Comprehensive and Family-Centered Psychosocial Care in Pediatric Oncology: Integration of Clinical Practice and Research

Pediatric Psycho-Oncology: Psychosocial Aspects and Clinical Interventions: Second Edition

Volumn , Issue , 2012, Pages 7-17

  Wiener, Lori ^a   Pao, Maryland ^b  

^a NATIONAL CANCER INSTITUTE   (United States)

^b NATIONAL INSTITUTE OF MENTAL HEALTH   (United States)

Author keywords

Family centered care; Needs assessments; Pediatric oncology; Psychosocial care; Research design

Indexed keywords

EID: 84886229916     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9781119941033.ch2     Document Type: Chapter

References (52)

1. Institute for Patient-and Family-Centered Care. Bethesda, MD: Institute for Patient-and Family-Centered Care; c1992-2011 [updated 2010 December 21; cited 2011 Apr 14]. Available from: http://www.ipfcc.org/ about/index.html.
2. Spirito A, Kazak AE. Effective and Emerging Treatments in Pediatric Psychology. Oxford: Oxford University Press, 2006.
3. Cohen LL, Lemanek K, Blount RL, et al. (2008) Evidence-based assessment of pediatric pain. Journal of Pediatric Psychology 2008;33:939-955.
4. Patel SK, Mullins W, Turk A, et al. Distress screening, rater agreement, and services in pediatric oncology. Psychooncology 2010; Oct. 5 [E-pub ahead of print].
5. Zadeh S, Wiener L, Battles H, et al. Perceived benefit and burden for youth and for parents from participation in psychosocial research when undergoing treatment for cancer, NF-1, or HIV. Paper presented at International Society of Paediatric Oncology SIOP XXXXII Congress, Boston, United States; Oct. 2010; 21-24. 2010 SIOP Abstracts. Pediatric Blood & Cancer 2010;55 (in press). DOI: 10.1002/pbc.22779.
6. Kazak AE, Barakat LP, Hwang WT, et al. Association of psychosocial risk screening in pediatric cancer with psychosocial services provided. Psychooncology 2011; Apr 7 [E-pub ahead of print].
7. Kazak AE, Simms S, Alderfer MA, et al. Feasibility and preliminary outcomes from a pilot study of a brief psychological intervention for families and children with newly diagnosed cancer. Journal of Pediatric Psychology 2005;30:644-655.
8. Wiener L, Alderfer M. Psychosocial aspects of cancer for children and their families. In: Lanzkowsky P (ed.) Manual of Pediatric Hematology and Oncology. San Diego: Elsevier, 2011; pp. 952-968.
9. Miller SM, Mangan CE. Interesting effects of information and coping style in adapting to gynecological stress: should a doctor tell all? Journal of Personality and Social Psychology 1983;45:223-236.
10. van Zuuren FJ, Wolfs HM. Styles of information seeking under threat: personal and situational aspects of monitoring and blunting. Personality and Individual Differences 1991;12:141-149.
11. Wiener LS, Hersh SP, Alderfer MA. Psychosocial support for the child and family. In: Pizzo PA, Poplack DG (eds.) Principles and Practices in Pediatric Oncology, 6th edn. Philadelphia: Lippincott, Williams & Wilkins, 2010; pp. 1322-1346.
12. Pao M, Wiener L. Psychological symptoms. In: Wolfe J, Hinds PS, Sourkes BM (eds.) Textbook of Interdisciplinary Pediatric Palliative Care. Philadelphia: Elsevier, 2011; pp. 229-238.
13. Sourkes B, Frankel L, Brown M, et al. Food, toys, and love: pediatric palliative care. Current Problems Pediatric Adolescent Health Care 2005;35:350-386.
14. Wiener L, Battles H, Mamalian C, Zadeh S. ShopTalk: a pilot study of the feasibility and utility of a therapeutic board game for youth living with cancer. Support Care Cancer 2011; Mar 31 [E-pub ahead of print].
15. Wiener L. This is My World. An NCI, NIMH, NIH, DHHS publication available upon request from author, Washington, DC, 1998, reprinted 2011.
16. Drotar D, Witherspoon DO, Zebracki K, Peterson CC. Psychological Interventions in Childhood Chronic Illness. Washington, DC: American Psychological Association, 2006.
17. Brown RP, Gerbarg PG, Muskin PR. Alternative treatments in psychiatry. In: Tasman A, Kay J, Lieberman J (eds.) Psychiatry, 3rd edn. London: John Wiley & Sons, Ltd, 2003; pp. 2147-2183.
18. Nainis N, Paice, JA, Ratner J, et al. Relieving symptoms in cancer: innovative use of art therapy. Journal of Pain and Symptom Management 2006;31:162-169.
19. Barrera, ME, Rykov MH, Doyle SL. The effects of interactive music therapy on hospitalized children with cancer: a pilot study. Psychooncology 2002;11:379-388.
20. Stewart K. PATTERNS: A model for evaluating trauma in NICU Music Therapy: Part I -Theory and Design. Music and Medicine 2009;1:29-40.
21. Bonadies V. Guided imagery as a therapeutic recreation modality to reduce pain and anxiety. Therapeutic Recreation Journal 2009;43:43.
22. DeCourcey M, Russell AC, Keister KJ. Animal-assisted therapy: evaluation and implementation of a complementary therapy to improve the psychological and physiological health of critically ill patients. Dimensions of Critical Care Nursing 2010;29:211-214.
23. Block KI, Block P, Gyllenhall C. The role of optimal healing environments in patients undergoing cancer treatment: Clinical Research Protocol Guidelines. The Journal of Alternative and Alternative Medicine 2004;10 (Suppl.1): S157-S170.
