-
1
-
-
0003408414
-
-
Oxford UP, New York
-
Faden R.R., Beauchamp T.L., King N.M.P. A History and Theory of Informed Consent 1986, Oxford UP, New York, 392 pp.
-
(1986)
A History and Theory of Informed Consent
, pp. 392
-
-
Faden, R.R.1
Beauchamp, T.L.2
King, N.M.P.3
-
2
-
-
43949086861
-
The ethics of information: absolute risk reduction and patient understanding of screening
-
Schwartz P.H., Meslin E.M. The ethics of information: absolute risk reduction and patient understanding of screening. J. Gen. Intern. Med. 2008, 23(6):867-870.
-
(2008)
J. Gen. Intern. Med.
, vol.23
, Issue.6
, pp. 867-870
-
-
Schwartz, P.H.1
Meslin, E.M.2
-
3
-
-
0002179648
-
Health care information: access, confidentiality, and good practice
-
Cambridge UP, New York, K.W. Goodman (Ed.)
-
Alpert S.A. Health care information: access, confidentiality, and good practice. Ethics, Computing and Medicine: Informatics and the Transformation of Health Care 1998, 75-101. Cambridge UP, New York. K.W. Goodman (Ed.).
-
(1998)
Ethics, Computing and Medicine: Informatics and the Transformation of Health Care
, pp. 75-101
-
-
Alpert, S.A.1
-
4
-
-
50349098191
-
Privacy issues in clinical genomic medicine, or Marcus Welby, M.D., meets the $1000 genome
-
Alpert S. Privacy issues in clinical genomic medicine, or Marcus Welby, M.D., meets the $1000 genome. Camb. Q. Healthc. Ethics 2008, 17(4):373-384.
-
(2008)
Camb. Q. Healthc. Ethics
, vol.17
, Issue.4
, pp. 373-384
-
-
Alpert, S.1
-
5
-
-
84888203707
-
-
Available from:, (cited 2013 April 13)
-
Saul S. Drowning in Data (Internet) 2002, Available from:, (cited 2013 April 13). http://www.a-website.org/mnemosyne/no_signposts/01tsunami.html.
-
(2002)
Drowning in Data (Internet)
-
-
Saul, S.1
-
6
-
-
33947623659
-
Social, ethical and legal barriers to e-health
-
May-June (5/6)
-
Anderson J.G. Social, ethical and legal barriers to e-health. Int. J. Med. Inform. 2007, 76(May-June (5/6)):480-483.
-
(2007)
Int. J. Med. Inform.
, vol.76
, pp. 480-483
-
-
Anderson, J.G.1
-
7
-
-
77955214465
-
Barriers to the acceptance of electronic medical records by physicians from systematic review to taxonomy and interventions
-
Boonstra A., Broekhuis M. Barriers to the acceptance of electronic medical records by physicians from systematic review to taxonomy and interventions. BMC Health Serv. Res. 2010, 10:231.
-
(2010)
BMC Health Serv. Res.
, vol.10
, pp. 231
-
-
Boonstra, A.1
Broekhuis, M.2
-
8
-
-
84871893206
-
Patients want granular privacy control over health information in electronic medical records
-
Caine K., Hanania R. Patients want granular privacy control over health information in electronic medical records. J. Am. Med. Inform. Assoc. 2013, 20(1):7-15.
-
(2013)
J. Am. Med. Inform. Assoc.
, vol.20
, Issue.1
, pp. 7-15
-
-
Caine, K.1
Hanania, R.2
-
10
-
-
84871886591
-
Biomedical data privacy: problems, perspectives, and recent advances
-
Malin B.A., Emam K.E., O'Keefe C.M. Biomedical data privacy: problems, perspectives, and recent advances. J. Am. Med. Inform. Assoc. 2013, 20(1):2-6.
