 474 22563589
6. Self-management approaches for people with chronic conditions: a review. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J, Patient Educ Couns 2002 48 177 187 10.1016/S0738-3991(02)00032-0 12401421 (Pubitemid 36158880)
7. A randomised controlled trial of a self-management education program for osteoarthritis of the knee delivered by health care professionals. Coleman S, Briffa NK, Carroll G, Inderjeeth C, Cook N, McQuade J, Arthritis Res Ther 2012 14 21 10.1186/ar3703 22284848
8. Self-management in osteoarthritis of hip or knee: a randomized clinical trial in a primary healthcare setting. Heuts PH, de Bie R, Drietelaar M, Aretz K, Hopman-Rock M, Bastiaenen CH, Metsemakers JF, van Weel C, van Schayck O, J Rheumatol 2005 32 543 549 15742451 (Pubitemid 40381430)
9. Arthritis self-management education programs: a meta-analysis of the effect on pain and disability. Warsi A, LaValley MP, Wang PS, Avorn J, Solomon DH, Arthritis Rheum 2003 48 2207 2213 10.1002/art.11210 12905474 (Pubitemid 36959201)
10. Beating osteoARThritis: development of a stepped care strategy to optimize utilization and timing of non-surgical treatment modalities for patients with hip or knee osteoarthritis. Smink AJ, van den Ende CH, Vliet Vlieland TP, Swierstra BA, Kortland JH, Bijlsma JW, Voorn TB, Schers HJ, Bierma-Zeinstra SM, Dekker J, Clin Rheumatol 2011 30 1623 1629 10.1007/s10067-011-1835-x 21887488
11. Smink AJ, Care booklet "Care for Osteoarthritis" (in Dutch: "Zorgwijzer Artrose©"). Bone& Joint Decade NL 2013 Available at http://www.artrosezorgnet.nl/diagnose-behandeling/ZorgwijzerArtrose/
12. Developing an 'interactive' booklet on respiratory tract infections in children for use in primary care consultations. Francis N, Wood F, Simpson S, Hood K, Butler CC, Patient Educ Couns 2008 73 286 293 10.1016/j.pec.2008.07.020 18723306
13. From best evidence to best practice: effective implementation of change in patients' care. Grol R, Grimshaw J, Lancet 2003 362 1225 1230 10.1016/S0140-6736(03)14546-1 14568747 (Pubitemid 37255352)
14. Activity Increase Despite Arthritis (AIDA): phase II randomised controlled trial of an active management booklet for hip and knee osteoarthritis in primary care. Williams NH, Amoakwa E, Belcher J, Edwards RT, Hassani H, Hendry M, Burton K, Lewis R, Hood K, Jones J, Bennett P, Linck P, Neal RD, Wilkinson C, Br J Gen Pract 2011 61 452 458 10.3399/bjgp11X588411
15. Knowledge in patients with rheumatoid arthritis: a longer term follow-up of a randomized controlled study of patient education leaflets. Barlow JH, Wright CC, Br J Rheumatol 1998 37 373 376 10.1093/rheumatology/37.4.373 9619885
16. The effect of a patient education booklet and BP 'tracker' on knowledge about hypertension. A randomized controlled trial. Dawes MG, Kaczorowski J, Swanson G, Hickey J, Karwalajtys T, Fam Pract 2010 27 472 478 10.1093/fampra/cmq048 20631056
17. Single-blind randomized controlled trial of an educational booklet for patients with chronic arthritis. Maggs FM, Jubb RW, Kemm JR, Br J Rheumatol 1996 35 775 777 10.1093/rheumatology/35.8.775 8761192
18. Implementing diabetes passports to focus practice reorganization on improving diabetes care. Dijkstra R, Braspenning J, Grol R, Int J Qual Health Care 2008 20 72 77 18024508
19. Introduction of diabetes passports involving both patients and professionals to improve hospital outpatient diabetes care. Dijkstra RF, Braspenning JC, Huijsmans Z, Akkermans RP, van Ballegooie E, ten Have P, Casparie T, Grol RP, Diabetes Res Clin Pract 2005 68 126 134 10.1016/j.diabres.2004.09.020 15860240 (Pubitemid 40602619)
