The prevalence and correlates of supportive care needs in testicular cancer survivors: A cross-sectional study

Psycho-Oncology

Volumn 22, Issue 11, 2013, Pages 2557-2564

  Smith, Allan ^a   King, Madeleine ^a,b   Butow, Phyllis ^a   Luckett, Tim ^c   Grimison, Peter ^b,d   Toner, Guy C ^b,e   Stockler, Martin ^b,d   Hovey, Elizabeth ^b,f   Stubbs, John ^b,g   Hruby, George ^h   Gurney, Howard ⁱ   Turner, Sandra ⁱ   Alam, Mahmood ^j   Cox, Keith ^d   Olver, Ian ^k  

^a UNIVERSITY OF SYDNEY   (Australia)

^b Australian and New Zealand Urogenital and Prostate Cancer Trials Group   (Australia)

^c UNIVERSITY OF NEW SOUTH WALES   (Australia)

^d SYDNEY CANCER CENTRE   (Australia)

^e UNIVERSITY OF MELBOURNE   (Australia)

^f PRINCE OF WALES HOSPITAL   (Australia)

^g Cancer Voices Australia   (Australia)

^h ROYAL PRINCE ALFRED HOSPITAL   (Australia)

ⁱ WESTMEAD HOSPITAL   (Australia)

^j LIVERPOOL HOSPITAL   (Australia)

^k Cancer Council Australia   (Australia)

more..

Author keywords

health related quality of life; oncology; psychological distress; supportive care needs; survivor; testicular cancer

Indexed keywords

ANTINEOPLASTIC AGENT;

ARTICLE; CANCER PROGNOSIS; CANCER RECURRENCE; CANCER SURVIVOR; CLINICAL PRACTICE; CROSS-SECTIONAL STUDY; DISTRESS SYNDROME; FOLLOW UP; HEALTH CARE NEED; HUMAN; LIFE STRESS; MALE; METASTASIS; PREVALENCE; QUALITY OF LIFE; SEXUAL BEHAVIOR; SOCIAL INTERACTION; SUPPORTIVE CARE NEED; TESTIS CANCER;

HEALTH-RELATED QUALITY OF LIFE; ONCOLOGY; PSYCHOLOGICAL DISTRESS; SUPPORTIVE CARE NEEDS; SURVIVOR; TESTICULAR CANCER;

ADOLESCENT; ADULT; AGE FACTORS; AUSTRALIA; COMORBIDITY; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; PREVALENCE; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; STRESS, PSYCHOLOGICAL; SURVIVORS; TESTICULAR NEOPLASMS;

EID: 84886443431     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3323     Document Type: Article

References (32)

