Obtaining subjects' consent to publish identifying personal information: Current practices and identifying potential issues

BMC Medical Ethics

Volumn 14, Issue 1, 2013, Pages

  Yoshida, Akiko ^a   Dowa, Yuri ^a,b   Murakami, Hiromi ^a,c   Kosugi, Shinji ^a  

^a KYOTO UNIVERSITY SCHOOL OF PUBLIC HEALTH   (Japan)

^b KYOTO UNIVERSITY   (Japan)

^c KYOTO UNIVERSITY HOSPITAL   (Japan)

Author keywords

Consent; Consent forms; Identifying information

Indexed keywords

ARTICLE; CONFIDENTIALITY; ETHICS; GENETICS; HUMAN; INFORMED CONSENT; INTERNAL MEDICINE; PEDIATRICS; PSYCHIATRY; PUBLICATION; PUBLISHING; QUESTIONNAIRE; STANDARD; STATISTICS;

CONFIDENTIALITY; CONSENT FORMS; EDITORIAL POLICIES; GENETICS; HUMANS; INFORMED CONSENT; INTERNAL MEDICINE; PEDIATRICS; PERIODICALS AS TOPIC; PSYCHIATRY; QUESTIONNAIRES;

EID: 84888092439     PISSN: None     EISSN: 14726939     Source Type: Journal    
DOI: 10.1186/1472-6939-14-47     Document Type: Article

References (24)

1. Practical guide to understanding the value of case reports. Neely JG, Karni RJ, Nussenbaum B, Paniello RC, Fraley PL, Wang EW, Rich JT, Otolaryngol Head Neck Surg 2008 138 261 264 10.1016/j.otohns.2007.12.014 18312868 (Pubitemid 351288449)
2. The significance of case reports in biomedical publication. Nayak BK, Indian J Ophthalmol 2010 58 363 364 10.4103/0301-4738.67038 20689188
3. Case reports and case series from Lancet had significant impact on medical literature. Albrecht J, Meves A, Bigby M, J Clin Epidemiol 2005 58 1227 1232 10.1016/j.jclinepi.2005.04.003 16291466 (Pubitemid 41608538)
4. Publication of case reports: Is consent required? Gibson E, Paediatr Child Health 2008 13 666 667 19436517
5. Do as I say, not as I do: Why bioethicists should seek informed consent for some case studies. Antommaria AH, Hastings Cent Rep 2004 34 28 34
6. The International Committee of Medical Journal Editors (ICMJE), Uniform Requirements for Manuscripts Submitted to Biomedical Journals [ http://www.icmje.org/urm-main.html ] (Accessed 14 October 2013)
7. Committee on Publication Ethics (COPE), Code of Conduct and Best Practice Guidelines for Journal Editors [ http://publicationethics.org/ ] (Accessed 14 October 2013)
8. Pedigree parables. Bennett RL, Clin Genet 2000 58 241 249 11076049
9. Privacy and confidentiality in the publication of pedigrees: a survey of investigators and biomedical journals. Botkin JR, McMahon WM, Smith KR, Nash JE, JAMA 1998 279 1808 1812 10.1001/jama.279.22.1808 9628712 (Pubitemid 28280253)
10. Confidentiality and the ethics of medical ethics. Rogers WA, Draper H, J Med Ethics 2003 29 220 224 10.1136/jme.29.4.220 12930854 (Pubitemid 37069204)
11. Simplifying consent for publication of case reports. Aldridge RW, BMJ 2008 337 1878 10.1136/bmj.a1878 18829660
12. Patient's consent for publication of case report: need for developing a universal consent form. Saxena AK, Ghai B, Makkar JK, Arch Dis Child 2006 91 717
13. Journals and consent forms. Policy needs to be revisited. Bal AM, Collier A, Dowie A, Ghosh S, BMJ 2010 341 6147 10.1136/bmj.c6147 21062876
14. Gaining consent for publication in difficult cases involving children. Isaacs D, Kilham HA, Jacobe S, Ryan MM, Tobin B, BMJ 2008 337 1231 10.1136/bmj.a1231 18779219
15. Consent to the publication of patient information. Singer PA, BMJ 2004 329 566 568 10.1136/bmj.329.7465.566 15345634 (Pubitemid 39215214)
16. Consent to publication-no absolutes. Oberklaid F, BMJ 2008 337 1233 10.1136/bmj.a1233 18779221
17. Consent and confidentiality in publishing-the view of the BMJ's ethics committee. Newson AJ, Sheather J, BMJ 2008 337 1232 10.1136/bmj.a1232 18779220
18. Consent to the publication of patient information: seeking consent is morally essential. Woollard FM, BMJ 2004 329 916 917 (Pubitemid 39422946)
19. 'Universal' patient consent form for case reports. John CM, Mathew DE, Acta Paediatr 2009 98 612 10.1111/j.1651-2227.2008.01175.x 19290963
20. Informed consent for case reports: the ethical dilemma of right to privacy versus pedagogical freedom. Levine SB, Stagno SJ, J Psychother Pract Res 2001 10 193 201 11402083 (Pubitemid 32522229)
21. Instructions to authors for case reporting are limited: a review of a core journal list. Sorinola O, Olufowobi O, Coomarasamy A, Khan KS, BMC Med Educ 2004 4 4 10.1186/1472-6920-4-4 15043755
22. WMA Declaration of Helsinki, Ethical Principles for Medical Research Involving Human Subjects [ http://www.wma.net/en/30publications/10policies/b3/ ] (Accessed 14 October 2013)
23. Patient's consent for publication. Ghai B, Saxena AK, Anaesthesia 2005 60 289 discussion 289
24. Journal of Medical Case Reports' policy on consent for publication. Kidd MR, Hrynaszkiewicz I, J Med Case Rep 2010 4 173 10.1186/1752-1947-4-173 20529282