Self-reported psychosocial wellbeing of adolescent childhood cancer survivors

European Journal of Oncology Nursing

Volumn 17, Issue 6, 2013, Pages 711-719

  Yallop, Kathy ^a   McDowell, Heather ^a   Koziol McLain, Jane ^b   Reed, Peter W ^c  

^a Starship Blood and Cancer Centre   (New Zealand)

^b AUCKLAND UNIVERSITY OF TECHNOLOGY   (New Zealand)

^c Children's Research Centre   (New Zealand)

Author keywords

Adolescent; Child; Comparative study; Neoplasms; New Zealand; Quality of life; Questionnaires; Survivors

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ARTICLE; CASE CONTROL STUDY; CHILD; CHILD WELFARE; COMPARATIVE STUDY; FEMALE; HEALTH STATUS; HUMAN; MALE; MORTALITY; NEOPLASM; NEW ZEALAND; PSYCHOLOGICAL ASPECT; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; SELF REPORT; SICKNESS IMPACT PROFILE; SURVIVOR;

ADOLESCENT; CHILD; COMPARATIVE STUDY; NEOPLASMS; NEW ZEALAND; QUALITY OF LIFE; QUESTIONNAIRES; SURVIVORS;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CASE-CONTROL STUDIES; CHILD; CHILD WELFARE; FEMALE; HEALTH STATUS; HUMANS; MALE; NEOPLASMS; NEW ZEALAND; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRES; SELF REPORT; SICKNESS IMPACT PROFILE; SURVIVORS;

EID: 84888040687     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2013.06.007     Document Type: Article

References (45)

