Communicating during care transitions for older hip fracture patients: Family caregiver and health care provider's perspectives

International Journal of Integrated Care

Volumn 13, Issue OCT/DEC, 2013, Pages

  Glenny, Christine ^a   Stolee, Paul ^b   Sheiban, Linda ^b   Jaglal, Susan ^c  

^a UNIVERSITY OF TORONTO   (Canada)

^b UNIVERSITY OF WATERLOO   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

Author keywords

Care transitions; Caregivers; Communication; Hip fracture

Indexed keywords

EID: 84887135992     PISSN: None     EISSN: 15684156     Source Type: Journal    
DOI: 10.5334/ijic.1076     Document Type: Article

References (79)

1. Borrie MJ, Stolee P, Knoefel F, Wells JL, Seabrook JA. Current best practices in geriatric rehabilitation in Canada. Geriatrics Today: Canadian Journal of Geriatric Medicine and Geriatric Psychiatry 2005;8:148-53.
2. Naylor MD, Stephen C, Bowles KH, Bixby MB. Cognitively impaired older adults: from hospital to home: The American Journal of Nursing 2005;105(2):52-61.
3. Coleman EA, Boult C. Improving the quality of transitional care for persons with complex care needs. Journal of American Geriatrics Society 2003;51(4):556-7.
4. Coleman EA. Falling through the cracks: challenges and opportunities for improving transitional care for persons with continuous complex care needs. Journal of the American Geriatrics Society 2003;51(4):549-55.
5. Coleman EA, Smith JD, Frank JC, Min S, Parry C, Kramer M. Preparing patients and caregivers to participate in care delivered across settings: the care transitions intervention. Journal of the American Geriatrics Society 2004;52:1817-25.
6. Ma E, Coleman EA, Fish R, Lin M, Kramer AM. Quantifying post hospital transitions in older patients. Journal of the American Medical Directors Association 2004;5(2):71-4.
7. Foster AJ, Murf HJ, Peterson JF, Gandhi TK, Bates DW. The incidence and severity of adverse events affecting patients after discharge from the hospital. Annals of Internal Medicine 2003;138(3):161-7.
8. Naylor MD, Brooten DA, Campbell R, Jacobsen BS, Mezey MD, Schwartz JS. Comprehensive discharge planning and home follow-up of hospitalized elders: a randomized clinical trial. The Journal of the American Medical Association 1999;281 (7):613-20.
9. Atienza F, Anguita M, Martinez-Alzamora N, Osca J, Ojeda S, Almenar L, et al. Multicenter randomized trial of a comprehensive hospital discharge and outpatient heart failure management program. European Journal of Heart Failure 2004;6(5):643-52.
10. Harrison MB, Browne GB, Roberts J, Tugwell P, Gafni A, Graham ID. Quality of life of individuals with heart failure: a randomized trial of the effectiveness of two models of hospital-to-home transition. Medical Care 2002;40(4):271-82.
11. Huang TT, Liang SH. A randomized clinical trial of the effectiveness of a discharge planning intervention in hospitalized elders with hip fracture due to falling. Journal of Clinical Nursing 2005;14(10):1193-201.
12. Graham CL, Ivey SL, Neuhauser L. From hospital to home: assessing the transitional care needs of vulnerable seniors. The Gerontologist 2009;49:23-33.
13. Brown J, Furstenberg AL. Restoring control: empowering older patients and their families during health crisis. Social Work in Health Care 1992;17(4):81-101.
14. Williams M, Obert M, Bjorklund B, Hughes S. Family caregiving in cases of hip fracture. Rehabilitation Nursing 1996;21 (3):124-31.
15. Snow V, Beck D, Budnitz T, Miller DC, Potter J, Wears RL, et al. Transitions of care consensus policy statement American college of physicians-society of general internal medicine-society of hospital medicine-American geriatrics society-American college of emergency physicians-society of academic emergency medicine. Journal of Hospital Medicine 2009;4:364-70.
