Working together: Service Users and researchers in Psychosis research

Psychosis

Volumn 5, Issue 3, 2013, Pages 306-316

  Neil, Sandra T ^a   Price, Jason ^a   Pitt, Liz ^a   Welford, Mary ^a   Nothard, Sarah ^b   Sellwood, William ^c   Mulligan, John ^a   Morrison, Anthony P ^a  

^a Prestwich Hospital   (United Kingdom)

^b Wigan and Leigh Drug and Alcohol Recovery Team Coops Business Centre   (United Kingdom)

^c UNIVERSITY OF LIVERPOOL   (United Kingdom)

Author keywords

collaborative research; psychosis; recovery; Service User involvement

Indexed keywords

EID: 84886397575     PISSN: 17522439     EISSN: 17522447     Source Type: Journal    
DOI: 10.1080/17522439.2012.704931     Document Type: Article

References (36)

1. BPS (2009). Codes of Ethics and Conduct. Leicester: The British Psychological Society.
2. Beresford, P. (2002). User involvement in research and evaluation: Liberation or regulation? Social Policy and Society, 1(2), 95-105.
3. Beresford, P., & Evans, C. (1999). Research note: Research and empowerment. British Journal of Social Work, 29, 671-677.
4. Chamberlin, J. (2005). User/consumer involvement in mental health service delivery. Epidemiologia e Psichiatria Sociale, 14, 10-14.
5. Crawford, M.J., Rutter, D., Manley, C., Weaver, T., Bhui, K., Fulop, N., & Tyrer, P. (2002). Systematic review of involving patients in the planning and development of health care. BMJ, 325, 263.
6. Davidson, L. (2003). Living outside mental illness: Qualitative studies of recovery in schizophrenia. New York: New York University Press.
7. Department of Health. (DoH) (1998). A first-class service. Quality in the New NHS. Wetherby: Department of Health.
8. Department of Health. (DoH) (1999). National service framework for mental health: Modern standards and service models. London: Department of Health.
9. Department of Health. (DoH) (2000). Working partnerships: Consumers in research, Third Annual Report. London: Department of Health.
10. Department of Health. (DoH) (2001). The journey to recovery: The Government's vision for mental health care. London: Department of Health.
11. Department of Health. (DoH) (2004). National service framework for mental health: Five years on. London: Department of Health.
12. Department of Health. (DoH) (2005). Research governance for health and social care. (2nd ed.). London: Department of Health.
13. Entwistle, V., Renfrew, M., Yearley, S., Forrester, J., & Lamont, T. (1998). Lay perspectives: Advantages for health research. British Medical Journal, 316, 463-466.
14. Faulkner, A., & Thomas, P. (2002). User-led research and evidence-based medicine. British Journal of Psychiatry, 180, 1-3.
15. Frankham, J. (2009). Partnership research: A review of approaches and challenges in conducting research in partnership with Service Users. Discussion Paper. NCRM. (Unpublished). Retrieved from http://eprints.ncrm.ac.uk/778/1/Frankham_May_09.pdf
16. Hanley, B., Truesdale, A., King, A., Elbourne, D., & Chalmers, I. (2001). Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey. British Medical Journal, 322, 519-523.
17. INVOLVE. (2008). Making participation count. Retrieved from http//www.involve.org.uk/
18. Lindow, V. (2001). Survivor research. In: C. Newnes, G. Holmes & C. Dunn (Eds.), This is madness too (pp. 14-25). London: PCCS Books.
19. Neil, S.T., Kilbride, M., Pitt, L., Welford, M., Nothard, S., Sellwood, W., & Morrison, A.P. (2009). The Questionnaire about the Process of Recovery (QPR): A research instrument developed in collaboration with Service Users. Psychosis: Psychological, Social and Integrative Approaches, 1, 145-155.
20. Noyes, J. (2010). Never mind the qualitative feel the depth: The evolving role of qualitative research in Cochrane Intervention reviews. Journal of Research in Nursing, 15(6), 525-534.
21. Pitt, L., Kilbride, M., Nothard, S., Welford, M., & Morrison, A.P. (2007). Researching recovery from psychosis: a user-led project. Psychiatric Bulletin, 31, 55-60.
22. Pilgrim, D., & Waldron, L. (1998). User involvement in mental health service developments: How far can it go? Journal of Mental Health, 7(1), 95-104.
23. Rose, D., Thornicroft, G., & Slade, M. (2006). Who decides what evidence is? Developing a multiple perspectives paradigm in mental health. Acta Psychiatrica Scandinavica, 113(429), 109-114.
24. Royle, J., Steel, R., Hanley, B., & Bradburn, J. (2001). Getting involved in research: A guide for consumers: Winchester, Consumers in NHS Support Unit, 2001. Retrieved from http://www.mhrn.info/data/files/MHRN_PUBLICATIONS/REPORTS/Carer_good_practice_guidance_-_complete.pdf
25. Scally, G., & Donaldson, L.J. (1998). The NHS's 50 anniversary. Clinical governance and the drive for quality improvement in the new NHS in England. British Medical Journal, 317, 61-65.
26. Smith, L., & Bailey, D. (2010). What are the barriers and support systems for Service User-led research? Implications for practice. Journal of Mental Health Training, Education and Practice, 5(1), 35-44.
27. Staley, K. (2012). An evaluation of Service User involvement in studies adopted by the Mental Health Research Network. London: MHRN.
28. Storm, M., Knudsen, K., Davidson, L., Hausken, K., & Johannessen, J. (2012). Service user involvement in practice: The evaluation of an intervention program for service providers and inpatients in Norwegian community mental health centers. Psychosis: Psychological, Social and Integrative Approaches, 3, 29-40.
29. Service User Enterprise (SURE). Retrieved from http://www.iop.kcl.ac.uk/departments/?unit_id=908f4f8f-fed1-4566-bc60-e84b28a5f6f1
30. Suresearch. Welcome to Sure Search. Retrieved from http://www.suresearch.org.uk/
31. SURGE (Service User Research Group England) (2005). Guidance for good practice. Service User involvement in the UK. London, UK: Mental Health Research Network. Retrieved from http://www.mhrn.info/index/ppi/SUR/good-practiceguidance.
32. Syrett, M. (2011). Service User involvement in mental health research: A user's perspective. Advances in Psychiatric Treatment, 17, 201-205.
33. Sweeney, A., Beresford, P., Faulkner, A., Nettle, M., & Rose, D. (2009). (Ed.) This is Survivor Research. Ross on Wye: PCCS Books.
34. Thornicroft, G., & Tansella, M. (2005). Growing recognition of the importance of Service User involvement in mental health service planning and evaluation. Epidemiologia e Psichiatria Sociale, 14, 1-3.
35. Trivedi, P., & Wykes, T. (2002). From passive subjects to equal partners: Qualitative review of use involvement in research. British Journal of Psychiatry, 181, 468-472.
36. van Beinum, M. (2002). User-led research and evidence in psychiatry. The British Journal of Psychiatry, 180, 549-550.