-
(2013)
J. Am. Med. Inform. Assoc.
, vol.20
, Issue.1
, pp. 2-6
-
-
Malin, B.A.1
Emam, K.E.2
O'Keefe, C.M.3
-
11
-
-
78751706184
-
Views on health information sharing and privacy from primary care practices using electronic medical records
-
February (2)
-
Perera G., Holbrook A., Thabane L., Foster G., Willison D.J. Views on health information sharing and privacy from primary care practices using electronic medical records. Int. J. Med. Inform. 2011, 80(February (2)):94-101.
-
(2011)
Int. J. Med. Inform.
, vol.80
, pp. 94-101
-
-
Perera, G.1
Holbrook, A.2
Thabane, L.3
Foster, G.4
Willison, D.J.5
-
12
-
-
84876110437
-
-
OCR HIPAA Privacy, Available from:, (cited 2013 April 13)
-
OCR HIPAA Privacy Uses and Disclosures for Treatment, Payment, and Health Care Operations (Internet) 2003, April, Available from:, (cited 2013 April 13). http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/usesanddisclosuresfortpo.html.
-
(2003)
Uses and Disclosures for Treatment, Payment, and Health Care Operations (Internet)
-
-
-
13
-
-
0037328063
-
Weighing the care: patients' perceptions of physician care as a function of gender and weight
-
Hebl M.R., Xu J., Mason M.F. Weighing the care: patients' perceptions of physician care as a function of gender and weight. Int. J. Obes. Relat. Metab. Disord. 2003, 27(2):269-275.
-
(2003)
Int. J. Obes. Relat. Metab. Disord.
, vol.27
, Issue.2
, pp. 269-275
-
-
Hebl, M.R.1
Xu, J.2
Mason, M.F.3
-
14
-
-
0029895106
-
Survey of HIV patients' views on confidentiality non-discrimination policies in general practice
-
Shaw M., Tomlinson D., Higginson I. Survey of HIV patients' views on confidentiality non-discrimination policies in general practice. BMJ 1996, 312(7044):1463-1464.
-
(1996)
BMJ
, vol.312
, Issue.7044
, pp. 1463-1464
-
-
Shaw, M.1
Tomlinson, D.2
Higginson, I.3
-
15
-
-
58749093008
-
Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey
-
Indigo Study Group
-
Thornicroft G., Brohan E., Rose D., Sartorius N., Leese M. Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey. Lancet 2009, 373(9661):408-415. Indigo Study Group.
-
(2009)
Lancet
, vol.373
, Issue.9661
, pp. 408-415
-
-
Thornicroft, G.1
Brohan, E.2
Rose, D.3
Sartorius, N.4
Leese, M.5
-
16
-
-
0033025210
-
The Regenstrief Medical Record System: a quarter century experience
-
McDonald C.J., Overhage J.M., Tierney W.M., Dexter P.R., Martin D.K., Suico J.G., Zafar A., Schadow G., Blevins L., Glazener T., Meeks-Johnson J., Lemmon L., Warvel J., Porterfield B., Warvel J., Cassidy P., Lindbergh D., Belsito A., Tucker M., Williams B., Wodniak C. The Regenstrief Medical Record System: a quarter century experience. Int. J. Med. Inform. 1999, 54(3):225-253.
-
(1999)
Int. J. Med. Inform.
, vol.54
, Issue.3
, pp. 225-253
-
-
McDonald, C.J.1
Overhage, J.M.2
Tierney, W.M.3
Dexter, P.R.4
Martin, D.K.5
Suico, J.G.6
Zafar, A.7
Schadow, G.8
Blevins, L.9
Glazener, T.10
Meeks-Johnson, J.11
Lemmon, L.12
Warvel, J.13
Porterfield, B.14
Warvel, J.15
Cassidy, P.16
Lindbergh, D.17
Belsito, A.18
Tucker, M.19
Williams, B.20
Wodniak, C.21
more..
-
17
-
-
64349086599
-
Stimulating the adoption of health information technology
-
Blumenthal D. Stimulating the adoption of health information technology. N. Engl. J. Med. 2009, 360(15):1477-1479.