16. Coleman EA, Williams MV. Executing high-quality care transitions: a call to do the right thing. Society of Hospital Medicine 2007;2(5):287-90.
17. Bauer M, Fitzgerald L, Haesler E, Manfrin M. Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence. Journal of Clinical Nursing 2009;18(18):2539-46.
18. Flacker J, Park W, Sims A. Hospital discharge information and older patients: do they get what they need? Journal of Hospital Medicine 2007;2(5):291-6.
19. Kripalani S, Jackson A, Schinipper J, Coleman E. Promoting effective transitions of care at hospital discharge: a review of key issues for hospitalists. Journal of Hospital Medicine 2007;2(5):314-23.
20. Strunin L, Stone M, Jack B. Understanding rehospitalisation risk: can the hospital discharge be modified to reduce recurrent hospitalisation. Journal of Hospital Medicine 2007;2(5):297-304.
21. The Joint Commission. Sentinel event statistics. [webpage on the internet]. [cited 2012 Aug 20; updated 2013 Feb 10]. Available from: http://www.jointcommission.org/SentinelEvents/Statistics/
22. Adair CE, McDougall GM, Beckie A, Joyce A, Mitton C, Wild CT, et al. History and measurement of continuity of care in mental health services and evidence of its role in outcomes. Psychiatric Services 2003;54(10):1351-6.
23. Byrne K, DeForge R, Stolee P, Mackenzie R, McCallum J, Parker H, et al. Defining continuity of care in a geriatric rehabilitation unit. Geriatrics Today: The Canadian Journal of Geriatric Medicine and Psychiatry 2005;8:76.
24. Woodward CA, Abelson J, Tedford S, Hutchison B. What is important to continuity in home care? Perspectives of key stakeholders. Social Science & Medicine 2004;58(1):177-92.
25. Brown EL, Raue PJ, Mlodzianowski AE, Meyers MS, Greenberg RL, Bruce ML. Transition to home care: quality of mental health, pharmacy, and medical history information. International Journal of Psychiatry in Medicine 2006;36(3):339-49.
26. McLeod J, McMurray J, Walker JD, Heckman GA, Stolee P. Care transitions of older patients with musculoskeletal disorders: continuity from the providers' perspective. International Journal of Integrated Care 2011;11:1-11. Available from: http://www. ijic.org/index.php/ijic/article/view/URN%3ANBN%3ANL%3AUI%3A10-1-101377
27. Cox CB. Discharge planning for dementia patients: factors influencing caregiver decisions and satisfaction. Health and Social Work 1996;21(2):97-104.
28. Bull MJ, Hansen HE, Gross CR. Predictors of elder and family caregiver satisfaction with discharge planning. The Journal of Cardiovascular Nursing 2000a;14(3):76-87.
29. Bull MJ, Hansen HE, Gross CR. Differences in family caregiver outcomes by their level of involvement in discharge planning. Applied Nursing Research 2000b;13(2):76-82.
30. Bull MJ. Patients' and professionals' perceptions of quality in discharge planning. Journal of Nursing Care Quality 1994;8 (2):47-61.
31. Naylor M, Brooten D, Jones R, Lavizzo-Mourey R, Mezey M, Pauly M. Comprehensive discharge planning for the hospitalized elderly: a randomised clinical trial. Annals of Internal Medicine 1994;120(12):999-1006.
32. Driscoll A. Managing post-discharge care at home: an analysis of patients' and their carers' perceptions of information received during their stay in hospital. Journal of Advanced Nursing 2000;31(5):1165-73.
33. Sheppard S, Parkes J, McMlaran J, Phillips C. Discharge planning from hospital to home. Cochrane Database of Systematic Reviews 2004;1:1-38.
34. Ward-Griffin C, McKeever P. Relationships between nurses and family caregivers: partners in care? Advances in Nursing Science 2000;22(3):89-103.
35. Duncan MT, Morgan DL. Sharing the caring: family caregivers' views of their relationship with nursing home staff. Gerontologist 1994;34(2):235-44.
36. Havath TA, Archbold PG, Stewart BJ, Gadow S, Kirschling JM, Miller L, et al. Establishing partnerships with family caregivers. Local and cosmopolitan knowledge. Journal of Gerontological Nursing 1994;20(2):29-35.