24. Park JG.Environmental color for pediatric patient room design. Doctoral dissertation, Texas A&M University, 2007.
25. Eisen SL, Ulrich RS, Shepley MM, et al. The stressreducing effects of art in pediatric health care: art preferences of healthy children and hospitalized children. Journal of Child Health Care: For Professionals Working with Children in the Hospital and Community 2008;12:173.
26. Beauchemin KM, Hays P. Sunny hospital rooms expedite recovery from severe and refractory depressions. Journal of Affective Disorders 1996;40:49-51.
27. Varni JW, Burwinkle TM, Dickinson P, et al. Evaluation of the built environment at a children's convalescent hospital: development of the Pediatric Quality of Life Inventory parent and staff satisfaction measures for pediatric health care facilities. Journal of Developmental and Behavioral Pediatrics 2004;25:10-20.
28. Sherman S, Shepley MM, Varni JW. Children's environments and health-related quality of life: evidence informing pediatric healthcare environmental design. Children, Youth and Environments 2005;15:186-223.
29. Sherman-Bien S. An empirical approach to healthcare design: research on pediatric oncology units. Psychooncology 2011;20 (Suppl. SI): 6.
30. Schwartz L, Sutton T. A cancer center dedicated to the healing of mind, body and spirit. Psychooncology 2011;20 (Suppl. S1): 6.
31. Santos GW. Historical background to hematopoietic stem cell transplantation. In: Atkinson K (ed.) Clinical Bone Marrow and Blood Stem Cell Transplantation, 2nd edn. New York: Cambridge University Press, 2000; pp. 1-12.
32. Phipps S. Transplant and donor issues. In: Wiener LS, Pao M, Kazak AE, et al. (eds.) Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management. Charlottesville, VA: American Psychosocial Oncology Society, 2009.
33. Pot-Mees CC, Zeitlin H. Psychosocial consequences of bone marrow transplantation in children: a preliminary communication. Journal Psychosocial Oncology 1987;5: 73-81.
34. Kinrade, LC Preparation of sibling donor for bone marrow transplant harvest procedure. Cancer Nursing 1987;10:77-81.
35. Wiener LS, Steffen-Smith E, Fry T, Wayne AS. Hematopoeitic stem cell donation in children: a review of the sibling donor experience. Journal of Psychosocial Oncology 2007;25:45-66.
36. Hobbie WL, Hudson MM, Rowland JH, Schwartz LA. Pediatric cancer survivors: moving beyond cure. In: Wiener LS, Pao M, Kazak AE, et al. (eds.) Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management. Charlottesville, VA: American Psychosocial Oncology Society, 2009.
37. Breyer J. Talking to children and adolescents. In: Wiener LS, Pao M, Kazak AE, et al. (eds.) Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management. Charlottesville, VA: American Psychosocial Oncology Society, 2009; pp. 4-22.
38. North Dakota Department of Public Instruction [homepage on the Internet]. Bismarck, North Dakota: North Dakota Department of Public Instruction [cited 2011 April 14]. Available from: http://www.dpi.state.nd.us/ grants/needs.pdf.
39. Popham WJ. Educational Evaluation, 3rd edn. London: Allyn & Bacon, 1993.
40. Peebles, J. The future of psychotherapy outcome research: science or political rhetoric. The Journal of Psychology, 2000;134:659-669.
41. Willis DJ. In memoriam: Logan Wright, Jr., Ph.D. (1933-1999). Journal of Pediatric Psychology 2000;25: 359-361.
42. Jay SM, Elliott CH, Ozolins M, et al. Behavioral management of children's distress during painful medical procedures. Behavior Research and Therapy 1985;23: 513-520.
43. Wright L, Nunnery A, Eichel B, Scott R. Application of conditioning principles to problems of tracheotomy addiction in children. Journal of Consulting and Clinical Psychology 1968;32:603-606.
44. Rapoff M, Stark L. Editorial: Journal of Pediatric Psychology Statement of Purpose: Section on Single-Subject Studies. Journal of Pediatric Psychology 2008; 33:16-21.
45. Allen KD, Friman PC, Sanger WG. Small research designs in reproductive toxicology. Reproductive Toxicology 1992;6:115-121.
46. Horner RD, Baer DM. Multiple-probe technique: a variation of the multiple baseline. Journal of Applied Behavior Analysis 1978;11:189-196.
47. Barlow DH, Hersen M. Single case experimental designs. In: Arthritis Care & Research, 2nd edn. New York: Pergamon Press, 1984; pp. 132-135.
48. Kazdin AE. Single-Case Research Designs: Methods for Clinical and Applied Setting. New York: Oxford University Press, 1982.
49. Pfeiffer SI, Burd S, Wight A. Clinicians and research: recurring obstacles and some possible solutions. Journal of Clinical Psychology 1992;48:140-145.
50. Davis CG, Nolen-Hoeksema S. Loss and meaning: how do people make sense of loss? American Behavioral Scientist. Special Issue: New Directions in Bereavement Research and Theory 2001;44:726-741.
51. American Psychological Association Presidential Task Force on Evidence-Based, Practices. Evidence-based practice in psychology. American Psychologist 2006;61:271-285.
52. Norcross JC, Hogan TP, Koocher GP. Clinician's Guide to Evidence-Based Practices: Mental Health and Addictions. New York: Oxford University Press, 2008.