Assessing quality of life in long-term cancer survivors: A review of available tools

Supportive Care in Cancer

Volumn 21, Issue 11, 2013, Pages 3143-3152

  Muzzatti, Barbara ^a   Annunziata, M Antonietta ^a  

^a CENTRO DI RIFERIMENTO ONCOLOGICO   (Italy)

Author keywords

Assessment; Long term cancer survivorship; Psychometrics; Quality of life; Questionnaire

Indexed keywords

BREAST CANCER; BRIEF CANCER IMPACT ASSESSMENT; CANCER PROBLEMS IN LIVING SCALE; CANCER SURGERY; CANCER SURVIVOR; COLORECTAL CANCER; CONSTRUCT VALIDITY; CONVERGENT VALIDITY; DISEASE FREE SURVIVAL; HUMAN; IMPACT OF CANCER; INTERNAL CONSISTENCY; LONG TERM QUALITY OF LIFE; LONG TERM QUALITY OF LIFE BREAST CANCER; LUNG NON SMALL CELL CANCER; LYMPHOMA; NONHODGKIN LYMPHOMA; OVARY CANCER; PRIORITY JOURNAL; PROSTATE CANCER; PSYCHOMETRY; QUALITY OF LIFE; QUALITY OF LIFE CANCER SURVIVORS; QUALITY OF LIFE IN ADULT CANCER SURVIVORS; RELIABILITY; REPRODUCIBILITY; REVIEW; SATISFACTION WITH LIFE DOMAINS SCALE FOR CANCER; SCORING SYSTEM; TESTIS CANCER; VALIDATION PROCESS;

HUMANS; NEOPLASMS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SURVIVORS;

EID: 84885655922     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-013-1912-6     Document Type: Review

References (34)