37. Keating NC, Fast JE, Connidis IA, Penning M, Keefe J. Bridging policy and research in eldercare. Canadian Journal on Aging 1997;16:22-41.
38. Nahm ES, Resnick B, Orwig D, Magaziner J, Degrezia M. Exploration of informal caregiving following hip fracture. Geriatric Nursing 2010;31(4):254-62.
39. Bowman KF, Rose JH, Kresevic D. Family caregiving of hospitalized patients. Caregiver and nurse perceptions at admission and discharge. Journal of Gerontological Nursing 1998;24(8):8-16.
40. Coleman EA, Smith JD, Frank JC, Eilertsen TB, Thiare JN, Kramer AM. Development and testing of a measure designed to assess the quality of care transitions. International Journal of Integrated Care 2002;2:e02. Available from: http://www.ijic.org/ index.php/ijic/article/view/URN%3ANBN%3ANL%3AUI%3A10-1-100302
41. Naylor MD. Transitional care of older adults. Annual Review of Nursing Research 2002;20:127-47.
42. Weaver FM, Perloff L, Waters T. Patients' and caregivers' transition from hospital to home: needs and recommendations. Home Health Care Services Quarterly 1999;17(3):27-48.
43. Bull MJ, Kane RL. Gaps in discharge planning. Journal of Applied Gerontology 1996;15(4):486-500.
44. Grimmer K, Moss J, Falco J. Becoming a carer for an elderly person after discharge from an acute hospital admission. Internet Journal of Allied Health Sciences and Practice 2004;2(4):1540-580.
45. Bull MJ, Jervis LL, Her MA. Hospitalized elders: the difficulties families encounter. Journal of Gerontological Nursing 1995;21 (6):19-23.
46. Slauenwhite C, Simpson P. Patient and family perspectives on early discharge and care of older adults undergoing fractured hip rehabilitation. Orthopedic Nursing 1998;17:20-36.
47. Haesler E, Bauer M, Nay R. Staff-family relationships in the care of older people: a report on a systematic review. Research in Nursing and Health 2007;30:385-98.
48. PickettW, Hartling L, Brison RJ. A population-based study of hospitalized injuries in Kingston, Ontario, identified via Canadian hospitals injury reporting and prevention program. Chronic Diseases in Canada 1997;18(2):61-9.
49. Leslie WD, O'Donnell S, Jean, S, Lagacé C, Walsh P, Bancej C, et al. Trends in hip fracture rates in Canada. Journal of the American Medical Association 2009;302(8):883-9.
50. Community Care Access Centre (CCAC). WWCCAC fact sheet. [cited 2013 May 20; updated 2013 July 3]. Available from: http://www.ccac-ont.ca/Upload/ww/General/Brochures/WWCCAC%20Fact%20Sheet.pdf
51. Santi SM, Hinton S, Berg K, Stolee P. Bridging the information divide: health information sharing in home care. Canadian Journal of Nursing Research 2013;45(1):16-35.
52. Frankfather DL. Provider discretion and consumer preference in long-term care of seriously disabled elderly. Gerontologist 1981;21(4):366-73.
53. Hasselkus B. Physician and family caregiver in the medical setting: negotiation of care. Journal of Aging Studies 1992; 6(1):67-80.
54. Twigg J, Atkin K. Carers perceived: policy and practice in informed care. Philadelphia, PA: Open University Press; 1994.
55. Knoblauch H. Focused ethnography. Forum: qualitative social research [serial online] 2005 Sep;6(3). [cited 2012 Sep 06]. Available from: http://www.qualitative-research.net/index.php/fqs/article/viewArticle/20/43.URN:NBN:DE:0114-fqs0503440
56. Hammersley M, Atkinson P. Ethnography: principles in practice. London and New York: Routledge; 1995.
57. Blumer M. Concepts in the analysis of qualitative data. The Sociological Review 1979;27(4):651-77.
58. Toscan J, Mairs K, Hilton S, Stolee P. Integrated transitional care: patient, informal caregiver and health care provider perspectives on care transitions for older persons with hip fracture. International Journal of Integrated Care 2012;12(13):1-14. Available from: http://www.ijic.org/index.php/ijic/article/view/URN%3ANBN%3ANL%3AUI%3A10-1-112878
