A discrete choice experiment to obtain a tariff for valuing informal care situations measured with the CarerQol instrument

Medical Decision Making

Volumn 34, Issue 1, 2014, Pages 84-96

  Hoefman, Renske J ^a   Van Exel, Job ^a   Rose, John M ^b   Van De Wetering, E J ^a   Brouwer, Werner B F ^a  

^a ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

care related quality of life; CarerQol instrument; discrete choice; informal care; tariff

Indexed keywords

ADULT; AGED; ARTICLE; CARE-RELATED QUALITY OF LIFE; CAREGIVER; CARERQOL INSTRUMENT; DECISION MAKING; DISCRETE CHOICE; FEMALE; HUMAN; INFORMAL CARE; MALE; MIDDLE AGED; NETHERLANDS; PILOT STUDY; QUALITY OF LIFE; TARIFF; VISUAL ANALOG SCALE;

CARE-RELATED QUALITY OF LIFE; CARERQOL INSTRUMENT; DISCRETE CHOICE; INFORMAL CARE; TARIFF;

ADULT; AGED; CAREGIVERS; CHOICE BEHAVIOR; FEMALE; HUMANS; MALE; MIDDLE AGED; NETHERLANDS; PILOT PROJECTS; QUALITY OF LIFE; VISUAL ANALOG SCALE;

EID: 84886948619     PISSN: 0272989X     EISSN: 1552681X     Source Type: Journal    
DOI: 10.1177/0272989X13492013     Document Type: Article

References (53)

1. Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA. 1999 ; 282 (23). 2215-19
2. Brouwer WB, Van Exel NJ, Van den Berg B, Van den Bos GA, Koopmanschap MA. Process utility from providing informal care: the benefit of caring. Health Policy. 2005 ; 74 (1). 85-99
3. Broese van Groenou M, De Boer A Informal Care. An Overview of the Support Given by and to Informal Carers in 2007. De Boer A Broese van Groenou M Timmermans J, ed. SCP: The Hague ; 2009: 167-83.
4. Broese van Groenou M, De Boer A Informal Care. An Overview of the Support Given by and to Informal Carers in 2007. De Boer A Broese van Groenou M Timmermans J, ed. SCP: The Hague ; 2009: 144-65.
5. Gold MR, Siegel JE, Russell LB, Weinstein M New York: Oxford University Press ; 1996 :
6. Drummond MF, Sculpher MJ, Torrance GW, O'Brien BJ, Stoddart GL. Methods for the Economic Evaluation of Health Care Programmes. Oxford (UK): Oxford University Press;. 2005 ;:
7. Jacobs P, Ohinmaa A, Brady B. Providing systematic guidance in pharmacoeconomic guidelines for analysing costs. Pharmacoeconomics. 2005 ; 23 (2). 143-53
8. Diemen: College voor Zorgverzekeringen ; 2005 :
9. Stone PW, Chapman RH, Sandberg EA, Liljas B, Neumann PJ. Measuring costs in cost-utility analyses: variations in the literature. Int J Technol Assess Health Care. 2000 ; 16 (1). 111-24
10. Van den Berg B, Brouwer WB, Koopmanschap MA. Economic valuation of informal care: an overview of methods and applications. Eur J Health Econ. 2004 ; 5 (1). 36-45
11. Francis J, McDaid D Unit Costs of Health and Social Care 2009. Cutis L, ed. Canterbury (UK): University of Kent ; 2009: 27-33.
12. McDaid D. Estimating the costs of informal care for people with Alzheimer's disease: methodological and practical challenges. Int J Geriatr Psychiatry. 2001 ; 16 (4). 400-5
13. Van den Berg B, Brouwer W, Van Exel J, Koopmanschap M, Van den Bos GA, Rutten F. Economic valuation of informal care: lessons from the application of the opportunity costs and proxy good methods. Soc Sci Med. 2006 ; 62 (4). 835-45
14. Van den Berg B, Bleichrodt H, Eeckhoudt L. The economic value of informal care: a study of informal caregivers' and patients' willingness to pay and willingness to accept for informal care. Health Econ. 2005 ; 14 (4). 363-76
15. De Meijer C, Brouwer W, Koopmanschap M, Van den Berg B, Van Exel J. The value of informal care - a further investigation of the feasibility of contingent valuation in informal caregivers. Health Econ. 2010 ; 19 (7). 755-71
16. Van den Berg B, Al M, Van Exel J, Koopmanschap M, Brouwer W. Economic valuation of informal care: conjoint analysis applied in a heterogeneous population of informal caregivers. Value Health. 2008 ; 11 (7). 1041-50
17. Van den Berg B, Ferrer-I-Carbonell A. Monetary valuation of informal care: the well-being valuation method. Health Econ. 2007 ; 16 (11). 1227-44
18. Brouwer WBF, Van Exel NJA, Tilford MJ Economic Evaluation in Child Health. Ungar WJ, ed. Oxford (UK): Oxford University Press ; 2010: 55-76.
19. Koopmanschap MA, Van Exel JN, Van den Berg B, Brouwer WB. An overview of methods and applications to value informal care in economic evaluations of healthcare. Pharmacoeconomics. 2008 ; 26 (4). 269-80
20. Brouwer WBF, Koopmanschap MA, Rutten FFH. Productivity costs measurement through quality of life? A response to the recommendation of the Washington Panel. Health Econ. 1998 ; 6 (3). 253-9
21. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy. 1990 ; 16 (3). 199-208
22. Deeken JF, Taylor KL, Mangan P, Yabroff KR, Ingham JM. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. J Pain Symptom Manage. 2003 ; 26 (4). 922-53
23. Van Exel NJ, Scholte op, Reimer WJ, Brouwer WB, Van den Berg B, Koopmanschap MA, Van den Bos GA. Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden. Clin Rehabil. 2004 ; 18 (2). 203-14
24. Al-Janabi H, Coast J, Flynn TN. What do people value when they provide unpaid care for an older person? A meta-ethnography with interview follow-up. Soc Sci Med. 2008 ; 67 (1). 111-21
25. Brouwer WB, Van Exel NJ, Van Gorp B, Redekop WK. The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Qual Life Res. 2006 ; 15 (6). 1005-21
26. Asmus-Szepesi K, de Vreede P, Nieboer A, et al. Evaluation design of a reactivation care program to prevent functional loss in hospitalised elderly: a cohort study including a randomised controlled trial. BMC Geriatr. 2011 ; 11 (1). 36
27. Cramm JM, van Dijk H, Lotters F, van Exel J, Nieboer AP. Evaluating an integrated neighbourhood approach to improve well-being of frail elderly in a Dutch community: a study protocol. BMC Res Notes. 2011 ; 4 (1). 532