-
(2009)
N. Engl. J. Med.
, vol.360
, Issue.15
, pp. 1477-1479
-
-
Blumenthal, D.1
-
19
-
-
0037938060
-
-
Cambridge UP, New York, NY, USA
-
Goodman K.W. Ethics, Computing, and Medicine: Informatics and the Transformation of Health Care 1998, Cambridge UP, New York, NY, USA, 180 pp.
-
(1998)
Ethics, Computing, and Medicine: Informatics and the Transformation of Health Care
, pp. 180
-
-
Goodman, K.W.1
-
20
-
-
0025579695
-
Why the standard view is standard: people, not machines, understand patients' problems
-
Miller R.A. Why the standard view is standard: people, not machines, understand patients' problems. J. Med. Philos. 1990, 15(6):581-591.
-
(1990)
J. Med. Philos.
, vol.15
, Issue.6
, pp. 581-591
-
-
Miller, R.A.1
-
21
-
-
84888202179
-
Ethics, information technology, and public health: duties and challenges in computational epidemiology
-
J.J. Magnusen, P. Fu, J. Aspevig (Eds.), Public Health Informatics and Information Systems, 2nd ed., Springer (forthcoming).
-
K.W. Goodman, E.M. Meslin, Ethics, information technology, and public health: duties and challenges in computational epidemiology, in: J.J. Magnusen, P. Fu, J. Aspevig (Eds.), Public Health Informatics and Information Systems, 2nd ed., Springer (forthcoming).
-
-
-
Goodman, K.W.1
Meslin, E.M.2
-
22
-
-
84888197279
-
-
Title XIII (Health Information Technology for Economic and Clinical Health Act, "HITECH") of the American Recovery and Reinvestment Act of 2009 ("AARA"), Pub. L. No. 111-5, 123 Stat. 115, 226-79 (codified in scattered sections of 42 U.S.C.).
-
Title XIII (Health Information Technology for Economic and Clinical Health Act, "HITECH") of the American Recovery and Reinvestment Act of 2009 ("AARA"), Pub. L. No. 111-5, 123 Stat. 115, 226-79, 2009 (codified in scattered sections of 42 U.S.C.).
-
(2009)
-
-
-
23
-
-
84888200765
-
-
Health Insurance Portability and Accountability Act of 1996, Pub. L. No. 104-191 (codified in scattered sections of title 42 U.S. Code); 45 C.F.R. parts 160 and 164 (HIPAA Privacy and Security Rules).
-
Health Insurance Portability and Accountability Act of 1996, Pub. L. No. 104-191, 1996 (codified in scattered sections of title 42 U.S. Code); 45 C.F.R. parts 160 and 164 (HIPAA Privacy and Security Rules).
-
(1996)
-
-
-
24
-
-
79952960494
-
-
President's Council of Advisors on Science and Technology (PCAST), PCAST, Executive Office of the President, U.S., Washington, DC, Available from:, (cited 2012 February 15)
-
President's Council of Advisors on Science & Technology (PCAST) Report to the President Realizing the Full Potential of Health Information Technology to Improve Healthcare for Americans: A Path Forward 2010, PCAST, Executive Office of the President, U.S., Washington, DC, 108 pp. Available from:, (cited 2012 February 15). http://www.whitehouse.gov/sites/default/files/microsites/ostp/pcast-health-it-report.pdf.
-
(2010)
Report to the President Realizing the Full Potential of Health Information Technology to Improve Healthcare for Americans: A Path Forward
, pp. 108
-
-
-
25
-
-
84888199648
-
-
Health IT Policy Committee, Privacy and Security Tiger Team, Letter to David Blumenthal, Chairman of the Office of the National Coordinator for Health IT, August 19 (cited 2013 March 20). Available from:
-
Health IT Policy Committee, Privacy and Security Tiger Team, Letter to David Blumenthal, Chairman of the Office of the National Coordinator for Health IT, August 19, 2010 (cited 2013 March 20). Available from: http://www.healthit.gov/sites/default/files/tigerteamrecommendationletter8-17.pdf.