59. Barbour RS. Checklist for improving rigour in qualitative research: a case of the tail wagging the dog? British Medical Journal 2001;322:1115-17.
60. Foust JB, Vuckovic N, Henriquez E. Hospital to home transition: patient, caregiver, and clinician perspectives. Western Journal of Nursing Research 2012;34(2):194-212.
61. Duggleby WD, Penz KL, Goodridge DM, Wilson DM, Leipert BD, Berry PH, et al. The transition experience of rural older persons with advanced cancer and their families: a grounded theory study. BMC Palliative Care 2010;9(5):1-9.
62. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qualitative Health Research 2005;15(9):1277-88.
63. QSR International Pty Ltd. NVivo qualitative data analysis software, Version 8; 2008.
64. Kontos PC, Miller KL, Brooks D, Jassal SV, Spanjevic L, Devins GM, et al. Factors influencing exercise participation by older adults requiring chronic hemodialysis: a qualitative study. International Urology and Nephrology 2007;39(4):1303-11.
65. Faux S, Seldeman RY. Health care professionals and their relationships with families who have members with developmental disabilities. Journal of Family Nursing 1996;2(2):217-37.
66. Leahey M, Harper-Jaque S. Family-nurse relationships: core assumptions and clinical implications. Journal of Family Nursing 1996;2(2):133-51.
67. Wittenberg-Lyles E, Oliver DP, Kruse RL, Demiris G, Gage LA, Wagner K. Family caregivers participation in hospice interdisciplinary team meetings: how does it affect the nature and content of communication? Health Communication 2010;24 (3):264-273.
68. Wittenberg-Lyles E, Oliver DP, Demiris G, Burt S, Regehr K. Inviting the absent members: examining how caregivers' participation affects hospice team communication. Palliative Medicine 2010;24(2):192-5.
69. Gentles SJ, Lokker C, McKibbon KA. Health information technology to facilitate communication involving health care providers, caregivers, and pediatric patients: a scoping review. Journal of Medical Internet Research 2010;12(2):e22.
70. Ross SE, Lin CT. The effects of promoting patient access to medical records: a review. Journal of Medical Information Association 2003;10(2):129-38.
71. Hours PS, Rusenas I, Simmonds MA, Hufford DL. Information needs of families of cancer patients: a literature review and recommendations. Journal of Cancer Education 1991;6(4):255-61.
72. Conatser C. Preparing the family for their responsibilities during treatment. Cancer 1986;58(2 Suppl):508-11.
73. Brobäck G, Berterö C. How next of kin experience palliative care of relatives at home. European Journal of Cancer Care 2003;12(4):339-46.
74. Byrne K, Orange JB, Ward-Griffin C. Care transition experiences of spousal caregivers: from a geriatric rehabilitation unit to home. Qualitative Health Research 2011;21(10):1371-87.
75. Toscan J, Stolee P, Mock S, Dupuis S. Silent partners in care: examining care transitions from caregivers of hip fracture and stroke patients. Canadian Association of Gerontology, 39th Annual Scientific and Educational Meeting, Montreal, Quebec, December 2010.
76. Steward MA. Effective physician-patient communication and health outcomes: a review. Canadian Association Journal 1995;153(9):1423-33.
77. The Institute for Patient and Family Centred Care. Applying patient and family centered concepts to bedside rounds: a guidance document. Bethesda, MD: Institute for Patient and Family Centered Care; 2008. [cited 2012 21 July]. Available from: http://www.ipfcc.org/advance/topics/PH_RD_Applying_PFCC_Rounds_012009.pdf.
78. Kernisan LP, Sudore RL, Knight SJ. Information-seeking at a caregiver website: a qualitative analysis. Journal of Medical Internet Research 2010;12(3):e31.
79. Cammack V, Byrne K. Accelerating a network model of care: taking a social innovation to scale. Technology Innovation Management Review 2012;(Jul):26-30.