1. Adolescent Health Research Group Youth '07: the Health and Wellbeing of Secondary School Students in New Zealand 2008, Technical Report, University of Auckland, Auckland NZ.
2. Armstrong G.T., Liu Q., Yasui Y., Neglia J.P., Leisenring W., Robison L.L., et al. Late mortality among 5-year survivors of childhood cancer: a summary from the childhood cancer survivor study. Journal of Clinical Oncology 2009, 27(14):2328-2338.
3. Bech P. Health-related quality of life measurements in the assessment of pain clinic results. Acta Anaesthesiologica Scandinavica 1999, 43(9):893-896.
4. Bech P., Olsen L.R., Kjoller M., Rasmussen N.K., Bech P., Olsen L.R., et al. Measuring well-being rather than the absence of distress symptoms: a comparison of the SF-36 mental health subscale and the WHO-Five well-being Scale. International Journal of Methods in Psychiatric Research 2003, 12(2):85-91.
5. Children's Oncology Group Long-term Follow-up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers 2008, Available from:. http://www.survivorshipguidelines.org.
6. Crampton P., Salmond C., Atkinson J. NZDep2006 Index of DeprivationUsers Manual 2007, Department of Public Health, University of Otago, Wellington, NZ.
7. de Wit M., Pouwer F., Gemke R., Delemare-van de Waal H., Snoek F. Validation of the WHO-5 well-being index in adolescents with type 1 diabetes. Diabetes Care 2007, 30(8):2003-2006.
8. Diller L., Chow E.J., Gurney J.G., Hudson M.M., Kadin-Lottick N.S., Kawashima T.I., et al. Chronic disease in the Childhood Cancer Survivor Study cohort: a review of published findings. Journal of Clinical Oncology 2009, 27(14):2339-2355.
9. Edgar A.B., Morris E.M., Kelnar C.J., Wallace W.H. Long-term follow-up of survivors of childhood cancer. Endocrine Development 2009, 15:159-180.
10. Goodman R. The strengths and difficulties questionnaire: a research note. Journal of Child Psychology & Psychiatry & Allied Disciplines 1997, 38(5):581-586.
11. Goodman R. Psychometric properties of the strengths and difficulties questionnaire. Journal of the American Academy of Child & Adolescent Psychiatry 2001, 40(11):1337-1345.
12. Hobbie W.L., Stuber M., Meeske K., Wissler K., Rourke M.T., Ruccione K., et al. Symptoms of posttraumatic stress in young adult survivors of childhood cancer. Journal of Clinical Oncology 2000, 18(24):4060-4066.
13. Hocking M.C., Barnes M., Shaw C., Lochman J.E., Madan-Swain A., Saeed S. Executive function and attention regulation as predictors of coping success in youth with functional abdominal pain. Journal of Pediatric Psychology 2011, 36(1):64-73.
14. SEER Cancer Statistics Review, 1975-2008 2011, National Cancer Institute, Bethesda, MD. N. Howlader, A.M. Noone, M. Krapcho, N. Neyman, R. Aminou, W. Waldron (Eds.).
15. Hudson M., Mertens A., Yasui Y., Hobbie W.L., Chen H., Gurney J.G., et al. Health status of adult long-term survivors of childhood cancer: a report from the childhood cancer survivor study. Journal of the American Medical Association 2003, 290(12):1583-1592.
16. Ishida Y., Honda M., Ozono S., Okamura J., Asami K., Maeda N., et al. Late effects and quality of life of childhood cancer survivors: part 1. Impact of stem cell transplantation. International Journal of Hematology 2010, 91(5):865-876.
17. Kazak A.E., DeRosa B.W., Schwartz L.A., Hobbie W., Carlson C., Ittenbach R.F., et al. Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls. Journal of Clinical Oncology 2010, 28(12):2002-2007.
18. Klasen H., Woerner W., Wolke D., Meyer R., Overmeyer S., Kaschnitz W., et al. Comparing the German versions of the strengths and difficulties questionnaire (SDQ-Deu) and the child behavior checklist. European Child & Adolescent Psychiatry 2000, 9(4):271-276.
19. Koskelainen M., Sourander A., Kaljonen A. The strengths and difficulties questionnaire among finnish school-aged children and adolescents. European Child & Adolescent Psychiatry 2000, 9(4):277-284.
20. Krull K.R., Huang S., Gurney J.G., Klosky J.L., Leisenring W., Termuhlen A., et al. Adolescent behavior and adult health status in childhood cancer survivors. Journal of Cancer Survivorship 2010, 4(3):210-217.
21. Last B.F., Grootenhuis M.A., Eiser C. International comparison of contributions to psychosocial research on survivors of childhood cancer: past and future considerations. Journal of Pediatric Psychology 2005, 30(1):99-113.
22. Lowe B., Spitzer R.L., GrÃfe K., Kroenke K., Quenter A., Zipfel S., et al. Comparative validity of three screening questionnaires for DSM-IV depressive disorders and physicians' diagnoses. Journal of Affective Disorders 2004, 78(2):131-140.