-
(2010)
-
-
-
27
-
-
0026566658
-
Four models of the physician-patient relationship
-
Emanuel E.J., Emanuel L.L. Four models of the physician-patient relationship. JAMA 1992, 267(16):2221-2226.
-
(1992)
JAMA
, vol.267
, Issue.16
, pp. 2221-2226
-
-
Emanuel, E.J.1
Emanuel, L.L.2
-
29
-
-
84870514817
-
Empowering citizens with access control mechanisms to their personal health resources
-
January (1)
-
Calvillo J., Román I., Roa L.M. Empowering citizens with access control mechanisms to their personal health resources. Int. J. Med. Inform. 2013, 82(January (1)):58-72.
-
(2013)
Int. J. Med. Inform.
, vol.82
, pp. 58-72
-
-
Calvillo, J.1
Román, I.2
Roa, L.M.3
-
31
-
-
0030294266
-
Physician recommendations and patient autonomy: finding a balance between physician power and patient choice
-
Quill T.E., Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Ann. Intern. Med. 1996, 125(9):763-769.
-
(1996)
Ann. Intern. Med.
, vol.125
, Issue.9
, pp. 763-769
-
-
Quill, T.E.1
Brody, H.2
-
32
-
-
77955972459
-
The shared decision-making continuum
-
Kon A.A. The shared decision-making continuum. JAMA 2010, 304(8):903-904.
-
(2010)
JAMA
, vol.304
, Issue.8
, pp. 903-904
-
-
Kon, A.A.1
-
33
-
-
9244234981
-
Shared medical decision making: problems process progress
-
McNutt R.A. Shared medical decision making: problems process progress. JAMA 2004, 292(20):2516-2518.
-
(2004)
JAMA
, vol.292
, Issue.20
, pp. 2516-2518
-
-
McNutt, R.A.1
-
34
-
-
0003746860
-
-
Secretary's Advisory Committee on Automated Personal Data Systems, Superintendent of Documents, US Government Printing Office, Washington, DC
-
Secretary's Advisory Committee on Automated Personal Data Systems Records, Computers and the Rights of Citizens. DHEW Publication No. (OS) 73-94, Stock No. 1700-00116 1973, July, Superintendent of Documents, US Government Printing Office, Washington, DC.
-
(1973)
Records, Computers and the Rights of Citizens. DHEW Publication No. (OS) 73-94, Stock No. 1700-00116
-
-
-
35
-
-
77952811382
-
-
Office of the National Coordinator for Health Information Technology (ONC), ONC, U.S. Department of Health and Human Services, Available from:, (cited 2013 March 16)
-
Office of the National Coordinator for Health Information Technology (ONC) Nationwide Privacy and Security Framework for Electronic Exchange of Individually Identifiable Health Information 2008, December, ONC, U.S. Department of Health and Human Services, Available from:, (cited 2013 March 16). http://www.healthit.gov/sites/default/files/nationwide-ps-framework-5.pdf.
-
(2008)
Nationwide Privacy and Security Framework for Electronic Exchange of Individually Identifiable Health Information
-
-
-
36
-
-
84888197868
-
-
The Madrid Privacy Declaration (Internet), November, Madrid, Spain. Available from: (cited 2013 March 16).
-
The Madrid Privacy Declaration (Internet), 2009, November, Madrid, Spain. Available from: (cited 2013 March 16). http://thepublicvoice.org/madrid-declaration/.
-
(2009)
-
-
-
37
-
-
84888200522
-
-
Indiana Health Information Exchange, Indiana Network for Patient Care (Internet). Available from: (cited 2013 April 20).
-
Indiana Health Information Exchange, Indiana Network for Patient Care (Internet). Available from: (cited 2013 April 20). http://www.ihie.org/indiana-network-for-patient-care.