20. The New Zealand diabetes passport study: a randomized controlled trial of the impact of a diabetes passport on risk factors for diabetes-related complications. Simmons D, Gamble GD, Foote S, Cole DR, Coster G, Diabet Med 2004 21 214 217 10.1111/j.1464-5491.2004.01047.x 15008829 (Pubitemid 38299613)
21. Patient-held shared care records for individuals with mental illness. Randomised controlled evaluation. Warner JP, King M, Blizard R, McClenahan Z, Tang S, Br J Psychiatr 2000 177 319 324 10.1192/bjp.177.4.319
22. A randomized controlled trial of an information booklet for hypertensive patients in general practice. Watkins CJ, Papacosta AO, Chinn S, Martin J, J R Coll Gen Pract 1987 37 548 550 3503941
23. Empowering patients: how to implement a diabetes passport in hospital care. Dijkstra R, Braspenning J, Grol R, Patient Educ Couns 2002 47 173 177 10.1016/S0738-3991(01)00196-3 12191541 (Pubitemid 34626405)
24. Patients' and practitioners' views of knee osteoarthritis and its management: a qualitative interview study. Alami S, Boutron I, Desjeux D, Hirschhorn M, Meric G, Rannou F, Poiraudeau S, PLoS One 2011 6 19634 10.1371/journal.pone.0019634
25. Why don't patients do their exercises? Understanding non-compliance with physiotherapy in patients with osteoarthritis of the knee. Campbell R, Evans M, Tucker M, Quilty B, Dieppe P, Donovan JL, J Epidemiol Community Health 2001 55 132 138 10.1136/jech.55.2.132 11154253 (Pubitemid 32095200)
26. Why should we exercise when our knees hurt? A qualitative study of primary care patients with osteoarthritis of the knee. Hendry M, Williams NH, Markland D, Wilkinson C, Maddison P, Fam Pract 2006 23 558 567 10.1093/fampra/cml022 16731544 (Pubitemid 44404489)
27. Facilitators and barriers to exercising among people with osteoarthritis: a phenomenological study. Petursdottir U, Arnadottir SA, Halldorsdottir S, Phys Ther 2010 90 1014 1025 10.2522/ptj.20090217 20466741
28. Management recommendations for knee osteoarthritis: how usable are they? Poitras S, Rossignol M, Avouac J, Avouac B, Cedraschi C, Nordin M, Rousseaux C, Rozenberg S, Savarieau B, Thoumie P, Valat JP, Vignon E, Hilliquin P, Joint Bone Spine 2010 77 458 465 10.1016/j.jbspin.2010.08.001 20851659
29. Barriers to the effectiveness of any intervention in OA. Carr A, Best Pract Res Clin Rheumatol 2001 15 645 656 10.1053/berh.2001.0179 11567545 (Pubitemid 33026126)
30. Reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. Pope C, Mays N, BMJ 1995 311 42 45 10.1136/bmj.311.6996.42 7613329
31. Qualitative interviews in medical research. Britten N, BMJ 1995 311 251 253 10.1136/bmj.311.6999.251 7627048
32. The general public's information needs and perceptions regarding hereditary cancer: an application of the Integrated Change Model. de Vries H, Mesters I, van de Steeg H, Honing C, Patient Educ Couns 2005 56 154 165 10.1016/j.pec.2004.01.002 15653244 (Pubitemid 40093813)
33. Agreement of general practitioners with the guideline-based stepped-care strategy for patients with osteoarthritis of the hip or knee: a cross-sectional study. Smink AJ, Bierma-Zeinstra SM, Dekker J, Vliet Vlieland TP, Bijlsma JW, Swierstra BA, Kortland JH, Voorn TB, van den Ende CH, Schers HJ, BMC Fam Pract 2013 14 33 10.1186/1471-2296-14-33 23497253