23. March J.S., Parker J.D., Sullivan K., Stallings P., Conners C.K. The Multidimensional Anxiety Scale for Children (MASC): factor structure, reliability, and validity. Journal of the American Academy of Child & Adolescent Psychiatry 1997, 36(4):554-565.
24. March J.S., Sullivan K. Test-retest reliability of the Multidimensional Anxiety Scale for Children. Journal of Anxiety Disorders 1999, 13(4):349-358.
25. Meadows A.T., Friedman D.L., Neglia J.P., Mertens A.C., Donaldson S.S., Stovall M., et al. Second neoplasms in survivors of childhood cancer: findings from the Childhood Cancer Survivor Study cohort. Journal of Clinical Oncology 2009, 27(14):2356-2362.
26. Milfont T.L., Merry S., Robinson E., Denny S., Crengle S., Ameratunga S. Evaluating the short form of the Reynolds Adolescent Depression Scale in New Zealand adolescents. Australian & New Zealand Journal of Psychiatry 2008, 42(11):950-955.
27. Mody R., Li S., Dover D.C., Sallan S., Leisenring W., Oeffinger K.C., et al. Twenty-five-year follow-up among survivors of childhood acute lymphoblastic leukemia: a report from the Childhood Cancer Survivor Study. Blood 2008, 111(12):5515-5523.
28. Oeffinger K.C., Hudson M.M. Long-term complications following childhood and adolescent cancer: foundations for providing risk-based health care for survivors. CA: A Cancer Journal for Clinicians 2004, 54(4):208-236.
29. Oeffinger K.C., Mertens A.C., Sklar C.A., Kawashima T., Hudson M.M., Meadows A.T., et al. Chronic health conditions in adult survivors of childhood cancer. New England Journal of Medicine 2006, 355(15):1572-1582.
30. Parry C., Chesler M.A. Thematic evidence of psychosocial thriving in childhood cancer survivors. Qualitative Health Research 2005, 15(8):1055-1073.
31. Phipps S., Jurbergs N., Long A. Symptoms of post traumatic stress in children with cancer: does personality trump health status?. Psycho-oncology 2009, 18(9):992-1002.
32. Reynolds W.M. RADS-2 Professional Manual 2002, (Florida).
33. Rourke M.T., Hobbie W.L., Schwartz L., Kazak A.E., Rourke M.T., Hobbie W.L., et al. Posttraumatic stress disorder (PTSD) in young adult survivors of childhood cancer. Pediatric Blood & Cancer 2007, 49(2):177-182.
34. Schultz K.A., Ness K.K., Whitton J., Recklitis C., Zebrack B., Robison L.L., et al. Behavioral and social outcomes in adolescent survivors of childhood cancer: a report from the childhood cancer survivor study. Journal of Clinical Oncology 2007, 25(24):3649-3656.
35. Schwartz C.L. Health status of childhood cancer survivors: cure is more than the eradication of cancer. JAMA 2003, 290(12):1641-1643.
36. Shaw S. Endocrine late effects in survivors of pediatric brain tumors. Journal of Pediatric Oncology Nursing 2009, 26(5):295-302.
37. Speechley K.N., Barrera M., Shaw A.K., Morrison H.I., Maunsell E. Health-related quality of life among child and adolescent survivors of childhood cancer. Journal of Clinical Oncology 2006, 24(16):2536-2543.
38. United Kingdom Children's Cancer Study Group Long Term Follow-up Therapy Guidelines: a Practice Statement 2005, Available from:. http://www.cclg.org.uk/public/followup/PracticeStatement/index.html, W.H.B. Wallace, R. Skinner, G.A. Levitt (Eds.).
39. Vannatta K., Gerhardt C.A., Wells R.J., Noll R.B. Intensity of CNS treatment for pediatric cancer: prediction of social outcomes in survivors. Pediatric Blood & Cancer 2007, 49(5):716-722.
40. Weiner S.L., Simone J.V., Hewitt M. Childhood Cancer Survivorship: Improving Care and Quality of Life 2003, The National Academies Press, Washington DC.
41. Williams N., Davis G., Hancock M., Phipps S. Optimism and pessimism in children with cancer and healthy children: confirmatory factor analysis of the youth life orientation test and relations with health-related quality of life. Journal of Pediatric Psychology 2010, 33(6):672-682.
42. Zebrack B.J., Chesler M.A. Quality of life in childhood cancer survivors. Psycho-Oncology 2002, 11(2):132-141.
43. Zebrack B.J., Isaacson S. Psychosocial care of adolescent and young adult patients with cancer and survivors. Journal of Clinical Oncology 2012, 30(11):1221-1226.
44. Zeltzer L.K., Lu Q., Leisenring W., Tsao J.C., Recklitis C., Armstrong G., et al. Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiology, Biomarkers & Prevention 2008, 17(2):435-446.
45. Zeltzer L.K., Recklitis C., Buchbinder D., Zebrack B., Casillas J., Tsao J.C., et al. Psychological status in childhood cancer survivors: a report from the Childhood Cancer Survivor Study. Journal of Clinical Oncology 2009, 27(14):2396-2404.