1. Cancer Incidence in Five Continents. IARC: Lyon, 2007.
2. Rosen A, Jayram G, Drazer M, Eggener SE,. Global trends in testicular cancer incidence and mortality. Eur Urol 2011; 60: 374-379.
3. SEER Cancer Statistics Review, 1975-2007. National Cancer Institute: Bethesda, MD, 2010.
4. Committee on Cancer Survivorship: Improving C, Quality of L, Institute of M, National Research C. From Cancer Patient to Cancer Survivor: Lost in Transition. The National Academies Press, 2005.
5. Sanson-Fisher R, Girgis A, Boyes A, et al,. The unmet supportive care needs of patients with cancer. Supportive Care Review Group. Cancer 2000; 88: 226-237.
6. Pollock K, Wilson E, Porock D, Cox K,. Evaluating the impact of a cancer supportive care project in the community: patient and professional configurations of need. Health Soc Care Community 2007; 15: 520-529.
7. Grossfeld GD, Small EJ,. Long-term side effects of treatment for testis cancer. Urol Clin North Am 1998; 25: 503-515.
8. Travis LB, Curtis RE, Storm H, et al,. Risk of second malignant neoplasms among long-term survivors of testicular cancer. J Natl Cancer Inst 1997; 89: 1429-1439.
9. Brodsky MS,. Testicular cancer survivors impressions of the impact of the disease on their lives. Qual Health Res 1995; 5: 78-96.
10. Jonker-Pool G, Van De Wiel HBM, Hoekstra HJ, et al,. Sexual functioning after treatment for testicular cancer-review and meta-analysis of 36 empirical studies between 1975-2000. Arch Sex Behav 2001; 30: 55-74.
11. Siafaka V, Hyphantis TN, Alamanos I, et al,. Personality factors associated with psychological distress in testicular cancer survivors. J Pers Assess 2008; 90: 348-355.
12. Fleer J, Hoekstra HJ, Sleijfer DT, Hoekstra-Weebers JEHM,. Quality of life of survivors of testicular germ cell cancer: a review of the literature. Support Care Cancer 2004; 12: 476-486.
13. Dahl AA, Mykletun A, Fossa SD,. Quality of life in survivors of testicular cancer. Urologic Oncol.: Semin. Original Invest. 2005; 23: 193-200.
14. Luckett T, Butow PN, King MT, Olver IN,. Psycho-social issues in long-term survivors of testicular cancer: directions for future research. Asia Pac J Clin Oncol 2008; 4: 125-131.
15. Bender JL, Wiljer D, To Mj, et al,. Testicular cancer survivors' supportive care needs and use of online support: a cross-sectional survey. Support Care Cancer 2012: 1-10.
16. Smith AB, King M, Butow P, Olver I,. A comparison of data quality and practicality of online versus postal questionnaires in a sample of testicular cancer survivors. Psycho-Oncology 2013; 22: 233-237.
17. Hodgkinson K, Butow P, Hunt GE, et al,. The development and evaluation of a measure to assess cancer survivors' unmet supportive care needs: the CaSUN (Cancer Survivors' Unmet Needs measure). Psycho-Oncology 2007; 16: 796-804.
18. Lovibond SH, Lovibond PF,. Manual for the Depression Anxiety Stress Scales. (2nd edn). Psychology Foundation: Sydney, 1995.
19. Ware JE, Jr., Kosinski M, Bjorner JB, et al,. User's manual for the SF-36v2 Health Survey (2nd edn). Quality Metric Incorporated: Lincoln, RI, 2007.
20. Hawthorne G, Osborne RH, Taylor A, Sansoni J,. The SF36 version 2: critical analyses of population weights, scoring algorithms and population norms. Qual Life Res 2007; 16: 661-673.
21. AIHW. Cancer in Australia 2010: an overview. Cancer series 2010 [cited 2013 8 March 2013]; Available from: http://www.aihw.gov.au/publication-detail/? id=6442472459
22. Cohen J., A power primer. Psychol Bull 1992; 112: 155-159.
23. Hodgkinson K, Butow P, Hunt GE, et al,. Breast cancer survivors' supportive care needs 2-10 years after diagnosis. Support Care Cancer 2007; 15: 515-523.
24. Urbaniec OA, Collins K, Denson LA, Whitford HS,. Gynecological cancer survivors: assessment of psychological distress and unmet supportive care needs. J Psychosoc Oncol 2011; 29: 534-551.
25. Hodgkinson K, Butow P, Fuchs A, et al. Long-term survival from gynecologic cancer: psychosocial outcomes, supportive care needs and positive outcomes. Gynecol Oncol 2007; 104: 381-389.
26. Harrison SE, Watson EK, Ward AM, et al,. Primary health and supportive care needs of long-term cancer survivors: a questionnaire survey. J Clin Oncol 2011; 29: 2091-2098.
27. Lobb EA, Joske D, Butow P, et al. When the safety net of treatment has been removed: patients' unmet needs at the completion of treatment for haematological malignancies. Patient Educ Couns 2009; 77: 103-108.
28. Jonker-Pool G, Hoekstra HJ, van Imhoff GW, et al,. Male sexuality after cancer treatment-needs for information and support: testicular cancer compared to malignant lymphoma. Patient Educ Couns 2004; 52: 143-150.
29. Mazzotti E, Mazzuca F, Sebastiani C, et al,. Predictors of existential and religious well-being among cancer patients. Support Care Cancer 2011; 19: 1931-1937.
30. Grov EK, Fossa SD, Bremnes RM, et al,. The personality trait of neuroticism is strongly associated with long-term morbidity in testicular cancer survivors. Acta Oncol 2009; 48: 842-849.
31. Fleer J, Hoekstra HJ, Sleijfer DT, et al,. The role of meaning in the prediction of psychosocial well-being of testicular cancer survivors. Qual Life Res 2006; 15: 705-717.
32. Hodgkinson K, Butow P, Hobbs KM, et al,. Assessing unmet supportive care needs in partners of cancer survivors: The development and evaluation of the Cancer Survivors' Partners Unmet Needs measure (CaSPUN). Psycho-Oncology 2007; 16: 805-813.