1. Stein KD, Syrjala KL, Andrykowski MA (2008) Physical and psychological long-term and late effects of cancer. Cancer 112(11 suppl):2577-2592
2. Foster C, Wright D, Hill H, Hopkinson J, Roffe L (2009) Psychosocial implications of living 5 years or more following a cancer diagnosis: a systematic review of the research evidence. Eu J Cancer Care (English) 18:223-247
3. Harrington CB, Hansen JA, Moskowitz M, Todd BL, Feuerstein M (2010) It's not over when it's over: long-term symptoms in cancer survivors - a systematic review. Int J Psychiatry Med 40:163-181
4. Annunziata MA, Muzzatti B, Bianchet K, Berretta M, Chimienti E, Lleshi A, Tirelli U (2009) Sopravvivere al cancro: una rassegna sulla qualità di vita nella cancer survivorship. Psicologia della Salute 10:55-71
5. Tedeschi RG, Calhoun LG (1996) The Posttraumatic Growth Inventory: measuring the positive legacy of trauma. J Traumatic Stress 9:455-472
6. Ganz PA, Desmond KA, Leedham B, Rowland JH, Meyerowitz BE, Belin TR (2002) Quality of life in long-term, disease-free survivors of breast cancer: a follow-up study. J Natl Cancer Inst 94:39-49
7. Alfano CM, McGregor BA, Kuniyuki A, Reeve BB, Bowen DJ, Wilder Smith A, Baumgartner KB, Bernstein L, Ballard-Barbash R, Malone KE, Ganz PA, McTiernan A (2006) Psychometric evaluation of the Brief Cancer Impact Assessment among breast cancer survivors. Oncology 70:190-202
8. Zhao L, Portier K, Stein K, Baker F, Smith T (2009) Exploratory factor analysis of the Cancer Problems in Living Scale: a report from the American Cancer Society's Studies of Cancer Survivors. J Pain Symptom Manage 37:676-686
9. Zebrack BJ, Ganz PA, Bernaards CA, Petersen L, Abraham L (2006) Assessing the impact of cancer: development of a new instrument for long-term survivors. Psycho-Oncol 15:407-421
10. Dahl HA, Gudbergsson SB, Dørum A, Fossa SD, Liavaag AH, Sørebø Ø (2011) The impact of cancer scale version 1: psychometric testing of the Norwegian translation in a heterogeneous sample of cancer survivors. Qual Life Res. doi: 10.1007/s11136-011-0053-y
11. Crespi CM, Ganz PA, Petersen L, Castillo A, Caan B (2008) Refinement and psychometric evaluation of the Impact of Cancer Scale. J Natl Cancer Inst 100:1530-1541
12. Crespi CM, Smith SK, Petersen L, Zimmerman S, Ganz PA (2010) Measuring the impact of cancer: a comparison of non-Hodgkin lymphoma and breast cancer survivors. J Cancer Surviv 4:45-58
13. Oerlemans S, Smith SK, Crespi CM, Zimmerman S, van de Poll-Franse LV, Ganz PA (2012) Assessing the impact of cancer among Dutch non-Hodgkin lymphoma survivors compared with their American counterparts: a cross-national study. Psycho-Oncol. doi: 10.1002/pon.3131
14. Crespi CM, Ganz PA, Petersen L, Smith SK (2013) A procedure for obtaining Impact of Cancer version 2 scores using version 1 responses. Qual Life Res 22(1):103-109
15. Wyatt G, Kurtz ME, Friedman LL, Given B, Given CW (1996) Preliminary testing of the Long-Term Quality of Life (LTQL) instrument for female cancer survivors. J Nurs Meas 4:153-170
16. Gordon NH, Siminoff LA (2010) Measuring quality of life of long-term breast cancer survivors: the Long Term Quality of Life-Breast Cancer (LTQOL-BC) Scale. J Psychosoc Oncol 28:589-609
17. Ferrell BR, Hassey Dow K, Leigh S, Ly J, Gulasekaram P (1995) Quality of life in long-term cancer survivors. Oncol Nurs Forum 22:915-922
18. Ferrell BR, Dow KH, Grant M (1995) Measurement of the quality of life in cancer survivors. Qual Life Res 4:523-531
19. Fujimori M, Kobayakawa M, Nakaya N, Nagai K, Nishiwaki Y, Inagaki M, Uchitomi Y (2006) Psychometric properties of the Japanese version of the Quality of Life-Cancer Survivors Instrument. Qual Life Res 15:1633-1638
20. van Dis FW, Mols F, Vingerhoets Ad JJM, Ferrell B, van de Poll-Franse LV (2006) A validation study of the Dutch version of the Quality of Life-Cancer Survivor (QOL-CS) Questionnaire in a group of prostate cancer survivors. Qual Life Res 15:1607-1612
21. Avis NE, Smith KW, McGraw S, Smith RG, Petronis VM, Carver CS (2005) Assessing Quality of Life in Adult Cancer Survivors (QLACS). Qual Life Res 14:1007-1023
22. Avis NE, Ip E, Foley KL (2006) Evaluation of the Quality of Life in Adult Cancer Survivors (QLACS) scale for long-term cancer survivors in a sample of breast cancer survivors. Health Qua Life Outcomes 1:92
23. Baker F, Denniston M, Hann D, Gesme D, Reding DJ, Flynn T, Kennedy JS (2007) Factor structure and concurrent validity of the Satisfaction with Life Domains Scale for Cancer (SLDS-C). J Psychosoc Oncol 25:1-17
24. Baker F, Denniston M, Zabora JR, Marcellus D (2003) Cancer problems in living and quality of life after bone marrow transplantation. J Clin Psychol Medical Settings 10:27-34
25. Smith SK, Zimmerman S, Williams CS, Preisser JS, Clipp EC (2008) Post-traumatic stress outcomes in non-Hodgkin's lymphoma survivors. J Clin Oncol 26:934-941
26. Ferrell BR (1993) Overview of breast cancer: quality of life. Oncol Patient Care 15:7-8
27. Gotay CC, Korn EL, McCabe MS, Moore TD, Cheson BD (1992) Quality-of-life assessment in cancer treatment protocols: research issues in protocol development. J Natl Cancer Inst 84:575-579
28. Baker R, Curbow BA, Wingard JR (1992) Development of the satisfaction with life domains scale for cancer. J Psychosoc Oncol 70:75-90
29. Fayers PM, Machin D (2007) Quality of life: the assessment, analysis and interpretation of patient-reported outcomes (II edition). Wiley, Chichester
30. Lipscomb J, Gotay CC, Snyder C (eds) (2005) Outcomes assessment in cancer: measures, methods and applications. Cambridge University Press, Cambridge
31. Feuerstein M (2007) Defining cancer survivorship. J Cancer Surviv 1:5-7
32. Annunziata MA, Muzzatti B, Giovannini L, Bianchet K, Berretta M, Lleshi A, Tirelli U, Grassi L (2010) Defining cancer survivorship: clinical and research implications. PsychoOncol 19(s2):226-227
33. Cronbach L (1951) Coefficient alpha and the internal structure of test. Psychometrica 16:297-334
34. Pearce NJM, Sanson-Fisher R, Campbell HS (2008) Measuring quality of life in cancer survivors: a methodological review of existing scales. Psycho-Oncol 17:629-640