34. Health care use of patients with osteoarthritis of the hip or knee after implementation of a stepped care strategy. Smink AJ, Dekker J, Vliet Vlieland TP, Swierstra BA, Kortland JH, Bijlsma JW, Teerenstra S, Voorn TB, Bierma-Zeinstra SM, Schers HJ, van den Ende CH, Arthritis Care Res (Hoboken) doi: 10.1002/acr.22222, in press
35. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Tong A, Sainsbury P, Craig J, Int J Qual Health Care 2007 19 349 357 10.1093/intqhc/mzm042 17872937 (Pubitemid 350186969)
36. Using thematic analysis in psychology. Braun V, Clarke V, Qual Res Psychol 2006 3 77 101 10.1191/1478088706qp063oa
37. Understanding and evaluating qualitative research. Fossey E, Harvey C, McDermott F, Davidson L, Aust N Z J Psychiatry 2002 36 717 732 10.1046/j.1440-1614.2002.01100.x 12406114 (Pubitemid 35469732)
38. EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. van Eijk-Hustings Y, van Tubergen A, Bostrom C, Braychenko E, Buss B, Felix J, Firth J, Hammond A, Harston B, Hernandez C, Huzjak M, Korandova J, Kukkurainen ML, Landewe R, Mezieres M, Milincovic M, Moretti A, Oliver S, Primdahl J, Scholte-Voshaar M, Torre-Aboki J, Waite-Jones J, Westhovens R, Zangi HA, Heiberg T, Hill J, Ann Rheum Dis 2012 71 13 19 10.1136/annrheumdis-2011-200185 22039168
39. Problems and needs for improving primary care of osteoarthritis patients: the views of patients, general practitioners and practice nurses. Rosemann T, Wensing M, Joest K, Backenstrass M, Mahler C, Szecsenyi J, BMC Musculoskelet Disord 2006 7 48 10.1186/1471-2474-7-48 16749935 (Pubitemid 44139338)
40. UK-based physical therapists' attitudes and beliefs regarding exercise and knee osteoarthritis: findings from a mixed-methods study. Holden MA, Nicholls EE, Young J, Hay EM, Foster NE, Arthritis Rheum 2009 61 1511 1521 10.1002/art.24829 19877105
41. A qualitative study of GPs' attitudes to self-management of chronic disease. Blakeman T, Macdonald W, Bower P, Gately C, Chew-Graham C, Br J Gen Pract 2006 56 407 414 16762121 (Pubitemid 43891222)
42. Influences on older people's decision making regarding choice of topical or oral NSAIDs for knee pain: qualitative study. Carnes D, Anwer Y, Underwood M, Harding G, Parsons S, BMJ 2008 336 142 145 10.1136/bmj.39401.699063.BE 18056742 (Pubitemid 351211966)
43. Authoritarian physicians and patients' fear of being labeled 'difficult' among key obstacles to shared decision making. Frosch DL, May SG, Rendle KA, Tietbohl C, Elwyn G, Health Aff (Millwood) 2012 31 1030 1038 10.1377/hlthaff.2011.0576 22566443
44. Illness perceptions: impact on self-management and control in asthma. Kaptein AA, Klok T, Moss-Morris R, Brand PL, Curr Opin Allergy Clin Immunol 2010 10 194 199 10.1097/ACI.0b013e32833950c1 20386435
45. Monitoring or avoiding health information-the relation to inner inclination and health status. Ek S, Heinstrom J, Health Info Libr J 2011 28 200 209 10.1111/j.1471-1842.2011.00947.x 21831219
46. Enhancing patient education about medicines: factors influencing reading and seeking of written medicine information. Koo M, Krass I, Aslani P, Health Expect 2006 9 174 187 10.1111/j.1369-7625.2006.00381.x 16677196 (Pubitemid 43742684)
47. Not all patients want to participate in decision making. A national study of public preferences. Levinson W, Kao A, Kuby A, Thisted RA, J Gen Intern Med 2005 20 531 535 10.1111/j.1525-1497.2005.04101.x 15987329 (Pubitemid 41003809)
48. Illness perceptions in cancer survivors: what is the role of information provision? Husson O, Thong MS, Mols F, Oerlemans S, Kaptein AA, van de Poll-Franse LV, Psychooncology 2012 22 490 498 22307579