-
-
-
-
38
-
-
27644437302
-
The Indiana network for patient care: a working local health information infrastructure. An example of a working infrastructure collaboration that links data from five health systems and hundreds of millions of entries
-
McDonald C.J., Overhage J.M., Barnes M., Schadow G., Blevins L., Dexter P.R., Mamlin B., Committee I.M. The Indiana network for patient care: a working local health information infrastructure. An example of a working infrastructure collaboration that links data from five health systems and hundreds of millions of entries. Health Aff. (Millwood) 2005, 24(5):1214-1220.
-
(2005)
Health Aff. (Millwood)
, vol.24
, Issue.5
, pp. 1214-1220
-
-
McDonald, C.J.1
Overhage, J.M.2
Barnes, M.3
Schadow, G.4
Blevins, L.5
Dexter, P.R.6
Mamlin, B.7
Committee, I.M.8
-
39
-
-
13644269643
-
Faculty ownership of medical facilities: inappropriate conflict or an opportunity that benefits physicians and patients?
-
Fife R.S., Keener P., Meslin E.M., Randall M., Schiffmiller R.L. Faculty ownership of medical facilities: inappropriate conflict or an opportunity that benefits physicians and patients?. Acad. Med. 2004, 79(11):1051-1055.
-
(2004)
Acad. Med.
, vol.79
, Issue.11
, pp. 1051-1055
-
-
Fife, R.S.1
Keener, P.2
Meslin, E.M.3
Randall, M.4
Schiffmiller, R.L.5
-
40
-
-
77951472041
-
Framing genomics, public health research and policy: points to consider
-
Knoppers B.M., Leroux T., Doucet H., Godard B., Laberge C., Stanton-Jean M., Fortin S., Cousineau J., Monardes C., Girard N., Levesque L., Durand C., Farmer Y., Dion-Labrie M., Bouthillier M.E., Avard D. Framing genomics, public health research and policy: points to consider. Public Health Genomics 2010, 13(4):224-234.
-
(2010)
Public Health Genomics
, vol.13
, Issue.4
, pp. 224-234
-
-
Knoppers, B.M.1
Leroux, T.2
Doucet, H.3
Godard, B.4
Laberge, C.5
Stanton-Jean, M.6
Fortin, S.7
Cousineau, J.8
Monardes, C.9
Girard, N.10
Levesque, L.11
Durand, C.12
Farmer, Y.13
Dion-Labrie, M.14
Bouthillier, M.E.15
Avard, D.16
-
41
-
-
84874216776
-
Ethics of implementing Electronic Health Records in developing countries: points to consider
-
Were M.C., Meslin E.M. Ethics of implementing Electronic Health Records in developing countries: points to consider. AMIA Annu. Symp. Proc. 2011, 1499-1505.
-
(2011)
AMIA Annu. Symp. Proc.
, pp. 1499-1505
-
-
Were, M.C.1
Meslin, E.M.2
-
42
-
-
0003654752
-
-
ASM Press, Washington, DC
-
Fredrickson D.S. The Recombinant DNA Controversy: A Memoir: Science, Politics, and the Public Interest 1974-1981 2001, ASM Press, Washington, DC, 388 pp.
-
(2001)
The Recombinant DNA Controversy: A Memoir: Science, Politics, and the Public Interest 1974-1981
, pp. 388
-
-
Fredrickson, D.S.1
-
43
-
-
84888198935
-
Granular control of EHRs to overcome fragmented disclosure law: how policy choices for granularity will affect clinical care, impact secondary use of health information, and alter risks for patients and providers
-
Drabiak-Syed K. Granular control of EHRs to overcome fragmented disclosure law: how policy choices for granularity will affect clinical care, impact secondary use of health information, and alter risks for patients and providers. Ind. Health Law Rev. 2013, 10(39):39-74.
-
(2013)
Ind. Health Law Rev.
