What it means to be an adult child of a person with dementia

International Journal of Qualitative Studies on Health and Well-being

Volumn 8, Issue 1, 2013, Pages

  Kjällman Alm, Annika ^a   Norbergh, Karl Gustaf ^a   Hellzen, Ove ^a  

^a MID SWEDEN UNIVERSITY   (Sweden)

Author keywords

Adult children; Dementia; Life world; Phenomenological hermeneutics; Qualitative research

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ADULT CHILD; AGED; ARTICLE; CAREGIVER; COST OF ILLNESS; DEMENTIA; EMPIRICAL RESEARCH; FEMALE; GRIEF; HUMAN; LIFE WORLD; MALE; MIDDLE AGED; PHENOMENOLOGICAL HERMENEUTICS; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SOCIAL SUPPORT; VERBAL COMMUNICATION; PSYCHOLOGY;

ADULT CHILDREN; DEMENTIA; LIFE WORLD; PHENOMENOLOGICAL HERMENEUTICS; QUALITATIVE RESEARCH;

ADAPTATION, PSYCHOLOGICAL; ADULT; ADULT CHILDREN; AGED; CAREGIVERS; COST OF ILLNESS; DEMENTIA; EMPIRICAL RESEARCH; FEMALE; GRIEF; HUMANS; MALE; MIDDLE AGED; NARRATION; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

EID: 84886691968     PISSN: 17482623     EISSN: 17482631     Source Type: Journal    
DOI: 10.3402/qhw.v8i0.21676     Document Type: Article

References (33)

1. Avison, W. R., & Turner, J. (1988). Stressful life events and depressive symptoms: Disaggregating the effects of acute stressors and chronic strains. Journal of Health and Social Behavior, 29(3), 253-264.
2. Batsch, N. L., & Mittelman, M. S. (2012). World Alzheimer Report 2012. Overcoming the stigma of dementia. London: Alzheimer's Disease International. Retrieved March 11, 2013, from http://www.alz.co.uk/research/ WorldAlzheimerReport2012.pdf
3. Bengtsson, J. (2001). Sammanflätningar. Husserls och Merleau-Pontys fenomenologi. Göteborg: DAIDALOS. (in Swedish).
4. Betts Adams, K. (2006). The transition to caregiving. The experience of family members embarking on the dementia caregiving career. Journal of Gerontological Social Work, 47(3,4), 3-29.
5. Conde-Sala, J. L., Garre-Olmo, J., Turró-Garriga, O., Vilalta-Franch, J., & López-Pousa, S. (2010). Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: An exploratory comparative design. International Journal of Nursing Studies, 47(10), 1262-1273.
6. Cullberg, J. (1988). Kris och utveckling. Lund: Natur och Kultur. (in Swedish).
7. Dahlberg, K., Dahlberg, H., & Nyström, M. (2008). Reflective lifeworld research. Hungary: Studentlitteratur.
8. Erikson, E. H. (1997). The life cycle completed. New York: W. W. Norton.
9. Erikson, E. H. (2004). Den fullbordade livscykeln. Finland: Natur och Kultur. (in Swedish).
10. Gilmour, H., Gibson, F., & Campbell, J. (2003). Living alone with dementia: A case study approach to understanding risk. Dementia, 2, 403.
11. Harman, G., & Clare, L. (2006). Illness representation and lived experience in early-stage dementia. Qualitative Health Research, 16, 484.
12. Jegermalm, M. (2003). Direct and indirect support for carers. Journal of Gerontological Social Work, 38(4), 67-84.
13. Johansson, L., Long, H., & Parker, M. G. (2011). Informal caregiving for elders in Sweden: An analysis of current policy developments. Journal of Aging & Social Policy, 23, 335-353.
14. Kalaria, R. N., Maestre, G. E., Arizaga, R., Friedland, R. P., Galasko, D., Hall, K., et al. (2008). Alzheimer's disease and vascular dementia in developing countries: Prevalence, management, and risk factors. Lancet Neurology, 7, 812-826.
15. Laakkonen, M.-L., Raivio, M., Eloniemi-Sulkava, U., Saareneheimo, M., Pietilä, M., Tilvis, R. S., et al. (2008). How do elderly spouse care givers of people with Alzheimer's disease experience the disclosure of dementia diagnosis and subsequent care? Journal of Medical Ethics, 34, 427-430.
16. Levinas, E. (1969). Totality and infinity. Pittsburgh: Duquesne University Press.
17. Levinás, E. (1990). Etik och oändlighet. Samtal med Philippe Nemo. Stehag: Symposion. (in Swedish).
18. Lindseth, A., & Norberg, A. (2004). A phenomenological hermeneutical method for researching lived experience. Scandinavian Journal of Caring Science, 18, 145-153.
19. Logstrup, K. E. (1992). Det etiska kravet. Göteborg: DAIDALOS AB. (in Swedish).
20. Loughran, H. (2011). Understanding crisis therapies: An integrative approach to crisis intervention and post-traumatic stress. London: Jessica Kingsley.
21. Neufield, A., & Eastlick Kushner, K. (2009). Men family caregivers' experience of nonsupportive interactions: Context and expectations. Journal of Family Nursing, 15, 171.
22. Persson, T. (1995). Att möta människor i kris-om kristeori och krisbistånd. Lund: Studentlitteratur. (in Swedish).
23. Rapoport, L. (1962). The state of crisis: Some theoretical considerations. Social Service Review, 34, 2, 212-217.
24. Ricoeur, P. (1976). Interpretation theory: Discourse and the surplus of meaning. Fort Worth, TX: Texas Christian University Press.
25. Sanders, S., Ott, C. H., Kelber, S. T., & Noonan, P. (2008). The experience of high levels of grief in caregivers of persons with Alzheimer's disease and related dementia. Death Studies, 32, 495-523.
26. SBU-Swedish Council on Health Technology Assessment. (2006). Demenssjukdomar-En systematisk litteraturöversikt (Rapportnr 172). Stockholm, Sweden: SBU. (in Swedish). Retrieved May 10, 2013, from http://www.sbu.se/sv/Publicerat/Gul/Demenssjukdomar/
27. Strang, V., Koop, P., Dupuis-Blanchard, S., Nordstrom, M., & Thompson, B. (2006). Family caregivers and transition to long-term care. Clinical Nursing Research, 15, 27-45.
28. Swedish Social Services Act. (2009). Law 2009:549. Retrieved May 7, 2012, from http://www.riksdagen.se/sv/DokumentLagar/Lagar/Svenskforfattningssamling/ Socialtjanstlag-2001453-sfs-2001-453/?bet=2001:453
29. Turner, J., & Avison, W. R. (1992). Innovations in the measurement of life stress: Crises theory and the significance of event resolution. Journal of Health and Social Behavior, 33(1), 36-50.
30. Vernooij-Dassen, M., Derksen, E., Scheltens, P., & Moniz-Cook, E. (2006). Receiving a diagnosis of dementia. The experience over time. Dementia, 5, 397.
31. WHO. (2012). Dementia: A public health priority. Retrieved March 19, 2013, from http://whqlibdoc.who.int/publications/2012/9789241564458-eng.pdf
32. Wimo, A., Winblad, B., Aguero-Torres, H., & von Strauss, E. (2003). The magnitude of dementia occurrence in the world. Alzheimer Disease & Associated Disorders, 17(2), 63-67.
33. Wood, D. (Ed.). (1991). On Paul Ricoeur. Narrative and interpretation. London: Routledge.