The care delivery experience of hospitalized patients with complex chronic disease

Health Expectations

Volumn 16, Issue 4, 2013, Pages

  Kuluski, Kerry ^a,b   Hoang, Sylvia N ^a   Schaink, Alexis K ^c   Alvaro, Celeste ^a,d   Lyons, Renee F ^a,b,e   Tobias, Roy ^a   Bensimon, Cécile M ^a  

^a Bridgepoint Health   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c Health Quality Ontario   (Canada)

^d RYERSON UNIVERSITY   (Canada)

^e UNIVERSITY OF TORONTO   (Canada)

Author keywords

Care needs; Complex chronic disease; Health care delivery; Hospital; Patient experience; Qualitative

Indexed keywords

ADULT; AGED; ARTICLE; CARE NEEDS; CHRONIC DISEASE; COMPLEX CHRONIC DISEASE; CROSS-SECTIONAL STUDY; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HOSPITAL; HOSPITAL PATIENT; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; MALE; MANPOWER; MIDDLE AGED; PATIENT CARE; PATIENT EXPERIENCE; PERSONHOOD; PSYCHOLOGICAL ASPECT; QUALITATIVE; STANDARD; VERY ELDERLY;

CARE NEEDS; COMPLEX CHRONIC DISEASE; HEALTH CARE DELIVERY; HOSPITAL; PATIENT EXPERIENCE; QUALITATIVE;

ADULT; AGED; AGED, 80 AND OVER; CHRONIC DISEASE; COMMUNICATION; CONTINUITY OF PATIENT CARE; CROSS-SECTIONAL STUDIES; FEMALE; HOSPITALS; HUMANS; INPATIENTS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PERSONHOOD; PHYSICIAN-PATIENT RELATIONS; QUALITY OF HEALTH CARE;

EID: 84888009390     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/hex.12085     Document Type: Article

References (39)