, vol.10
, Issue.39
, pp. 39-74
-
-
Drabiak-Syed, K.1
-
44
-
-
84888206023
-
-
Indiana University Center for Bioethics, Indianapolis, Indiana, Available from:
-
Meslin E.M., Alpert S., Carroll A.E., Odell J.D., Schwartz P.H. Points to Consider in Ethically Constructed Patient-Controlled Electronic Health Records 2012, August, Indiana University Center for Bioethics, Indianapolis, Indiana, Available from:. http://hdl.handle.net/1805/2936.
-
(2012)
Points to Consider in Ethically Constructed Patient-Controlled Electronic Health Records
-
-
Meslin, E.M.1
Alpert, S.2
Carroll, A.E.3
Odell, J.D.4
Schwartz, P.H.5
-
46
-
-
59349103556
-
Inter-organizational future proof EHR systems: a review of the security and privacy related issues
-
March (3)
-
van der Linden H., Kalra D., Hasman A., Talmon J. Inter-organizational future proof EHR systems: a review of the security and privacy related issues. Int. J. Med. Inform. 2009, 78(March (3)):141-160.
-
(2009)
Int. J. Med. Inform.
, vol.78
, pp. 141-160
-
-
van der Linden, H.1
Kalra, D.2
Hasman, A.3
Talmon, J.4
-
47
-
-
84885096811
-
Deciding on ethical issues in engineering design
-
Springer, Dordrecht, P. Vermaas, P. Kroes, A. Light, S. Moore (Eds.)
-
Van Gorp A., Van de Poel I. Deciding on ethical issues in engineering design. Philosophy and Design: From Engineering to Architecture 2008, 77-104. Springer, Dordrecht. P. Vermaas, P. Kroes, A. Light, S. Moore (Eds.).
-
(2008)
Philosophy and Design: From Engineering to Architecture
, pp. 77-104
-
-
Van Gorp, A.1
Van de Poel, I.2
-
48
-
-
0023676888
-
An ethics consultation service in a teaching hospital. Utilization and evaluation
-
La Puma J., Stocking C.B., Silverstein M.D., DiMartini A., Siegler M. An ethics consultation service in a teaching hospital. Utilization and evaluation. JAMA 1988, 260(6):808-811.
-
(1988)
JAMA
, vol.260
, Issue.6
, pp. 808-811
-
-
La Puma, J.1
Stocking, C.B.2
Silverstein, M.D.3
DiMartini, A.4
Siegler, M.5
-
49
-
-
57849152910
-
Research ethics consultation: the Stanford experience
-
Cho M.K., Tobin S.L., Greely H.T., McCormick J., Boyce A., Magnus D. Research ethics consultation: the Stanford experience. IRB 2008, 30(6):1-6.
-
(2008)
IRB
, vol.30
, Issue.6
, pp. 1-6
-
-
Cho, M.K.1
Tobin, S.L.2
Greely, H.T.3
McCormick, J.4
Boyce, A.5
Magnus, D.6
-
50
-
-
77953101288
-
-
Indiana University Center for Bioethics, Indianapolis (IN), Available from:
-
Meslin E.M., Alyea J.M., Helft P.R. Pandemic Influenza Preparedness: Ethical Issues and Recommendations to the Indiana State Department of Health 2008, August, Indiana University Center for Bioethics, Indianapolis (IN), Available from:. http://hdl.handle.net/1805/1912.
-
(2008)
Pandemic Influenza Preparedness: Ethical Issues and Recommendations to the Indiana State Department of Health
-
-
Meslin, E.M.1
Alyea, J.M.2
Helft, P.R.3
-
51
-
-
84888201560
-
An ethics and policy agenda for biobanks and electronic health
-
Available from:
-
Meslin E.M., Goodman K.W. An ethics and policy agenda for biobanks and electronic health. Sci. Prog. 2010, February, Available from:. http://www.scienceprogress.org/2010/02/bank-on-it/.
-
(2010)
Sci. Prog.
-
-
Meslin, E.M.1
Goodman, K.W.2
|