Individualising wound care research: The Woundcare for Epidermolysis Bullosa Project

Wounds UK

Volumn 9, Issue 3, 2013, Pages 23-32

  Grocott, Patricia ^a   Graham, Tanya ^a   Blackwell, Rebecca ^a   Currie, Conchita ^b   Pillay, Elizabeth ^c   Clapham, Jane ^c   Graham King, Pauline ^c   Hon, Jennie ^c   Snelson, Karen ^d  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b CLC Design Consultancy Limited   (United Kingdom)

^c GUY'S AND ST THOMAS' NHS FOUNDATION TRUST   (United Kingdom)

^d Central Surrey Health   (United Kingdom)

Author keywords

Dressing retention; Epidermolysis bullosa; Experience based co design; n of 1 research design

Indexed keywords

ADULT; ARTICLE; CLINICAL ARTICLE; COMPRESSION GARMENT; EPIDERMOLYSIS BULLOSA; FEEDBACK SYSTEM; FEMALE; HEALTH CARE COST; HUMAN; MALE; MEDICAL RESEARCH; PATIENT COMFORT; SELF ESTEEM; TREATMENT OUTCOME; WOUND CARE; WOUND DRESSING; WOUND HEALING;

EID: 84888037217     PISSN: 17466814     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (9)

1. Bate P, Robert G (2006) Experience-based design: from redesigning the system around the patient to co-designing services with the patient. Qual Saf Health Care 15(5):307-10 (Pubitemid 44784801)
2. Cortese DA (2007) A vision of individualized medicine in the context of global health. Clin Pharmacol Ther 82(5):491-3
3. Dures E, Morris M, Gleeson K, Rumsey N (2011) The psychosocial impact of epidermolysis bullosa. Qual Health Res 21(6):771-82
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5. Grocott P, Blackwell R, Currie C et al (2013a) Woundcare research for epidermolysis bullosa: designing products with the users. Dermatological Nursing 12:30-5
6. Grocott P, Blackwell R, Weir H, Pillay E (2013b) Living in dressings and bandages: findings from workshops with people with epidermolysis bullosa. Int Wound J 10(3):274-84
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8. Tickle L (2013) Outstanding research impact winner: King's College London, WEB - Woundcare for Epidermolysis Bullosa Project. The Guardian: February. Available at: http://bit.ly/1cwsERZ (accessed 12.08.2013)
9. Tsianakas V, Robert G, Maben J et al (2012) Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services. Support Care Cancer 20(11):2639-47