28. Flyckt L, Löthman A, Jörgensen L, Rylander A, Koernig T. Burden of informal care giving to patients with psychoses: a descriptive and methodological study. Int J Soc Psychiatry. 2013 ; 59 (2). 137-46
29. Meeuwsen EJ, Melis RJF, Adang E, et al. Cost-effectiveness of post-diagnosis treatment in dementia coordinated by Multidisciplinary Memory Clinics in comparison to treatment coordinated by general practitioners: an example of a pragmatic trial. J Nutr Health Aging. 2009 ; 13 (3). 242-8
30. Pangalila RF, van den Bos GAM, Stam HJ, van Exel NJA, Brouwer WBF, Roebroeck ME. Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy. Disabil Rehabil. 2012 ; 34 (12). 988-96
31. Payakachat N, Tilford JM, Brouwer WBF, van Exel NJ, Grosse SD. Measuring health and well-being effects in family caregivers of children with craniofacial malformations. Qual Life Res. 2011 ; 20 (9). 1485-95
32. Hoefman RJ, van Exel NJA, Foets M, Brouwer WBF. Sustained informal care: the feasibility, construct validity and test-retest reliability of the CarerQol-instrument to measure the impact of informal care in long-term care. Aging Ment Health. 2011 ; 15 (8). 1018-27
33. Hoefman RJ, Van Exel NJA, Redekop WK, Looren-de Jong S, Brouwer WBF. A new test of the validity of the CarerQol instrument: measuring "care-related quality of life" of informal caregivers for use in economic evaluations. Qual Life Res. 2011 ; 20 (6). 875-87
34. Brazier J, Ratcliffe J, Salomon JA, Tsuchiya A Oxford (UK), New York (NY): Oxford University Press ; 2007 :
35. Dolan P. Modeling valuations for EuroQol health states. Med Care. 1997 ; 35 (11). 1095-108
36. Lamers LM, McDonnell J, Stalmeier PF, Krabbe PF, Busschbach JJ. The Dutch tariff: results and arguments for an effective design for national EQ-5D valuation studies. Health Econ. 2006 ; 15 (10). 1121-32
37. Al-Janabi H, Flynn TN, Coast J. Estimation of a preference-based carer experience scale. Med Decis Making. 2011 ; 5 (3). 458-68
38. Louviere J, Flynn T, Carson R. Discrete choice experiments are not conjoint analysis. Journal of Choice Modelling. 2010 ; 3 (3). 57-72
39. McFadden D. The measurement of urban travel demand. J Public Econ. 1974 ; 3 (4). 303-28
40. Hensher DA, Rose JM, Greene WH Cambridge (UK): Cambridge University Press ; 2005 :
41. Bliemer MCJ, Rose JM. Experimental design influences on stated choice outputs: an empirical study in air travel choice. Transportation Research Part A: Policy and Practice.. 2011 ; 45 (1). 63-79
42. Rose JM, Bliemer MCJ. Constructing efficient stated choice experimental designs. Transport Reviews. 2009 ; 29 (5). 587-617
43. Carlsson F, Martinsson P. Design techniques for stated preference methods in health economics. Health Econ. 2003 ; 12 (4). 281-94
44. Bliemer MCJ, Rose JM, Hess S. Approximation of Bayesian efficiency in experimental choice designs. Journal of Choice Modelling. 2008 ; 1 (1). 98-127
45. Hensher DA, Greene WH. The mixed logit model: the state of practice. Transportation. 2003 ; 30 (2). 133-76
46. Hoyos D. The state of the art of environmental valuation with discrete choice experiments. Ecol Econ. 2010 ; 69 (8). 1595-603
47. Swait J, Louviere J. The role of the scale parameter in the estimation and comparison of multinomial logit models. J Market Res. 1993 ; 30 (3). 305-14
48. Van den Berg B, Al M, Brouwer W, Van Exel J, Koopmanschap M. Economic valuation of informal care: the conjoint measurement method applied to informal caregiving. Soc Sci Med. 2005 ; 61 (6). 1342-55
49. De Groot AWM, Van Praag BMS, Velthuijsen JW, Zijderveld CE Naar een Vrijwel Volledige Arbeidsparticipatie. 113 th ed.The Hague: WRR; 2000;143-208. Hazeu CA Eggelte JJA Butter FAGd, ed. The Hague: WRR ; 2000: 143-208.
50. Mentzakis E, Ryan M, McNamee P. Using discrete choice experiments to value informal care tasks: exploring preference heterogeneity. Health Econ. 2011 ; 20: 331-47
51. Caussade S, Ortúzar JD, Rizzi LI, Hensher DA. Assessing the influence of design dimensions on stated choice experiment estimates. Transportation Research Part B: Methodological. 2005 ; 39 (7). 621-40
52. Bech M, Kjaer T, Lauridsen J. Does the number of choice sets matter? Results from a web survey applying a discrete choice experiment. Health Econ. 2011 ; 20 (3). 273-86
53. DeShazo J, Fermo G. Designing choice sets for stated preference methods: the effects of complexity on choice consistency. J Environ Econ Manage. 2002 ; 44 (1). 123-43