1. World Health Organization. Caring for people with chronic conditions: A health system perspective. Nolte E, McKee M (eds) Berkshire, England: Open University Press, 2008.
2. Canguilhem G. The Normal and the Pathological. Brooklyn, NY: Zone Books, 1989.
3. World Health Organization. Facing the Facts: The Impact of Chronic Disease in Canada. Geneva: World Health Organization, 2005.
4. Rijken M, van Kerkhof M, Dekker J, Schellevis FG. Comorbidity of chronic diseases: effects of disease pairs on physical and mental functioning. Quality of Life Research, 2005; 14: 45-55.
5. Bayliss EA, Bayliss MS, Ware JE Jr, Steiner JF. Predicting declines in physical function in persons with multiple chronic medical conditions: what we can learn from the medical problem list. Health and Quality of Life Outcomes, 2004; 2: 47.
6. Noel PH, Frueh BC, Larme AC, Pugh JA. Collaborative care needs and preferences of primary care patients with multimorbidity. Health Expectations, 2005; 8: 54-63.
7. Fortin M, Bravo G, Hudon C, Lapointe L, Dubois MF, Almirall J. Psychological distress and multimorbidity in primary care. Annals of Family Medicine, 2006; 4: 417-422.
8. Busse R, Blümel M, Scheller-Kreinsen D, Zentner A. Tackling Chronic Disease in Europe: Strategies. Geneva: Interventions and Challenges, 2010.
9. Fortin M, Soubhi H, Hudon C, Bayliss EA, van den Akker M. Multimorbidity's many challenges. BMJ, 2007; 334: 1016-1017.
10. Statistics Canada. Health and employment. Perspectives on Labour and Income, 2009; 10: 1-13 Catalogue no. 75-001-X.
11. Canadian Institute for Health Information. Supporting Informal Caregivers: The Heart of Home Care. Ottawa, ON: Canadian Institute for Health Information, 2010.
12. Maaten S, Kephart G, Kirkland S, Andreou P. Chronic disease risk factors associated with health service use in the elderly. BMC Health Services Research, 2008; 8: 237.
13. Bayliss EA, Edwards AE, Steiner JF, Main DS. Processes of care desired by elderly patients with multimorbidities. Family Practice, 2008; 25: 287-293.
14. Fortin M, Dionne J, Pinho G, Gignac J, Almirall J, Lapointe L. Randomized controlled trials: do they have external validity for patients with multiple comorbidities? Annals of Family Medicine, 2006; 4: 104-108.
15. Walker C. Multiple conditions: exploring literature from the consumer perspective in Australia. Health Expectations, 2012; doi: 10.1111/hex.12015.
16. Schoen C, Osborn R, How SK, Doty MM, Peugh J. In chronic condition: experiences of patients with complex health care needs, in eight countries, 2008. Health Affairs, 2009; 28: w1-w16.
17. Burgers JS, Voerman GE, Grol R, Faber MJ, Schneider EC. Quality and coordination of care for patients with multiple conditions: results from an international survey of patient experience. Evaluation and the Health Professions, 2010; 33: 343-364.
18. Schoenberg NE, Bardach SH, Manchikanti KN, Goodenow AC. Appalachian residents' experiences with and management of multiple morbidity. Qualitative Health Research, 2011; 21: 601-611.
19. Williams A. Patients with comorbidities: perceptions of acute care services. Journal of Advanced Nursing, 2004; 46: 13-22.
20. Kitson A, Conroy T, Wengstrom Y, Profetto-McGrath J, Robertson-Malt S. Defining the fundamentals of care. International Journal of Nursing Practice, 2010; 16: 423-434.
21. Schaink AK, Kuluski K, Lyons RF et al. A scoping review and thematic classification of patient complexity: offering a unifying framework. Journal of Comorbidity, 2012; 2: 1-9.
22. Merriam S. Qualitative Data Analysis. Qualitative Research: A Guide to Design and Implementation. San Francisco: Jossey-Bass, 2009: 169-207.
23. Bayliss EA, Ellis JL, Steiner JF. Subjective assessments of comorbidity correlate with quality of life health outcomes: initial validation of a comorbidity assessment instrument. Health and Quality of Life Outcomes, 2005; 3: 51.
24. Bayliss EA, Ellis JL, Steiner JF. Seniors' self-reported multimorbidity captured biopsychosocial factors not incorporated into two other data-based morbidity measures. Journal of Clinical Epidemiology, 2009; 62: 550-557 e1.
25. Nardi R, Scanelli G, Corrao S, Iori I, Mathieu G. Cataldi Amatrian R. Co-morbidity does not reflect complexity in internal medicine patients. European Journal of Internal Medicine, 2007; 18: 359-368.
26. Hollander MJ, Prince MJ. Organizing healthcare delivery systems for persons with ongoing care needs and their families: a best practices framework. Healthcare Quarterly, 2008; 11: 44-54, 2.
27. Harpole LH, Williams JW Jr, Olsen MK et al. Improving depression outcomes in older adults with comorbid medical illness. General Hospital Psychiatry, 2005; 27: 4-12.
28. Mercer SW, Watt GC. The inverse care law: clinical primary care encounters in deprived and affluent areas of Scotland. Annals of Family Medicine, 2007; 5: 503-510.
29. Noel PH, Parchman ML, Williams JW Jr et al. The challenges of multimorbidity from the patient perspective. Journal of General Internal Medicine, 2007; 22(Suppl 3): 419-424.
30. Jowsey T, Jeon YH, Dugdale P, Glasgow NJ, Kljakovic M, Usherwood T. Challenges for co-morbid chronic illness care and policy in Australia: a qualitative study. Australia and New Zealand Health Policy, 2009; 6: 22.
31. Boult C, Green AF, Boult LB, Pacala JT, Snyder C, Leff B. Successful models of comprehensive care for older adults with chronic conditions: evidence for the Institute of Medicine's "retooling for an aging America" report. Journal of the American Geriatrics Society, 2009; 57: 2328-2337.
32. Hollander MJ, Miller JA, MacAdam M, Chappell N, Pedlar D. Increasing value for money in the Canadian healthcare system: new findings and the case for integrated care for seniors. Healthcare Quarterly, 2009; 12: 38-47, 2.
33. Tsasis P, Bains J. Management of complex chronic disease: facing the challenges in the Canadian health-care system. Health Services Management Research, 2008; 21: 228-235.
34. Commission on the Reform of Ontario's Public Services. Public Services for Ontarians: A Path to Sustainability and Excellence 2012. Report No.: ISBN 978-1-4435-8896-6 (Print) ISBN 978-1-4435-8897-3 (HTML) ISBN 978-1-4435-8898-0 (PDF).
35. Rogers CR. Significant aspects of client-centered therapy. American Psychologist, 1946; 1: 415-422.
36. Stewart M, Brown J, Weston W, Freeman T. Patient-Centred Medicine: Transforming the Clinical Method, 2nd edn. United Kingdom: Radcliffe Medical Press, 2003.
37. Stewart M, Brown BB, Weston WW, McWhinney IR, McWilliam CL, Freeman TR. Patient-Centered Medicine: Transforming the Clinical Method, 1st edn. Stewart M, Brown BB, Freeman TR (eds) Oxon, United Kingdom: Sage Publications, Inc., 1995.
38. Kitson A, Marshall A, Bassett K, Zeitz K. What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing. Journal of Advanced Nursing, 2013; 69: 4-15.
39. Singh D, Ham C. Improving Care for People with Long-term Conditions: A Review of UK and International Frameworks. Birmingham: University of Birmingham Health Services Management Centre and NHS Institute for Innovation and Improvement, 2006.